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tyvm
New Member


Date Joined Nov 2007
Total Posts : 7
   Posted 2/9/2008 8:22 PM (GMT -7)   
don't even know where to begin. I thought this was something sexual related, since it occured 2 weeks after intercourse with a man (I'm female) but I've now had a seven month HIV NEGATIVE along with a PCR DNA negative and 11 other HIV tests all in between.

So here's how it began.
I've always had enlarged tonsils, later a heart problem that developed after the birth of my daughter (2000), recurring uveitis for the past two years...

so in August my tonsils swelled up to where they touched eachother, and I developed night sweats. The tonsils didn't hurt, and there was one swollen lymph node under my chin. Eventually I was given a tonsillectomy, but the low grade fever, night sweats, flushing, all intermittent. Excessive fatigue that will not go away. Chills. Skin changes (rash on back, on legs), swollen painful lymphnodes on collarbone and tops of legs, and on back of one knee. flushed apperance on the face in the evenings, I just don't feel good :( I used to be overly hyper :) OCD in my cleaning, happy-go-lucky. What the heck happened?

Here's lab work:
HIV Antibodies at 6, 9, 10, 18,19,21,22, 27 and 30 weeks... excessive much ::)
HIV DNA PCR negative at 5 months
HIV ICMA Negative at 5 months
Mono spot and strep test negative
CBC normal - neutrophils and platelets slightly elevated
Sed rate 8
Thyroid panel normal
ANA normal
ANCA NORMAL
CRP 0.50
HLA-B27 POSITIVE
Heart function normal
EBV shows past infection (long ago)
CMV shows past infection (long ago)
CT scan shows mild lymph nodes, nothing characteristic of cancer or that they feel needs biospy but i was on prednisone at the time


If anyone can point me in any directions, I'd appreciate it. I focused on HIV for so long because it followed a sexual encounter, however the guy I was with tested negative with a rapid test 6 weeks after we had sex, and I've had all these negative tests, so symptoms and timing coincidence are just that - coincidence... I need to get to the bottom of what is going on. Please?

My current symptoms are immense pain in lymphnodes with swelling, especially in collarbone and shoulders, knees and groin, forearm and underarms, low grade fever and fatigue with depression from being ill, intermittent night sweats... PLEASE give me any ideas you may have

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 2/9/2008 9:50 PM (GMT -7)   
I noticed that you posted the exact same message in three forums. That is not allowed. Please pick the forum you most think fits your issue.

As to your problem - have you seen a rheumatologist? The fact that you have had reoccuring uveitis for the past two years and you are HLA-B27 positive, points to a possible autoimmune disease.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


hazelB
Regular Member


Date Joined Jan 2008
Total Posts : 114
   Posted 2/9/2008 9:56 PM (GMT -7)   
The only advise I could give you in that whatever is going on sounds systemic(throught the whole body) Your best bet may be to visit a Rhumatologist who can test for everything between lymes and Lupus. There tests are pretty in depth and extensive. I'm not a medical professional so its only my opinion of your symptoms. Rashes can mean a number of things especially with a low grade fever. It actually sounds alot like lymes. Have you ever been bit by a tick?
Sorry I cant offer you more help or suggestions. I hope you can find out whats going on asap and start feeling better:):):)
 Interstitial Cystitis and Endometriosis
 

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