Sick and tired of being sick and tired

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Toritoo
Regular Member


Date Joined Apr 2008
Total Posts : 184
   Posted 4/16/2008 7:09 PM (GMT -7)   
sad  Hey All,
I've been sick for the last couple of months. At first I thought it was the stomach flu, achier than normal, throwing up, indegestion the usual. Next I blamed it on stress my nephew was diagnosed with cancer, he is ok now and will be fine thank God, my daughter was in the middle of moving out of the house. Lots of little things. I went to my PC Dr. and knowing my hystory she jumped on it right away and ordered bloodwork and ultrascan. Except for a mildly dilateted liver and bile duct things looked fine. By now I am taking compazine every 8 hours and sleeping or sick or nasueas all day. I've been in my pj's for 3 days. Any ideas anyone? She ordered an endoscopy but I haven't gotten an appt. yet. Oh and I ruled out my meds, nothings changed to make this happen so quickly and for such a long time.
 
So, like I said I'm so sick and tired of being sick and tired and I guess I'm just looking to vent a bit and maybe get some feedback. Hope you all are having tolerable days and restfull nights.Thanks for listening. sad The oh so blue Toritoo is out.
 
Vomiting is very painfull to us CP sufferers, yes? mad

TDoern
Regular Member


Date Joined Jul 2006
Total Posts : 495
   Posted 4/16/2008 7:17 PM (GMT -7)   
Tori -

I can't give you any advice on being sick and tired of being sick and tired, because I get that way too.


I just wanted to wish you the best and give you a *hug*
"When we come to the edge of the light we know, and are about to step off into the darkness of the unknown, of one thing we can be sure; either God will provide something solid to stand on... or we will be taught to fly.'"

"Cause when push comes to shove You taste what you're made of, You might bend, till you break Cause its all you can take; On your knees you look up Decide you've had enough, You get mad you get strong Wipe your hands shake it off, Then you Stand" From "Stand" by Rascal Flatts
_____________________________________________________________________________
Dx.: Polycystic Ovarian Syndrome, Ulcerlative Colitis, Chronic Inflammation of the Colon, Ruptured & Fused L4-L5-S1 w/pinched nerves, Degenerative Disc Disease, Chronic Costochondritis, Back Muscle Spasms, Asthma, Benign Tremmors (hands)


TexasJen
Veteran Member


Date Joined Dec 2006
Total Posts : 649
   Posted 4/16/2008 7:26 PM (GMT -7)   
I would think the dilated bile duct might explain things. It's dilated for a reason, and that usually means that something is blocking the flow of bile from the liver. Livers don't like it when the quart-a-day worth of bile can't move through to the small intestine like it's supposed to. I don't know your history, but have you ever had gallstones or gallbladder problems? Any kind of sludge or stones in the bile duct can cause your symptoms. Sometimes they'll pass on their own, and sometimes an ERCP is necessary to clear it out of the bile duct.
Living in the Republic of Texas minus a gallbladder, a couple of cervical discs, appendix, uterus, and 18" of colon; but still alive and living with my husband, 2 dogs, 1 cockatiel, 1 quaker parrot and 2 gold fish. 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/16/2008 7:40 PM (GMT -7)   
I wish I had some answers for you, too, Toritoo, but I can relate to the vomiting issue! I had some kind of stomach virus a couple of weeks ago and found out how painful it was to strain so many muscles after my fusion surgery (6 months after!). It sounds like you're doing all the right things to find out. I know I had my gallballder removed when I was 19 and I felt pretty lousy and downright painful depending on what I ate. It certainly doesn't sound like just a passing virus, but we'll all hope you and your doc can find out soon and that you can get some relief.

Being sick when you're already sick - I call it layers of sickness and it sucks!

Hugs to you,
PaLady

Lakeside
Regular Member


Date Joined Jun 2007
Total Posts : 138
   Posted 4/17/2008 6:56 AM (GMT -7)   
Hi Toritoo!
With everything else on your "plate", now this! Oh my! Above posts are excellent advice, hope you get some relief. Re the nausea: I had constant throwing-up for 3 weeks (sorry guys!) when I had my spinal fluid leak after my 1st lammy surgery...it is simply the worst. You said you're on Compazine...they tried that for me but w/ a spinal leak, nothing helps except repairing it (which was surgery #2....) but I did use some ZOFRAN for post-op nausea after that & also after my lastest fusion surgery. It worked really well.

So you might want to consider that product. It used to be $$$, but is now available as a generic -- the drug generic compound is called "ondansetron hlc" and I was RX'd 8MG every 6 hrs for nausea. They also loaded it into my pre-op IV cocktail, post-op meds & thruought my stay in the hosp & after I got home, in order to better tolerate the opioids (daludid, like morphine) I needed for the pain. Zofran can make you sleepy, but that's the only side-effect I had, & it was a "welcome" one. It's also available in 4MG dose as well. I think that's what I hadin my IV, as it was almost a constant "feed" from pre-to-post op.

Good luck getting some help! You have endured too many other burdens to have THIS now, as well! Let us know how you're doing today!

PALAdy_--here comes some WARMTH! It's 60 here, still sunny & just lovely! Rain later tonight, but you should get one more good day from us b4 things change!

Totitoo, you are in my prayers today! Totall!

~Lakeside
Nov. 06-- Lammy @ L4, removal of spinal cystic tumor @ L4/5(benign)
Dec. 06--Re-operation for post-surgical spinal fluid leak.  2nd surgery caused sciatic nerve damage & radiculopathy in R leg/foot,  increased spinal instability (grade 1 spondy, 17%), epidural scar tissue binding nerve roots, damaged facet joints & worsened DDD @ L4/5
Jan.  08--PLIF fusion/discetomy surgery w/pedicle screw instrumentation @ L4/L5, another lammy (@ L/5 this time) & bone marrow harvest from left iliac crest for packing bone around disc cages after total discectomy @ L4/5. Good relief from sciatica & leg/nerve pain, tho some residual CP--hope to be "Healing Well"...


Toritoo
Regular Member


Date Joined Apr 2008
Total Posts : 184
   Posted 4/17/2008 8:55 AM (GMT -7)   
Hi All,
Thanks for the feedback. The ultrasound didn't show any gallstones or sludge she said my gallbladder looked fine. To be honest the gallbladder was the first thing I thought of also because I was having so much pain, more pain. But like I said the Dr. said it was ok. Thanks for the feedback all. It's nice to know that there is someone out there who cares. I really appreciate it.Texas Jen what do you suggest I say about the gallbladder and bile duct thing since she said it wasn't that? Oh well, thanks again all this is Toritoo and I'm out.
Try and have a tolerable day pain wise. I really am so glad I have some new people to talk to you even though I am still pretty isolated knowing you all are out there helps quite a bit. Thanx

lassieluv
Regular Member


Date Joined Apr 2008
Total Posts : 254
   Posted 4/18/2008 11:02 AM (GMT -7)   
Oh Toritoo - I feel so sorry for you. I am dealing with nausea too; sometimes I think it is as bad as the CP. And yes, throwing up is the pits!! I have been taking ZOFRAN too with pretty good results. You might want to give it a try.

Best of luck to you and I hope you get some needed rest.
Do not forget to entertain strangers for by so doing some have unwittingly entertained angels.  (Hebrews 13:2)


Toritoo
Regular Member


Date Joined Apr 2008
Total Posts : 184
   Posted 4/18/2008 7:20 PM (GMT -7)   
thanks everyone I really appreciate your time and words. Sometimes words are enough to take the edge off however we feel. Although I'm sorry you all suffer so I am glad that we all have found a place to go and just let it out.
Toritoo and I'm out for now.

Muzz
Regular Member


Date Joined Mar 2008
Total Posts : 395
   Posted 4/19/2008 1:26 AM (GMT -7)   
Toritoo, push for the endo, it could be stomach-related. There is def something wrong to be so sick for so long. Taking anti-nausea meds is ok, but only pallative, it doesn't help find out what's going on. Keep us posted, kiddo :-)
I am not my pain, it does not own me.


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 4/19/2008 2:11 AM (GMT -7)   
Tori:

Sorry you are feeling so crummy. I have had severe nausea and vomiting issues too in the last several years. For me, it appears to be secondary to the pain - the worse the pain, the greater my nausea and more frequent the vomiting. I have, unfortunately, not been able to get adequate pain control except when I am in the hospital, so this is an ongoing issue for me. It sounds like you have a good doc who is willing to do what it takes to help you. You might suggest attacking things from the pain side to see if that is really the cause of the nausea issue. Maybe you need better pain control, too. If you are like me, treating the pain more adequately will treat the nausea too.

I hope you find some answers soon. You are right that it is just miserable to feel like this on top of the pain!

Ry
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