Ah Gramps, I was so disappointed to read that your trip to the Mayo was all for naught. I, like so many others here at HW were hoping you would get some answers and help. What a disappointment I know it is for you. Do, they really think people can afford to to fly back and forth to their facilities at a drop of the hat, or just jump in a car and drive the distance, that really blows me away. Everyone I know thats been there had a complete workup before they left and they did not have return visits scheduled to finish a workup. WOW.
It has been quiet at HW since you left and you have been missed. You do offer great advice to many and you are always so helpful. As Bonnie said, we sure do seem to have a rash of peeps getting off their meds, some going cold turkey, which is just crazy in my book. Why subject yourself to more pain if there are other ways to do it, is beyond me.
I am like you like, this will be my life, but thats ok, because of my pump, I am able to function now, its a different level, but that ok too.
You must not give up hope, there has to be someone, somewhere out there that can help you. I sure will keep you in my prayers that help is not far off for you...Lotgs of gentle hugs coming your way....Susie