Dx: Rare progressive neurodegenerative disease called Multiple System Atrophy (brain rot, autonomic system failure, neuropathic pain and a whole lot more). Added improvements: Intrathecal pump and a spinal cord stimulator and a new brand new power wheelchair with shiney horn,.
Medications: Sinemet, Requip, Klonopin, Baclofen, Provigil, Lyrica, Fentanyl patches, Lidoderm patches, Dilaudid, Fentora and Zofran
Toritoo, you can call Medtronic and they will run your serial numbers and product number to see if your pump is on the recall for the gears not working properly. My pump is on the recall but I am having no problems with it. Therefore, my dr & I both say leave it alone. One way the drs know if the pump is functionly correctly is when you go for refills they measure the medication pulled out of your pump. There should be a certain in the resevoir. If you have too much or too little remaining then you have a problems going on, also your alarm will go off. Also, if you have an increase in pain for no specific reason and you are experiencing withdrawal symptoms. I did talk to Medtronic about the recall and there has been some pumps that the gears have slipped, it does not mean all pumps will do that, there is a small amount this has happened to. Even if one pump fails they have to notify the FDA.
The FDA site is much better to get info from than Medtronic I found as far as alerts being posted. The masses that are being reported are from incorrect medications being used in the pumps, too high of doses of medications which is a result of uneducated drs when it comes to pump patients. You can get granulomas if you took a daily high dose of oral Morphine, and there are other meds as well that will cause this as well. Calm down, because none of this may affect you at all. If you are doing well without any problems then obviously your pump is working correctly like mine is. Hugs Susie
Toritoo, believe me when I read about the gear problem, man I was on the phone to my dr and spoke to his pump nurse. She had me email the info to her which of course I did. My next phone call was to Medtronic and for once I got a a nice informative person on the phone. She ran my numbers for me with no problem. Now, you understand any time a pump fails, its at your expense not Medtronics, to have the pump taken out and replaced, did you know that? All Medtronic pumps are sent back to them when a patient has one removed. On this recall Medtronic has their people check the pump out to see if its defective or not. If the pump is defective and another pump is being implanted then, Medtronic will give up to $1,000 to cover your out of pocket expenses. Not much to compensate a person for in my book.
Truly you need to contact them and give them the info off of your card so they can run the numbers. Your pump may not even be involved. That way when you see your dr you can tell her you contacted Medtronic and they ran your info and if your pump is one of the models then you will have accurate info at the time of the appt. From what I understand back in January they sent letters to peoples drs with pumps telling them of the potential problem with the gears. It was the 2nd alert I read and my dr said they were not sent any letter but Medtronic said they did. What my dr was aware of is the granuloma problem that has been cropping up. He has not had any patients have a problem with their meds causing trouble in the pump, and the only pump they replaced was one a man had for 11 yrs. They are not suppose to last near that long. But, my dr is very educated in the pumps so I have confidence in him. He said it was my decision on taking out this pump and putting a new one in, then Medtronic could then test it for the gear problem. I honestly believe that my pump is fine and I don't have that fear like I did at first. Not all the pumps are having the gear problem, so its not like all of them are bad. You can go into the archives at the FDA site and find the info.
I am with you, when they take the old meds out it seems like alot but they tell me its what should be left in there. If you have too little or too much in there then ya got a problem. I have been right on the money since June of 05. Try nnot to worry because I really think your is ok like mine. Please let us know what your has to say. Hugs, Susie