Never underestemate your trial run. Wires can move and give you powerfull electodes on an area that does'nt need it. I had 4 and a half hours on my trial scs and as soon as I came out from the OR, my wires moved so that the power was zapping my ass instead of my foot. They basically said they would fix it the next fridays aptmt. After another four and a half hours in the OR, they decided to put 8 wires going upward into my back and sending 4 more wired going down my back for a total of 12 wires.
To make a long story short, the coverage of electons or whatever nerver came close to my pain earea. I would have to turn it on so high that mt foot would be turning red and trembeling. Everytime she tried to adjust the probes, It hurt more and more. Finally I made an apptmt to get it remouved, once I got it removed I have had such major musscle spasms across my whole back. Especially in the inplant spot.
It was a major decsission to make, I just wished I had gone to The Dellon Institute For Neurological tratments BEFORE committed myself into that heavy duty scs .
Sorry for the negativity, but thats exactly what happend to me. Others with good stories are hard to find cuse there all excited and took off from the forum.
Good Luck To All,
and a Pain Free Day..........
.I go for a double neurectomy on May 8th , I got the one and only one left cut out last month and by may 9th I will have no nerves going down my leg past my ankle leaving the only feeling in my foot is the bottom pad.
I guess I'll wait and see ........................... (AGAIN)
I have an SCS implanted, and, for me, it's worthless. Now, it does function well, and I do feel a tingling in most of my painful areas. It's just that now I have tingling PLUS pain. The best advice I can give you is make really sure that you have a successful trial before you let them implant that thing. My surgeon couldn't get the leads where he wanted during the trial (leads are placed with a needle for the trial), and was sure that once placed sugically, this would work for me, which it did not. If I had that to do over again, I'd have them place a lead sugically and not the battery pack until success was achieved.
The battery pack implant was VERY sore for quite some time, but it doesn't really bother me now. PM me if you want anymore info. Good luck and God Bless.
lassieluv and all Healing Well forums,
I hate to say negative things, but at the same time, I want to give the experience and advise that has happend to me. I have met many people in the pain management that has had positive experiences with the scs. It depends on what the problem it was in the first place. I will give you the best wish possible for a complete recovery from pain. I never was a religous person, but as the time goes by, I keep thinking that maybe they know something that I dont!!!!!!!
I dont know, but if you need any info, It sounds like I have been maybe through the wash a little longer than you, and if you want anymore experience/advise, please ask because I definatly did'nt realize the procedures/operations magnatude I was going thru when it happened or the percentage of positive and negative results that each O/R visit at the time.
Hope everyone has a pain free day!!!!
(i know i could use it!!!!!!)