Rheumy appointment on Monday -

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4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 9/12/2007 4:54 AM (GMT -7)   
My journey with this all began four years ago with my first bout of what I believe is CFS. Then two years later. Both times in happened in the spring/summer/early fall and I was able to continue teaching. THIS time it happened in July and is still here. I am on medical leave now. I have a bunch of CRAZY symptoms including: total exhaustion, tingling/burning/numbness in my feet/hands/arms/lower legs at times, low grade fevers in the afternoon, no short term memory or ability to concentrate. At the beginning of each episode I had a sore throat and swollen glands. I don't have: Lyme's Disease, HIV, Lupus, or RA. I've had x-rays and MRIs of my knees, neck, hips, and spine. Other than sings of aging (I'm 52) everything is fine. My sed rate is low but my billirubin is slightly high 1.67 (upper limit of the range is 1.3). I had a liver ultrasound last week and am awaiting results. I've seen a GP and a neurologist. I see a rheumy on Monday. The GP thinks it's fibro but I just don't have the pain! My joints ache randomly and I'm stiff in the mornings, but I am not at all tender to the touch.

In any event, please think good thoughts for me. I'm eager to TRY and begin to get a diagnosis, but I'm also scared.

Are any of you out there single and depend on yourself financially? This is what scares me the most ... loss of a good full time job and benefits.

Thanks for any light you can shed!

Ruth
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/12/2007 9:20 AM (GMT -7)   
Ruth, I am really hoping the rheumy can help you shed some light as to what is going on and what is causing your symptoms. So many of these illnesses can be hard to diagnose because they all share so many of the same symptoms. Let us know what you find out.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 9/12/2007 1:39 PM (GMT -7)   
Thanks ... I'm certainly hoping someone can help me figure out what's going on!
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 9/17/2007 6:44 PM (GMT -7)   
Well, it's officially official. I have Chronic Fatigue Syndrome. Is there ANY way to make the tingling/numbness go away? It drives me NUTS.
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/18/2007 6:28 AM (GMT -7)   
Ruth, at least you have a diagnosis to work with. Did the rheumy have any ideas for you for the tingling/numbness? I have had some burning and tingling in my feet and hands and neurontin has helped with that. Neurontin is an anti-seizure med, but is used for lots of other things including peripheral neuropathy and restless leg syndrome and other kinds of pain. I would think your doc would be able to try something that might help.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


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