Tormented by pain

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Gabby123
Regular Member


Date Joined Jan 2007
Total Posts : 113
   Posted 4/25/2008 8:36 PM (GMT -7)   
Hi all, im new here.  Been in severe chronic pain in my throat and stomach for about 2 years and it is getting worse.  No one understand the hell I am in everyday of my life.  The pain is just unbearable and I honestly dont know how much more of this i can take.  My heart goes out to all of you on here who are suffering with chronic pain, I KNOW YOUR PAIN.   I have no idea what its like to not be in pain, i feel it constantly 24 hours a day.  I hope oneday I will be free of this disgusting torment called pain pain pain...thanks for listening
 
-GAbby

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/25/2008 10:26 PM (GMT -7)   
Hi, Gabby,
Welcome to the forum. You don't say anything about the causes of your throat and stomach pain, and whether you're getting any treatment for your diagnosis and/or pain symptoms. It's apparent that if you're being treated for the pain, it's not adequate. I'd encourage you to read through the other threads on the forum that may apply to you. Also, tell us a bit more about what may be causing your pain if you want to.

PaLady

lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 4/25/2008 11:27 PM (GMT -7)   
Gabby; Sounds to me like you may have GERD probably an ulcer if your stomach is in such pain. You should see a gastrointerologist and have them do an endoscopy on you. Now most of them just use a pill size camara that you swallow. Painless. june17

lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 4/25/2008 11:28 PM (GMT -7)   
Gabby; Sounds to me like you may have GERD probably an ulcer if your stomach is in such pain. You should see a gastrointerologist and have them do an endoscopy on you. Now most of them just use a pill size camara that you swallow. Painless. june17

Gabby123
Regular Member


Date Joined Jan 2007
Total Posts : 113
   Posted 4/26/2008 7:41 PM (GMT -7)   

Hi all, I have severe esophagitis, bile reflux, and acid reflux,gastroparesis, and gastritis.  Been to many GI docs, no one seems to know how to properly treat my condition.  Ive taken numerous supplement from health food store, pills from docs, and changed my diet completely, but nothing is working to heal up and/or take the pain away from me.  I am going up to a clinic upstate to try and get help for my condition.  It has gotten so bad I cant even eat anymore, I get so sick after everything i eat, no matte what it is.  I just need help because I cannt go on living like this, its really awful.  Thanks for listening

Gabbs


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/26/2008 8:18 PM (GMT -7)   
Gabby,
I don't know much about your specific problems, but I do know about pain! I encourage you to keep searching for answers. Do research on the internet on credible sites to find out if there's any medical centers that deal more specifically with your condition (although it sounds like maybe you're doing that with the clinic).

Others may have more info. for you, but we all can understand pain and support you as you continue seeking relief.

Take care,
PaLady

Shelter
Regular Member


Date Joined Feb 2007
Total Posts : 155
   Posted 4/27/2008 7:14 PM (GMT -7)   
Hi Gabby
 
I do understand your pain
I have severe Esopheigial pain / reflux
 
due to   Sjrogrens,,, "drying" out
 
the pain used to feel like a heart attck...   im mean. it would flop me over my grovery cart pain...
I'd crumble  in puiblic.. it was  sooo horrible
 
i take pariet every day which for now helps
 
what ever we can do you support you through this...
thinking of you
praying that torment would STOP for you.....
and   there'd be  a calm to your storm
 
 
 
 
They that wait upon the Lord shall renew their Strength, they shall mount up on wings as eagles, they shall run & not grow weary, they shall walk & not faint..."  Ish   40 v. 31 
~
Sjrogrens Syndrome, Asthema, Chronic Fatigue, Chronic Pain, Head aches, Migraines, Gastro Intestinal ProblesmFibro Myalgia , Kidney Stones, Esophegial Spasms,(SI joint,   low mechanical back pain..L4 & L5 Vertebrae Misaligned,  Spinal Stenosis and Degenerative Disc Disease, Bulging Disc, anterolisthesis L4 L5L4 -- S1 pain  caused by osteoarthristis ,bone spurs, causing pinching or pressure on spinal chord 


Gabby123
Regular Member


Date Joined Jan 2007
Total Posts : 113
   Posted 4/28/2008 6:27 AM (GMT -7)   

Thank you so much guys for your support, its so hard living with a disease everyday of your life, I feel like I am doing something wrong...this just seems impossible to fix - but thank you and ill keep you posted on my condition

 

-Gabbs


ravenhairedvixen
Regular Member


Date Joined Jun 2006
Total Posts : 108
   Posted 4/28/2008 11:37 PM (GMT -7)   
Hi Gabby,
 
  I am so sorry you are having so much pain. I would assume that you are probably also having a problem with nausea/vommiting. I have Gastropareis as well...very severly. Have you had to have a feeding tube yet? I had a J tube, because I was unable to eat anymore, but unfortunately due to my really bad immune system from Lupus, I got MRSA, and the tube came out. I have also had a NJ tube {down your nose..like an NG tube, but bypasses the stomach}, and am now on TPN {IV nutrition}. I only ask, because nutrition is such a big deal, and worry that you are probably depleted of a lot of nutrients. Its caused me to also have severe gerd which has caused abdominal pain. I'm so sorry for the throat pain you have! I am sure that is awful. I currently live in Ohio {Have lived in Amsterdam, and Chicago in the past}, and was sent to the Cleveland Clinic for my stomache issues. They weren't able to do much for me {they have for a lot of people though}because all the medications {Like Reglan} I am unable to tolerate, not a candidate for the pacer because of the Lupus, etc. So, I just try and maintain hydration, and nutrition. Oh, and I am on IV Phenergan and Compazine for the nausea and vomitting.  I am actually on pain meds for other conditions {severe joint pain from Lupus, LPHS, Renal cancer, and arthritis}, and wish I didn't have to take anything because I know it just slows the GI tract down more. Unfortunately I have no choice. If you aren't already on pain medication, I would suggest you try something like the Fentanyl patches, because they bypass the GI tract. If you need a good breakthrough pain med with the same concept, Actiq, and Fentora are good options, as only a small percentage go into the stomache. I am on both the patches and Actiq. I also have a prescription for Dilaudid, but most of the time I am unable to take it. Anyway,  I realize you have a lot of other conditions, but I just want you to know that you do have some options for pain meds not making a horrible impact on your body as far as the Gastroparesis goes. I may have missed this, but are you on pain medication? Oh, and another suggestion...if your insurance won't pay for Actiq or Fentora, you could try Morphine Sulphate Immediate Release in liquid form. I was on it for awhile, until my Gastroparesis got worse. Okay, I will quit rambling, I just want you to know that you are not alone. I only have two of the situations that you have, but if you need any support, or have any questions, I will try and help in any way I can. I have had Gastroparesis for a long time, so I know a lot about it! Ha ha.  I hope you find relief soon sweetie!
 
Take Care,
Heidi

Gabby123
Regular Member


Date Joined Jan 2007
Total Posts : 113
   Posted 4/29/2008 11:30 AM (GMT -7)   

Hi Heidi, yes i have had GP for 4 years now, its been a nightmare.  I really think I need a feeding tube or something, I cant eat anymore, everything I eat makes me so incredibly sick.  I am naseous, have reflux coming up, and feel like I wnt to puke everytime I eat, no matter what it is.  The acid and bile coming up is the worst though, that just literally burns my throat like crazy.  And everytime I eat any type of carb it ferments in my stomach and intestines, and all next day gas bloatng and heartburn all day long...its awful, I have no idea how to fix this and the pain is just unbearable.  I need serious help, reglan makes me sick too, maybe a pacemaker in my stomach would be good but the problem is my throat is so burned from the acid i just camt stomach anything at all, this is so horrendous.  Thanks im glad you understand most people dont have a clue what i am going through, or dont see it as a serious illness.  Thanks

-Gabbs

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