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stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 7/9/2007 10:22 AM (GMT -7)   
 hI. I WAS DIAGNOSED WITH jUVENILE  RHEUMATOID ARTHRITIS AS A CHILD. i ALSO HAD SCARLET FEVER AS A CHILD. i HAVE BEEN LIVING MY LIFE, NOW 32 YRS, THINKING i HAD ARTHRITIS. i WENT TO SEE A rHEUMATOLOGIST AS WAS TOLD i OUT GREW MY ARTHRI***. i AHVE HAD SO MUCH BLOOD WORK DONE AND IT IS ALL NORMAL.NO LYMES, OR ANYTHNG confused i AM CHRONICALLY FATIGUED, HAVE SORE MUSCLES AND JOINTTS, NUMB FEET AT TIMES WHICH CANT GAUGE TEMP. CORRECTLY IN THE BATH, EXCESSIVE THIRST, MEMORY AND WORD LOSS. i CANT KEEP ANY TYPE OF ROUTINE BECUASE i AM ALWAYS SLEEPING. i HAVE AN APPOINTMENT TO SEE A SLEEP DISORDER DOCTOR, WHICH WILL COST SO MUCH. i REALLY DONT THINK i HAVE A SLEEPING DISORDER THAT IS CAUSING THE FATIGUE. i AM NOW STARTING TO QUESTION MYSELF AS IF THIS IS ALL IN MY HEAD. i FEEL REALLY CONFUSED. sHOULD i JUST GET A DOCTOR TO PRESCRBE ME SOMETHING TO KEEP ME AWAKE? iS THE SLEEP STUDY COMPLETELY NECESSARY? aRE THESE SYMPTOMS COMMON AMONG OTHER PEOPLE AND i JUST REACT WEAKLY? i AM REALLY CONFUSED. pLEASE TELL ME WHAT YOU THINK.

twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 7/9/2007 12:02 PM (GMT -7)   
This really sounds like Lyme disease. Especially the jouvinile arthritis. All your symptoms are major lyme symptoms. Many doctors don't understand lyme or know how to test and interpret the test. Did you have an ignenex test? I would suggest finding another doctor who is knowledgeable about lyme (LLMD) and have more accurate testing done.
 
Good luck to you. you really need some answers!!

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/10/2007 7:14 PM (GMT -7)   
stutterbug, there could be any number of things going on, especially since you had juvenile arthritis and scarlet fever. My 9 yr old son has had arthritis for 2 years now and it took a long time to pin point the type of arthritis he has. Through all the many many tests, it was discovered that he was getting repeated strep infections without the usual symptoms, resulting in high levels of strep antibodies. I'm guessing he had a lot of strep infections that we never knew about because he rarely gets a sore throat with strep. So several docs put their heads together and and figured out he has a reactive arthritis to all of the strep and possibly had rheumatic fever. He also had scarlet fever at an early age. Right now he's on long term antibiotic threatment, but I'm guessing that he will be susceptible to arthritis throughout his life, especially whenever he would get a strep infection. I'm telling you all of this because it sounds a lot like what you went through as a child.

My understanding is that some people do grow out of juvenile arthritis, but for some, the arthritis can come back. I definitley don't think this is in your head and the docs shouldn't think that either, especially with your health history. It might help if you posted some of your questions in the arthritis forum if you haven't already - some of the people there have had juvenile arthritis.

I really hope you get some answers soon. There's nothing worse than knowing something is wrong, but docs can't figure out what it is. Take care and keep us updated.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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Lymeblue
Regular Member


Date Joined Jun 2007
Total Posts : 24
   Posted 7/25/2007 4:51 PM (GMT -7)   
 
Remember  Lyme Disease bloodwork is unreliable  and you do have many clinical symptoms.
You might like to read more about it.
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