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Centurion
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 1/30/2008 2:21 AM (GMT -7)   
Just wanted to introduce myself...
 
I am a 30 yr old stay at home dad...Just celebrated his 1rst birthday...Run my own business from home...been on pain meds for a little over 2 years now...got into a motorcycle accident and have 4 herniated discs and a torn rotator cuff...Lets just say...Im in pain 24/7 and as most of you have already discovered..I have yet to find a doc who knows what they are doing...And the worst part I havent slept more than 2 hrs in about 2 years...
 
So enough about me...Hi!..... tongue

Centurion
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 1/30/2008 2:37 AM (GMT -7)   
Oh forgot to mention...

Im currently taking

40mg Oxycontin 5X a day and 15mg roxycodone 4X a day for breakthru..

hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 1/30/2008 3:53 AM (GMT -7)   
Welcome!! I just joined myself. I've been in PM for about 2 years now. You'll find that everyone here defenitly understands what living with 24/7 pain is like!
do you not take time released oxycontin?
 Interstitial Cystitis and Endometriosis


Centurion
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 1/30/2008 4:15 AM (GMT -7)   
yes..40mg

hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 1/30/2008 6:55 AM (GMT -7)   
Oh, I thought you said you took 40 mg 5 times a day, thats why I was wondering
 Interstitial Cystitis and Endometriosis


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/30/2008 10:02 AM (GMT -7)   
Hi Centurion,

And welcome to our 'Pain' family...lol Glad you found us. As you are seeing, this is a very caring bunch of folks here. To address one comment, even extended release meds can be takes several times during the day. I'm on a 2 pills/twice a day, but I take singles at my 3 meals and at bedtime. Makes a smoother ride for me. At the end of the day we have the same amount of med in our system as someone who takes it 2/twice a day. My doc told me to try different things to see what works best.

Hazel....welcome to you too!! I don't think we've met. Chutzie here...lol. I know, what a silly name but it works.

Keep in touch, Centurion!
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 1/30/2008 11:20 AM (GMT -7)   
Hi chutzie good to meet ya..I've been reading through the forum today.
I guess it just caught me off guard, since I take my med 2 times a day. My brain is being very slow this morning
 Interstitial Cystitis and Endometriosis


Centurion
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 1/30/2008 12:39 PM (GMT -7)   
yes most times people are on it 3-4 times a day...but im very active..chasing my son around all day and then I work at night for myself..so its either the meds or nothing...

Heres the worst part..Last month my doc was out on vacation and it came time for my refills and I call in and ask what im supposed to do...They tell me to go to the emergency room...wow...I was totally shocked...never been in that situation...so I called another PM center and made an apoinment...but the Doc I saw was Mr. Rehab...gave me this whole lecture on how Id be dead in 10yrs if i keep taking my meds and he wanted to cut me off and give me methadone...After I explained my situation...he agreed to give me 90 pils instead of my usual 150...some people....Made me feel like a street junkie...and all I wanted was to not be in pain.The doc made a huge deal said theres no way I should have that much pain at my age and hes going to look into what ive been getting for the past year...I told him to be my guest...Needless to say I wont be returning there...So now Im back at the normal place I go and the doc is writing my scripts and I notice that the doc is 1 day off and it took me an hour to explain that the day my last script was written is day 1 andso on...he kept counting 30 days from the day...not including that day...as if i got my script and decided to wait a day...I need to find another Doc quick...Ive asked prob about 15 times in the past 4 months for injections for my shoulder cause they actually help..and everytime..i go in..nothing..always too busy...just a rant...sorry

wmnak
Veteran Member


Date Joined Jul 2006
Total Posts : 1123
   Posted 1/30/2008 8:06 PM (GMT -7)   

cen,

 

i offer my more dubious welcome.  i, too, can empathise with your experiences.  and, yes, i, too, have been told that i "shouldn't be in that much pain."  as i said on another thread, how do these quacks get into the pain receptors in our brains?  i don't want ANYBODY in there!  :-)

as anyone here can tell you, finding the right pm doc is often a process of kissing a lot of frogs until you find a prince.  the same is true of your entire medical support team.  i also recommend that everyone in 24/7 chronic pain keep a psychologist and/or a psycologist as part of that teaam.  i often want to scream and go around smashing things (as if i could in my condition :-) ).  seeing a shrink helps keep my life on track.  has anyone else found this to be so?

oh, by the way, don't worry about rants and raves here.  i've found that it's safer to take it out here than to afflict my wife with it!

 

a safe and pain free day to all.

 

warren


That light at the end of he tunnel?  It's an on-coming train.
 
 


Centurion
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 1/30/2008 10:11 PM (GMT -7)   
WOW...Wmnak

I honestly didnt think anyone else did that...Since my injuries..Ive developed a real problem with anger...Im often frustrated and break things...Ive always had a bit of a temper so I never really thought I couldnt handle it..but lately..dealing with docs and pharmacies has gotten me to my wits end...Plus most people dont understand what its like....It truly is a breathe of fresh air to actually speak to people dealing with the same stuff I do..

I actually had one pharmacist sit me down and explain how bad these drugs were and told me to get off them...AS IF I WOULD TAKE THEM THIS LONG IF I DIDNT NEED THEM!..i felt like choking the guy...What do people actually think? I just dont get it...

rubydoo1
Regular Member


Date Joined Jan 2008
Total Posts : 32
   Posted 1/30/2008 10:45 PM (GMT -7)   
Hello Centurion and all the other new folks,
Have you had your disks and your rotator cuff fixed(operated on) The temper and anxiety go hand in hand with pain meds. Maybe you should try some Meds for anxiety and depression. Some people really get tempermental on the pain meds. me included. I take Lexapro for the anxiety,temper  and an occasional Zanax to get me thru the rough times  

hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 1/31/2008 2:07 AM (GMT -7)   
You guys defenitly arent alone...I can be a ***** on wheels when I'm in pain.
I did just get cymbalta but I'm afraid to take it:(:(
I cant stand the lectures...honestly I think that pounding warnings into our head is quite unessesary! First of all, like we donnt all know that these medications can be addictive or dangerous, IF ABUSED. Thats the part they leave out. Most who are in chronic pain will never abuse the meds.
But with that said i should admit that I too was one of those people who lectured...BUT only to my patients in rehab and detox...NEVER anyone who didnt have a problem. I can speak from experience and say I had no idea what chronic pain was like until I got it, trust me they dont have the slightest of clues.
Sometimes I feel like this is all some sort of karmic payback for telling any of my patients they dont need pain management(of course they were abusing it, but I still had pre concieved notions about pain management) Believe me in these last 2 years I've defnitly changed my tune and stand corrected!!! Way corrected!!!
Now I'm a huge advocate for opioid pain management and cant stand it when people are lecttured when they need help. I'm sorry your in that situation, truely. I hope you can find the perfect match, the good ones are out there.
 Interstitial Cystitis and Endometriosis


hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 1/31/2008 2:10 AM (GMT -7)   
I hope you dont judge me for being a past judger as I have commited the one cardnal sin against CP sufferes...lectures
 Interstitial Cystitis and Endometriosis


Centurion
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 1/31/2008 2:48 AM (GMT -7)   
not at all everyone makes mistakes...I really dont like to take pills for depression as Im not really depressed to often and I think of it as normal..Not the type of person who takes a pill for every little problem I have...not saying you are..but I dont think its to the point where I need anything for depression...One thing I do need meds for is ADHD...Ive had it all my life..was diagnosed when I was 17...explained this to my PCP and he says he cant prescribe me adderol or someothing like that...Are there any interactions with an ADHD drug with opiates????

Centurion
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 1/31/2008 3:10 AM (GMT -7)   
and to answer Ruby..No..I really dont see the benefit of a doc rooting around in my back..Ive heard horror stories and with meds I can lead a close to normal life...but I would consider my shoulder but again...Theyre going to go in a cut out whats left...how can this help...and again Ive prob spoken to about 15 people whove had the surgery and 12 of them are the same if not worse than before...

rubydoo1
Regular Member


Date Joined Jan 2008
Total Posts : 32
   Posted 1/31/2008 7:41 AM (GMT -7)   
Don't blame you in a way. Have had my L shoulder done 3 times 1st was a joke,couldn't even touch top of my head. 2nd time removed all the staples and other hardware and after a slightly frozen shoulder,they actually crawled on top of me and held me down and bent it back till it snapped,boy that hurt like all get out but after alot of therapy it was way,way better but would sublax at times,not oftn but on occasion. 3rd time after messing it up again went in and fixed it a-ok. Most people go into surgery believing they will come out as good as new,it's just not so. Maybe close but not quite. If I would have went to a better ortho. Dr. from the start I would have had it fixed right the first time,he fixed me up like one would an old person,I was only in my early 20's. All my problems started from a motorcycle accident also,in the early 80's. Pick out a good Dr. if you do decide to get it fixed,shoulders are a tough one. From my own personal experience it seems like the longer I procrastinated getting anything on me fixed the worse off I was in the long haul. I would say alot will agree. But nobody wants to be cut on.

wmnak
Veteran Member


Date Joined Jul 2006
Total Posts : 1123
   Posted 1/31/2008 10:50 AM (GMT -7)   
what an interesting thread.  the last several posts mad me wand to laugh and cry at the same time.
 
hold someone responsible for lecturing people in cp about the evils of (gasp) DRUGS!?  i used to think my mom and dad knew evcerything and when that opinion changed i thought that I did.  see how wrong we can be? we get oldeer, some people (maybe noty e, but some people) grow and admmit their prejudices and mistakes.  it's called "growing up" and, in my experience, sometimes it's blinking painful.  besides that, i'm not responsible for anything.  not my fault. tongue
 
i had two back surgeries.  at the tinme that i had my first in 2001, i waas vitutally unable to walk due to constant back pain.  i was able to walk slowly and painfully with a walker.  asfter the surgery i was also to walk unaaided for almost a year and, even today, usually onoly need a cain.  i don't know why the pain came back after about a year - my life and activity hadn't really altered.  the dr "took out come hardware).  it has been very painful since that surgery and, as i saud, i've needed a cane to walk.  i was taking vicodin/lortaab before the first operation prn.  now i take persc 3x/day and morphine sulfate as needed (a few times a week usually).  would i have the operations again?  probably not.  new studies have found that patients who have laminectomies fare bo better than patients who do not and who use pm.  i am leary of these studies, but still pay attention.
 
hope these ramblings help someone.
 
warren
That light at the end of he tunnel?  It's an on-coming train.
 
 


rubydoo1
Regular Member


Date Joined Jan 2008
Total Posts : 32
   Posted 1/31/2008 1:30 PM (GMT -7)   

I think some people go along working and living their lives as normal as possible while in pain not wanting to do "drugs" being afraid people will find out and they will be labled a "druggie"....."oh,stay away from him he takes drugs"... so they go on for as long as they can till one day they hit the floor all boken down and can't get up by themself or go any longer....that is what I did. Then you have those who go along till the pain gets too bad and throw in the towell and get help.....smarter. I have to agree with Warren on the attitudes of taking pain meds. oh I forgot "drugs" My father is 89yrs young and thinks you should tough it out. If it hurts too bad all you need is an asprin or "watch out taking them "drugs"...not pain medication to him but "drugs" next thing you know you will be hooked and lying in a ditch somewhere and your life will be ruined. You say "I know,I know" just to passify him at the time. He was here at my house help taking care of me after I had both my hips replaced and could not walk from the pain I can hear it still "I know it hurts but whatever you do don't take them "drugs" I done told you what they will do to you. Tough it out. I pretty much did(what a dumb a**) next time I went to see him some 300 miles away and quite a few months later I could still barely walk without a walker or cane. Next time I saw him months later I was walking with a limp,no cane and went deer hunting and helped him work around the house and the hunting cabin,he says "boy,you sure do get around a lot better and seem to be alot happier,what happened? I said,"I guess I got smarter and started using them darn "drugs" and ain't in a ditch yet". He didn't say a word.    yeah Now I am going thru this issue with stenosis and spinal fusion and he says "son,now don't just lay around and suffer go see the doctor and get something for the pain"

So it seems we can get smarter and/or wiser at any age.   

I have to agree with Warren this is an interesting one. 

Post Edited (rubydoo1) : 1/31/2008 1:34:53 PM (GMT-7)


Mochiah
Regular Member


Date Joined Dec 2007
Total Posts : 450
   Posted 1/31/2008 1:37 PM (GMT -7)   
HazelB- your post caught my interest with what you said about being the one who lectured until you went through it yourself. IMO, that is exactly what every doctor needs to go through before being granted their degree! Make them go through a set amount of time with pain, or have to live with someone in chronic pain and see how they are treated. It certainly would be the education experience of a lifetime.
Mochiah/a.k.a. Sue
cervical fusion 2006, with great result
L4-5 surgery with cages, plates, and screws in 2005, I have continued pain 
MEDS:  Fentanyl patch, Norco, Celexa, trazodone, and Parafon Forte
 
To handle yourself, use your head...to handle others, use your heart
 
I'm going to smile like nothing is wrong, act like everything is perfect, and pretend its not hurting me.


hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 1/31/2008 3:00 PM (GMT -7)   
Speaking from experience that is
 Interstitial Cystitis and Endometriosis


hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 1/31/2008 3:09 PM (GMT -7)   
Exactly what theye need. I know in my situation I was taught in College and books what is bad, and why its bad. Same with all those Docs. They only see pain in black and white explaoned in a book. they dont understand the feelings of chronic pain. I hate to think of the ideas I used to have as I never understood how bad pain could be. But I'll say the kids I treated NEEDED the lecture, but adults are adults. Thats why I ultamitly had to leave the addiction field, I no longer believed that everyone who takes pain meds are addicted and going to have problems...my colleges didnt like that.
 Interstitial Cystitis and Endometriosis


wmnak
Veteran Member


Date Joined Jul 2006
Total Posts : 1123
   Posted 1/31/2008 9:02 PM (GMT -7)   
exactly, hazel! excuse me if i step oon mayone's toes with this posting, but i think it makes an exact analogy. "drugs" and "pain management medication" may seem to some as referring to exactly the same thing. they don't. in 1970 my life went to he** in a basket and i started tyaking any drug i could swallow, smoke, or sniff (except lsd - that was too much even for me). this binge (the dr now tells me it was a manic period in a bi-polar disorder) that lasted for about a year. one day i said to myself, "self, this isn't you at all." so i quit and pulled my life together.

i now take pain management medications to help control the constant pain in my back. it is rxed and closely monitered by a qualified pm dr. i take as little as possible to achieve the greatest relief.

this is the difference between calling all people who enter the united states "imigrents" regardless of their entry or retention status. some imigrents are like most of our ancesters (or those who are first generation) came here legally. mine came through ellis island. there are otheres who enter the united states illegally. living nexxt to the rio grande river, i saw them every day. these people are not "immigrents" like my ancesters. they are breaking the laws of this country, making them criminals. i feel this way, in part, because i lost most of my family to hitler's ovens in poland when the united states government refused to let them into this country legally and couldn't get in illegally. the law, to be respected, must be equally applied to everyone.

sorry if i stepped on any toes.

hope there are painfree days for everyone.

warren
That light at the end of he tunnel?  It's an on-coming train.
 
 


hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 2/1/2008 3:35 AM (GMT -7)   
Your right one thing never applies to all. I wish docs could feel what we feel for just 48 hours, without pain meds or any other docs to help them. I say 48 hours because after the 24 hour mark you start turning twords insanity and see no end in sight...the emotional aspects alone could send the strongest person right over the edge!!!
 Interstitial Cystitis and Endometriosis


Obtuse1
Regular Member


Date Joined Feb 2007
Total Posts : 114
   Posted 2/1/2008 7:24 PM (GMT -7)   
amen, amen and more amens to all that. Been there and didn't start on the road to regaining some modicum of control until I found a Dr who HIMSELF had had a spinal fusion, with complications. HE never questioned my requests for pain meds...but then he also sent me to a Pain Control Center (back in the 80s these were big deals, doctors of all specialties in one place, meeting as a team to come up with a plan for each patient--from nutritionist to psychiatrist). Saved my life as I learned a bunch and lived without meds for over 10 years till new problems arose.

So...keep coming here. You're among kindred spirits.
[2}Dx: Post Spinal Fusion chronic pain since 1984;Polyneuropathy;Meniere's Disease, Left ear deafness & severe tinnitus on both sides, Left; Intmt Anhedonic depression;
Hx,Meds: tinyurl.com/ysd7h6


hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 2/2/2008 3:02 AM (GMT -7)   
Oh Lord...Isnt there anything beneficial that doesnt fade away...A pain Control Center sounds like the perfect place for all of us....They always mess with the good things. And that goes for something as simple as my television. Its true I'm young (my body just refuses to hear it)...but even my beloved TV which has gotten me through some pretty horrific nights has been filled with garbage. Its a running joke in my family that if I like something or find it beneficial its only a matter of time before it disapears. I almost threw in the towel when Frasier was replaced with yet another reality show. I could go on forever about the in-justices of everyday entertainment...then again video games have saved my life. Its a double edged sword. But mindless entertainment is important for those of us in CP.
Oh gosh I cant stop the pointless rants...I have to sign off before you all kick me off for the minless dribble
 Interstitial Cystitis and Endometriosis
 

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