Another sleepless night with terrible pain!

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Funnygirl
Regular Member


Date Joined Jan 2008
Total Posts : 57
   Posted 2/1/2008 11:17 PM (GMT -7)   
sad  Hi Cen and others!
 
How's it going for you Cen and your little guy....well I hope!
 
It's midnight here and again I can't sleep the pain is so bad and I'm getting tired of this...need some zzzzz's!
 
It started when I got sick 5 weeks ago, then went into hospital, then got worse when they sent me home on Lyrica!
 
When I'm just on the Oxy, the pain is managable, but as soon as I take the PM Lyrica, I'm not only a zoombie that's wide awake and bouncing out of my skin, but it makes the pain worse!
 
Is anyone else having this problem?  I need some advice and sleep!  it's during the day I have to catch my zzz's....feel like I'm half zoombie and half vampire!
 
Hoping someone can help....
Funnygirl
 
 

hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 2/2/2008 1:58 AM (GMT -7)   
Funnygirl-
I hope you catching some sleep right now...
I know it can be complete torcher. I am up ALOT at night too!
The things I do...however dull they sound is HOT baths with lavander or eucalyptus)wrong spelling?) it gives a nice tingly feeling..epsom salts good too. I have a secret stash of mindless movies...funny ones are the best..
Pots of chamomile tea.
But what got me through my sleepless nights before I got on pain meds was play station 3...totally not for kids anymore! If you can get one really cheap and used you only need one game Jak and dexter(my husband would crap himself if he heard me suggesting it!) I swear I was in soo much pain..but I never noticed hours flying by. I cant believe I'm 28 and suggesting video games! Anyhow I still play when I'm having a bad night and before I know it its time for my next dose. Just a few sugg.
Have you asked your doc about something for BT meds or something for sleep. Ambien is really great, I just dont know if its okay with certain doses of oxy. Even percocet has a muscle relaxing componet and not only helps with pain but makes sleep a little easier.
I hope you manage to sleep. I'm usually on in the midle of the night if you ever want to chat!
 Interstitial Cystitis and Endometriosis
 


Funnygirl
Regular Member


Date Joined Jan 2008
Total Posts : 57
   Posted 2/2/2008 2:59 AM (GMT -7)   
smurf  Hon, I had a whole thread for you...then puff it's gone!
 
Thanks for all suggestions....talk tomarrow, OK?
Then I'll start over...too weery to start over...just hope you're sleeping well!
 
Blessings,   Funnygirl

Centurion
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 2/2/2008 4:48 AM (GMT -7)   
Hey,

I feel your pain...I like you go through spells where I get maybe 2hrs of sleep a night for 6-8 weeks...Sleeping pills just make me feel awful if they work at all... Sleeping is hard for me cause Im a side sleeper and cant lay on my side or my back..so im screwed either way..Im always up till atleast 5am EST..if anyone wants to chat...

Funnygirl
Regular Member


Date Joined Jan 2008
Total Posts : 57
   Posted 2/2/2008 10:46 AM (GMT -7)   
smurf  Hey back Cen!
 
I hear ya...that's what I go through, exactly, and it's hard to explain it to others, especially dr.
 
But guy, how do you do it with work and taking care of your little guy?  Do you get any help?  Don't mean to be nosy, but that's alot on your plate with CP on top of it!
 
If you'd like to chat, I'm here for you...OK?
 
Hope to hear from you soon and hope you got some sleep!
 
Funnygirl

Funnygirl
Regular Member


Date Joined Jan 2008
Total Posts : 57
   Posted 2/2/2008 11:06 AM (GMT -7)   
smurf  Morning Hazel!
 
Again thanks for all the great suggestions, but I can't do most of them sad
 
I have a feeding tube in my stomach and not allowed to soak in tub....boy do I miss that, there is nothing like a sloothing hot bath to melt into and let Calgon take you away, giggle!  That's another problem, I'm allergic to fragrance and have to be careful what I put on my skin, etc.
 
Tried sleep aids and like Cen they don't work or they do havoc on my stomach...so also drug sensitive!  Plus, I'm allergic to tea and alot of herbs and spices....can you say "Needed, plastic bubble"!
 
I do LUV funny movies or books...I love to laugh...Good medicine for all of us, and try to do whatever I can, but pain usually restricts things!
 
Now being on strict bed rest....this forum, great people to talk to and my lap-top are helping with sanity!!!!
 
But again thanks and hope to hear back from you!
really enjoy chatting with ya.....Funnygirl

hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 2/2/2008 3:06 PM (GMT -7)   
Oh gosh...I'm sorry all my ideas are things you cant do...
your not missing much with the baths. Sure you can sit in there for a little while, but then you get over heated and you have to get out and dry yourself off and if you have pain that part defenitly isnt fun, then you get chills and by the end of it you realize that it just wasnt worth the hassel.
You know what will take up alot of time...a family tree. I started one on ansestory.com and I was obsesssed for months. If you dont mind spending a couple bucks its really interesting, you dont have to leave the bed at all!
I do defenitly feel more connected to the world hanging out in the forum. Sometimes I really dont even realize how cut off I am. By the time my husband gets home from work I cant stop talking I'm just so happy to see another person thats not one dementional.
There is a good movie called the Mists of Avalon. Its the story about King Arthur told from the perspecctive of the women like guinevere and Arthurs sister Morgain. I think its probably about 3 hours long. But really interesting movie. There is also a show that used to be on HBO called Dead like me. Its not on anymore, but they have all the seasons out on DVD. It is my all time favorite show. A few episodes and you'll be hooked. Its about a young woman who gets hit with a toilet seat from space and becomes a grim reaper. The noxema girl is in it, I forget the other actors. Its really great and light hearted. Nothing about it is depressing, morbid or upsetting even though its about being a grim reaper. I mean it can tug on the heart strings at times but mostly its really funny. I would recommend if you havent seen it, get it. By the end you'll be really upset that its no longer on the air! Infact I've just convinced myself to pop it in the player!!!!
Hope you get some sleep tonight. I may be on later...who am I kidding I'll defenitly be on!:)
 Interstitial Cystitis and Endometriosis
 


Funnygirl
Regular Member


Date Joined Jan 2008
Total Posts : 57
   Posted 2/2/2008 6:10 PM (GMT -7)   
smurf  Hey Seetie!
 
You stop worrying about me, you didn't know, and right now I'm more concerned about you!  I read your other posting about your sleep problems...what a pair, huh? 
 
You're too young to be so ill, may I ask how long you've had the IC?  Is the pain mostly from the bladder spasms or hardening?  Last question, do you get any relieve from Vistarile or Atarax, if you're even taking them?
 
I do know that the best anti-depressant in your case is Elavil, but you mentioned worries about water retention, but it is the best for IC, because it not only blocks spasms and pain, but would also help with sleep, or should, but on low doses!  You got alot of good advice {Gramps is awesome}, all anti-depressants are different and people react differently to them, plus they are no "magic" happy bullets!
It takes a good 4-6 wks. for people to really see/feel a difference! 
 
The up-roar about Cympalta is bunk, just like Lyrica, the
RX companies promise they now have the "magic bullet" for us, getting hopes up, etc. it's plain horrifying!  Hon, none of us wants to be popping pills, especially for the rest of our lives {I was always a health nut} and I tried to handle my pain holisticly, but I had to have my dentist, of all people huh, sit me down and say, I'm never going to be who I was as far as my body, embrace the changes even though it sucks (his words) nono and do what you can and that means asking for help too!!  That's the hard part for most of us!  So, if you need to take an Oxy for the pain DO IT HON!
 
Back to anti's...if your sensitive to meds. or prone to depression that effects your sleeping, they might not be for you and even make symptoms more sensitive/worsen!
Like someone here said, and it's true, drs. are handing them out to everyone for everything, blaming our CP on depression, duh mad , sorry it just makes me mad...like we don't have a reason to be sad or low!!!  But, there is the% of those who swear by them, the chances are 50/50.   For years the drs. have played this game with me....I've tried them all and each of them cause terrible side effects, even made depression worse, but remember that's my body that is sensitive to them!
 
One more thing...I need to rest...pain is screaming at me!
Have you ever tried Xanax?  It not only helps some for pain, but also for sleeping, with good results yeah !
 
Well, sweetie, hope this has helped some...there are options, plus you can call on me anytime...OK?
 
Sorry,for the rant...get back and we'll chat some more,
Blessings,   Funnygirl

hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 2/2/2008 11:53 PM (GMT -7)   
Great, thanks for the advice funnygirl, I know I defenitly need to take something because I am feeling a bit blue. But I defenitly need something for anxiety right now...I'm having to deal with something that is so nerve rattling that its making me physically sick. I'm thinking thats when the blahness started. I would prob benefit from an anti-dep, but I'm a bundle of nerves and its killing my bladder! I was on celexa ages ago. Only for a short time and it did nothing. They said it was because I wasnt "actually" depressed, but I'm sure they would do something now. I wouldnt mind a quick fix, but the only quick fixes come with an orange label reading 'controlled substance' and those quick fixes for happiness and anxiety relief dont last forever! You'll never see a magic pill without that sticker!
But you are so right we are too young for this!!! It all just happend so fast. My husband has been a god send though...I still cant believe he married me knowing it may always be like this. If the tables were turned I dont know if I'd have the same patience!! I keep joking that there better be an unbelievable payoff for the prime of my life! But deep down I'm completely serious:):)

With my IC the pain is from my bladder lining that has tears and rips in it. So when my bladder fills up the urine burns the exposed wall. I've heard it described as a constant sunburn, but I think its more like rubbing salt into an open wound. We all have different severities...mine is severe. But I defenitly have spasms too, mostly in my urethra. It makes every trip to the bathroom feel like my bladder was filled with broken glass...wow sorry thats dramatic of me!!!! Having endometriosis just adds insult to injury:):) But its not all bad, if there ever able to clone a bladder...I'm first in line for a bright shiny new one.
I was taking atarazx for a while, but when I told my doc it made me tired she stopped it instead of giving my a lower dose. It was pretty good. But as much as I love my pain doc, if I complain about something she usually stops it and doesnt replace it. I've learned that unless I really dont want something to just keep quite.
If your interested in reading my blog about IC its at www.icangel.wordpress.com I havent caught up with it lately...but I have a feeling I'll have all the time in the world tonight!!!
I hope your getting some rest. Even if its for a few hours. I wish I could just magically whoosh over my movie library...sorry I was just watching that sabrina the teenage witch show! Wouldnt that just make it all a little easier. Have you ever watched more TV in your life?? Too bad we cant capitolize on that as a career oppertunity!
This is defenitly turning into some auto-biographical novel...I may as well use the inability to stop writting on my blog.
 Interstitial Cystitis and Endometriosis
 


hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 2/4/2008 7:19 PM (GMT -7)   
Funnygirl Havent seen you on in a few...hope all is well and you are just getting some well needed rest or the pain miraculously? disapeared...be well
 Interstitial Cystitis and Endometriosis
 


Centurion
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 2/6/2008 3:36 AM (GMT -7)   
Honestly..I dont know how I make it thru some days...and No i have no help...and without my pain meds Id be SCREWED...My wife works till 5 then I work till about 5am...plus i get to work a few hours during the day when he naps...but i get a few hours sleep then do it all over again...which is why I run out of my meds allot.as Ive tried taking a higher dose and it doesnt really do anything extra for me when im really putting allot of strain on my back and shoulder...Im very hesitant to up my dose just yet as I know these things can get out of hand..and Im just not that guy who will no matter what ask for help...

How long have you been on this sleep schedule????
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