Please welcome Boater! needs info

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Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 3/12/2008 3:33 PM (GMT -7)   
Boater,

I found your first post in another thread so moved it here so more people would see it.

Chutz

I've been seeing a pain management group since 1998. From day one the doc there said he couldn't fix me but he could give me a better quality of life and i have to say he did. they weren't afraid to give me medications and my pain has become a lot more bearable. i have a lousy back, herniated discs, disc degeneration. facet syndrome, arthitis, spinal stenosis, and dessication of a bunch of lumbar discs, in other words, a lousy back. i am taking massive doses of narcotics and after adjusting to the fact that i needed them to function it was easier for me psychologically. i have also been lucky in having good results to my yearly radiofrequency procedures to my spine. now my main concern is my crohns disease. i need to have a subtotal colectomy and though i haven't seen the surgeon yet, am concerned about the pain management because of my high tolerance. also i will be going to a hospital not where my doctors practice so i am concerned about the management of my pain thru surgery and the recovery period. has anyone had surgery where they've been under painmanagement for their chronic pain and how did they manage. i'm new to this website and it's taken me awile to find this spot so any info would be greatly apprectiated. confused
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/12/2008 6:48 PM (GMT -7)   
HI there and Welcome
I am so sorry for ALL you have and are going thru
I do not see a pain mgmt specialist my doc looks after all that
Could you ask your doc to make arrangements at the specific hospital where you are going for op
I dont know how it works there but here in Ontario ( Canada) it can be done

I too have Crohns but not in the shape you are..I am so sorry I cannot be of more help to you
I would suggesst you might want to check out the Crohns forum here on HW to see what many of the vets of crohns have to say ..........they too are a great group of ppl that will help you out just like these ones on this forum

Take care and keep us posted

LYN
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
         Mod for Alzheimer's, Anxiety and Panic and Co Mod for Crohns
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boater
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/12/2008 7:59 PM (GMT -7)   
thanks so much for the advice, i'm pretty ignorant sometimes in computer lingo and how to do simple things, like cut and paste. my daughter is always yelling at me to become more computer literate. anyway,once again thanks

Mochiah
Regular Member


Date Joined Dec 2007
Total Posts : 450
   Posted 3/12/2008 8:15 PM (GMT -7)   
I would have to recommend discussing it up front. I did and they told me flat out if I felt I wasn't receiving adequate pain control to tell the nurse, if he/she didn't listen ask for the nursing supervisor, or doctor, and keep going up the chain of command until they listened. Fortunately, I never had to do this because I was very up front and told them that my first stay with them for my back surgery was not acceptable and I didn't want to be treated that way again. My pain management doctor had given me higher doses to take after getting home, so I just showed them that before undergoing the surgery.
Mochiah/a.k.a. Sue
cervical fusion 2006
L4-5 surgery with cages, plates, and screws in 2005
MEDS:  Fentanyl patch, Norco, Celexa, trazodone, and baclofen
 
To handle yourself, use your head...to handle others, use your heart
 
I'm going to smile like nothing is wrong, act like everything is perfect, and pretend its not hurting me.


notnu2cp
Regular Member


Date Joined Feb 2008
Total Posts : 138
   Posted 3/13/2008 4:10 AM (GMT -7)   
Hi Boater and welcome to HW.
 
There is absolutely no reason your PM Doc cannot call and consult with your surgeron and even ig he doesnt have visitng privs at the hospital where your procedure will be done he can request guest privs and if he doesnt want to do that he can ask your surgeon to please consult with him re your PM issues post-op an dit is frequently done this way.
 
Let your PM know of the worries you have and ask him to please call the surgeon and set up a consult for themsleves on your behalf that way you have 2 Docs working on your pain afterwards,one knowing your history and one knowing the procedure and the amount of pain generally associated with this.
 
Again welcome and glad you found us and good luck!
2 knee replacements & a hip.
spondylosis at L-4,5 & S1
arthritis,sciatica all that being a CPer entails!
 
If you stumble make it part of the dance!
 
Formerly Ruth Thomas


kara487
Veteran Member


Date Joined Mar 2008
Total Posts : 637
   Posted 3/13/2008 6:46 PM (GMT -7)   
Welcome Boater. I can symoathise with you I suffer from chronic back pain also. I hope you have a lpn.

crps
Regular Member


Date Joined Oct 2006
Total Posts : 174
   Posted 3/13/2008 9:22 PM (GMT -7)   

Hi Boater,

I had surgery last month and when the anastesiologist(no idea about the spelling!) came over to the prep area he asked me what kind of meds do I take and how much on average per day. (not to mention all the papaerwork in his hand with all the info)As for the recovery, there was a list the nurse had as far as what meds and how often. My neurologist did the procedure but was gone by the time I woke up out of my purple haze from the "so called" happy gas but had to of given the list before she left.

I'm sure as you talk to your surgeron, and discuss your needs for consultations with all doctors involved, and your meds issue, you should be fine.

                                             Good Luck and have a pain free day!!

                                                   mike 


Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 3/15/2008 8:32 PM (GMT -7)   
Oh Boater! This has always been one of my greatest fears. I just addressed a similar, but less serious problem regarding upcoming dental surgery. I'm already on 40mgs of Oxycontin with 10mgs Norco for breakthrough and this just barely keeps my pain tolerable. There is no way I would be able to get through the pain of this surgery with the level of pain meds I have now, and I know darn well that my Dentist isn't going to address the issue. I scheduled an appt with my PM and he told me to double the Norco dose and gave me a script for Dilaudid in addition. Now I'm confident hat I'll be able to get through this. Before I saw him, I was really worried about how much pain I'd be in, because this is not an optional procedure. I HAVE to have this surgery.

I have been in situations in the past where I didn't get the type of Pain Mgmt that I needed and since I began these kinds of meds, I've frequently worried about what would happen if some unexpected accident/illness had me hospitalized where my PM doesn't have privileges. There are so many hospitals in my area that there's no knowing which one I might end up in!

I was left in agony after my last two surgeries - a tonsilectomy and removal of a 2.5 LITER ovarian cyst. I don't ever want to be in that kind of pain again.

So, I can really understand your concern. I think that you need to discuss the situation with both your surgeona nd PM Doc and have them agree to work together to make sure that you get an adequate level of post-op pain relief. I'd also schedule an appt with the PM Doc for just after your expected release from the hospital so that he can address your out-patient needs.

Although I also have Crohn's and have had several surgeries for assorted other things, I've never had a resection, so I can't really tell you much about what to expect. I hope all goes well for you.
Keah a.k.a. Wormy
 God helps those who help themselves.
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