Costochondritis

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presby60
New Member


Date Joined Apr 2008
Total Posts : 5
   Posted 4/30/2008 6:48 AM (GMT -6)   
Hi, I am new to this post.  My 26-year-old daughter, who is autistic was diagnosed in February with costochondritis.  We knew absolutely nothing about this condition and still do not know much.  She is on Celebrex and Hydrocodone to relieve the pain but she is still suffering a lot.  She has lost 16 pounds since the diagnosis.  She received 2 injections of cortisone 2 weeks ago and for about 3 days we thought she was better.  Then she got a lot worse.  Now she has no appetite.  I would appreciate any input on alternative treatments, what others have encountered who may have had this condition. 

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 4/30/2008 8:57 AM (GMT -6)   
Hi Presby,

And welcome to our CP family! I'm sorry your daughter is suffering so much. We have many members who have costo and I know they'll be by to offer you some suggestions. I feel very fortunate that I don't suffer from it. I'm going to post this for you over on the fibromyalgia forum since if often goes hand in hand with fibro. Good luck!

Chutz
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


presby60
New Member


Date Joined Apr 2008
Total Posts : 5
   Posted 4/30/2008 9:05 AM (GMT -6)   
Thank you so much! I am looking forward to input of others who suffer with this or know those who do.
Tricia


TDoern
Regular Member


Date Joined Jul 2006
Total Posts : 495
   Posted 4/30/2008 8:49 PM (GMT -6)   
Tricia -

I too have problems with costochondritis.

I am not sure how much you know about it. It was described to me from my doctor as an inflammation of the tissue that connects your ribs to your sternum. It can be brought about by many different things, and depending on how your body handles it can be mild, or very painful.

One of the main questions to ask first off, is how autistic your daughter is. I hope you don't mind the question, but depending on her capabilities depends on what she can and cannot do, and I'm sure what she will allow you to do or not do.

As far as treatment with medication they will probably do (if they have not) several anti-inflammitory types of treatments. I was started on Naproxen (Aleeve), then went to Ibuprofen, then something else, and finally ended with Celebrex. Celebrex was the only anti-inflammitory that did me any good at all. However, this will all depend on how each works with your daughters body.

One of the things that I found helped me as well was an ice pack placed in the middle of my chest in 15 minute bits throughout the day. It didn't make the pain go away, but it did numb things and it didn't seem as painful for a little while. Also Tiger balm and/or Icy Hot might be worth a try.

My doctor also gave me anti-inflammitory shots that helped a great deal for a few days then the pain started coming back full force again. Yet another thing that was done was a steroid injection, and a "midrol dosage pack" which was a weeks worth of steroid pills that you take a whole bunch of the first day and then take one out each day or something like that.

If you can one of the things that might make the costo not quite so bad, is to have your daughter avoid moving her arms if she doesn't have to. Anything that involves moving your arms tends to put pressure of some sort of the area right in the middle of your chest, where the costo inflammation is at. For me things like washing my hair, brushing my hair, putting on a coat, putting up dishes, hanging clothes, making the bed, and so forth are what aggrivated the costo the most. Pretty much anything that moved the middle of your chest.

I wish you and your daughet the best, and I applaud you for being a great mom and seeking help with this - the initial reason I found healing well was from doing a search related to costochondritis, and this has been a great home ever since. You might also want to go up and use the search option at the top of the forum and do a search for costo - every couple of months a thread pops up in relation to it. Also - the fibromyalgia forum was where I initially found my information, you may consider asking a similiar question there, or doing a search of that forum as well!
"When we come to the edge of the light we know, and are about to step off into the darkness of the unknown, of one thing we can be sure; either God will provide something solid to stand on... or we will be taught to fly.'"

"Cause when push comes to shove You taste what you're made of, You might bend, till you break Cause its all you can take; On your knees you look up Decide you've had enough, You get mad you get strong Wipe your hands shake it off, Then you Stand" From "Stand" by Rascal Flatts
_____________________________________________________________________________
Dx.: Polycystic Ovarian Syndrome, Ulcerlative Colitis, Chronic Inflammation of the Colon, Ruptured & Fused L4-L5-S1 w/pinched nerves, Degenerative Disc Disease, Chronic Costochondritis, Back Muscle Spasms, Asthma, Benign Tremmors (hands)


presby60
New Member


Date Joined Apr 2008
Total Posts : 5
   Posted 4/30/2008 10:14 PM (GMT -6)   
Thank you for taking the time to respond. Ashley, our daughter is on Celebrex and hydrocodone right now. Have you had costochronditis for a long time? We thought it would be gone by now. It seems it can last for years. We have an appt. with yet another doctor on Monday to get his perspective on this. It certainly is a nightmare at times (today). It must be terribly painful. Anyway, it is definitely one day at a time. I wish you the best.
Tricia


ReactiveConstellationNE
Regular Member


Date Joined Dec 2005
Total Posts : 256
   Posted 5/2/2008 2:30 PM (GMT -6)   
costo is just awful.....I struggle with it constantly. I think that extremely effective pain managment MUST be excercised if we want such people to soldier on and not crumble under the incredible strain on the mind body and soul such a crushing of the heart produces....
Conditions: Reactive Arthralgia/Reactive Constellation, Chronic Pelvic Pain Syndrome, Sacroiliitis, Costochondritis, widespread Tendonitis, severe back pain & spasms with numerous spinal problems, barely able to type anymore due to severe full-body runaway inflammation, and on and on. Typical daily pain levels exceed 8.5(!)

Medications: Methadone, Dilaudid, Oxycodone, Marinol, Cesamet, Lidocaine Patches, Flexeril, Zanaflex, Soma, Desipramine; many herbs & supplements.


Previous medications: Oxycontin, Opana, Fentanyl patches, Kadian, Avinza, MS Contin, Lortab, OxyIR, Baclofen, Testosterone (oral, patches, gel), Cymbalta, Lyrica, Neurontin, Amitryptyline, every NSAID known to man, Prednisone....and many, MANY more.


presby60
New Member


Date Joined Apr 2008
Total Posts : 5
   Posted 5/2/2008 3:02 PM (GMT -6)   
I am very sorry for all of your health issues. Do the symptoms of costo ever let up? How long have you had it? This is like the monster that came to live inside of our daughter/family and won't leave. We knew nothing about it before she got it. Thank you for responding.
Tricia


TDoern
Regular Member


Date Joined Jul 2006
Total Posts : 495
   Posted 5/2/2008 11:33 PM (GMT -6)   
Tricia - for me, yes the symptoms do let up. Right now the costo isn't flared up at all and is behaving itself quite nicely. I dealt with it being really bad for about a year or so before it started getting better at all. The weird thing was that it's getting better had nothing to do with medication I was on or anything - I guess it just got tired of torturing me and gave me a break. I've had several flare ups since, but as of lately it's been taking it easy on me. I would go and look things up, and sit down and have a honest talk with your daughters doctor. Tell the doc that you NEED to know what to expect, ask him why it's lasted so long without relief... ask if there might be an underlying problem that created it, and if possibly that source might need to be treated before her pain will let up.

I hope you find more answers, I can't give you any real medical information - just what my experience with costo was and is.

Tammy
"When we come to the edge of the light we know, and are about to step off into the darkness of the unknown, of one thing we can be sure; either God will provide something solid to stand on... or we will be taught to fly.'"

"Cause when push comes to shove You taste what you're made of, You might bend, till you break Cause its all you can take; On your knees you look up Decide you've had enough, You get mad you get strong Wipe your hands shake it off, Then you Stand" From "Stand" by Rascal Flatts
_____________________________________________________________________________
Dx.: Polycystic Ovarian Syndrome, Ulcerlative Colitis, Chronic Inflammation of the Colon, Ruptured & Fused L4-L5-S1 w/pinched nerves, Degenerative Disc Disease, Chronic Costochondritis, Back Muscle Spasms, Asthma, Benign Tremmors (hands)


presby60
New Member


Date Joined Apr 2008
Total Posts : 5
   Posted 5/3/2008 7:48 AM (GMT -6)   
Thank you, Tammy.  We have an appt. with another doctor on Monday.  We have a whole list of questions.  I was hoping the costo would be gone by now but I have had responses from people that have been suffering with it for years.  We hope to get more answers from the doctor we will see on Monday.  Take care and have a good weekend! 
Tricia

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