I found out what MY chronic fatigue was - maybe this will help you too

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New Member

Date Joined Jun 2007
Total Posts : 2
   Posted 6/26/2007 10:14 PM (GMT -6)   
Hello I've never posted here before but I remember not too long ago searching everywhere for answers. Because I finally got an answer that helped me, I'm trying to spread the word to help other people.
I was diagnosed with chronic fatigue syndrome after searching for answers for alomst 6 years. I was tired ALL the time, sleeping way too many hours a day. I would get lightheaded and I felt like couldn't think straight, like I had a foggy brain. I also had frequent head aches, muscle aches and blurred vision sometimes.
I was finally sent to a great doctor who changed the diagnosis from chronic fatigue to Neurally Mediated Hypotension. All of my blood tests came back normal, and my blood pressure was normal, until he took it while I was laying down. Then it was too low. Now I take a blood pressure medication (for me it helps to actually raise my blood pressure-instead of lowering it like we always here about) called Propranolol. I feel sooo much better with this medication.
I'm not saying this is going to help everyone, but if you have the same symptoms as I did it can't hurt to get it checked out. They can also do a tilt-table test to diagnosis for Neurally Mediated Hypotension.
Good luck!

Regular Member

Date Joined Feb 2007
Total Posts : 323
   Posted 6/27/2007 6:56 AM (GMT -6)   

I found out what my cfs was too. After 14 years of suffering, I found out I have lyme disease. I took an igenex western blot blood test and it came back positive. Now I am recovering. It's not easy, but I am getting better! I was told I had CFS and that I had to live with it. Now I am recovering and feel so much better!!

My advice to all of you CFS sufferers is this: Never let anyone tell you there is no treatment or that you cannot recover!! Keep looking for answers until you find what will help you. Rule out all possible cause until you find out what is wrong with you. I think most if not all cfs sufferers are misdiagnosed. When drs can't figure it out, they give us this diagnosis. Keep searching- there is hope!!


Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 6/27/2007 9:41 AM (GMT -6)   
Oregon, welcome and thank you for sharing this information with us - it very well might help someone. I do agree with twingirl about exhausting all possibilities of other diseases before getting a cfs diagnosis because the symptoms of cfs are present in so many illnesses. However, this disease is very real and often times it seems it is preceeded with EBV. I know that's what happened with me. I had gotten EBV and never fully recovered. Then, many years later I developed lupus on top of the CFS.

I do hope that everyone with CFS keeps looking for answers and doesn't give up hope of finding treatment that works.

Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Post Edited (hippimom2) : 6/27/2007 9:43:48 AM (GMT-6)

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