Chronic pain...what to do next?

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Sooner-Rose
Regular Member


Date Joined Jan 2008
Total Posts : 24
   Posted 1/22/2008 2:05 PM (GMT -7)   
Hello this is my first time to post to this forum. I have gone through a 4 year battle with Lyme Disease and trying to get a correct diagnosis and many doctors that just really don't care...I could write a book about it.

I am in constant pain. I have very severe headaches at least 3 times or more a week. I have severe joint pain, pain that throbs up and down my spine and have no idea how to get the doctors to understand or help.

MY PCP jusst keeps throwing loritab and darvocet at me which do absolutely nothing now. I talked to him at one point because I had made a couple of trips to the ER where I was treated like a drug seeker, and discussed the fact that I have never really been on pain medication untill all f this started and that I am NOT an ADDICT or a DRUG SEEKER, he said that he knew that but then still has not been any help.

I am really not sure where to turn next. I am in the process of searching for a new PCP just to see if I can get someone to understand the pain that I live with daily. I have thought about asking to see a Pain Management Specialist but am not sure if that is my answer or not.

Any help or info would be greatly appreciated.
Dx Lyme May 2004 treated abx Doxy 7 days
Recurring symptoms throughout 2005 and 2006
didn't know constant migraines, fatigue, blackouts were lyme related
Treated Randomly in 2006 with Rocephin, Doxy
Nov 2007 2 wks IV doxy
Appt with LLMD Feb 08

~~~~~~~~~~~~~~~~~~

Tiffany ---SoonerRose


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 1/22/2008 3:23 PM (GMT -7)   
If you otherwise like your PCP keep him and ask for a referral to a pain clinic. If you don't like him ditch him get a new PCP and ask for a referral to a pain clinic.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/22/2008 9:26 PM (GMT -7)   
Hi Tiffany,

And welcome to the CP forum. Glad to have you here. A pain clinic may give you some good help. If you do opt to change PCP's then make your first visit an interview...YOU interview THEM. You are hiring this person to take care of you so get the best you can find. Ask how they treat chronic pain patients before you get undressed...so to speak..lol. Be up front and honest and you should do fine.

Keep us posted,
Chutz
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13469
   Posted 1/24/2008 2:54 AM (GMT -7)   
I don't think I pitch a PCP when he says he knows I am not drug seeker. Because thats exactly what so many drs today think, including PCP drs. Your treatment at ER is how nearly everyone is treated in ER if they go in with pain, unfortunate but true. Ask him to ref you to a pain mgt dr, its not going to hurt his feelings. If this doc has been good for you in other ways, I would just say to him, what you do think about referring me to one and see what they think. This is a typical visit to ER for pain. My son was 30 yrsd old, he has had migraines since he was 8 with projectile vomitting & horrendous pain. His wife called says go with me to take him to ER, I said sure. We get there and nurse from hell thinks he's a drug seeker and faking it. WHen his projectile vomitting hit her mid way up, she changed her mind, he got a shot of phenergren & demerol. If he had not puked on her he would have got nothing. Susie

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