Fibromyalgia & Chronic Fatigue Centers: has anyone been to one?

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zola
New Member


Date Joined Jun 2007
Total Posts : 14
   Posted 6/21/2007 3:39 PM (GMT -7)   
 
I was wondering what your experiences have been with this clinic? It's called the Fibromyalgia and Fatigue Center and they have offices all around the US

Post Edited (zola) : 6/21/2007 8:23:24 PM (GMT-6)


bionca
Regular Member


Date Joined Jun 2007
Total Posts : 106
   Posted 6/21/2007 3:45 PM (GMT -7)   
Years ago I was diagnosed with chronic fatigue syndrom and EBV. What is it you want to know?

zola
New Member


Date Joined Jun 2007
Total Posts : 14
   Posted 6/21/2007 4:08 PM (GMT -7)   
did you think they were thorough? did you like their approach to treatment?

bionca
Regular Member


Date Joined Jun 2007
Total Posts : 106
   Posted 6/21/2007 4:25 PM (GMT -7)   
Treatment isn't easy and it's going to take you a while. Finding the right anti depressant for you is extremely important, but the drug is just to help you get through the depression. I went into counseling for a long time, (years). Finding a reason just to fuction was rough, but you have to. Try to do something every day to make you happy, no matter how small, you have to. I'm pretty healthy now and I have a lot of energy.

twinofdar
Veteran Member


Date Joined Mar 2006
Total Posts : 1837
   Posted 6/24/2007 7:08 AM (GMT -7)   

These centers are as good as their Doctors.  Some centers are (dangerously) bad and some are good - depending on the Dr.  I was overdosed on hormones that I didn't need and my twin sister was overdosed on T3 to the level where her heart was beating so hard she could have had a heart attack.  She was never retested for her T3 levels in the 8 months she was at the FFC. When she was tested by her new Dr. she was three times over the normal range.

This same center misdiagnosed three different people that had Lyme Disease (even with positive Lyme tests) and they claim to be experts with Lyme.

The one in my state is very dangerous but I know of many people who do well in the other centers.  If you find a good one shop for their supplements on line as they are much cheaper.



twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 6/24/2007 2:24 PM (GMT -7)   

These centers have helped some people but they did not help me. They do not accept insurance and they are very expensive. I spent $12,000 in 9 months and was sicker when I left then before I started. They prescribe lots of supplements and hormones. They overdosed me on Thyroid T3. I was constantly sweating, nervous, losing tons of weight, heart pounding, fast heart rate etc and they just kept increasing the T3 without checking my blood levels.

Also I kept asking for a lyme test because my sister has lyme but they refused to give me one. So I finally switched drs. THe new doctor told me I was lucky I didn't have a stroke or heart attack because of the T3. And I do have lyme disease. So now I am on abx and am recovering from lyme disease.

I feel so much better now!!! The clinic not only made me sicker, but I spent my family's savings trying to get well. My new dr takes insurance and is much cheaper. There have been many others in the state I live in who have been misdiagnosed at the FFC center I went to. But I do know that some centers in other states seem to be much better because they have better doctors. But be prepared to spend a lot of money!!!!

 

 

 


zola
New Member


Date Joined Jun 2007
Total Posts : 14
   Posted 9/25/2007 8:39 PM (GMT -7)   
do you live in texas?
i got the lyme test right away and they constantly check me for symptoms of thyroid overdose.
yes, it's expensive.
how do you find a doc that treats cfs AND takes insurance?

Clay2
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 9/30/2007 10:58 AM (GMT -7)   
I went and paid about $3500 for the testing alone. My other doctors had no idea what to test for and kind of sneered at the idea of so much 'over testing'. The FFC tests found overlooked problems with thyroid, cortisol, yeast, ferritin and probably more. I declined their expensive treatments and went to a naturopath who takes my insurance. She has treated those problems. Her yeast treatment plan is vastly superior to MDs'. She found other food allergies that have helped, too.

They have a tendency to hand you overpriced supplements when are checking out and paying, including some the doctor never mentioned. Feel free to write down the ingredients of anything they recommend and buy it elsewhere for less. That the only thing I really hold against them.

Andrew59
New Member


Date Joined Oct 2006
Total Posts : 17
   Posted 10/1/2007 2:00 PM (GMT -7)   
Hi Zola. I've heard good and bad, even about the same FFC center. The problem is, people who comment on FFCs rarely mention their doctors' names. So it's impossible to figure out who has a good track record.

1grndchild2parents
New Member


Date Joined Oct 2007
Total Posts : 16
   Posted 10/7/2007 7:04 PM (GMT -7)   

I found that a Rheumatalogy Doctor was the way to go.  They deal every day with problems related to immune supression.  Any of the problems from arthritis to neutropenia are tended to by Rheumatoid Doctors.  Yes, the treatments used may take some changing of medication until you find the one that works the best with your body.  But, when you do, the relief is wonderful and the Fibromyliga can go into remission.  Yes, then there are flare-ups, but they are usually caused by stress, depression, not getting enough sleep or can be due to proper diet.  Ask your family care physician about Alltess Testing for Food Allergies or rotation diets.  They make alot of difference.  Sometimes the Rotation Diets can be boring, However; when you see how much better you feel, it is worth spending the time in the grocery and learning what trigger foods can due.

Hope this can help.  BnThereDnThat

 

nono sometimes I feel this little guy shaking its finger at me when I cheat, and boy I pay the price.

zola
New Member


Date Joined Jun 2007
Total Posts : 14
   Posted 10/17/2007 3:28 PM (GMT -7)   
thing is, chronic fatigue is caused by different things for different people.
rheumatology helps some, getting the right depression meds helps others.
so much depends on the doctor.
 
anyone know of a good one in dallas/plano/frisco?
 
I went to the good doctor list and there are two names. I'm going to try them out b/c the FFC is too expensive and my doc insists on all the supplements. So i cannot tell which ones work and which ones dont.
 
argh. I'm starting a new thread to ask q's specific to me. thanks
Diagnosed with Chronic Fatigue August 2007
Valtrex 3x a day
Fluconazole 1x a day
and trillions of supplements I decided not to take...

Post Edited (zola) : 10/24/2007 1:17:42 PM (GMT-6)

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