PALady, thank you! Always good to hear from you!
Best of luck to you, Geeja!
Wow, I never heard about the brace!! That sounds great!! Best wishes, and I wish you all the best!!
I had a failed surgery with mine and I'm still suffering, and I didn't even get the darn thing placed, they had to stop! So, just educate yourself, know that you are sure, and talk with this loving CP family!! They are wonderful people, I just haven't been on the site much because of my pain. I am still thinking of going through a second surgery to place the stim, but I'm still unsure! I think it was the helping doc that screwed things up in my procedure, well, I KNOW that it was, he just denies that it happened, like I wasn't there, but that is why I refuse to let him touch me again! So, know your doc VERY well too! Be comfortable with him, and be able to TRUST him!! I wish you all the best!
And I want to thank my family, they have been there for me through a lot of my deals the past year, and I really am appreciative to know that you are all here! I'm sorry that I haven't been around, but it's been really hard for me lately! So sorry! But, I will try to at least post a little more often! You guys are great!! Thank you!
PALady, you are so caring, thank you so very much!! I am still just at a loss, I'm so broke, I'm in pain, I can't work, and I try SO hard to stay very positive, which I have been doing... but there are some, well, times, maybe just even for a couple moments, you feel really down because you don't know where you are going to get the money to be able to put some food in your house, or when! And God, don't even get me started on medicine and insurance, ok, I'm done, LOL! That is what has really been making things hard though! And I'm still healing from the surgery as I mentioned, which is going well, but my pain meds just aren't cutting it anymore, and I just hope that it's not worse from being aggravated during that botch surgery!
My Mom just bought me a book, it's sort of one of those mind over matter books, where it teaches you to relieve your own chronic pain! I want to read it and see if there are any techniques that I can share with my CP Family!!
So, as always I appreciate your help and support, and also keep you and everyone in my thoughts and prayers! But, I really want to know HOW HAVE YOU BEEN!!!???? I hope you have been having many low pain days!! And I will never forget our poor Wilson's!! LOL! I will try better, to come on the site and talk to everyone again! I guess, I have just been a little in my own world with all this paperwork, legal crap, doc visits, and phone calls, etc!! I apologize for that, but I have not forgotten ANYONE!!!
Thank you for responding to my question. I hope others will let me know if they have been offered a brace. All of the poor folks who had their leads move and cause them so much pain just breaks my heart! Everytime I read one I just keep thinking, "Would the brace let the leads move?" The doc. told me that the brace would NOT let me move in any way that could pop a lead. Sit, stand, walk, or lie....that will be it for me for 8 weeks.
Can I ask another question that I probably don't want to know, but I don't want to get any bad surprises in the OR.
I know I have to stay awake for the implant, how painful is that going to be? Be honest, I can take it .
I am going to pray for everyone on this site tonight. We are all in this CP thing together. Thank you again.
Hi Baskets!! To answer your question, yes, you do have to be awake in the OR, and the usually give you enough pain medication that you don't feel anything, but the stimulation! So, I wouldn't worry too much about that!! They do local blocks, and IV pain killers, you will do fine! I pray that you get the relief you need with the stim! The trial drove me nuts, because I kept having to tape the device back onto my back!! It kept falling off, and the stitches were itchy as heck, and so was the tape, so I was SO miserable, the WHOLE week! Maybe this brace will really help you, keep everything where it needs to be, so that you don't have the itchy horrors I've had, and the problem with the device always hanging on by a piece of tape, pulling on my back! LOL! So, I seriously hope that this brace will eliminate all of that for you!! Best of luck, and I will pray for you that things go well!!
PALady!!!! I'm always so glad to hear from you!! Yeah, looks like we are all struggling together, huh?! That would be a GREAT IDEA for a new thread!! I will have to come back later on and check in for it! Right now, I'm awake and I usually am sleeping at this time! I have this thing where I wake up every couple hours, for a couple hours, then I go back to sleep!! LOL! But, I hope that you have better days coming ahead!! All I can do is try and stay positive!! Someday I will get some sort of income!! I think that, that is the most frustrating and stressful thing, to wonder where you are going to get some income, when, and how! They make it too hard for people in our condition to get paid, you have to wait forever, and they don't have a thing you can do in the meantime! Oh well! Yeah, I agree, who is going to bail us out!?!? But, you are right, that is a HUGE topic, politics, and I don't want to start there either!! LOL! No problem about being off topic, that was my fault!! LOL! I will have to come back in a little while and check for other posts and see how things have been while I've been gone! :) Ok, well, thank you for being there for me! I have you in my prayers, and I hope that you have some low pain days!!
I have everyone in my thoughts and prayers!!
Co-Forum Moderator for Chronic Pain
Rare neurodegenerative /movement disorder called “Multiple System Atrophy”. Mobility issues,, neuropathic pain, spasticity, central apnea, collagenous colitis, pain, swallowing and respitory involvement, Implants: intrathecal pump & neurostimulator. Extra features: O2 & wheelchair