Pain med pumps

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crohnie1985
Regular Member


Date Joined Nov 2007
Total Posts : 140
   Posted 1/14/2008 2:04 AM (GMT -7)   
Looking for some opinions reguarding the sugical implanted pain pumps, pro cons, and on there success/failures.

pincushion1
New Member


Date Joined Dec 2007
Total Posts : 11
   Posted 1/15/2008 10:59 AM (GMT -7)   
As long as the whole pump has been implanted they are very helpful. If you have an indwelling catheter(a tube going into your back I would getaway from that as quickly as possible,. Mine got infected and they had to lay me open like a trout to cut out a huge abcess the size of an immature garter snake. It always hurts. Infection is the watch word, If you dont have someone to clean and sanitize the site of entry the odds are against you.
Don't want to scare you but I feel you can take it.
Just tellin it like it is,
Greg

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 1/15/2008 9:21 PM (GMT -7)   

Hi Chronie,

I have a Medtronic Intrathecal Pain Pump. Mine was implanted June 05 and I have never regretted it. I know all about the potential for infections, but my pain dr is very strict on pump refills being done on time, actually I have a pump nurse that does all of my refills and let me tell you, she could not get anymore sterile than what she is as far as I am concerned.

A pocket was made in my abdomin high on the right side. I did have an incision made in my back where the tiny catheter was fed around to my pump. Nothing is exposed, everything is under the skin. Most peeps can't tell by looking at me that I have something implanted in the front.
 
I was first given Morphine in my pump (doc forgot I don't tolerate Morphine) and did not do well. Then I was put on what I call a cocktail of Dilaudid, Sufenta, and 2 other drugs. I have done very well with this combination. The key to a pump is finding the right drug or set of drugs, then getting your dose correct. They do start you at a low dose because you are getting the drugs in a concentration form versus pill form, which is a huge difference. You should be given an oral pan med for BT pain. I rarely ever take one, I do much better taking a muscle relaxer because the pain is due to terrible muscle spasms in my low back. This is usually from doing way too much. 
 
I became a candidate for the pump because I do not tolerate medications oral meds well at all. I would either have a full blown reaction or the side effects would get me. I had so much pain in different parts of my body that my dr told me no way could oral meds handle all of it. I also have other health problems going on that alot of the orals meds screwed with.
 
I would tell anyone that is in need to at least give it a try. It may be for you or it may not. Just like medications it make work for you, but if I took it, it may do nothing for me. You do a trial with the pump to see if its going to work or not. When I did the trial I thought I had died & gone to heaven because all of a suddren I was not in excruiating pain, it was awesome. You are also required to do physchological testing prior to having a pump implanted.  Even with a pump we are never totally pain free, but I feel as close to pain free as I will ever get. It has given me life back. No watching the clock to take more pills, no roller coaster ride waiting for the pills to kick in.
 
As for the first person that responded to you, I am not sure I understand what he was saying about a tip being kept clean and something to clean it in the back?????
 
If you think of any questions I will try to help in any way. Susie 


crohnie1985
Regular Member


Date Joined Nov 2007
Total Posts : 140
   Posted 1/16/2008 2:03 AM (GMT -7)   
Thanks for the input, there is so much to learn and so many options, better to ask than suffer needlessly.

pincushion1
New Member


Date Joined Dec 2007
Total Posts : 11
   Posted 1/16/2008 2:30 PM (GMT -7)   
Let me tell you Susie, My indwelling catheter was implanted in the epidural area in my back. I feel that the nurses were ("On the clock,as it were). They didn't clean the site properly and I couldn't reach it. I wasn't trying to scare anyone, your implant is in your abdomen so you can easily reach it. As for the pain while it was working I felt like u did.

Funnygirl
Regular Member


Date Joined Jan 2008
Total Posts : 57
   Posted 1/16/2008 11:30 PM (GMT -7)   
Dear Chronie,
My name is funnygirl and wondering if you are on right now....really need to talk to you!!!!! I live in terrible pain everyday...very sensitive to oral meds...can't find a dr. to treat me...labelled a drug addict and take only 2 kinds of meds. and I have every syndrome known to man!!! If I may ask, where are you from to be able to get a med. pump? I don't remember how it feels not to have pain....would u please write back...please!

I'll be up waiting,
Thanks Funnygirl

crohnie1985
Regular Member


Date Joined Nov 2007
Total Posts : 140
   Posted 1/17/2008 2:31 AM (GMT -7)   
If your asking where my PM Dr. is, I am near chicago and the PM clinic is at University of Illinois hospital in Chicago. Because it is a teaching hospital, they take just about anyone, public aid,prisoners,and people who have insurance. also they are I feel on the cutting edge of new treatments, so far I have had good results going there. One thing is that you must not mind being serviced by several Dr.'s and lots of interns. not sure what kind of pain your having, but this site has been an open forum without judgement or predjudece. I as most I hear are labeled drug users from time to time, I myself just ignore them as they are just uneducated and not sympathetic to our woes.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 1/17/2008 6:44 PM (GMT -7)   
Pincushion, what an awful spot to put a pump. Are you saying when you went in for refills the nurses did not do a sterile techique at all. My medication comes pre-mixed and is delivered to the pain clinic in a box with my name on it. Everything needed for my refill is in this box, sterile drape for my stomach, mask, gloves, sterilizing cleaners for my stomach, medication ready to be injected. This comes sealed in a bag, if the bag has been opened it is not used, although this has never happened. I watch them open this every time. I feel very bad for what you went thru. When was your pump implanted. Mine has been in 2 yrs and works fine. Susie

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