I am so glad to see some post's going on regarding LPHS!!
Somehow, they did disapear for a while and I am as guilty as
anyone. Sometimes you just get to feeling so bad and so tired of fighting the disease on a daily babis that you just do not even feel like talking about it or aknowledging it. I am so glad to here that holistic meds are giving you good relief from the pain because as we know it is the worst pain that I have ever had to deal with, unfortunatly it has been alot of years for myself.
Any type of relief is sure worth persuing along with any type of drug reduction to you.
I have always been a patient of one of the top DR's that has researched and published many articals regarding the disease.
His has always told me that I would not dye from LPHS so I am so very sorry to here of the loss of your Mother. I am interested in knowing what complications from LPHS occured. I have been on so many treatments and trials but have not heard of anyone losing their fight with this terribal disease.
I am all for keeping posts going on here or possible meeting for a chat time, or E-Mailing each other and learning how we are all dealing with this.
Once again I am so sorry for your loss and I admire you for keeping up with others who suffer from this disease.
My best to all,