Welcome Cen! I would really like to know...anyone!

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Funnygirl
Regular Member


Date Joined Jan 2008
Total Posts : 57
   Posted 1/31/2008 12:01 AM (GMT -7)   
smurf  Hi Everyone!
I'm awed right now!  I live in Wisconsin, lived with CPS/MPS/FM and many other things all my life plus, 21 surgeries....pain has always been a part of my life, then about 14 years ago, I ruptured 2 more disks and was diag. with Acute CPS, etc. and I had to closed down my business a stop working, drs. orders! I went through pain management, tried everything and wasn't given anything, I had to use a cane to walk!
 
We moved alot because of HB's work and landed near Madison, by now I was becoming more and more bed ridden until I went to the Pain Center in Madison!  After trying different meds. they finally found that Oxy was for me!  This was the first time in my whole life I didn't have pain, plus I was given BT meds. The doses were 20mg, 3X's daily and BT was Morphine tabs, 10mg. Now this is about 12 yrs ago and nothing new to many, but I had my life back!
 
But, as we moved, no matter how many hoops we jumped through, it was getting impossible to find any dr. to help...I was called everyname in the book, it was all in my head...it was awful! After many years of no pain relief, making endless trips to the ER, once again we found a dr.who would help!
 
The dose was lower, but I was grateful....then 4 years ago we had to move again....and the hell began again!  I'm med. sensitive and we wasted so much money because everything but what I had taken that worked made me sick....I was even hospitalized from allergic reactions and internal bleeding!  But they refused me anykind of narc. I was now labled as a "pill seeker", in a wheelchair.  Finally,last year when they found lung masses near my heart and broken ribs I was given Hydrocodone 5 mg, 1 tab every six hours....now I have complications from that sad I just got out of hospital again, with masses again and possible cancer, sending me home with Oxy, 30mg's, 3X's a day, IR Oxy, 5mg's for BT pain only 4 a day and Lyrica, 75mg, twice daily...
Why I'm in awe is that I'm still labeled a druggy, even though now it's OK to have the meds. because now the cancer card is out....and I look at the doses your drs. have helped you with so you could continue working, etc......why did they steal my life and happiness,  is it me? Are my doses high? NO!
Someone please explain this one to me....I'm confused confused
 
Sorry for the rant, help, anyone!
Funnygirl

hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 1/31/2008 2:23 AM (GMT -7)   
Oh Funnygirl-My heart truely feels for you. Many of us have been in the same boat when people, friends, docs and famiy label us. There is a fact soo many people miss and its called psyeudo addiction, when it appears someone is a drug seeker for recreational use but there seking drugs because there in sooo much pain. It really sucks I know...It defenitly NOT YOU. Its them and there ignorance to understand what chronic pain is really like. If you need them, you need them. Dont let anyone convince you you are doing anything wrong or bad. As long as your using them properly you are just trying to treat your pain. There are some goodpain docs out there who recognize psyeudo addiction, and understand your seeking meds because its a desperate situation. I had to go to the ER the other day for about the millionth time, and you wouldntbelieve the looks I get. They all look at me as if I'm in there trying to score dilaudid and get high. It can make you feel ashamed and like an addict...but your not. Your on a perfectly normal dose from chronic pain. Try to find a pain doc who can sympathize with your situation. There are good ones in every city and state I promise. They can just be few and far between.
I'm sorry to hear about the mass they found. I hope your okay. My prayers and thoughts are with you
 Interstitial Cystitis and Endometriosis


hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 1/31/2008 2:25 AM (GMT -7)   
Why does it keep sending up more than one copy!!...grrr...
 Interstitial Cystitis and Endometriosis


Centurion
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 1/31/2008 3:00 AM (GMT -7)   
So sorry to hear...Not sure...I mean in relative terms..Im 6'4" and 235lbs..so 40mg for me if prob 20mg for you...Also...I was very persistent about the fact that some meds didnt work and like you when I was given oxys..finally the pain was bearable...and still the doctor still doesnt understand that Im home with my son all day and I run out of my meds every so often..and the doctor gets annoyed...So I explain every month...Its a simple choice for me...I can either take an extra pill or not pick up my son or play with him...So....Not really a choice at all...Plus to boot i dont get this HUGE taboo of going back a few days earlier for refills..Ive called my ins. co several times about this and their policy is you can technically get a refill at 21 days or 75% of your meds are used...so why shouldnt the docs follow the same suit...Its pretty easy to tell who the real "pill seekers" are...and definitely not someone who cant walk and is in a wheel chair...Ive actually had someone try to sell me their pills in the waiting room...I was amazed...jerkoffs like that are the ones who ruin it for the rest of us...Needless to say...I ratted that SOB out and havent seen them since...

Ive explained to my doctor that these pills allow me to work...and If they ever told me to close my business Id run from that place...I mean whos going to feed my family...Not them..such a shame that we live in a world where because of a small % of people we cant truly get the help that we need...

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 1/31/2008 12:55 PM (GMT -7)   
HazelB, I deleted the extra post.  That happens sometimes and I sure can't figure it out either!  I just didn't want you to wonder what happened.  Have a good day.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 2/1/2008 5:22 PM (GMT -7)   
Thanx a bunch!
 Interstitial Cystitis and Endometriosis

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