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Skeeter_Bug
Regular Member


Date Joined Aug 2005
Total Posts : 86
   Posted 3/3/2008 3:21 AM (GMT -7)   
Hi everyone. I have had chronic pain for years and I have had problems walking due to pain and weakness in legs. my pain level in legs and back are getting to the point that my oxycontin is not working. I am on i think 20 mg doses 3 x day. I want to tell my doctor but i am afraid the doctor will think i am just saying that for more stuff.  in fact I can take the oxycontin and not even get a buzz. she is terrific as a doctor and my tens unit does not work at all for me. lately due to the fact I heard my back crack and could not get up now i am falling allot and can barely walk and i am to the point i need a power chair to get around. I can only walk about 10 feet even thought i am in agony. I  have always had pain in legs but now i has traveled to my feet before it was from crotch to the knees. i also feel like my hip bone is coming through the skin and trust me i have a big butt. anyone have a clue what is going on also i have tingling and pins and needes.
I can do all things through Christ who strengthens me. Philippians 4:13 
 
God loves you whether you like it or not
 
Fibromyalgia, Diabetes, Asthma, degenerative disc disease, facet disease, osteoarthritis, hypertension
 
 
 
 
 
 
 


notnu2cp
Regular Member


Date Joined Feb 2008
Total Posts : 138
   Posted 3/3/2008 3:40 AM (GMT -7)   

Hi Skeeter and sure am sorry to hear your having such problems with pain.

Dont ever be afraid to talk to your Doc and especially if something new like your describing is going on. All of this can be something that needs attention and if nothing else it needs looking into! Falling around can only cause you more trouble in the future,what if you break something falling or make your back worse? You really need to find out why your falling and why all this new stuff going on and I am sure your Doc would want to know about this.

It is much better to let them know everything that is going on with us as if it is clearly documented that our pain and symptoms are changing whether there is an increase or decrease in our mobility then if the time comes that we require an increase or change in meds they have their ducks in a row and all the paperwork in order to back-up those changes,in other words the more they can put in our records the safer it is for them with those following their prescribing methods.

In my opinion you need to make that call today to get in to discuss all of these things with her and if she offers increasing meds then fine and if not at least you made a point of refernce to changing numbers of pain and it might get her to at least look to see what is going on and upon finding  something different or new then increase your meds or add another to the mix.

 

Good luck to you and please call today


2 knee replacements & a hip.
spondylosis at L-4,5 & S1
arthritis,sciatica all that being a CPer entails!
 
If you stumble make it part of the dance!


Raven67
Regular Member


Date Joined Sep 2007
Total Posts : 155
   Posted 3/3/2008 4:32 PM (GMT -7)   

Hi Skeeter,

Sorry to hear you are in so much pain, I can relate.  I take the same amount of oxy as you do and the only reason I don't take more is because I have 3 really busy kids at home and I can't function on more, it makes me too drowsy.  My doctor is working with me to try and figure this out.  Anyway, with regards to the pins and needles, have you ever been checked for Diabetic Neuropathy.  There are nerve studies that your PCP can send you for.

I'm diabetic as well and suffer from this type of pain so you may want to look into this. 

Good luck

Raven

 


When you get to the end of your rope, tie a knot and hang on!!!!
 
Current Diagnosis-Rheumatoid Arthritis, Insulin Dependent Diabetes, Osteoarthritis right knee, Osteoporosis. Stress!!!!!!
Current Meds-Methotrexate 20mg s/c weekly, Plaquenil 200 mg BID, Celebrex, Folic Acid daily, Cesamet, Oxycontin 20 mg BID, Lorazepam 2 mg dly Actonel weekly, Insulin-Humalog 35 units TID and Lantus 40 units BID, Calcium, Vitamin D


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 3/3/2008 9:46 PM (GMT -7)   
Hi Skeeter...

Please be very up front with your doctor. Your pain level is way out of control..and sounds to be under treated. Also sounds like they need to check to see why you are having these other pains and can't walk. That's way more than should be happening.

BTW, I never get a buzz from the oxy. If I get too much I get an awful headache and feel like I have the flu.

Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


wmnak
Veteran Member


Date Joined Jul 2006
Total Posts : 1123
   Posted 3/4/2008 10:07 PM (GMT -7)   
skeeter,
 
many years ago, when gramps and i were teenagers and dinosours roamed the earth, i knew a mafiosto (yes, these people Do exist).  he gave me some advice that i would kile for you to write on your heart, to keep in your emotions, and on your forehead, to always keep before your eyes:  ALWAYS tell thte truth to your lawyer and to your doctor.  The first one can dream up some legal excuse to get you off and the second can't treat what he/she doesn't know about.
 
remember that going to a dr is like a marriage:  its roots are in mutual trust.  if i don't trust my dr, i will not follow his/her advice adn will find another one.  if my dr doesn't trust mer he/she will be constrained from providing me with the medical car e to which i am entitled.  i feel like i can tell and of my drs anything without risk.  i trust, and belive, that any of my drs can tell me anything and i can trust the statemet completly.  example:  iu saw a pulminary specialist about a month ago.  all over his literature was jersus this and christ that.  fine, but i'm jewish.  on one of the forms, he asked if i wanted christian spiritual counseling as part of my treatment.  my answer as, "no, but would you like some jewish theology?"  when i saw him and he read my "book" questionaire, i could tell when he came to that "religious" part of the questionaire.  he looked at me and i looked at him.  he smiled and said he might want to know about judaism and i told him that after we got my lungs sorted out we could perhaps discuss christian theology.  we both laughed and went on with the examination.  (I HOPE THAT THIS PARAGRAPH DOESN'T STEP ON TOO MANY TOES.  BUT IT'S A TRUE EXPERIENCE WHICH ILLISTRATES MY POINTS).
 
whern lortabs pooped out on me about 5 yrs ago, i told my dr and he changed the rx another medication.  he trusts me to be open to his suggestions and to never abuse the drugs or his trust.  i never will.
 
get the same relationship with your drs, skeeter.  holding back will only hurt you, IMHO.
 
i wish you all of the wisdom you can hold in making this life-altering decision.  the best of luck.  may God smile on you and your choices.
 
warren
 
warren
That light at the end of he tunnel?  It's an on-coming train.
 
 


kara487
Veteran Member


Date Joined Mar 2008
Total Posts : 637
   Posted 3/5/2008 12:38 PM (GMT -7)   
Hi Skeeter, I can relate with the pain you are in. I agree don't be afraid to be up front with your dr. I would be honest and tell them that the oxy isn't helping you anymore. I hope your pain lessens,I hope you have a lpd.

Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 3/6/2008 1:24 AM (GMT -7)   
Hey Skeeter,
The first rule of Pain Management is that you should not ever get a buzz. That said, you should be able to get adequate relief. If the med or dosage that you are currently taking is no longer cutting it, you may have hit the great wall of TOLERANCE. This is the stage at which your body has become accustomed to your present dose and you need an increase in order to get the relief that you had previously gotten. When this happens, you NEED to openly and honestly discuss it with your Doc.

I've been on 40mgs of Oxy twice a day for nearly 3 years. about 6 months ago, I began taking Norco for breakthrough pain. Over the last 4 or so months, I've been having more and more pain and I only realized I've hit tolerance in the last two days when a delay in a refill left me taking only 20mgs per day and I had no increase in pain and no withdrawl symptoms. This HAS to be tolerance. There's just no explanation.

Please, talk with your Doc and work out whatever you have to do to get the relief you need. I'll be taking my own advice this week too.

Best Wishes.
Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.
Crohn's Forum Moderator


Skeeter_Bug
Regular Member


Date Joined Aug 2005
Total Posts : 86
   Posted 3/6/2008 6:20 PM (GMT -7)   
wmnak said...
skeeter,
 
many years ago, when gramps and i were teenagers and dinosours roamed the earth, i knew a mafiosto (yes, these people Do exist).  he gave me some advice that i would kile for you to write on your heart, to keep in your emotions, and on your forehead, to always keep before your eyes:  ALWAYS tell thte truth to your lawyer and to your doctor.  The first one can dream up some legal excuse to get you off and the second can't treat what he/she doesn't know about.
 
remember that going to a dr is like a marriage:  its roots are in mutual trust.  if i don't trust my dr, i will not follow his/her advice adn will find another one.  if my dr doesn't trust mer he/she will be constrained from providing me with the medical car e to which i am entitled.  i feel like i can tell and of my drs anything without risk.  i trust, and belive, that any of my drs can tell me anything and i can trust the statemet completly.  example:  iu saw a pulminary specialist about a month ago.  all over his literature was jersus this and christ that.  fine, but i'm jewish.  on one of the forms, he asked if i wanted christian spiritual counseling as part of my treatment.  my answer as, "no, but would you like some jewish theology?"  when i saw him and he read my "book" questionaire, i could tell when he came to that "religious" part of the questionaire.  he looked at me and i looked at him.  he smiled and said he might want to know about judaism and i told him that after we got my lungs sorted out we could perhaps discuss christian theology.  we both laughed and went on with the examination.  (I HOPE THAT THIS PARAGRAPH DOESN'T STEP ON TOO MANY TOES.  BUT IT'S A TRUE EXPERIENCE WHICH ILLISTRATES MY POINTS).
 
whern lortabs pooped out on me about 5 yrs ago, i told my dr and he changed the rx another medication.  he trusts me to be open to his suggestions and to never abuse the drugs or his trust.  i never will.
 
get the same relationship with your drs, skeeter.  holding back will only hurt you, IMHO.
 
i wish you all of the wisdom you can hold in making this life-altering decision.  the best of luck.  may God smile on you and your choices.
 
warren
 
warren

Hey love your post. I am also a jew. i know you may not believe me. I was raised as a gentile,, I found out two years ago that I was jewish and my family hid it, years ago and so I had no clue but what was odd I never felt comfortable in a church and I  had a love for the Jewish people but never knew why now I understand. when i first joined the forum I hadn't found out yet and I the other day edited my sig. there is no synagoue for hundreds of miles so I am studying at home, do Shabbot and I am planning on moving to a city where I can go to Shul. My dream is to do ALiyah 


Baruch atah Aadonai
 
Hashem loves you whether you like it or not
 
 
Pray for the peace of Y'rushalayim
 
 
 
Fibromyalgia, Diabetes, Asthma, degenerative disc disease, facet disease, osteoarthritis, hypertension
BIPOLAR
 
 
 
 
 
 
 

Post Edited (Skeeter_Bug) : 3/6/2008 6:24:12 PM (GMT-7)

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