Constant Pain and NO ANSWERS---anyone want to listen/help?

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hopeisreal
Regular Member


Date Joined Sep 2007
Total Posts : 345
   Posted 1/1/2008 12:29 PM (GMT -7)   
This has been going on for 7+ months!
 
My pain is in my upper RIGHT quadrant:
 
*pain under my shoulder blade
*pain in my neck (down my shoulder) to my arm
*pain on the right side of my head, and acros my forehead
*pain under my arm pit (going toward my shoulder blade)
*RIGHT arm is numb and SORE all of the time--especially UNDER the arm (tricep)--
*RIGHT hand goes numb and gets Super COLD---while I am gripping (like my sterring wheel, phone, computer mouse, typing (like now)), fingers start to turn purple
*My RIGHT arm feels HEAVY--like dead weight
 
 
 
To add to that CRAP---I have had lower back pain andhave experienced this the last 3 weeks:
 
*RIGHT leg feels numb
*RIGHT leg feels heavy
* BOTH legs get cramps at night
*When I bend down (using knees)--and stand back up straight---it feels like I have a TON of lactic acid in my legs (like a burning, heavy feeling)
*When I sit---my leg in the front (where you leg and hip meet) starts tingling
 
I also feel NAUSEOUS all of the time---I thought maybe it was because I was hungry, but then I feel nauseous after I eat!
 
(Background):
 
Since May, I have had the following tests:
 
Gallbladder Ultrasound (fine)
Gallblader Hid-a-scan (42% function)?---I don't think this is good--do you?
B12 deficiency test (fine)
Spine Xrays (fine)
Physical Therapy (thought I had bulgy discs in thoracic region T5-T7)---also thought I had costocondritis?
MRI (supposedly fine)
Sports MEd. Specialist (says my spine is OFF--couldn't figure out why)
Chiropractor (couldn't 'realign' me)
GI Specialist
Colonoscopy (supposedly all is clear)
Endoscopy (supposedly all is fine)
Possible "IBS"?  I can eat anything BUT dairy (have eliminated from diet)
Rheumatoid ANtibody Screen (normal)
Celiac Disease TEst (normal)
H-Pylori Test (normal)
 
The pain has always been in my uper right quadrant--but, it just intensifies and lessens on and off...I had numbness in my arm/face back in May/June--then it subsided--but, never like this (where I can barely write, etc...)
 
I have ben going to PT for a month (about 1-2x/week)---they "won't say" what they "think" I have (SIGH)....
 
I am so frustrated.......I cry a lot, can't sleep, and it's affecting my relationship with my husband.  He thinks that every little pain I am feeling I exaggerate! (SIGH)!
 
Anyone---can someone, please tell me what you think this may be?
 
I have an appt. with my primary on 1/8-----I am thinking of forcing another hid-a-scan of my gall bladder, and also to see a specialist for this numbing of my right arm/leg?  But, which specialist?
 
Sorry so long----just frustrated....Help! :(
 
Laurel

Mochiah
Regular Member


Date Joined Dec 2007
Total Posts : 450
   Posted 1/1/2008 3:32 PM (GMT -7)   
I definitely cannot diagnose you. I find it interesting that your chiro, PT, and sports med doctors all say something about your spine. There are so many muscles and ligaments that could be involved, even nerves....the numbness/tingling in your right arm.

Actually, 42% HIDA scan IS very good.

Your PT can't tell YOU what they think is going on, but they DO tell your doctor (it's all about the "cover thy butt"), but can definitely report their findings and feelings to your doctor.

I wish I knew what direction to point you in. Have they done an MRI of your entire spine, cervical, thoracic, lumbar, and sciatic? Your primary will know better which direction to go...you may have different processes going on, so may need to see GI and Neuro, just don't know.
Mochiah/a.k.a. Sue
cervical fusion 2006, with great result
L4-5 surgery with cages, plates, and screws in 2005, I have continued pain 
MEDS:  Fentanyl patch, Norco, Celexa, and trazodone
 
Im going to smile like nothing is wrong, act like everything is perfect, and pretend its not hurting me. (quote used with permission from "Tennis").


hopeisreal
Regular Member


Date Joined Sep 2007
Total Posts : 345
   Posted 1/1/2008 5:19 PM (GMT -7)   

Hi Leslie!

thank you for answering--I appreciate it! :-)

The only MRI they did was on my Mid-Back (thoracic)---I went to the PT back in July---went for 12 visits---my insurance won't do an MRI until PT "doesn't work"  eyes mad

Now, I am going for PT again (different place)---so, I guess I will talk w/ MD about going for another MRI?  Or should I get a CT?  Are they the same? 

The GI guy specialist doesn't think I need to see him for 5 years (another colonoscopy)-b/c, I guess, my colon/endoscopies came back OK (I only got a report that said I was "unremarkable"---DH talked to GI guy after my procedures (I was totally out of it---loved it)! :-) yeah

Anyone else have any ideas?  Anyone? 

Laurel


Mochiah
Regular Member


Date Joined Dec 2007
Total Posts : 450
   Posted 1/1/2008 5:54 PM (GMT -7)   
MRI is better than CT scan at showing what's going on.

Well, obviously PT is not working if you are still having problems..... Geez, gotta love insurance companies!
Mochiah/a.k.a. Sue
cervical fusion 2006, with great result
L4-5 surgery with cages, plates, and screws in 2005, I have continued pain 
MEDS:  Fentanyl patch, Norco, Celexa, and trazodone
 
Im going to smile like nothing is wrong, act like everything is perfect, and pretend its not hurting me. (quote used with permission from "Tennis").


razzle51
Veteran Member


Date Joined Jan 2005
Total Posts : 763
   Posted 1/2/2008 4:54 AM (GMT -7)   

Have you been checked for Chiari malformation and Syringomyelia . Do any of these symptoms sound familar ?

 

http://www.chiarione.org/symptoms.html

http://www.syringo.org/



Syringomyelia T4-T10
Chiari Malformation
Decompression Surgery 1999
 
"Remember That Life Is Short!!!" Life is short, break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile. <!-- / sig -->
 

 
 
 



hopeisreal
Regular Member


Date Joined Sep 2007
Total Posts : 345
   Posted 1/2/2008 6:06 AM (GMT -7)   
Razzle---those don't sound familiar----they never "explored' them with me!

I feel that they think I am just stressed b/c I am (was) pretty active (athletic)---young (in my 30s) and a Mom to three young kids (all under age 9)-----so, I feel (right or not)---that they are passing this off as anxiety! It's crazy---and it made me anxious b/c I felt (feel) no one is listening to me! I go in and circle those stupid "body charts"---where is your pain---give them detailed info. on the pain, the feeling, etc... and it's like, "here---take celexa, lexipro, klonopin, PPIs, tramadol, flexerol, mobic, you name it"----geez! :(

So, when I go in on Tuesday (to my primary guy)----I want to be prepared to shoot-from-the-hip---and get some results---quickly! Not in two months-not in 6 weeks---quickly! 8 months is too long to figure nothing!

I will look into what you highlighted for me above! Thanks for responding...I am very frustrated---and sad about this.......:(

Laurel

Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 1/3/2008 5:43 AM (GMT -7)   
Hi hopeisreal, i to have simiular experiences but the coldness and purple thing happens in my feet, i also get the burning sensations and pains, heaviness in the legs, and the odd time i get a pin prick sensation in my toes, mild tingling and numbeness, no accurate diagnosis has been made but trying to find the answers, hang in there and let me know how you are doing and what the medical outcome is. Twiggy2

hopeisreal
Regular Member


Date Joined Sep 2007
Total Posts : 345
   Posted 1/3/2008 6:21 AM (GMT -7)   
Thanks Twiggy2! I will keep ya' posted...........
Laurel

ReactiveConstellationNE
Regular Member


Date Joined Dec 2005
Total Posts : 256
   Posted 1/3/2008 6:35 PM (GMT -7)   
I always ask people with unknown chronic pain, especially like this, whether they may have had an infection or other "immune shocking event" like food poisoning, digestive crisis, et cetera prior to developing their pain symptoms.

If so -- and even in some cases where the patient can't remember the triggering event -- one may want to look into Reactive Arthralgia/Arthritis, AKA Reiter Syndrome. This can be a very severe form of athritis/myalgia with lots of seemingly random symptoms throughout the body. Mine was triggered by a series of severe Staph infections in my knee/groin/pelvis/reproductive system (epididymis, vas deferens, spermatic cord, pelvic lymph nodes, etc).

Reactive Arthralgia is a much more common condition than most docs realize or acknowledge. Most cases are simply so mild and so sporadic (with long periods of remission in between seemingly random flares which the sufferer may not recognize as a rheumatic illness) that the sufferer isn't sure what the heck is happening, and many docs don't recognize it even when it's severe and relatively obvious.
Conditions: Chronic Pelvic Pain, Severe Lesioning of the Spermatic Cord, Reiter Syndrome (Reactive Arthritis and Myalgias along with a slew of other symptoms), Sacroiliitis, Costochondritis, widespread Tendonitis, and on and on. Typical daily pain levels exceed 8.5.

Medications: Methadone, Oxycodone ER, Dilaudid, Lidoderm (lidocaine) Patches, Flexeril, Soma; many herbs & supplements.


Previous medications: Oxycontin, Opana ER (12 hour time releasd Oxymorphone, Endo Pharm.), generic Mylan Fentanyl patches (two 100mcg/hr patches worn simultaneously, changed every two days), Kadian, Avinza, MS Contin, Lortab (hydrocodone), OxyIR, Cymbalta, Lyrica, Neurontin, Amitryptyline, every NSAID known to man, Prednisone, and many more.


hopeisreal
Regular Member


Date Joined Sep 2007
Total Posts : 345
   Posted 1/4/2008 3:00 PM (GMT -7)   
Exit--- never thought of that--- the only thing I can think of is that I had a SERIOUS panic attack when I found some fibroid-cysts on my right breast (5 of them)----back in May---and I must have been in a panic for about 1 day! It was horrible---and I never had that happen before! Do you think that could be an "immune shocking event"? I mean---I "literallly" rattled my body beyond----BEYOND!

I will look that info. up!
Laurel

Lvcien
New Member


Date Joined Jan 2008
Total Posts : 1
   Posted 1/11/2008 12:58 PM (GMT -7)   
You have thoracic outlet syndrome, or a bronchial plexus injury - or both

Do some research on the two, and ask your doctor. It matches your symptoms perfectly. I have the same thing, and at best, I get mild results from painkillers (oxycontin 40mg BID, and 10mg oxycodone, TID) - and the rest is just hell to deal with.

Good Luck.

also, try peppermint for a neasea - for some reason, it helps me.
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