Antibiotics, longterm?????

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sheryl=jk
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   Posted 3/27/2008 9:22 AM (GMT -7)   
I am on a long term usage of Erythomyocin fro gastroparesis, to help gut move faster, has anyone else been on this longterm, and if so how are doing with it. Fot that has anyone been on any antibitioc long term and what is your story?
Anythoughts appreciated.... smurf ...

 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines Reglan,Protonix,Prozac,Effexsor,Erthomyicin,klonipin,occasional phernergan Im marrried 2 children, one with mild autism, Bipolar(8), she takes Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


sheryl=jk
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   Posted 3/27/2008 9:53 AM (GMT -7)   
Thank You Gramps, that is much help too me, as I was a bit bewildered why so long term. It doesn seem to be helped, but was wondering if it was doing more harm then good, thanks again for you imput.... smurf ......
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines Reglan,Protonix,Prozac,Effexsor,Erthomyicin,klonipin,occasional phernergan Im marrried 2 children, one with mild autism, Bipolar(8), she takes Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


wmnak
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   Posted 3/28/2008 10:26 AM (GMT -7)   

sheryl,

long-term use of anti-biotics produces "super bugs," germs (using the generic, non-scientific term) that are resistant, or immune, to the antibiotic.  superbugs are beginning to render many antibiotics useless.  it's darwinian.  the antibiotic ia effective against 99.9% of the germs and your body recovers from the infectiuon.  but the .1% are still there and grow becausse the antibiotic cannot touch them.  some researchers are preaching doom and gloom because they are predicting that we may revert to a pre-antibiotic period of medicine. 

leaches, anyone?

warren


That light at the end of he tunnel?  It's an on-coming train.
 
 


sheryl=jk
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   Posted 3/28/2008 10:33 AM (GMT -7)   
Well yeah that is one of my concerns. Besides what may be doing to my body interanally.
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines Reglan,Protonix,Prozac,Effexsor,Erthomyicin,klonipin,occasional phernergan Im marrried 2 children, one with mild autism, Bipolar(8), she takes Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 3/28/2008 4:16 PM (GMT -7)   
Sheryl
I was on IV Vancomycin for up to 4 mths at a time for the Pyoderma gangrenosum for over 2 yrs
For me it has caused severe damage to hearing in right ear and 90% loss in left ear ........
There was a warning apparently and is but I was not made aware of it and I SHOULD have educated myself on this ..IMHO.as well the doc should have been well aware of it

The antibiotic you are taking I do take so much and another few there is a good side and a bad side for me.......it helps keep the sores at bay and dries them prior to going from blood out

I got Pneumonia this yr and I had to have 3 weeks course of antibiotics to even try to fight it due to all the IV antibiotics I have taken over 14 yrs .......
Just my half cents worth lol........

Like was said too many can cause probs but then so can too may of any meds IMHO .....


  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 


sheryl=jk
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   Posted 3/29/2008 5:03 AM (GMT -7)   
Thanks Gramps :-) .
I just never been on an antibitoic specifically erothymicion(sp?).  Which made me sick awhile back when I was a kid.  Its seems to be working now, without any problems. I just to get others opionions who have been on long term antis.
Specifically erothmyicin. Its a pretty powerful anti.
Thanks for your input, I guess he just keep monitoroing my liver levels.  Which I get my CBC checked pretty often.
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines Reglan,Protonix,Prozac,Effexsor,Erthomyicin,klonipin,occasional phernergan Im marrried 2 children, one with mild autism, Bipolar(8), she takes Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


sheryl=jk
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Date Joined Oct 2004
Total Posts : 4083
   Posted 3/29/2008 5:06 AM (GMT -7)   
So Lyn You are on the same anti as me and long term, have you had any bide effects from the erythomnicin, and has the good been outweighing the bad?
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines Reglan,Protonix,Prozac,Effexsor,Erthomyicin,klonipin,occasional phernergan Im marrried 2 children, one with mild autism, Bipolar(8), she takes Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


sheryl=jk
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Date Joined Oct 2004
Total Posts : 4083
   Posted 3/29/2008 10:53 AM (GMT -7)   
Thanks Gramps, im not sure why he has me on both. I wont to go to wellbutrin and maybe lose the other two anti d's. He has been out of town for ahwile and I cant make any appts til may.
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines Reglan,Protonix,Prozac,Effexsor,Erthomyicin,klonipin,occasional phernergan Im marrried 2 children, one with mild autism, Bipolar(8), she takes Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 3/29/2008 12:33 PM (GMT -7)   
Sheryl - sometimes anti-depressants such as prozac and effexor are combined because they work on somewhat different neurotransmitters. If it's being overseen by a psychiatrist or PM doc, and monitored for side effects, it's likely ok. Wellbutrin works very differently, and won't help in the same way if you anti-depressants are also designed to help with pain. Maybe ask about cymbalta, although as with any medicaiton there can be side effects and some people have good experiences, and others not. What I would not recommend is you changing your meds on your own.

PAlady
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Date Joined Nov 2007
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   Posted 3/29/2008 12:38 PM (GMT -7)   
p.s. Sheryl I just noticed in your signature that you have children with bipolar disorder (if I'm reading correctly), and have both depression and anxiety yourself. If you have any tendency toward bipolar yourself (which can have some genetic components) wellbutrin is definitely not the medicaiton to try, as it can precipitate manic episodes in some people.

sheryl=jk
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Date Joined Oct 2004
Total Posts : 4083
   Posted 3/30/2008 4:24 AM (GMT -7)   
PlAlady hi thanks forthe info, yeah i figured hehad me on them both for a reason, but both are making sluggish and tired, I have been on wellbutrin before it was ok, I will admit to some anxiety from it, but i los 13 oounds, and sure wasnt depressed, I am very depressed right now despite my anti ds. However when I was on the wellbutrin that wa all I was on, no klonipin, or a mood stablizer either. I may keep with the prozac it has helped in the past, try the wellbutrin at his suggestion, keep with the klonipin since he upped my dose its helped alot, but i also im tired alot, so a little mania in there may not be so bad LOL!!
And I was on topamax, plain to go back on it in sept, that will be my mood stablizer/nerve medication. I have neurapathy and the topamax evn better than the neurotin, but the neurotin made me tiored and fat, but it worked. So I think with a combo of the kloinpin bringing down so to say, and the topamax mood stablizing as thats what its used for in bipolar people, should counter too much mania from the welbrutrin, I am not and have never been dx with bipolar, but i do have adhd,as both my kids do, but there is that chance that I am bipolar, and if I am, I am in a real depressive state, and would probably welcome the wellbutrin, I hope confused .
He suggested it and knows my kids full well, I would never do without his reccomendation nono .  It jsut surprises me, well I dont why it surprises me, but we all react so different to meds. Even within our sleves something may work for us once, then not again. I wish this had spell check?  My son can take no form what so ever of anti d's but my daughter can as long as she got a mood stablizer/anti phychotic or she will go manic too.  My son whom trying to wean off risperdal, as I dont have it listed, becasuse he will off it soon, the benifits are not outweight risks anymore, the weight gain too much, but he will remain on the topamax for two reasons, on its a migraine med, two it acts as a moos stablizer. Im just worried about his aggression sometimes. Ok sorrry for rambling, thanks for listening tongue ........
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines Reglan,Protonix,Prozac,Effexsor,Erthomyicin,klonipin,occasional phernergan Im marrried 2 children, one with mild autism, Bipolar(8), she takes Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 3/30/2008 6:59 AM (GMT -7)   
Hi Sheryl
Nope I havent had any real bad side effects at all
I am on them constantly due to keeping or trying to keep PG at bay
So far so good .
The only downfall which I contribute to all the IV antibiotics is that it took so long ( am still fighting ) the pnuemonia to get even a tad better.......

I too wonder about the both meds like Gramps said ......That could be ( poosibly and just my opinion ) one of the reasons for the sluggishness)
I dont have the sluggies with the Erothro

Take care you
God Bless
LYN
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 


sheryl=jk
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   Posted 3/30/2008 11:45 AM (GMT -7)   
I think both meds work in different ways, but it does make me sluggish, I will see what doc has to say next time I see him, he reccomened wellbutrin,  so may give that a try instead of effesor. I guess as long as dont have side efffects from erotho, I stay on it as appears to be helping :-) ...
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines Reglan,Protonix,Prozac,Effexsor,Erthomyicin,klonipin,occasional phernergan Im marrried 2 children, one with mild autism, Bipolar(8), she takes Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


PAlady
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Date Joined Nov 2007
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   Posted 3/30/2008 12:56 PM (GMT -7)   
Sheryl - it is too bad that science can't be more precise in what meds work for each of us. And it's true that the anti-depressants can stop working over time - sometimes it's a dosage that needs adjusting, or maybe a change to a new med is necessary. I've been a mental health professional for 30 years although I'm not an MD, so I have been able to see how many different meds are used sometimes in "off lable" ways, which can sometimes work and sometimes not. No med is without side effects, but then there are "side effects" to not taking anything if we're depressed, in pain, etc., right? Tough choices we all have to make. It sounds like you're thinking it through and working with your doc. I hope you don't let the depression keep worsening, though, and you mentioned you can't see your doc until May. Any chance you could call the office and get in sooner? Or if this is someone who's seen you for awhile they may be willing to make a change by calling it into the pharmacy.

sheryl=jk
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Date Joined Oct 2004
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   Posted 3/30/2008 1:17 PM (GMT -7)   
I have been told this doctor has been out of twon on a family emergency. And no appts or being taken til May. The girls in the office can only call in whats already in my chart. So I would have to see him, or at least speak to him, if he is outof town i can not do that, so i will have to wait sad
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines Reglan,Protonix,Prozac,Effexsor,Erthomyicin,klonipin,occasional phernergan Im marrried 2 children, one with mild autism, Bipolar(8), she takes Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


PAlady
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Date Joined Nov 2007
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   Posted 3/30/2008 3:31 PM (GMT -7)   
IF he's out of town for that long he should have another doctor on call for urgent situations. I'd ask his office staff to speak with the on-call doctor about yoru worsening depression. May is a long time to wait.

PAlady
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Date Joined Nov 2007
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   Posted 3/30/2008 3:33 PM (GMT -7)   
What I meant to say is ask the office staff if YOU can speak with the on-call doctor, that way you could explain what's working & what's not, and what has worked in the past. He or she would be more likely then to make a change, especially if something has worked in the past.

sheryl=jk
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Date Joined Oct 2004
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   Posted 3/31/2008 4:01 AM (GMT -7)   
PAlady your right, and your right my depresssion is worsening. And I have reasons, its not just fibro or GP or pain. My kids are driving me insane. My husdbad works two jobs, dont communicate with them. They are all colorado with out me next week, and i will be staying with a friend.
He didnt give me enough time to decide whether I was going or not, I never said no, he assumed I didnt want to go, becasue I cant ski with evryone else. Ok sorry for rambling, thanks for your input I might try calling and asking her since it was his first choice for the wellbutrin over the effexor.  I mean I relize my kids will stop driving me insane, but I can change the way I cope with it, which right now sint too good, they have been worse, and in the past when felt better mentally and physically I was much easier to deal with it, now its I drag myself out of bed sad ...
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines Reglan,Protonix,Prozac,Effexsor,Erthomyicin,klonipin,occasional phernergan Im marrried 2 children, one with mild autism, Bipolar(8), she takes Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


sheryl=jk
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Date Joined Oct 2004
Total Posts : 4083
   Posted 3/31/2008 9:00 AM (GMT -7)   
Thank you Gramps
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines Reglan,Protonix,Prozac,Effexsor,Erthomyicin,klonipin,occasional phernergan Im marrried 2 children, one with mild autism, Bipolar(8), she takes Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 3/31/2008 9:43 AM (GMT -7)   
Sheryl,
It also sounds like you need some support in your life. I hope the friend you'll be staying with can provide some of this. Do you have others that can give you support, and maybe a hand dealing with your children temporarily, until you're feeling a bit more energetic? I also wonder if you're talking with a counselor or therapist, because it sounds like maybe some therapy - possibly even some couples counseling - could help. Spouses often do not understand chronic illnesses be it depression or chronic pain, or our cases combinations of lots of things. Sometimes once they're educated they can be more supportive. I also know how bummed I feel when I can't do the things I want to do and used to do - and I wonder if this is the case for you with regarding skiing. Do you want to go on the trip even if you can't ski? If so, maybe you need to talk with your husband and let him know. But I also know it's painful to watch others doing what you'd love to do, at least it is for me right now. I hope eventually to get to a point where I can sit on the sidelines and watch and smile without wanting to cry, but I'm not there yet.

i would really be firm with your doc's staff and tell them how much your depression is worsening and that waiting until May is not ok.

sheryl=jk
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Date Joined Oct 2004
Total Posts : 4083
   Posted 3/31/2008 11:20 AM (GMT -7)   
My husband tries to be supportive , but he doesnt understand, I have no one to help with the kids, they need to help out around the house but dont.
Husband works two jobs, so i dont expect him to.
Im just feeling really bad right now, they leave on Sunday. Other than God and Jesus, no I have no others friends to talk too besides this one.  I did have one, but she probelms with her own child, and dosent wish to speak with anyone right now, and has pretty cut ties with me right now after 5 yrs. ALl of this is the last week, so I feeling worse than normal. Thanks for listening...
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines Reglan,Protonix,Prozac,Effexsor,Erthomyicin,klonipin,occasional phernergan Im marrried 2 children, one with mild autism, Bipolar(8), she takes Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 3/31/2008 11:25 AM (GMT -7)   
We're all here to listen, although that's not the same as in-person support and help. It still seems to me like family/couples counseling could benefit you all, and help your husband understand what you're going through, and maybe give you more support. I don't mean to pry, but I still wonder if you really want to go on this trip, but are afraid to speak up? That could be making you feel more depressed. If it would make it harder on you to go, or be too painful, then that's another matter, and maybe staying with a friend without the responsibilities of the children will give you a bit of a break.

You mentioned religion is important. I don't push that one way or the other, as it's an individual matter, but if it is then being a member of a Church community could be another way to find support. You definitely need some other people in your life. Keep posting here, but keep looking around for groups you could become a part of - maybe even with other mothers, or just a Church group that would provide some comfort.

Sending hugs to you to help you through this week!

sheryl=jk
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Date Joined Oct 2004
Total Posts : 4083
   Posted 3/31/2008 2:25 PM (GMT -7)   
Thanks Palady, just having a particulary rough day,
I feel a little better. I will miss my family. But maybe the break will do me good, they have have they have to take, I will have to remind him to make sure they take them.  I will be wrooried about them too. But I know they will be ok.
Im not neccessarily big on church(or a good speller), but I am big on God, He gets me through the day!
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines Reglan,Protonix,Prozac,Effexsor,Erthomyicin,klonipin,occasional phernergan Im marrried 2 children, one with mild autism, Bipolar(8), she takes Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."

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