This is my first year in this kind of excruiating pain,..
so Im "singing LOUDLY"
daily....Im wondering as you just stated if they truly : expect folks to suck it up...
verbally they have validated my pain, then tried some pain meds, which knock me for a loop, so then its nothing, try tylenol.. its like....... traditional medecine doesnt HOLD the Keys or answers...
SEVERE PAIN = the pain makes me scream, cry , sob, shake ie) while walking in the mall pubilcally embaressing my kids,... I yelp loudly when it hits sudden siatic lighting bolts..
While walking the llas of the nursing home were I work, I ahve to stop grad the rails... and breathe.... jsut to keep walking.. I am barely functioning..
if Its an aching back apin.. there is tolerable.. can deal with it pain &...or i am going to loose it P A I N . I know that I know taht you know what I mean,,,,
and I know what you mean... totally..
I am seeing a PM for the first time in the last 2 months, he just did a nerve block..we shall see what happens in coming weeks...I honestly feel there are not enough doctors,
too few who really UNDERSTAND , and have compassion. to motivate them to help people in Pain
I have seen a Reflexologyst/ Homopathic Nutricianist, who also understand whats needed at the cellular level,.. for the body to heal.. structurally, metabolically,.. even am receiving help with diet...
ps: "The knee bone is connected to the leg bone"... rememeber that song in coming days // we are a WHOLE PERSON.... mind body soul // Im learning to think the BIG picture and right to the tiniest molecule...
we are truly & amazingly & wonderfully made...
I absolutely agree, theoretically. It took me 2 years of pain before I took any narcotic meds, and, frankly, they were a godsend. Once I got past the the stigma, I found I got decent relief from pain, had few side effects, and functioned MUCH better on narcotics than I did in horrible pain.
However, I'm still employed full-time (for now), and I have an executive job where I'm in the public eye somewhat. Because of the stigma imposed by the public, I simply cannot afford to take the stand that I would like to on this issue, which is a sad state of affairs. It's amazing to me that the medical community is so ignorant of the proper use of narcotic pain medication. I personally feel it borders on malpractice, particularly for doctors who practice some type of pain-management related medicine, to not prescribe narcotic pain medicine when warranted. A cardiac doctor would certainly be sued for refusing to medicate someone who had dangerously elevated blood pressure. Why should excruciating pain be treated differently than any other medical condition?
Still, I'm preaching to the choir here. I fear that while politics continues to interfere with appropriate health care, and the media and law enforcement continues to vilify pain killers (particularly OxyContin), things will only continue to get worse for those of us that suffer daily.
Ha ha! Yeah, I'm on a beta-blocker as well. The last time they took my BP at the pain doc's office, it was 168/114. I was in a lot of pain that day. On another more recent doc visit (when I wasn't quite so distressed with pain), it was 114/72. This alone should really show doctors what constant pain can do to your body. I'm a very healthy individual when I'm not in horrible pain, which is pretty rarely these days. I honestly think most of the narcotics are way safer than over-the-counter NSAIDS. Oxycodone on it's own doesn't cause stomach-lining deterioration and liver damage! I have a liver enzyme test run every 6 months because of my tylenol usage. It's a crazy world we live in. Take care.
Hey, back to the original post! SangreAzul, if you have a herniated disc, why the heck hasn't your PM doc referred you to a spine specialist, preferably a neurosurgeon?? Electrical stimulation of muscle tissue, muscle relaxers and pain killers aren't going to fix that problem. You obviously have the right to some pain management while you work on dealing with the source of your pain. Get to the best spine doc you can find ASAP. Good luck!!
Morgoth, I couldn't disagree with you more. First off, yes some people get used to living with pain but as for someone who has been in pain for over 20 years, I can attest to the fact that some to not get used to living in pain. I guess you can exist with pain, but when I am in unmanagable pain, I cannot "experience" anything but the pain. It always amazes me as my pain gets under contol, that my world opens up to me. I start seeing and paying attention to all the things around me. Second, I have had less side effects to the pain meds than all the other meds they gave me before the pain meds. I ended up in the hospital with a stomach bleed from all the anti-inflammatories. It astonishes me that the doctors would rather give me meds that wipe out my immune system, that give me anxiety attacks, that give me a stomach bleed, that hurt my liver than something that when taken as directed is a safe drug with little side effects. I have been on PK's for over 7 years, I've had some increases, but finally found a dose that manages my pain and have stayed stable for years except for when I am hospitalized and put on a PCA. This allows me to live my life to the best of my ability with my disease. I am forever grateful for all the good doctors that fight for us pain patients and sometimes to their detrement. Someday I hope to join them in their fight.
Post Edited (Disce Pati) : 5/13/2008 9:40:25 PM (GMT-6)
Post Edited (PAlady) : 5/13/2008 10:05:10 PM (GMT-6)
Post Edited (erin.K) : 5/14/2008 10:20:39 AM (GMT-6)