hi, I'm new here.chronic pain

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livng@thedrsoffice
Regular Member


Date Joined Mar 2008
Total Posts : 23
   Posted 3/28/2008 4:10 PM (GMT -7)   
Hey there.so I read few of postings and I've never done the forum thing before so bare with me.it looks,from what I read,that I'm in the right place though. I have been in docs office and er's pretty much my whole life since I was 3/4yrs old til present. I am a chronic pain sufferer,back,abdominal and intestinal,arms/shoulders,knees,chest,heart,lungs.been hospitalized 3x in last yr and 5 months...well as of 4 months ago(last hospital stay)thus the name I chose,and my saying of "what isn't wrong with me?"also mental and emotional.as far as kara...I agree with the person that mentioned Dilaudid.I take ultracet 2x a day which used to help good for my back and kneck prob but not so much anymore.I was put on dilaudid for severe stomach prob after last hosptil stay in which cat scan showed crohns but still having 1 last test as they said I don't.also going for other tests to see about chronic pancreatitis.anyway,as that person mentioned,dilaudid works very well for pain and I have no insurance.pay cash for every medicine which is growing.and its only little under $20.00 for 20 pills at rite aid.also if u have prob with naseau,etc you can try promethazine(generic name).I have probs with naseau in general because of stomach I don't get sick but get Severe naseau and they tried other naseau meds and they didn't work for me.that was the only one that has worked.its also the one they give u when you're in the hospital with meds.its a stronger one and makes most people sleepy.but I got used to it and now doesn't make me crash out cold like it used to.also 1 more natural thing to try for any naseau sufferers,and I didn't believe it til I tried it cuz I was desparate for relief as I have lost a LOT of weight from naseau,is peppermint candies.the red and white ones.I don't like hard candy but it WORKS! :) not spearment cuz it actually makes it worse along with your heartburn...believe me I know,I tried it.but thank god I tried peppermint.give it a whirl.good luck.I also take flexeril which helps with pain also.and thermacare heat wraps are good if u can spare the money for them or someone can get u one.I try whatever I can so I feel for every person here and sympathize with everyone.its a shame to suffer in pain.oh and ginger snaps or chamomille for naseau.I've been tempted to try kava kava extract for pain.anyone tried that yet?let me know

mala407
Regular Member


Date Joined Mar 2007
Total Posts : 103
   Posted 3/28/2008 5:34 PM (GMT -7)   
Hi There,
I just wanted to welcome you, you are definitely in the right place and we are all here to listen :)

Mala
26 years old, living in Chicago, Chronic abdominal wall pain due to nerve entrapment. I have IBS-D and neuropathy. Gall bladder removed, failed exploratory nerve surgery, pancreatitis, several hospitalizations for IBS flareups. Medications: Welchol, Align, Lunesta, Percocet, Thiamine, Zyrtec-D
 
I am a dance teacher and choreographer who loves children and cats!


livng@thedrsoffice
Regular Member


Date Joined Mar 2008
Total Posts : 23
   Posted 3/28/2008 5:58 PM (GMT -7)   
Thanks for the welcome.what is ibs-d...havenet heard that one.I've been having very severe prob with my ibs,stomach,intestinal,etc pain and naseau and weight loss and other symptoms w the ibs that ur aware of.was in hosp week of christ cuz cat scan said I had crohns but other tests deny.now havng other tests for possible chron pancreat.maybe you could read my post under crohns section.I am very frustrated with my doctors.and now I might be going in for 2nd heart procedure on top of it all.but im more concerned with stomach probs.both my docs are brushing me off to pain center now.so I've about had it with both of them.im always in pain and the dilaudid is only thing that helps stomach/abdominal pain.
Chronic pain,dislocated patellas in both knees with some arthritis,fibromyalgia,tendonitis,bursitis,asthma,chronic bronchitis(lung bleeds too),chronic chest pain,repeated ovarian cysts,endometriosis,anemia,chronic breast pain,severe irritable bowel syndrome,possible chronic pancreatitis,SVT(heart),Pulmonary embolism,gerd/acid reflux,many surgeries,did I forget something?I feel your pain.lets talk.


TexasJen
Veteran Member


Date Joined Dec 2006
Total Posts : 649
   Posted 3/28/2008 6:29 PM (GMT -7)   
I'm right there with you with the constant nausea, and I also take phenergan (promethazine). It works really well, and since it's a pretty old medication it's also cheap. The best nausea med is zofran, but it's too expensive. My insurance will cover TWO pills a month so it's out of the question. Zofran is used for chemo patients and commonly used along with general anesthesia as a preventive measure.

You're one of the few people I've heard of who also uses peppermint as a nausea remedy. I've used it for years and it really does help - in spite of the skeptics telling me it's impossible. LOL! Relief doesn't always come in the form of a pill, does it? Have you ever tried peppermint tea? Before phenergan I drank it all day long. Hot or cold, it's a refreshing drink if nothing else.

Welcome, and we're all glad you found your way here. :-)
Living in the Republic of Texas minus a gallbladder, a couple of cervical discs, appendix, uterus, and 18" of colon; but still alive and living with my husband, 2 dogs, 1 cockatiel, 1 quaker parrot and 2 gold fish. 


livng@thedrsoffice
Regular Member


Date Joined Mar 2008
Total Posts : 23
   Posted 3/28/2008 8:55 PM (GMT -7)   
Yea I tried the tea both peppermint and chamomille.I gave the advice for teas for naseau but for myself its a no go.im not big on tea to start with so reg tea is rare for me nevermind those 2.I tried them and did one of those horrible cough syrup chill up your spine twitches..lol..I do like 2 other teas I tried .peach and orange.but as for the 2 for naseau made me cringe and wanna throw up more.but the peppermint candies do work like a charm without fail.and as far as the other med u mentioned..does the generic word for it start with m? Cuz I think that's the other one I have that didn't work..it supposed to be really good.I have it here and they tried it in hospital but doesn't work for me.the phenergan(thanks,always forget name.lol)is the only thing I can count on for naseau relief.I get it bad.I have never thrown up in my life.maybe 2-3 times.when I was in hospital I threw up 3x in a row.I just get stuck with severe naseau which I think is worse.at least when your sick and its out you feel better after.nooooooooppe not me.and being naseaus all the time for months and months is slow misery.so relief is a huge factor.I find myself looking in vitamin and natural food sections wanting to try and looking for thing that might help pain and nauseau
Chronic pain,dislocated patellas in both knees with some arthritis,fibromyalgia,tendonitis,bursitis,asthma,chronic bronchitis(lung bleeds too),chronic chest pain,repeated ovarian cysts,endometriosis,anemia,chronic breast pain,severe irritable bowel syndrome,possible chronic pancreatitis,SVT(heart),Pulmonary embolism,gerd/acid reflux,many surgeries,did I forget something?I feel your pain.lets talk.


Lakeside
Regular Member


Date Joined Jun 2007
Total Posts : 138
   Posted 3/29/2008 6:18 AM (GMT -7)   

Hi!  Adding my 2 cents-worth re: Dilaudid for pain, yes it's an "oldie but goodie" , actually morphine w/o the element that causes nausea.  Works well for me, along w/ valuim + Restoril for sleep. I took Zofran for awhile, as even the dilaudid made me a bit queasy, but my body must have adjusted to it, so now the dilaudid alone saves the day.

One anti-nausea that wreaks havoc, both physically & mentally, for me (and maybe some others) is Reglan (metroclopromide). They often give that b4/during/after surgery if you are prone to post-op nausea.  It caused severe mental distress, anxiety, restless-ness and I still got sick....so now it's Zofran for all that....when I had my recent PLIF, I had Zofran (4 mg) thru an IV b4/during/after & had no problems.  I think it IS available as a generic, b/c doc gave me some to take home & I had it refilled & it cost only the $5 co-pay. So you may want to check into that.

Nausea is the worst, esp when all those muscles/tissues/bones/ etc are hurting too.  Stick w/ whatever works for you. You can't heal when you're nauseated!

Good luck--keep us posted!

~Lake


Nov. 06-- Lammy @ L4, removal of spinal cystic tumor @ L4/5(benign)
Dec. 06--Re-operation for post-surgical spinal fluid leak.  2nd surgery complications includied sciatic nerve damage & radiculopathy in R leg/foot,  increased instability (grade 1 spondy, 17%), epidural scar tissue binding nerve roots, damaged facet joints & DDD @ L4/5.
Jan.  08--PLIF fusion/discetomy surgery with pedicle screw instrumentation @ L4/L5, another lammy (@ L/5 this time)  & bone marrow harvest from left iliac crest for packing bone around disc cages after discectomy @ L4/5. OW!!!


TexasJen
Veteran Member


Date Joined Dec 2006
Total Posts : 649
   Posted 3/29/2008 7:59 AM (GMT -7)   
Lakeside - your reaction to reglan (metoclopromadine) is very interesting to me. Aside from not working worth a darn, I did some research on it not long ago and didn't like what I found. Reglan was not approved for long-term use, and apparently you aren't the only one who reacts that way to it. It's called an "extra-pyramidal reaction" in medical-eze. The restlessness, shaking and mental confusion are like an allergic reaction, and benadryl can help with that. I was shocked to learn that two people killed themselves as a direct result of side-effects from long-term reglan use.

How did I find this out? My dog was dying of kidney failure and the doc prescribed reglan for her constant vomiting. She got the same symptoms as you, and the vet had no idea what was going on. I went back to the internet and did my own research and found 2 studies on this issue. Turns out reglan is metabolized in the kidneys, and because her kidneys weren't working, toxic levels of reglan built up in her bloodstream. It did, however, work on her nausea. We couldn't afford the newer, more effective meds for the dog, so we tried reglan injections instead of the pills. Bypassing the GI tract made a tremendous difference and she only had mild restlessness for about 15 minutes after an injection and her vomiting was controlled for about 8 to 10 hours. Go figure.
Living in the Republic of Texas minus a gallbladder, a couple of cervical discs, appendix, uterus, and 18" of colon; but still alive and living with my husband, 2 dogs, 1 cockatiel, 1 quaker parrot and 2 gold fish. 


livng@thedrsoffice
Regular Member


Date Joined Mar 2008
Total Posts : 23
   Posted 3/29/2008 10:41 AM (GMT -7)   
Now that I heard the names of both those naseau meds they tried both on me and neither worked.now im kinda glad they didn't after hearing that.glad I have the phenergan
Chronic pain,dislocated patellas in both knees with some arthritis,fibromyalgia,tendonitis,bursitis,asthma,chronic bronchitis(lung bleeds too),chronic chest pain,repeated ovarian cysts,endometriosis,anemia,chronic breast pain,severe irritable bowel syndrome,possible chronic pancreatitis,SVT(heart),Pulmonary embolism,gerd/acid reflux,many surgeries,did I forget something?I feel your pain.lets talk.


Lakeside
Regular Member


Date Joined Jun 2007
Total Posts : 138
   Posted 3/29/2008 11:12 AM (GMT -7)   
Hi TexasJen!
Sorry to hear your dog reaped the ill effects of that AWFUL Reglan. I was given it after my 2nd surgery, b/c I had such post-op nausea after my 1st. After only one dose (IV) within 15 minutes I could feel my mind starting to think the darkest, most hideously negative thoughts--despair, doom, almost psychotic images of awful things + I began moving my arms/legs in aimless fashion, clawing at the sheets & my gown... It took a few more doses for me to figure out what was causing all this (I could see the clock from my bed & noticed the "depression" abated after about 2 hrs) but then I'd throw up & they'd come in w/ another dose.....And it would start all over again, almost an instant feeling of terror and impending doom.....I was in such post-op pain & also on morphine, so it took all my mental effort to try to THINK and make some sense of it....after suffering all day (still dealing w/ the nausea) I refused the next dose. The nurse was adamant but I said NO!! "I'm going to mark this on your chart," she threatened. "Go ahead" I said, "This stuff is making me crazy! I want to jump out the window! I feel like killing myself!" Not good things to say anytime, but espcially to someone who is trying to help, but I just KNEW it was the Reglan. So she didn't give it to me and over the next 24 hrs the nausea reduced on its own.
After I got home, I looked up "metoclopromide" (Rgelan) and was absolutely shocked by its side effects in some people. It can cause long-term and/or permanent nervous sysytem damage (lip-licking movements, facial grimace-ing, random arm/leg movements) and when I saw my GP a few weeks later, she said "Man, that suff is wicked! They gave you THAT?! Haven't they heard of Zofran??"
So when I had my recent PLIF, I had them mark in RED on my chart & all my records "NO REGLAN--ZOFRAN ONLY!" They thought I was a bit looney, as I was so insistent, but man oh man! It was like instant pharmaceutical depression/paranoia! And yes, I can totally understand how some one would kill themself if taking this long-term.
Sorry for the long post, and sorry your puppy had to endure that, but glad she was eventually OK.
I know from a friend of mine who works in a local ER that they routinely give Reglan to people who come in w/ nausea....so now I have a note attached to my insurance card as well, just in case I'd need to go to the ER & wouldn't have my regular records or be "out" etc.
It may work wonders for some, indeed maybe most people, but for those of us w/ sensitivity or allergy to it, it is a pure nightmare. And you only need one dose to get those horrible efffects if you are sensitive to it.
Thank you for reading all this---and for your explanation as well.

~Lake
Nov. 06-- Lammy @ L4, removal of spinal cystic tumor @ L4/5(benign)
Dec. 06--Re-operation for post-surgical spinal fluid leak.  2nd surgery complications includied sciatic nerve damage & radiculopathy in R leg/foot,  increased instability (grade 1 spondy, 17%), epidural scar tissue binding nerve roots, damaged facet joints & DDD @ L4/5.
Jan.  08--PLIF fusion/discetomy surgery with pedicle screw instrumentation @ L4/L5, another lammy (@ L/5 this time)  & bone marrow harvest from left iliac crest for packing bone around disc cages after discectomy @ L4/5. OW!!!


Lakeside
Regular Member


Date Joined Jun 2007
Total Posts : 138
   Posted 3/29/2008 11:33 AM (GMT -7)   
Hi again!
I'm not sure if this is allowed by the moderator,that is, to check out another web page, but this one is very good and gives patient's reactions and ratings to common durgs we are given for pain, surgery,etc. It's where I got the info on Reglan & had it read it before my surgeries, I certainly would NOT have taken it!

If it's allowed, the web address is: www.askapatient.com. Type in the drug name & up comes "ratings" on a 1 (bad) to 5 (good) scale from people who have had actual experience w/ the drug. It can also give you more medical info, under a different link.

Just a thought! Sorry if this inconveniences anyone---I just want to help.

~Lake
Nov. 06-- Lammy @ L4, removal of spinal cystic tumor @ L4/5(benign)
Dec. 06--Re-operation for post-surgical spinal fluid leak.  2nd surgery complications includied sciatic nerve damage & radiculopathy in R leg/foot,  increased instability (grade 1 spondy, 17%), epidural scar tissue binding nerve roots, damaged facet joints & DDD @ L4/5.
Jan.  08--PLIF fusion/discetomy surgery with pedicle screw instrumentation @ L4/L5, another lammy (@ L/5 this time)  & bone marrow harvest from left iliac crest for packing bone around disc cages after discectomy @ L4/5. OW!!!


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/29/2008 12:27 PM (GMT -7)   
Interesting to read about the meds for nausea, which I rarely have a problem with. But this past week i was hit hard by either some food poisoning or a stomach flu and was vomiting for the first time since my PLIF last September. What an experience! I have learned that no longer can I just bend over the toilet to vomit - that move, I guess, will be out for the rest of my life. So I was frantically grabbing bowls and small buckets to put around the house, by the bed, etc. I live alone, so it was really scary for about a day, as I felt so weak. I had dry heaves and the pain in my back and in my chest was horrendous - like nothing before. I'm still sore. So Lakeside, remember that if you get any kind of stomach problems in the future! Fortunately, I'm slowly getting better, and am keeping down some food, but for a day or so I couldn't even sip water or ginger ale. Or take my meds. Yikes!

Lakeside
Regular Member


Date Joined Jun 2007
Total Posts : 138
   Posted 3/30/2008 5:42 AM (GMT -7)   
Thank you , PAlady, I will keep that in mind! I know, just from the pain alone, that bending @ the waist right now , so close yet to my surgery, is "out"....didn't know that maybe it'll be a life-long impossibility, at least at an angle that allows one to efficiently bend to be "sick"---yikes! Another side-effect of our PLIF's, huh! As if we don't already have ENOUGH stuff that will be different from now on....oh well! Adjustments! *sigh*

Have a good bend-free day! :)
~Lake
Nov. 06-- Lammy @ L4, removal of spinal cystic tumor @ L4/5(benign)
Dec. 06--Re-operation for post-surgical spinal fluid leak.  2nd surgery complications includied sciatic nerve damage & radiculopathy in R leg/foot,  increased instability (grade 1 spondy, 17%), epidural scar tissue binding nerve roots, damaged facet joints & DDD @ L4/5.
Jan.  08--PLIF fusion/discetomy surgery with pedicle screw instrumentation @ L4/L5, another lammy (@ L/5 this time)  & bone marrow harvest from left iliac crest for packing bone around disc cages after discectomy @ L4/5. OW!!!


mala407
Regular Member


Date Joined Mar 2007
Total Posts : 103
   Posted 3/30/2008 7:20 AM (GMT -7)   
I hope this is all helping you livng@thedrsoffice! IBS-D is just a fancy word for IBS predominately diarrhea....hehe Mine is severe as well.....I am so sorry to hear that you have so many things going on. It's too much!!! I will read your post in the Chrohns section later...how are you feeling today? Lots of thoughts and hugs!

Mala
26 years old, living in Chicago, Chronic abdominal wall pain due to nerve entrapment. I have IBS-D and neuropathy. Gall bladder removed, failed exploratory nerve surgery, pancreatitis, several hospitalizations for IBS flareups. Medications: Welchol, Align, Lunesta, Percocet, Thiamine, Zyrtec-D
 
I am a dance teacher and choreographer who loves children and cats!


livng@thedrsoffice
Regular Member


Date Joined Mar 2008
Total Posts : 23
   Posted 3/30/2008 10:33 PM (GMT -7)   
Lol..yeah,sorry bout that.I figured out what the d was after reading more posts.but thanks.and thinks are def not goin well.im looking at apart's this week because I just got my sect 8 after long 3-4 yr wait and my knees have gotten so bad that they are BOTH in knee immobilizers and crutches this time.do u know what it like to do stairs with one nevermind both?! Yeah.so I have to take one off to make it up and down which puts even more pressure and excrutiating pain on them.and some of these places are 2nd and 3rd flr.I wastrying for 1st but pick your battles I guess.they r so bad this time.usually they fall outta place for couple hrs at most.its been like week and permanently out of place and the only thing you can do is the braces and crrutches and stay off them and I have to have the surgery on them that I was supposed to have yrs back but moved and never ended up having it.and on both knees.it is so painful to walk or turn or put pressure on them.and people in my house are not helpful.and my bf came to pick me up to go look at some aparts and guess what?didn't even come up to help me down the 2 flights of stairs I have to go on to and from my rm.and I had to hobble down carrying my purse,the other brace,my crutches,and sweatshirt,and hold on to walls and railing to get down and them same thing going up to look at 2nd flr apt and then same when he dropped me off?am I being selfish for thinking he should have been helping me instead of being an ignorant you know?I feel like a decrepid? Cripple and my body is falling apart and giving out right under my nose and I get in truck(which was quite difficult too) and finally get situated and sigh that sigh after u struggle and then try to settle and are aggravated and worn out and he just looks at me and says"what?" like that dumb..."I didn't do anything"what. I said nothing and he said what's wrong with you?and I said nothing I don't know um I just figured you would come up to help me down.and his response was "I forgot". I mean are you kidding me????????sorry if I wasn't supposed to say any of this you guys but I am in so much pain and stressed and trying to move on top of it all and have to deal with stuff like that and can't get any help from the people around me.so I had to let it out.I apologize if it bothered anyone.
Chronic pain,dislocated patellas in both knees with some arthritis,fibromyalgia,tendonitis,bursitis,asthma,chronic bronchitis(lung bleeds too),chronic chest pain,repeated ovarian cysts,endometriosis,anemia,chronic breast pain,severe irritable bowel syndrome,possible chronic pancreatitis,SVT(heart),Pulmonary embolism,gerd/acid reflux,many surgeries,did I forget something?I feel your pain.lets talk.


livng@thedrsoffice
Regular Member


Date Joined Mar 2008
Total Posts : 23
   Posted 3/30/2008 10:47 PM (GMT -7)   
Oh yeah,1 more thing.my hands and arms are the weakest part of my body .I get sharp pains through them I have tendonitis and who knows what else.I had shoulder surgery but anyway,so the crutches aggravate that.ssssssoooo,im desparately trying to do the braces w/o the crutches as long as I can in order to spare my hands and stuff but defeats the whole purpose.does anyone understand what im saying and how frustrated I am?because im stressing and feel like crying.I have a hard time explaining myself.but when I get overly stressed or mad I usually end up crying or when im in so much pain.ya know?
Chronic pain,dislocated patellas in both knees with some arthritis,fibromyalgia,tendonitis,bursitis,asthma,chronic bronchitis(lung bleeds too),chronic chest pain,repeated ovarian cysts,endometriosis,anemia,chronic breast pain,severe irritable bowel syndrome,possible chronic pancreatitis,SVT(heart),Pulmonary embolism,gerd/acid reflux,many surgeries,did I forget something?I feel your pain.lets talk.

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