not coping with CRPS

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pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 1/8/2008 7:02 PM (GMT -7)   
Hello, I am not dealing too well with my diognosis of CRPS (I can type it but I sure cannot say it) typeII
 
Suffered a crushing injury to the right foot about a year and a half ago and have pretty bad pain everyday.  Not a big fan of pills and the nerve blcks have not lasted.  Doc is suggesting a spinal cord stimulator now, and not to thrilled with the idea.
 
 
With every failed attempt at pain relief and day after day of being in pain I feel like I m just teetering on the edge of something i cannot explain.  I feel like im losing my mind and I am pretty sure I am not coming to terms with my condition.
 
Any success stories out there with a stimulator for pain in the leg and foot?  There are plenty of horror stories out there, and I am afraid I am losing my fight.
 
thanks
 
Su

Post Edited (pieceOfCRPS) : 1/8/2008 7:31:59 PM (GMT-7)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 1/9/2008 9:41 AM (GMT -7)   

Hi Su,

Welcome to HW. You have come to the right place, there is lot of us peeps out there dealing with chronic pain for one reason or another. I am so sorry to hear about your injury. Most people I know of personally, that has your condition was in excruiating pain. Back then, drs really did not now anything about it and getting treatment was nearly impossible. They have realy come a long way in treating it. We called it RSD back then too.

I do not know of anyone thats had the stimulator for this condition. Back in the old days they used TENS Units and some people got relief with it. Everyone is different, but I think I would have to give the stimulator a try, simply because I would hate to miss out on something  that may help me. But, I am just one of those kinds of peeps, lol.

I have a Medtronic Pain Pump, mine has been with me since June of 05. It has been a life saver for me. I had too many complications with oral meds and this was the last ditch effort. Oh, when my pain dr talked to me about it, I was stupid, I dug my heels in the sand and said no way, I am not to that point. Little did I know I had been to the point for a long time. Three months later I am begging him for the pump. He said he was not surprised when I turned it down but knew I would change my mind. Best thing I could have ever done.

You really sound down in your post, are you by any chance on an anti-depressant? If not, please talk to your dr about trying one. You may have to try several ones till you find the one that suits you best & helps. Chronic pain and depression seem to go hand in hand. We experience so many changes in our lives immediately in some cases. There is nothing wrong with needing a little boost to get you thru the day in a better frame of mind.

I have a very high pain tolerance that use to get me in alot of trouble. With the pump we have pretty much eradicated that problem. I am not pain free by no means, I have oral meds for BT pain, but again, I prefer to not rely on pain pills. Most of the time I am able to get alot of relief with my muscle relaxer, it works the best for me.

I am sorry I am of no help with your situation. Someone else may jump in here and give you better insight than me. Have you googled RSD to see if there any sites with peeps using the stim? May be worth a try.

Hang in there and do not give up or in to your condition. You are a very strong person, otherwise you would not have made it this far. It took alot to post on here. Many hugs soming your way. Susie



stenoman
Regular Member


Date Joined Jan 2008
Total Posts : 20
   Posted 1/9/2008 1:13 PM (GMT -7)   
Dear Su,
 
I haven't done my homework and looked up your condition yet but i have a bone growth stimulator and a TENs Unit both from Medtronics I believe if you think they would help. They were perscribed for me to aid in the bone graft portion of spine fusions and the pain....now I will go look up crps???? I hope you find refief very soon,
Jim

pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 1/9/2008 2:28 PM (GMT -7)   
fortunetly i too have a high tolerence for pain. I learned to immeditely following and the months after my injury.

I felt my body becoming addicted to percocet in a very short time so I have been off of it since about 4 months after the injury, and rely only on darvacet and only when the pain is really bad and darvacet aint that great.

Its my right foot so i had to learn to drive with a left foot accellerator and I can only wanlk a few hundred yards at a time. So I really need a new option but I just am not finding any. My life has just changed so much I dont want to deal with anything anymore. I dont mean that in a depressed way (i've been way down that road before) and learned then how to deal with depression anxeity and the like. But this, this is somehting totally different.

s.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 1/9/2008 5:43 PM (GMT -7)   

Hi Su,

Yes, your life in deed has changed. Mine did too five yrs ago. I was in denial for so long, I had a melt down. Thats when I started back to anti-depressants. I ended up going to a physchologist who was very hepful. She knew about autoimmune diseases and what they can do to a person. In my case it was crohns disease that was not in remission even after having emergency surgery. I became even more sicker and tried to pretend I wasn't sick. She certainly helped me understand alot of the feelings I had going on. Arthritis in my major parts set off the chronic pain, recently I was dx'd with lupus. I say enough of this crap. I was put in the hospital recently for 8 days with cellulitis in my legs. I went today and has my pump refilled only to find out I am running a low grade fever. My legs are red but only have some minor swelling going on.

I forgot in the last post to ask if your dr has any other patients that is using the stimulator with success. If you could talk to someone that has the same problem as you, perhaps it might do well for you to talk to this person. I am going to do some looking around to see if I can find any info on the stim. with your condition. Susie



pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 1/9/2008 8:51 PM (GMT -7)   
He gave me a practicallly worthless DVD Video to watch. Not very informative. Thats about ti. I am suppose to research it and write down all my questions for when I go back in a month.
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