Sorry, I have been gone

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mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 4/1/2008 7:01 AM (GMT -7)   
Hi Guys,
I kind of disappeared while I was dealing with some stuff. I had to stop the methadone and back on the Oxycontin , at least until we find something that is going to offer some decent pain relief and not so many side effects. Now, that I am back on the Oxy again, the one side effect that I had forgotten about is the sweating is back in full force. I really dislike it. I am going to have to talk to the PM about this, though, because it isn't a little sweating, it's alot, as in my hair is soaked and so is my upper chest.
I had to see the other PM in the office for a consult /recommendation on pain meds, and he added Oxy IR for breakthrough, along with Cymbalta to my regimine, until I see my regular PM again this month.
I have been dealing with unrelenting muscle spasms again lately. The baclofen is not handling them very well. I asked the other PM to adjust the dosage but since he added the cymbalta and the IR he wanted me to wait. I would have rathered that he do something about the muscle spasms than adding the Cymbalta, but he really wanted to do that first. confused   When they hit, they take away my balance and almost knock me down to the floor, and they have gotten really bad lately. Ah well, I guess I will wait to see my regular PM in a couple of weeks.
They also ordered a motorized scooter for me. It took me awhile to wrap my head around that , but I finally got to the medical supply place. The guy there was a real jerk. He actually said to me, you might as well get a motorized wheelchair since you are going to wind up in one anyway within a year anyway.....now, that is true, but there are ways of suggesting something to someone, especially after you have been told that it took awhile to adjust to the idea of using a motorized scooter, without being insulting and demeaning.  Anyway, I found out that they weren't covered by my insurance anyway. I was relieved since I wouldn't have gotten either item from him at that point.

nono

I called my insurance and they referred me to a rehab company. This guy was so much nicer, more pleasant to deal with and actually took the time to ask questions about what I needed and explained to me why he was recommending both a motorized wheelchair and a scooter.  He came to my home, evaluated my home to accomodate those things, and then made his recommendations. He submitted for approval to my insurance on Friday and by yesterday afternoon , had  it approved.  If you have to face mobility issues, find out if your insurance will refer you to a rehab company instead of a medical supply place because there is a world of difference in how you are treated and how they fit the chair or scooter to you, not you to the chair or scooter.... yeah

Anyway, they should be here in a week or two, depending on how fast the company who makes the wheelchair gets the chair to him. Oh, and the best part, is that they are giving me the scooter for nothing.  It's nice , especially since my insurance is paying 100% for the chair, and it's a really expensive one.

Here are links in case anyone is interested.

http://www.permobilusa.com/browse.php?id=36  - It's a Permobil Corpus 300 chair.

http://www.invacare.com/cgi-bin/imhqprd/inv_catalog/prod_cat_detail.jsp?s=0&prodid=L-3XB&catOid=-536885289  - this is to the scooter.

Sandi


PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 4/1/2008 7:12 AM (GMT -7)   
Hi Sandi,

It's wonderful to hear from you. I know when I started using a cane while I'm out and about it was very hard on my self esteem. I'm so proud of you pushing thru the system to get what you needed. The rehab guy sounds wonderful and compassionate. Nice to know they're out there. I hope the medications get adjusted for you so the side effects aren't so bad. I couldn't take Cymbalta due to side effects. It was just awful!

Keep in touch and hugs,
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 4/1/2008 7:32 AM (GMT -7)   
 Hi Chutzie!
The rehab guy was wonderful. Compassionate, understanding, and while the outcome was the same , he definately has the tact to work with people who are loosing or have lost their mobility.  What a world of difference.
I had to fight to get rid of my walker after both surgeries,and it took me months to do it, so when I got a 5 prong cane, I was relieved, but I still have those moments when I feel like everyone is staring at me, and giving me those "poor her" looks of pity.
I am not thrilled with the idea of having to use either the scooter or the wheelchair, but at the same time, I also realize that my balance is way off these days, and I have taken some really close calls with falling. If I were to fall , and not have anyone around, I would be in serious trouble. So, that is my motivation behind trying to wrap my head around this whole relying on scooters and wheelchairs thing.
I have gone back to PT, and in the last three visits, I have fallen into the table three times, when I was getting ready to leave, scaring even the poor PT guy.  The muscle spasms don't help that, because I don't know when they are going to hit, and because of that, the balance problems are even worse.
I am pretty sure that once the newness wears off of these new "toys" of mine, that I will have moments of adjusting, but I will. It's far better than falling and really hurting myself.....and besides, I can add some racing stripes for a little personalization.... tongue
 
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 4/4/2008 12:10 AM (GMT -7)   
 I saw the neurosurgeon who did my 2nd surgery on the 1st. He is not happy with the steady decline that I am still experiencing, 8 months post op. He suspects MS. confused   He said that while I have major issues going on with my back still, and that he hoped that he might be able to fix some of the damage caused by the CES prior to the surgery, that he at least hoped that he could put a rest to the steady decline that he was seeing prior to the surgery. Instead, it is exactly the opposite, and that he is seeing many red flag major symptoms of MS, so he is sending me for an MRI of the brain and spine to rule it in or out. I have to have it done by the 15th when I go back to see him.
Hopefully it is not MS, but at this point nothing would surprise me anymore. eyes
Anyway, I will let you guys know once I know more, but just thought that I would let you know. If you are so inclined, wish me good luck with the scans. If it is, at least it would explain why things have gone so downhill so fast.
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..

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