Re pain due to ulcer!

how to get rid of pain!
1
chope the part of your body thats in pain - 14.3%
2
take pain killers - 28.6%
0
have a tens machine - 0.0%
1
do nothing put up with the pain - 14.3%
3
see a doctor - 42.9%
0
do some thing else - 0.0%

 
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lexie6969
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 12/30/2007 8:21 AM (GMT -7)   
I have had an ulcer for the past 5 years mad   but its only been in the last year i have had some extrem pain in my leg! I am on for the pain solphadol,gabapentin, amatryptolyne, temgisic, and a tens machine as and when needed. I am still in loads of pain after i have taken these tablets but my doctor will not give me any thing stronger, there are times i just sit on the bed and rock to try and get rid of the pain. Every time i take a big breath i get a cold shiver and then loads of pain in my leg going down to my wound. My wound is 10cm x 10cms big and about 1-3cms deep. I cry so much when im in pain, but dont let my kids see me. Im just wondering if any one else has had what i have had and got a goodd pain killer if so could you please let me know.
Many thanks
Lexie :-)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 12/30/2007 4:36 PM (GMT -7)   
Hi, Lexie, and welcome to the chronic pain forum.  I'm so sorry you are having such pain!  Are  you talking about having a stomach ulcer or another type?  It almost sounds like sciatica pain to me instead of an ulcer.  I'm just guessing but, since you get the pain when you take a deep breath, it almost sounds like a pinched nerve.  That's a pretty miserable feeling.  What is the wound on your leg from?  Is that an ulceration, too?  I'm just a little confused as to what you are trying to describe.  Have you tried any pain clinics in your area?  Maybe you could get more help with your pain.  I know how some doctors can be about the stronger pain medications.  I'm usually over in the fibromyalgia forum and I have had a problem with severe pain and I had to keep after my doctor before he finally relented.  Maybe your doctor would take you off the things that aren't helping you and try something that may do the trick.  You just need to persistant and keep searching.  No one should be in that much pain.  I hope you have a restful evening.
 
Sherrine 


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 12/30/2007 4:43:30 PM (GMT-7)


TTRN
Regular Member


Date Joined Sep 2007
Total Posts : 146
   Posted 12/30/2007 8:45 PM (GMT -7)   
Lexie, is the wound healing or chronic? Have you ever tried hyperbaric tx? The nerve endings are stimulated it sounds like and then causes the pain,I wish you luck in getting the proper tx Toni
Life is never the way it is supposed to be. It just is. Its the way we cope with it that makes the difference.


lexie6969
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 12/31/2007 1:13 AM (GMT -7)   
Hi Sherrine,

I have a leg ulcer and have had a leg ulcer for 5 years now. I think the pain im getting is nerve pain in the leg. Im a diabetic so healing for me is very hard, i keep getting cellulitus as well which makes my leg ulcer even more painful, i think i have had about 70 different times of having cellulitus, cellulitus is the thing that keeps my leg ulcer open, and that itself is a very painful thing to have.
Thank you for your reply to me, oh yes i have been to the pain clinic and they told me to use the tens machine which is what i am using as well as all the tablets.
Lexie

lexie6969
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 12/31/2007 1:19 AM (GMT -7)   
Hi Toni,

What do you mean by healing or chronic? my leg ulcer healed for about 3 months then it reopened up when i had another bout of cellulitus, it has now reopened and it measures 12cm x12cm now. I have never tryed hyperbaric tx, could you tell me what this is please.
Thank you for taking the time to reply to me
Lexie

razzle51
Veteran Member


Date Joined Jan 2005
Total Posts : 763
   Posted 12/31/2007 5:54 AM (GMT -7)   
Like your poll says ( SEE A DR.ASAP )
Syringomyelia T4-T10
Chiari Malformation
Decompression Surgery 1999
 
"Life isn't about waiting for the storm to pass. It's about learning to dance in
the rain."
 

 
 
 



lexie6969
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 12/31/2007 6:10 AM (GMT -7)   

 

I have but im getting no joy with him i even swapped GP surgerys!

Sorry you seem so angry when telling me this, dont you think i have tryed every thing going! Thats why i have come on here to see if any one else has the same problem as me. Sorry again maybe i should not have tryed to get help here.

razzle51 said...
Like your poll says ( SEE A DR.ASAP )


TTRN
Regular Member


Date Joined Sep 2007
Total Posts : 146
   Posted 12/31/2007 7:27 AM (GMT -7)   
Hi lexie, The hyperbaric therapy is used for divers to treat them when they have been diving to long and need to get rid of the co2 I think. Anyway they use this also for wound healing. It has good result. Chronic means it nevers gets well and you always have it,sounds like your case. I would look for a wound management clinic or ask your dr about the hyperbaric. Good Luck Toni
Life is never the way it is supposed to be. It just is. Its the way we cope with it that makes the difference.


lexie6969
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 12/31/2007 8:17 AM (GMT -7)   

 

Hi TTRN

Thank you so much for getting back to me. Thank you also for explaining this to me. Yes i think i have a Chronic ulcer as i said i have had this for 5 years with a 3-4 month of this closing up, then after another infection of cellulitus it reopened and it is now very big 12cm x 12cms. So i think i may have it.  I will certainly as my skin viability nurse about this hyperbaric and see what she says about it. I know she is after me going into 4 layer bandage, but because they could not do a dopla on me i dont know what they are going to do.

Many thanks again for explaining this to me, take care and a very happy new year to you.

 

Lexie

TTRN said...
Hi lexie, The hyperbaric therapy is used for divers to treat them when they have been diving to long and need to get rid of the co2 I think. Anyway they use this also for wound healing. It has good result. Chronic means it nevers gets well and you always have it,sounds like your case. I would look for a wound management clinic or ask your dr about the hyperbaric. Good Luck Toni


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 12/31/2007 8:32 AM (GMT -7)   

Oh, Lexie, that sounds so painful.  I wish I knew what to suggest.  Toni's suggestion is good.  I will try to do a little research and get back to you on other options for you.  You did come to the right place.  HealingWell forums are terrific and there are a lot of wonderful, caring people who do try to help.  I really don't think Razzle meant to be flip.  They probably think you really should see another doctor, but, from what you said, you've see a lot of them.  But, do not stop looking.  You have to be your own advocate in these situations.  Keep searching until you find a doctor that CAN help you!

Meanwhile, I'll see if I can find anything out.  Hang in there, Lexie.  We're here to help!

Sherrine 


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/31/2007 8:36 AM (GMT -7)   
HI there
I use Pain meds and ALSO techniques to help me with the pain such as CBT ,relaxation and others

NO one needs to be left in Pain IMHO...and with the ulcers like sores you are taling about I kinda have a clue as I have Pyoderma Gangrenosum which eats my skin from inside out to the bone
I almost lost a leg and fingers to this


I take Oxycontin but have weaned down 20 mgs daily ( yahoo) and I also take breakthru pain meds if needed.........
Mostly I just try to take the meds do the tech's and carry on even if in some pain I have to exist and be able to function ya know
Wishing you all the best in 2008
    Contribute today to support Healing Well Forums...Donate @
                          http://www.healingwell.com/donate/
 
 Moderator for Anxiety/Panic
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 Co Mod for Crohns
 
 DX with Crohns ...Pyoderma Gangrenosum ..Anxiety /Panic.....
 TOO many meds to Post 
 
           Wishing all a Better and Healthier New Year in 2008  
 
        We have Anxiety ..Anxiety Does NOT have US........FIGHT
 
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lexie6969
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 12/31/2007 8:44 AM (GMT -7)   
 
Hi Sherrine,
Thank you so much for your kind words, for a moment there i thought i should not have come here and asked, i must admit i did have a little cry when razzle51 said that to me. You dont know how many times i have seen people and they have not helped me. I have been told that tea tree oil is spose to help with ulcers, but from what im told we are not allowed to use it over here at the moment its only licenced to be used in the usa. So i dont want to use it incase it makes the pain more unbarable and i have a reaction to it. The pain im having is like having glass put into my leg and when i breath i get a horrible pain down my ulcer leg the other one is ok. I have had alot of reactions to things being put on my leg so i have to be very careful, my skin is like very thin paper so any knocks and i tear my skin.
Just wanted to say thank you again for your kind words, and at least i know i might be able to get some good advice, i am going to see about this hyperbaric tx, to see if any thing can be done there. I look forward to hearing from you again.
Thank you again
Lexie
Sherrine said...

Oh, Lexie, that sounds so painful.  I wish I knew what to suggest.  Toni's suggestion is good.  I will try to do a little research and get back to you on other options for you.  You did come to the right place.  HealingWell forums are terrific and there are a lot of wonderful, caring people who do try to help.  I really don't think Razzle meant to be flip.  They probably think you really should see another doctor, but, from what you said, you've see a lot of them.  But, do not stop looking.  You have to be your own advocate in these situations.  Keep searching until you find a doctor that CAN help you!

Meanwhile, I'll see if I can find anything out.  Hang in there, Lexie.  We're here to help!

Sherrine 



Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 12/31/2007 9:12 AM (GMT -7)   

Hi, again, Lexie!  Well, I did a little searching and found a few interesting sites that I have shared below.  One mentions mild exercise and keeping the leg elevated and that it helps with the healing.  Also, some say it's good to use support stockings.  I only use sites that are generally by the National Institute of Health.  I do not go along with some of the "health" sites since many always seem to have that magical cure! ;-)  I also have a site on diabetic neuropathy.  Lastly, there was a site about using horse chestnuts and it was by the National Institute of Health!  I was surprised. 

I definitely would discuss anything you intend to try with your doctor before  you go ahead and try it.  You want to do safe things.  I know I try many different things because I suffer from fibromyalgia and nothing works really great for that either.  But, if I plan on trying something, after I've researched it thoroughly, I'll talk to my doctor first.  He thinks I'm crazy, but, hey, what has HE offered me!  tongue    Anyway, I hope this helps you and may give you a few more ideas.  Let me know what type of ulcer you have.  I didn't know there were different types until I started searching.  If I know that, I may be able to find some more stuff for you to read.  Meanwhile, happy reading and and a Happy New Year!

 http://www.ncbi.nlm.nih.gov/sites/entrez?db=pubmed&uid=15009338&cmd=showdetailview&indexed=google

http://gateway.nlm.nih.gov/MeetingAbstracts/102222637.html

http://www.nlm.nih.gov/medlineplus/ency/article/000834.htm

http://diabetes.niddk.nih.gov/dm/pubs/neuropathies/

http://nccam.nih.gov/health/horsechestnut/

Sherrine



Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


lexie6969
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 12/31/2007 10:08 AM (GMT -7)   
Hi Sherrine,

Thank you so much for doing some research for me! i have looked at the sites and found that the site for:http://diabetes.niddk.nih.gov/dm/pubs/neuropathies/ was very very interesting. It looks like i have got the Peripheral Neuropathy as i have the ulcer in my leg and i have the pain and tingleing, pins and needles, in my leg. I wish i had your rmail address as then i would send you a pic of my ulcer and maybe then you would be able to see and help me out more. I have been on bed rest on and off for the past 5 years and to tell you the truth it gets so boring and then you start to hurt in other places as you cant get up and move around. I was going to have some support stockings but i tryed to have a dopla done and they could not do it as it felt like they were putting crushed glass in my leg. So we had to abandon that. They can not do the 4 layer bandaging as they need to see how the blood is running to and from my leg and they could not get a result on that.
I thought it was better to come to a site like this as im not sure what i am looking for and was hoping to find some one to help me out here, and so far you have been very helpful. Thank you!
Yes i am a diabetic im on insulin once a night and tablets and diet too. Im going to be going on a insulin that i give myself twice a day and it will make me feel full up so i dont eat much, but to tell you the truth i dont eat alot now, but going to give any thing a go.
Many thanks again
Mandy

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 12/31/2007 11:28 AM (GMT -7)   

Hi, Mandy!  I will try to search out ulcers caused by diabetic neuropathy but I'm going out this evening plus I'm in the middle of packing for a vacation!  But, I have some exercises you could do that could help your circulation.  These are suggested when traveling to help prevent deep vein thrombosis.  It keeps your circulation going and just might be very helpful to you.  I still would elevate the leg whenever you are sitting and lying down and also would walk as often as possible, if your doctor says it's alright.  Walking is one of the best forms of exercise a person can do and it doesn't cost a thing!  yeah    Hope these exercises help you.

Sherrine

SEATED EXERCISES:

1.)  Ankle Circles:  Lift  your feet off the floor and twirl your feet as if you're drawing circles with your toes.  Continue this for 15 seconds, then reverse direction.  Repeat as desired.

2.)  Foot Pumps:  Keep your heels on the floor and lift the front of your feet toward you as high as possible.  Hold for a second or two, then flatten your feet and lift your heels as high as possible, keeping the balls of your feet on the floor.  Continue for 30 seconds, and repeat as desired.

3.)  Knee Lifts:  Keeping your leg bent, lift your knee up to your chest.  Bring back to normal position and repeat with your other leg.  Repeat 20 to 30 times for each leg.

4.)  Shoulder Roll:  Lift your shoulders upward, then pull them backward, downward, and forward, creating a gentle circular motion.  Continue for 30 seconds.  Then reverse direction if desired.

5.)  Arm Curl:  Start with arms on chair rests, bent at a 90-degree angle.  Raise one hand up to your chest and back down.  Alternate hands and contunue for 30 seconds.  Repeat as desired.

SEATED STRETCHES

1.)  Knee to Chest:  With both hands clasped around your right knee, bend forward slightly and pull your knee to your chest.  Hold the stretch for 15 seconds; then slowly let  your knee down.  Repeat the same stretch with your left knee.  Perform 10 stretches for each leg.

2.)  Forward Flex:  Keep both feet on the floor and slowly bend forward, reaching for your ankles.  Hold the stretch for 15 seconds and slowly return to a normal seated position.

3.)  Overhead Stretch:  Raise both hands straight up over your head.  Use one hand to grab the wrist of the opposite hand and gently pull to one side.  Hold the stretch for 15 seconds, and repeat with the other arm.

4.)  Shoulder Stretch:  Bring your right hand over your left shoulder.  Then place your left hand behind your right elbow and gently pull your elbow toward your body.  Hold the stretch for 15 seconds and repeat with the other arm.

5.)  Neck Roll:  Relax your neck and shoulders.  Then drop your right ear to your right shoulder and gently roll your head forward and to the other side, holding each position about 5 seconds.  Repeat 5 times.


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


lexie6969
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 12/31/2007 12:52 PM (GMT -7)   

 

Hi Bonnie,

I am so sorry you are having pain in your neck, do you know whats the problem with it? Is there nothing else you can do or take? i feel sorry for you as i have chronic pain 24 hours a day even though im on pain relief it only takes it away a little bit. I have asked for my leg to be chopped off but they will not do it 1) i might not come round the anisthetic 2) the healing of my wound might not heal as im a carrier of the MRSA bug.

Thank you for your welcome, i have had had some nice people contacting me, just one person who made me feel a little uncomfortable. Well i aint heard from that person again so i dont know if they read my comment or not.

Happy New Year to you as well maybe we can chat again if you wish.

Take care and hope your pain is not too bad for you.

Mandy

gagabonnie said...
I voted to chop off the offending painfull part. I really would not do that.

I often feel that way however.

My pain is in my neck and that cannot be replaced.

I tried to vote again and cannot.

I have tried everything I can and can now only continue with what I have and get on with my life as it now is.

Welcome Lexie to the Chronic Pain forum. I hope you find this a good place to pull up your chair and rest.

The folks here are all wonderfull and very helpfull. You can ask anything and usually get really good responses.

Good to see you Sherrine, Did Chutz go away??

Have a Happy New Year everyone. I hope this next year is better and is less painfull for all of you.

Bonnie

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 12/31/2007 1:55 PM (GMT -7)   

Mandy, I tried doing another search and didn't come up with anything more than what I suggested.  But I wanted to tell you about something I have used in the past.  I developed an open ulcer-type wound on my abdomen a few years ago.  (I'm also diabetic and have Crohn's disease so this was a concern for me.)  I was traveling and not using my regular soap.  (I use Dial for the antibacterial purposes.)  Anyway, when I went to the doctor, they weren't sure what was causing it.  They prescribed a cream called SSD (Silver Sulfadiazine Cream) and I used it on the area and it did heal the open wound!  This cream is usually used for burn patients but my doctor tried it on me.  It is very expensive but my prescription plan covered much of it. 

I still will get some rawness and splitting of skin in areas on my abdomen and I use Desitin Diaper Cream and it heals right up!  I have Crohn's disease and lost my colon due to it.  So I have developed some minor problems because of that and because I develped a huge inoperable peristomal hernia.

Anyway, these products are worth asking your doctor about next time.  The Desitin might work on something that is just starting to happen.  Check it out with your doctor first.  Best of luck and let us know how you are doing.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


lexie6969
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 12/31/2007 2:35 PM (GMT -7)   

 

Hi Sherrine,

Thanks for your message. I have tryed a silver which was called "Acticoat Absorbent" it was like a felt that you put into the hole of my ulcer, this was very exsepensive as well  luckly i get my perscriptions free. This had to stay into my wound for about 3-4 days and then when we took it out it smelt like rotten flesh it was horrible. But now im using a gel called "Actiform cool" this is taking all the sluff out of my wound and it does cool it down a little but stings like mad when you put it on. So at the moment we are trying this but i will have a word with my gp or my tissue viability nurse and see what they say about the cream. Thank you.

Forgive me i dont know what crohn's disease is, i have heard of it but i dont know what it is sorry. Im not going to say i feel sorry for you because if your like me you dont like any one feeling sorry for you. (I hope i have that right forgive me if im wrong in saying that) I dont know what the colon does in the body, so if its ok with you could you tell me please.

Many thanks again for your kindness

Mandy

Sherrine said...

Mandy, I tried doing another search and didn't come up with anything more than what I suggested.  But I wanted to tell you about something I have used in the past.  I developed an open ulcer-type wound on my abdomen a few years ago.  (I'm also diabetic and have Crohn's disease so this was a concern for me.)  I was traveling and not using my regular soap.  (I use Dial for the antibacterial purposes.)  Anyway, when I went to the doctor, they weren't sure what was causing it.  They prescribed a cream called SSD (Silver Sulfadiazine Cream) and I used it on the area and it did heal the open wound!  This cream is usually used for burn patients but my doctor tried it on me.  It is very expensive but my prescription plan covered much of it. 

I still will get some rawness and splitting of skin in areas on my abdomen and I use Desitin Diaper Cream and it heals right up!  I have Crohn's disease and lost my colon due to it.  So I have developed some minor problems because of that and because I develped a huge inoperable peristomal hernia.

Anyway, these products are worth asking your doctor about next time.  The Desitin might work on something that is just starting to happen.  Check it out with your doctor first.  Best of luck and let us know how you are doing.

Sherrine



Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 1/1/2008 8:54 AM (GMT -7)   
Hi, Mandy!  I don't mind telling you about Crohn's.  It's a disease where you can have inflammation and/or ulcers anywhere in your digestive tract...from your mouth on down.  Crohn's can cause other problems but this is the very basic explanation.  The colon is the large intestine and one of it's main purposes is to take the fluid out of the foods  you eat.  Because I don't have a large intestine now, I have to wear an appliance outside my body to "catch" the waste.
 
I hope you do remember to ask your doctor about the cream.  It is a thick ointment...like diaper cream.  You don't use a ton of it...just a thin layer of it.  Maybe putting it around the outer edge of the ulcer and slowly moving it toward the middle would help the ulcer heal too.  I'm just guessing, though.  Your doctor will know.
 
Mandy, also, please don't put a box around the responses and stick them in your post.  It takes a lot of space from the host computer and we have so many forums on HealingWell!  That will help keep space open for us.  I can always scroll down and see what you are referring to.  Thanks, and I hope you have a much, much better New Year!
 
Sherrine    
 
 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


lexie6969
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 1/1/2008 11:14 AM (GMT -7)   
Hi Sherrine,
Thank you for telling me what crohns is as i said i have heard of it but did not know what it was, so thank you for explaining it to me. Is the appliance out side your body is that a colostomy bag? Just when i was watching a certain TV programme this woman had to wear one and wondered if it was the same for you. You must be in a lot of pain inside your body and i spose i aint got much to complain about with having just an ulcer on the outside of my leg. I hope you dont get too much pain.

I am seeing my tissue viability nurse next tuesday so i can bring the cream up then. If you dont mind where in the world are you? If your in the USA you get things over there which we are not licenced to use, its silly i know. I have been told that tea tree oil is great for ulcers but if i use it and i have a reaction to it then i could get told off.

Do you mean me not doing the"quote this post" Have i done it right this time by just doing a new message? Im new to this so if im doing some thing wrong then its nice that some one could tell me so i dont get into trouble and get told off. A question if its ok to ask another one "How do i get rid of the poll at the top of this page" i would like to get rid of it if possible.

I hope you had a great time last night with you going out, my son and myself stayed in hes 14 and has "Aspergers Syndrome" so hes alot of hard work too. Any way hope your ok and not in too much pain thank you so much for answering my questions as i always told my children "if you dont ask you will never know" that way i think that instead of staring at some one you know what the problem is.

Hope to hear from you soon

Mandy

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 1/1/2008 11:46 AM (GMT -7)   
Mandy, the appliance is like a colostomy bag except it's attached to a different part of intestine.  I don't have pain from it now and it has been a very good thing for me.  Thank you for asking, though.
 
Yes, you got rid of the box now.  Thanks!  I don't think you can get rid of the poll though.  Just ignore it.  It's no big deal.
 
I live in Florida in the USA.  I'm guessing that you are from England.  Am I right?  The cream is a prescription so you probably have it, or something like it, where you live.  It is used for burn victims so it is probably available.  At least I hope so.  I can see where tree oil could be a problem getting.  It's more a "health food" thing and, over here, things like that aren't tested and regulated.  That may be why we can get it here.  You really have to do a lot of research to use things like that because some of it can be harmful or may interact with medications that you are taking.
 
I hope you get some good help soon and that ulcer will clear up.  Have you tried the stretching exercises yet?  I posted them on the fibromyalgia forum and one of the members tried them and really likes them.  She said she felt a lot better after doing them.  Feel better soon.
 
Sherrine      
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


lexie6969
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 1/1/2008 12:21 PM (GMT -7)   
Hi, i thought it was some thing like a colostomy bag i have never seen one but i have heard some thing like that does take away all the waste and poisons in your body. Im so so glad you dont get pain, but im sure in the past you have had terrible pain so you know what its like.

Glad im doing this wright now lol, you can only learn from other people and get it right cant you!

Yes im in the UK a little place called wiltshire, i thought when you were saying about Silver Sulfadiazine Cream, im not sure if we could get it, im wondering if its like a cream called "Flamazine" we use this cream over her for burns victims, and i think i have had it put on my ulcer but it did not do any good, nothing seems to work for me, if any thing i get loads of reactions to new things and it puts me back a step! at the momen as i said im using "Actiform cool" gel, with gauze on the top of that, then a Mesorb pad with Tubifast holding it all in place which i have to change every 1/2 to one hour 24 hours of the day. I dont get no help only to go and see the nurse once a week, and to be honest im glad i can do it like that, i know how my pain is and i know how to put things on my leg. At the moment i have the TENS machine on my leg as the pain is very intence again. I looked up my pain killer "Temgisic" and i was suprised to see it is a form of heroin. Dont know if its true or not.

Yes i have been doing some of the excersies, but must admit they hurt me doing them, but i do keep on and hope the pain will ease. i do a bit of walking round the house, but going out shopping i need a wheelchair or a mobility scooter to help me get round. But i will keep on with the excersies and hope it will help. Thank you for them!

Mandy

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 1/1/2008 12:51 PM (GMT -7)   
Mandy, I'm glad that you are doing the exercises.  I don't see how these could possibly hurt you.  From what you posted, it looked to me like you weren't doing any exercise or much walking either.  That is very bad for you.  It will only weaken your muscles and you will be able to do less and less.  You don't want to give up your life like that.  I know that when I start new exercises I'll hurt more but, as I continue to do them, my strength builds up and my muscles get used to the exercise and get stronger and hurt less.  These are supposed to help with circulation of the blood and that, from what I read, is part of  your problem.  Hopefully this will help and will help with the healing of your ulcer.  You want to stay strong.
 
It sounds like you really have a lot going on, with your son and with  your health problems.  I'm so sorry you are having such difficulty.  I hope you can get some help.  Just keep looking and asking for help too.  Never give up on your quest for a healthier life. 
 
Mandy, I'm usually not in the Chronic Pain forum.  I've been here to help Chutz over the holiday but will be back spending most of my time in the fibromyalgia forum.  Consequently, I won't see other posts you make but I'll see the posts from this thread because I marked it so I would be notified if anyone posts.  I know Chutz, the forum moderator here, will help you a lot, along with the other members.  She is a real sweetheart!  Plus, she knows more about the issues in this forum.  But, if you ever want to contact me, or want to ask me more questions, please don't hesitate.  You can reach me by just clicking on my name from this post, and my profile will come up.  My email address is in my profile.  Also, you can reach me through the fibromyalgia forum, too.  I'm usually around getting into mischief!  ;-)  So, don't think I've disappeared.   I'm interested in what happens with you and if you get help.  Take care of yourself! 
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 1/1/2008 1:03:01 PM (GMT-7)


lexie6969
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 1/1/2008 1:33 PM (GMT -7)   
Sherrine,

Thank you for your last message. I have sent you an email but i dont know if you have it or not. I would like to keep in touch with you if you will have me as a friend, because i dont get out much its so nice to have friends on here to chat to.

To be honest with you i think i have given up, i have had a lot of things happening to me including my mum passing away 2 years this Feb 23rd. She was my rock, she was like my other half, (Im a single parent) she helped me with my son and also with money, she always said that i was her special baby me being the youngest in the family. When she dies she said alot of nasty things to me and ever since then i have wanted to join her, so i would be out of pain. I cry every day for her, so trying to build my self up with having so much pain is so very very hard.

Any way i hope that i can be your friend and email you and keep in touch.

Thank you and take care

Mandy

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 1/1/2008 1:38 PM (GMT -7)   
Mandy, I got your email that you sent me.  I responded and hope you got my response.  I have never had anyone email me at that address before so I'm learning too!  yeah    Let me know if you get the email. 
 
I'll try to help  you all I can.  You must never give up, though.  You've got a lot of living to do.  You've got  your son, too, to think about.  Just take one day at a time and you will surprise yourself as to what you can accomplish!
 
Take care and feel better soon!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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