New - Please Help - Lots of problem, Fatigue, Dysuatonomia, Costoc, Maybe HIV.

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New Member

Date Joined Aug 2007
Total Posts : 10
   Posted 8/14/2007 3:00 AM (GMT -6)   
I have CFIDS....According to my Doc, since 4 years ago, I was invovled in protected sex and unprotected oral sex....during that time, I believe i got HHv 6 and CMV.... and bunch a other stuff like mycoplasma etc...Anyways, I was scared and I thought I had HIV, my test was done at 2 week, 4 weeks, 3 months, 6 months all neg... 12 month elisa + but WB was Absence ( Doc says it was negative ) never tested again.

Ever since than, I have delovepd Chronic Fatigue, Dysautonomia, Costo, Pain in leg, hand, suddent lymph pain, dizzyness, not feeling well, lack of motivation, lack of consintration (sp), not in the mood, mood swings, tolerance to workout, muscle weakness, finger pain, and much more.

Til now, i have beeing suffering from all this...Sometimes, I feel I can't breath, and I have to relax myself and breath from my stomach, before I can breath properly for a while..... This was dysautonomia.

My doctors are clueless now....

Do you guys think, that my symptomes started because of CMV, HHV 6....... such as fatigue, and Dysautonomia and Costo. ?

How do you treat it and cure it if possible ?

Recently, I had a hand job from a massage lady and I came down with pelvic pain, leg pain, burning leg pain, urine problem, burning urination. My doc says, u cant get StD this way,but it burns, and all he gave me was pain medicine telling me that my Urthera must be irritated.

Should I worry about HIV and Other STD ?

What have I done...

Please help , any advice will help.


Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 8/14/2007 9:40 AM (GMT -6)   
Hi golaka and welcome. I'm sorry that you are going through all of this and docs are having a hard time figuring out what is causing your symptoms. I don't know a lot about the things you posted, but what I know about CFIDS is that is is often times sparked by a virus such as EBV, but I suppose if the things you mentioned are viruses, they could have caused your CFIDS. There is really no cure for CFIDS, just things to manage symptoms.

I'm wondering if you are also experiencing some depression and/or anxiety. A lot of people with CFIDS and other chronic illness have depression and anxiety - it is very common. There are meds that can help with that and sometimes these meds also help to decrease some of the cfs symptoms.

The people on the AIDS forum will better be able to answer your questions about HIV/AIDS and your fears about that.

I'm sorry I can't be of more help. Let me know if you have any other questions. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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