Spinal COrd Stimulator

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pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 1/13/2008 5:22 AM (GMT -7)   
Hello,  I am looking for individual experiences with the stimulator.  Looks like it is my last resort for pain relief and i am scared!
 
All stories welcomed, read lots of horror stories , are there any successes other than the 3 people in the Medatronics brochure?
 
Thanks
 
Su

KREF
Regular Member


Date Joined Aug 2007
Total Posts : 20
   Posted 1/13/2008 11:45 PM (GMT -7)   
 I have had my scs unit in for just about a year now and it works well, takes away alot of leg and thigh pain, doesnt get into my feet as much as I need, (I have tarsal tunnel in right ankle) but I get a shot of cortisone in it every 4 months and that takes care of that for a few months. I was having pain on the sides of the legs, which isnt usually the spot with lumbar back nerve trouble so they wouldnt do surgery on me, besides if they did it would have been 3 disc fusion, and I wasnt in the mood for that. I would say if the pain you are having is mostly leg, then a unit would help, if its more in the back area it prolly won't.  :)

Diagnosed with DDD, Tarsal Tunnel, 3 Herniated discs, Arthritis in hands. Asthma, Hypertension, Diabetes.
Currently on 75 mcg Duragesic Patch, Neurontin 4800 mg daily, Relafen 1500mg daily, Lexapro, and have SCS unit for leg pain.
 
             PAIN SUCKS :(


crps
Regular Member


Date Joined Oct 2006
Total Posts : 174
   Posted 1/14/2008 1:48 AM (GMT -7)   

Hello,

The first thing you need to remember is, everyone has a different situation for having the scs. I had one put in last year and had it removed 3 months ago. They had to put in 12 leads 8-up and 4-down to try and control my crps in my right foot. It never did. It made me have shoting pains in my ass and legs where it was not wanted. In order to have any relief from the scs I would have to turn it up so high that it hurt my foot more.There was two four and a half hour surgeries to put it in (2 fridays in a row). As soon as I got into the recovery room from the first half of procedure my leads changed and were electrifiring my ass and leg to the point I could'nt use it until the leads were moved. This is definatly one of those stories that does not condone scs. Like I said before, everyone is and will be different when and if the time comes to putting one in. Keep up the inquieries about them to get a feeling about others stories. It takes some effort to put it in, so make sure if you get one you are positive about it. Even when the reps tried to reprogram the unit, all they did was keep zapping me and asking "was that alright?" which every answer was no, it does not feel alright. If I were asked again about doing it I would absolutly say NO!!!!!

      Remember this is only one person out of the thousands who have had it and not happy. I'm sure there are some success stories out there as well(I had it done at the pain mangmt at the Beth Isreal in boston ma.

    This procedure takes a bit of effort, just make sure it makes sence to you when and if you decide to go with one

Hope it helped a little                             mike


pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 1/14/2008 3:38 AM (GMT -7)   
Thanks,
I was very interested to hear it did not make it to your foot, as it is my right foot as well, I have severe nerve damage from a crush injury. The worst part of my pain is in the foot with alot in my calf knee thigh hip etc....

Post Edited (pieceOfCRPS) : 1/14/2008 5:15:55 AM (GMT-7)


KREF
Regular Member


Date Joined Aug 2007
Total Posts : 20
   Posted 1/15/2008 12:28 AM (GMT -7)   
pieceofCRPS, I would say you prolly wouldnt get much relief from it in your foot area, I have had mine reprogrammed a couple of times trying to get it down there, it does hit it but not enough to help much, if you turn it up too high to get it to the feet it hurts in the leg, lol, so I would say prolly not a good option for you, sorry, hope you find something that does help, I know how bad feet pain is makes your whole body hurt. Good luck, KREF
Diagnosed with DDD, Tarsal Tunnel, 3 Herniated discs, Arthritis in hands. Asthma, Hypertension, Diabetes.
Currently on 75 mcg Duragesic Patch, Neurontin 4800 mg daily, Relafen 1500mg daily, Lexapro, and have SCS unit for leg pain.
 
             PAIN SUCKS :(

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