I am so sorry to hear about your Mom. Chutzie gave you some sound pointers. I am not a doctor either but it sounds like things are not so good right now for your Mom. Just spend all the time you possibly can with your Mom.
I will keep you and your family in my prayers. Your Mom sounds like she is a real fighter so that is good. You hang in there with her and please come back and let us know how you are doing and the latest with your Mom. Hugs to you, Susie
Hi Blue and I too send my preayers and thoughts your way.
I am sorry your Mom is having such a time of it and facing the loss of our parents is never an easy thing no matter how old they or we are.
It looks as though your Mom is having mulitple system problems and in most cases when so many things can and will go wrong it will disqualify you from the transplant list, I know this sounds extremely cold but with so few organs available for transplant they have to consider how all of these problems are going to effect the acceptance of the new liver and whether it will be productive for anyone to use it including your Mom sweety.
It sounds as if she has fought a very courageous battle with this disease but may be losing thru other means. You have been given some very good advice from the others here and I agree,spend as much time as you can with her now and make each moment count for her. Advocate for her at this point as so much as making sure whatever time she has left is spent her way and in comfort above all. Assure she gets the best care she can have and use whatever means needed to relieve the symptoms of all these problems occuring.
Take care of yourself as well.
Use the forum for a shoulder to lean on when the burden gets too heavy to go alone and surround yourself with family and friends and "talk" to your Moms Docs,dont be afraid to ask questions no matter how trivial they may seem. Be assured by them that they as well as you are doing everything possible to make your Moms medical choices the best that they can be for all.
Good luck to you and to your Mom.
Chutz, Straydog and Ruth
Thanks so much for praying, I tell mom to have hope and pray.
The doc's tell us we were doing very good at controlling the liver problems. They are doing every thing they can to handle what comes up. She has a very good team of doc's
I live in central jersey and i have a team of doc's i love.My mom lives in north jersey and she has her doc's which she loves and they are doing everything they could to keep her stable.
I feel they are a little behind / my team of doc's are when my mom stayed with me for 6 months to get her well. Diet, med's, nurses, re-hab, follow-up care, xrays, cat scans, blood work , keeping records in a diary of her sugar , a pill box for the week every thing was good and she wanted to go back home and she did well for 6 months and this happened
doc's did'nt keep up with blood work, xrays, scans,and she was in the hospital 2 xs for UTI and 1 x for am levels being high.
I am all over these doctors - In a nice way let me tell you
I tell my mom if the doc's come in you ask them this and call me asap
I have hope for mom- she had a sad life lost two children her youngest 22 and 24 raised my sister who died son he is 21 today lost her husband from cirrhosis.
So all prayers are welcome
Thanks so much
I'm sorry if this is all over the place but i am leaving to spend the day with mom- hope to catch the doc's there- mom having a ok day so far fingers are cross for good day. she hates the food and i will bring some thing good for her. My son and husband help out to we take turns.
Blue it sounds as if your already doing all the right things you can do for your Mom.
I like her lost a child so in knowing that realize she has laready carried the most diffcult burden one can in this life. I truly believe there is no greater pain,that experinece has certainly made everything that came after more reasonable.
I know in my mind that fater my daughter passed away dying took on a new meaning to me and I had to believe there was something other then this life. I couldnt imagine the thought of never seeing my child again making death a not so scary thing for me.
Dont want to delve too much into any religious thing here but wanted to just let you know that your Mom most likely feels the same way.
I wouldnt have wanted to leave my other kids but as age gained on me and they got older I actually didnt grow horrified thinking of my own mortality.
I hope she wins to fight another day but I also know if she doesnt? That it wont be such a major ordeal for her as it will be for those of you left loving and missing her.
Much luck to you both.
Just wanted to update you on mom's condition today. General doctor is aware of the retaining water in her legs 1 dose of lasix already legs are going down, spoke with heart doctor lungs are clear no sodium for her at all she will be off of the heart machine,she took her lactose moved her bowls, kept her food down, still on med's for UTI still in private room for infection. mom was a little on the yellow side 2 weeks ago not now. that's good I saw her really yellow at times and would take her to the doc's and her am levels were high I would double up on the lactose and milk thistle and change her diet the diet's been the hardest all fresh veggie's & chicken baked potatoes, whole wheat toast, special K w/ 1% milk not sure with the milk and 1/2 grapefruit, tomatoe soup and grilled cheese on whole wheat
Liver, sugar, and blood doctor's did'nt come in yet.
Also, mom's going to be release to long term care in 2 days they just called me and i want her in central jersey by me. They are working on it- she needs a private room because of the infection
It's looking good. Thanks to everyone for the prayers and keep praying
I will be praying for everyone
All of which sounds like good news!
Stay on top of the long term care. Good to have her close to you,visit often and make sure they know to expect you daily or as often as possible.
They are often short handed in these facilities and dont get to "see" the patients as much as they should during the ocurse of the day. Make sure you enlighten them if you visit and see changes you dont like in her,be persistant but not to the point they will ignore you as being a (PIA)
Take her favorite foods and make sure she has access to things you bring her as the food is not so great to most that have been cooking for themselves. Most places have a patient fridge where you can leave lableled things such as fresh fruit,favorite soft drinks,etc for her so she has them when she wants.
Also make sure if she is on pain meds that she gets them,ask what their policy is concerning whether they are scheduled or if she has to request them and make sure seh understands to do just that if it is the case, LT places are not so prioriticed when it comes to giving pain meds sadly as the majority of them do NOT use Nurses to distribute meds but use med tecks or medication aides so the Nurses have to rely on them to for info on a pateint requiring pain meds. Some states allow the tech to distribute narcotic pain meds,some dont.
Not saying they are all bad just really short handed for the number of patients in their care,like everything else there are good ones and there are bad ones,have some say,take a tour if possible prior to moving her there,look for patients that are clean and nicely dressed,no food on their clothes,no socks or shoes,do they look as if they have been sitting up for days? Does the place smell bad when you walk in? And remember they cant get all the odors out with so many flaoting around but you will know when bad is bad.
This is your Mom and she deserves the best that can be offered her and you have the right to see she gets it.
Good luck and I hope things continue to go well for her,good sign that it took only one dose of lasix to see results.