Nerve problems related to muscle spasms?

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TDoern
Regular Member


Date Joined Jul 2006
Total Posts : 495
   Posted 4/7/2008 12:45 PM (GMT -7)   
So I think I posted that I have another disc ready to blow at any moment. Not sure how bad yet, as I found out it was a "large bulge" the day I got on the plane to head here to help my grandfather. And as I was told - they cannot give me anything else over the phone as far as info.

My question is - I'm pretty darn sure I know exactly where this disc is - it's the L3-L4 thats bulging, but I know the date I hurt it, and I know where the pain is really bad right now. It's just above where my fusion was done, and that area is regularly flipping out with muscle spasms. My question is, I noticed today a connection between the spasms and losing feeling in a good portion of my left leg. Can the spasms mess with the nerves that way?

I have an appointment with a new pain doctor on the 16th, 2 days after I get home, but am curious whether or not there could be a link there?

Also -how exactly do you explain falls to your pain doctor? I don't want to go in and whine, but I want to lay it all out for this doctor, I've decided that pretending I don't hurt as much as I do is not going to help me at all. Putting on the happy face is a facade I can't pretend anymore, I'm hurting too much. I fall at least once a week from my leg giving out. A few times this has lead to me ending up on the floor on top of shattered glass, with several cuts and bruises. Just yesterday my leg told me it didn't want to work anymore, and I scraped about a 4 by 6 inch area of skin onto a cinder block. I'm not sure how I bring this up - and I am also afraid to be given even more restrictions than I already have.

And last but not least - I have to pick up my films to take to my pain appointment - would you, or would you not, look and see what it looks like, and see what the radiologists impressions are? I'm scared of finding out it's really bad, but at the same time, I don't want it to come as a surprise at the last minute in the doctors office.

Thanks everyone!
"When we come to the edge of the light we know, and are about to step off into the darkness of the unknown, of one thing we can be sure; either God will provide something solid to stand on... or we will be taught to fly.'"

"Cause when push comes to shove You taste what you're made of, You might bend, till you break Cause its all you can take; On your knees you look up Decide you've had enough, You get mad you get strong Wipe your hands shake it off, Then you Stand" From "Stand" by Rascal Flatts
_____________________________________________________________________________
Dx.: Polycystic Ovarian Syndrome, Ulcerlative Colitis, Chronic Inflammation of the Colon, Ruptured & Fused L4-L5-S1 w/pinched nerves, Degenerative Disc Disease, Chronic Costochondritis, Back Muscle Spasms, Asthma, Benign Tremmors (hands)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/7/2008 12:54 PM (GMT -7)   
TD - I think you're looking for support as much as answers. Can the spasms be causing loss of feeling if the muscle is imping on a nerve? Sure. But it sounds like there's more than muscle involved, as you are saying.

You already know this - but you need to be honest with your doctor about the falls. Have you had EMG's or other nerve conduction tests? Because all this could continue to get worse - it sounds like it already is. And one of those falls could land you in a wheelchair, too.

This spinal degeneration stuff is all scary, isn't it? Do you have any support who could go with you as you look at medical reports, talk with doctors, etc. so you're not alone in it? I usually have to go it alone, but wish there was someone at my side, especially when learning bad news. But you already know it on some level; now you need to see what can be done.

I don't know if any of this helps, but I just wanted to offer some support.

TDoern
Regular Member


Date Joined Jul 2006
Total Posts : 495
   Posted 4/7/2008 5:14 PM (GMT -7)   
PAlady - Yes, I'm certain I'm looking for support as much as answers.

My family is incredibly supportive, and very protective of me, and my health. My husband is amazing as well. The thing is, I know that my pain hurts them too. When I'm having a specifically bad day, I can see the pain I'm feeling reflected in his face. He'd do anything to make me feel better.

At this point in time he can't take time off of work, he used what little bit of time from work he had for my stomach surgery, and then again when we moved. So right now he doesn't have any time to take off.

I will honestly admit that I have been searching for answers since day one. I couldn't understand in 2000 why at 20 years old my back hurt so bad I didn't want to move. I was overweight then, and figured it was the same thing I'd heard so many say "it's your weight", so I attempted to walk it off for a month. Eventually my husband threatened to drag me in kicking and screaming if he had to, so I went in. To find out I had ruptured two discs. I was diagnosed with degenerative disc disease, and told to lose weight. In 2003 I had my L4-L5-S1 fused together. I had great pain relief for about 6 months, then it slowly came back, to the point where I had to stop working again, and filed for disability.

In the middle of February, not sure how or when, but I noticed a dramatic increase in my pain. To the point that I called my primary doctor and was gotten in the next day. My blood pressure from pain, was at 150/110 from 110/70. I was given a pain shot, a muscle relaxant shot, and an anti-inflammitory shot, and my BP was checked every 5-10 minutes to make sure it was going down. My doc ordered an MRI, I had an appointment for the end of February, however had a family emergency and had to leave on very short notice. I called my doctors office to find out if it was possible to get my medication a few days early, and got called back about five minutes after I hung up to leave the message. The nurse was calling to find out if there had always been a large disc bulge at L3-L4. I let her know that was something brand new. 12 hours later I was on a plane. So all I know at this point is I have a large disc bulge at L3-L4. The bad thing is that life had to go on with or without it.

As far as the nerve test - I had one done a year or so ago - and was told that I had "severe nerve disfunction". They wouldn't call it damage - said that was too permanent. I attempted rounds of nerve block/trigger point injections - that were not help, just lots of pain. That was from a "pain specialist". His imput at the end was that he believed part of the problem was scar tissue build up, that he knew I was in real pain, but the shots were not going to help.

I'm putting a great amount of prayer into the up and coming pain management appointment. But, am seriously expecting yet another let down. The thing is, at this point, I'm becoming dangerous to myself with my pain. When my leg quits - it's put me in some pretty bad situations, as mentioned. For example getting a pain, dropping a glass fish, and falling into the shattered pieces of it on the floor. Falling down 6 stairs, because my leg said it was done. Things like that. The thing is, it's easier for me to pretend that things are okay, than it is to accept that I'm 28 years old and disabled.

Anyways, I'm not sure what I rambled for, but thats that.
Thanks for the support.
Tammy
"When we come to the edge of the light we know, and are about to step off into the darkness of the unknown, of one thing we can be sure; either God will provide something solid to stand on... or we will be taught to fly.'"

"Cause when push comes to shove You taste what you're made of, You might bend, till you break Cause its all you can take; On your knees you look up Decide you've had enough, You get mad you get strong Wipe your hands shake it off, Then you Stand" From "Stand" by Rascal Flatts
_____________________________________________________________________________
Dx.: Polycystic Ovarian Syndrome, Ulcerlative Colitis, Chronic Inflammation of the Colon, Ruptured & Fused L4-L5-S1 w/pinched nerves, Degenerative Disc Disease, Chronic Costochondritis, Back Muscle Spasms, Asthma, Benign Tremmors (hands)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/7/2008 6:55 PM (GMT -7)   
Tammy,
It is so unfair you have to deal with all this at such a young age. I know it's difficult for me to wrestle with accepting the changes in my health status, but at least I'm in my late 50's. And as I'm sure you know from reading this board, so many of us are disappointed by various doctors and procedures. But I hope you keep searching, and try to get answers about your leg going out. One serious fall, as you're acknowledging, could really have consequences for your life.

Have you been to a major medical center to have them at least review your case? I don't know if you're close to any. Of course, I had my surgery at one and was still disappointed. I wish I had more answers for you. Maybe others here can offer more information, but know I'm thinking about you and sending you lots of hugs.

Also, have you thought about getting some counseling to help you work through the emotional part of this? It might be helpful to you, especially if it's someone who's skilled in pain management. Even if they're not, just a good therapist can help you find your way through this, reach some level of peace.

Post Edited (PAlady) : 4/7/2008 7:59:24 PM (GMT-6)

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