Post Edited (Toritoo) : 4/17/2008 9:42:41 PM (GMT-6)
Dear Toritoo and gramps and others,
I'm kevin and I have had the medtronics pump, ( new one 40ml) and I have had poor results after going from morphine do dilaudid,with clondine and buprivicane. I'm on 70mg/ml with a dosage of 27mg per day on the dilaudid . the other two are minamal.
My first concearn is that i've read that pumps with a concentration of 10mg/ml of dilaudid. it's 20mg/ml if you are on morphine. My ortho warned me two years ago that the tip of the cathader can develop granuals and mold to the spine, resulting in a pump remoal and spinal surgury. Though my pm dr. who is the best in florida imho says there is no risk and dismissed those reports as inconclusive. To be safe every year since I have had the pump, I have had an MRI done and they were all ok. Except for the fout hearneated discs they found. Anyone who has heard about this and if you have any advice. I'll thank you know for your responces.
II also want to titrate down on my oral meds, fentora 800mcg, 1 per 90min. Part of the reason I have this ridiclious tolerence at 31 years old was the 15 knee surguries on my rt knee and 2 on my left. I was a football player at a top division 1 school. I was a two time high school All-American who was expected to start my first game. I played on a torn knee my freshman year and then had surgury. I was only able to play three years. I abused my body and I paid for it , no regrets. The last 2 surguries I had was a radical knee fusion, that got itnfected with MRSA. So I had to the pump installed to save the fusion. The infection caused the hardware to bend the wrong way, so I had to bear weight and push my femur into my knee cap ,and then into the tip/fib. It took me 18 months of 5 day a week rehap to push the bones together. They then took out the hardware, but the infection heald inside the screw wholes in my femur. The anti-biotics didn't take so the infection eats away at my femur and has spred down into both my tip/fib. I also have RSD stage 3 in my right leg. Since both the infection and the RSD in degenerative, I am having a hard time lowering my meds. Like most of you its hard to balance the amount of pain you will deal with v. meds and their side effects. I am most scared of being in intolerable pain for the next 50 years. The only new meds I have been recomened was prialt, ketamine, and sufental in my pump. Orally their is nothing stronger btp medicine that i have found other than fentora. I have been on everything else from oxycodone- dilaudid.
Sorry for the long post, all advice is greatfully apprecieted.