I have a question?????

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curley
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Date Joined Mar 2005
Total Posts : 4305
   Posted 6/15/2007 9:00 PM (GMT -7)   
I hope that every one is having a good week end.I have crohns and ra,oa,as,and sejerens and I stay so tired all of the time.It does not matter how much sleep that I get I still feel really tired and it is draining me of every thing.I can't continue this way does any one have any idears as to what I can do for the sever fatiqued (sp)?I am so wore out.Thank you evry one of you.

Post Edited By Moderator (hippimom2) : 11/9/2007 8:14:36 AM (GMT-7)


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 6/16/2007 6:57 AM (GMT -7)   
Curley, I think you asked the million dollar question that all of us are looking for the answer to. If someone could figure out how to relieve the fatigue we all suffer, life would be much easier.

I'm not sure what meds you are on but a couple of things come to mind. First of all, even if you sleep a lot, you may not be getting the quality of sleep you need. There are some meds that you can take at night that will get your body to those deep restorative sleep cycles. I recently started taking a low dose of amitriptyline at night and that has helped improve the quality of my sleep. Some docs will try a low dose of SSRI antidepressants to see if that helps with fatigue. Another med out there is Provigil that was originally given to people who had narcolepsy (I think), but now it's given for all kinds of reasons, but primarily to decrease fatigue. I've never tried Provigil and have heard mixed reviews from people here who have tried it.

You could talk to your doc about all of these options and also see if he/she has any ideas for you. I'm sorry you are going through this and believe me when I say I can really relate to what you are going through.

Hang in there and take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 7/6/2007 2:59 PM (GMT -7)   
Curley
you think the pg may also be part of this
i know with me it is ........just wondering

lyn
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Jp24
New Member


Date Joined Nov 2007
Total Posts : 2
   Posted 11/8/2007 7:30 PM (GMT -7)   
hippie mom,
 
I am on Provigil for about three months now. It worked when I first started taking it and I almost felt like I was alive again. However I did too much and I am paying for it. The Provigil does nothing when I am down. I finally went to a doctor on tuesday and was diagnosed with cfs. VIEW IMAGE

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 11/9/2007 8:13 AM (GMT -7)   
Hi Jp and welcome. I'm glad provigil has helped, but I think you are right that when you crash too hard, not a whole lot os going to help. I'm glad you were able to get a diagnosis. It's terrible to feel rotten and know you are sick, but to not have a name that goes with it.

I'm glad you joined us.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


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