I have CFS. I have had it since 1984 when I caught what they then called the Asian Flu. I have had ups and downs.
I found three doctors in the past 5 years, who all recommended METAGENICS products.
They are high powered holistic antioxidants and vitamins and minerals. They have helped me.
Go to www.METAGENICS.com and first find a practioner near you. You can only buy them through the doctor. Then take a look at the products.
I use a number of things, but the ones specifically for CFS are:
Mitochondrial Rescusitate and Oxygenics. The RED GRAPE SKIN AND SEED is in both, and the OXYGENICS PUMPS UP THE MITOCHONDRIAL RESCUSITATE.
CFS caused a problem in the blood cells where they can not carry the oxygen. So it feels like we have the bends, like no oxygen is in the limbs. Yet when they test oxygen volume there is plenty. We just can't seem to use it. The products I am recommending help this particular phenomemon.
For me it is not in the joints, or muscles so much as the interconnective tissue around the joints. Like the arms and legs, and torso skin areas hurt. Still do, but not as bad, unless I really overdo it. I can walk longer, and have some life now!
If I do anything, that exercises the muscles, carrying, lifting, walking, sitting, standing for any length of time, LACTIC ACID builds up and with CFS people it doesn't go away so easily. It burns like runners burn. It can last for weeks! This gets better with the products.
To make matters worse, when the pain starts in, the brain gets foggy, and memory is a problem. Don't get mad at your boyfriend if he forgets things. It is not his fault!
The two products along with other ginkgo (NIKKEN)"mental clarity" type products, and lots of glucosomine, chondroiton and cetyl fatty acids, omega 3,6,9 etc really helps.
When pain kicks up, I use (NIKKEN) magnetic massagers, and it also helps. (You can give him a gentle massage...GENTLY!!! The Skin areas hurt!)
When the pain is strong I must take Excedrin or something, then all the world is better.
The worst part of CFS is the feeling that your body weighs 1000 pounds. They call it BONE TIRED FATIGUE.
It is not being tired and sleepy. It is not wanting to move anything, at all!
The METAGENICS products took that completely away. It took about
6 months to accomplish this, but I started feeling better in about
three days. I had that kind of fatigue for years, and it is now gone!
This is a disease, though, and not knowing the cause, it isn't being cured. If I stop taking the products, it will get worse again.
I still get pain, and deal with it. I get achey, and forgetful sometimes, but not as bad.... and work that out too. Everything is much better. That gives me hope!
I usually don't get depressed, unless something makes me really sad. That is normal. I refused to take drugs or antidepressants. I don't want side-effects or addictions, so I prefer the holistic products.
The best thing now is-- I actually get "sleepy". I never did before. I was tired and exhausted all the time and couldn't sleep! INSOMNIA! NO MORE INSOMNIA! NO MORE FEAR OF BEING TOO WORN OUT TO GO SOMEWHERE.
Now and then, I wake at night and can't fall back to sleep, but I get up and do something.... then I sleep again.
There has been so much improvement in the past 3 years, since I found these (and other) healthy products.
If you need any info, feel free to email me at SugarSugar723(at)yahoo.com.
Sometimes your boyfriend needs to know it is just OK to be who he is, however he is....
You just need to love him.
That goes a long way to help his emotional well-being, and to give him hope. HOPE IS MIRACULOUS!
MOST PEOPLE can get "better" from CFS. CURED? Maybe someday... But the quality of life can get better. MUCH BETTER!
I had EBV 3 times from 1960 through 1999. It didn't cause the CFS. CFS compromises the immune system and any virus that would be normally remain dormant can become active over and over. Some diseases mimic CFS symptoms, but really are other viruses. He should be tested for LYME. It is easier to control if you know what the cause is.
I didn't have LYME.
In my case everything was tested for, and ruled out. Most things were normal. For 10 years no one believed me. Now there are some physical markers.
I wish you both luck!
Post Edited (Sugarx2) : 6/16/2007 5:47:13 PM (GMT-6)