What do I do now

New Topic Post Reply Printable Version
33 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/6/2008 3:01 AM (GMT -7)   
 
      My doctors finally found what is causing me such severe pain but wont even perscribe me a little bit of break through pain medication.  I'm on one of the lower doses of oxycontin and they know this new dx can cause severe pain. I've been trying to suck it up and find things to be happy about and occupy my time while being stuck in bed, but I am getting so frustrated and can feel myself breaking down.  I havent been able to take an actual shower in too long and I can hear the morning birds singing and the rising sun poking through the trees and I know I wont be able to go out and enjoy them.  I'm running out of things to take my mind off of the pain. I just cant stand to watch another movie or read another book.  Watching my husband walk out the door so easily in the morning has almost become a form of torcher. 
I dont mean to complain, I know I am lucky when it comes to many things and I a grateful for the things I am able to do.  I just miss having friends and feeling the fresh air.  Day dreamimg just isnt getting me through the day anymore. 
I'm sorry to be such a downer here. 
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 5/6/2008 5:52 AM (GMT -7)   
Freya, what is your dx? Perhaps you could find a specialist who deals with it or maybe it's time you began working with a pain management clinic. They would help you in more ways than just medication. Most PM clinics have a neuropsychiatrist and physical therapists on staff and have the goal of treating the whole person, not just the symptoms. It sounds like you really need someone to talk to.

Best of luck. We're all here for you.
Ry

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 5/6/2008 7:05 AM (GMT -7)   
Hi Freya,

I agree with ryand...what is the dx? Are you supposed to be on bed rest? If not you need to try and get moving. Also talk to you doc about PT. The longer you are immobile the worse your muscles will be until they just stop functioning.

Hugs,
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/6/2008 12:08 PM (GMT -7)   
My specialist is the one that dx me. Some people have been stuck in bed for years and others arent, its just how it goes. I'm not jealous of my husband because he's not in pain, I dont indulge in jealousy, it turns people into bitter resentful people. Of course anyone who is stuck in bed is going to wish that they can just do things so easily and watching someone move there body in ways that are very difficult for someone else can make anyone feel down. I think thats a pretty normal feeling for everyone at some point.
If it was that easy to get up and get moving dont you think I would be up and moving? Would you like someone to tell you when your in severe pain that unless your supposed to be on bed rest you should get up and moving. That sounds like what someone who isnt in chronic pain would say. I thought this was a place to express your feelings, why does that warrent a psychiatrist?
Geez, non of those replies felt like understanding and support...Get up, get a psychiatrist, your jealous

So when and if your all undertreated for pain you have no problems getting up and moving around? If you can get up and move around so esily then why are any of you on opiod pain regimines. Why are any of you complaining or fighting for patients rights if people like me are supposed to be able to to things so easily.

None of you have ever watched someone move there body around so easily and wished so deeply that you could do the same? It didnt drive you crazy when you were in severe pain? Then why even take pain medications if it doesnt bother you? What are you striving for then? I'll be the fist to tell you feeling that way does not make you a jealous person, especially of someone you love.

And I guess expressing feelings warrents a neuropsychiatrist?-Spounds like you need to talk to someone- Uh yeah, thats what these forums are for arent they. If everyone should go out and talk to a neuropsychiatrist(who by the way perscribes psychotropics not someone who talks things out with you) every time they feel the need to express there feelings then why bother even constructing forums like this.

I gatta tell you, all those replies contradict everything that has been said about why chronic pain should be treated in the first place. Thats what the DA's of the country are thinking...'why does there pain even warrent such strong mediactions, get up; get moving, get a psychiatrist'
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/6/2008 12:13 PM (GMT -7)   
Freya,
I do want to say that I understand your feelings. I spend half my day in bed and have to force myself up because I'm either tired or also I know that being in my bed is where the pain is at its lowest. Once I get up it's downhill from there. I'm walking around my house and haven't done the normal things I would have by now - put screens up, got my grill ready to use, etc. I have no energy and am always afraid of making the pain worse.

Others are right in that we can't lie in bed all the time, although I wouldn't want to tell you to move around without the guidance of a physical therapist. But it sounds more like the reason you're staying in bed is because of pain - is that right? As you read all over this board, most of us have varying degrees of difficulty getting docs to prescribe adequate pain meds, so it sounds like you need a doc who understands your pain more. If the doc prescribing is just your PCP, ask to be referred to a pain management specialist, or as others have suggested a pain clinic that has a variety of services.

Never feel bad about venting, whining or complaining here because that's what this board is for and we all understand! At least in that you're no longer alone.

Hugs,
PaLady

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/6/2008 1:26 PM (GMT -7)   
Freya,
I think I was posting my response as you were writing yours so I didn't get to see it. I really can see what you're saying. Yes, it is normal to have some feelings about watching others doing what we can't. And sometimes it is jealousy, and then the tough part comes about how we are going to decide to deal with those feelings. But having some anger, jealousy, sadness as we watch others is a normal part of this process. There's a lot of grieving to do, and I think it's a process that re-emerges over and over in our lives. I know for me it's bittersweet watching everyone around me have lives, be with their families, go to work, etc. and watch my own life going down the tubes. I'm trying to stop my own free fall, but it's not going to happen overnight.

So I hope nothing I said was painful to you or added to your frustration. I think some of the responses (although I can't speak for others) including mine were somewhat based on knowing very little about your diagnosis and situation. Please keep telling us more.

This forum is really a good place, but help us understand your details more - and don't be afraid to disagree with what we may be telling you! That also helps us know where we've gone wrong!

PaLady

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 5/6/2008 3:12 PM (GMT -7)   
Freya:

I am so sorry you felt hurt by my reply. I certainly did not mean it that way. I absolutely do understand what it is like to feel constant horrible pain, and also how awful it feels to lose the ability to do the things you enjoy.

I did not suggest visiting a neuropsychiatrist b/c I think you need psychiatric intervention but rather because intractable pain can really wear a person down. Not just physically, but also emotionally. The neuropsychs at a PM clinic have focused their practice on helping people who have serious pain issues. As I said in my previous reply, a PM clinic's goal is to treat the whole person. I used to go to a clinic w/a neuropsychiatrist on staff, and they did not prescribe any drugs at all for me. His time with me was spent teaching me ways to distract my mind from the pain I am in and to relax my body and mind when the pain threatens to overtake me. I also see a physical therapist who helps me to find (and then change or avoid) movements or positions that irritate or increase my pain. He has also taught me ways to cope physically with the effects of the pain - like how to get up from a bed in a way that doesn't exacerbate my pain.

I really didn't mean to discourage you, and I am so sorry that you felt attacked. This forum really and truly is a place where you can vent and find encouragement. I think you could probably find threads posted by each of us who replied to you that are very much the same as your initial post. We really have been (or are) where you are. If you are comfortable sharing your dx, I bet you'd find a lot of people here who have the same issue and can give you better advice related to that specific dx.

I really wish you the best and hope you can find some relief.
Ry

shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 5/6/2008 4:03 PM (GMT -7)   
Freya, i hope that your new dx will lead to some extra pain management!

Was the dx related to the endo or that "region"?? I deal w/ alot in that area, so if u want to chat, im here.

I can also say, that i totally understand the "jelousy" part. When i was pregnant w/ my first child, i was hospitalized for premature labor at 28wks (12wks early). I stayed in the hospital for 6 very LONG weeks. My husband would come to visit every night, and every night when it was time for him to leave, i would cry. As the time went on, i found myself actually being MAD at him for being able to just get up and walk out of that hospital room. I did realize at the time that it was just me, he was not actually making me mad...KWIM??? I think it is natural to feel jelous if someone is feeling better than you, has a life, and can function at normal capaticy....This is NOT the same as wishing that THEY could not function or have a life, ect....
After the pg, i realized what i was actually feeling, and could understand it...

Anyways, i hope that your new dx will bring some help! good luck, and hang in there, i don't think the other posters ment anything other than to offer some help, JMO, but i know sometimes reading speech sometimes sounds worse than it was ment....

good luck freya! shannon

Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/7/2008 1:11 AM (GMT -7)   
I really do appriciate all of your responses offering understanding and support.
My initial feelings were due to the fact that I felt no one offered understanding or that they could maybe identify with what I was saying. It was more of a this is what you should do and this is what you are feeling and you 'cant' do that.
It was so hard for me to make that first initial I need support post. So hard. I just eneded up feeling even lonelier than before I had even posted it.

Gramps-I never said you didnt care. And I'm sorry you saw my post as taking my frustrations out on you. I did say that the responses sounded like a contradiction to what has been said on the forum about the understanding of chronic pain and its advocacy, because thats what they sounded like to me; Instruction on actions, things that people have said there friends and family say to them when they were not understanding chronic pain.
I dont think I was taking my feelings and frustrations out on anybody, only expressing what it felt like to not recieve understanding on my feelings and a judgement call that I did not appriciate. I would hope that you would speak up for yourself if someone made a judgement on you or your feelings because that is not okay. It makes people feel bad and wrong for feeling a certain way. I certainly am not jealous of my husband, especially not because he is healthy. It was only an explination of my feelings about an action, not a person. I'm sorry you feel the way you do about my reply.

To be honest I did feel a little hurt because they made me feel like I wasnt doing something right for myself and if I just got up and went to see a psychiatrist everything would be better.
But my reply was not ment to take anything out on anyone or attack anyone. My intention was to put everything back into question so that someone could understand why I was feeling the way I did about it. They were about my notions and understanding of why people were on opioid pain medications to begin with and why we are all fighting to keep the law from shutting us out from that help. I wanted to make sure I was understanding the reasoning behind the actions we are or arent able to take.

As for my dx, its a little embarassing for me. I havent heard anyone on the forum mention it or in any other past posts I've looked through. It is a problem in my core and also is made worse by my endometriosis and visa versa. That is why it is so hard to sit up , stand up or move my torso. I get terrible muscle spasms everytime I do, it feels like someone is ripping me open. I walk a little bit when I go to the toilet or walk to the kitchen, but those are things that I can stop in the middle of if I need to. I just havent been physically able to get back up the steep metal steps in my house without my husband around incase I get unsteady on my feet which has happened a few times when I thought I didnt need any one elses help. I do not see a pain specialist and perhaps I should. My doctor has mentioned that to me but I didnt want to leave them to find out that a pain doc would take me off my meds. They told me they wouldnt but I am having major trouble as it is, if they take me off I can forget about getting out of bed at all. But they do know I am in this position and are not surprised at all. I know they want to see what is going to happen on its own for the first few weeks, but that isnt helping me cope.
Maybe when I get more confortable with posting I'll feel okay enough to talk about my dx, it just isnt easy to talk about myself like this, infact I'm fighting the urge to delete this and just disapear like the first post, but that would be the easy way and I'd be back to square one.
So thank you everyone for understanding how I was feeling and letting me vent a little in the first place. Please no one think I was trying to take my fustrations out on anyone or making judgements on anyone it just felt very lonely to get those instructive responses with a little judgement thrown in. I'm not used to doing this type of thing, you know the whole being vulnerable.
I guess thats it. I think I'm talked out
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 5/7/2008 3:03 AM (GMT -7)   
Freya:

I totally understand that it feels uncomfortable to talk about some issues on-line. Especially in mixed company! :-)

In the brief time I've been a part of this forum I have found everyone here to be caring and compassionate and I've gotten good advice and ideas, so I hope you will get more comfortable posting here. I also recently found a couple other sites that have forums, discussions, articles, and advice specifically for women and issues that come with "them parts." eyes Try doing a search for "(your dx) +chat" or "(your dx) +research" and you might find some of those too. I was amazed at how much information there is out there! I am not sure if the rules allow me to post the sites I found, but if you can't find some let me know and I can maybe email them to you.

I think it's a good idea to still consider seeing a PM doc, though. If your primary care doc has referred you, he will probably be willing to continue writing prescriptions until the PM is ready to take them over. In my case, even though I see a PM my primary care doc still writes all my prescriptions as they have decided it's best to keep all the scripts coming from one place. Just be very honest with the new doc about what you are taking and how it is (or isn't) working. They may want to try you on some different meds if the ones you have aren't managing the pain well enough, but I don't think they'd just make you stop taking anything at all.

shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 5/7/2008 4:22 AM (GMT -7)   
freya, i have gone through alot in that region, and am a very "medically intrested" person, so i am familiar w/ many medical things, especially in that area since i have had so much go on in there! LOL...if u want to chat, u can give me ur email and we can do it privatly...im an open book, i have to be...i was sooooo embarrassed when i was dx w/ ulcerative colitis, but u know what....OH WELL, i have to poop, ALOT! LOL
The initial dx of anything for anyone, is hard. So, just take it one day at a time....and i can say that i DID see a shrink when i was dx w/ my UC.....i was housebound, afraid to leave, in pain, sick, and very depressed knowing i was dx w/ a lifelong illness, but it DID help me (tho, im a talker), and i only saw her a few months, but it worked...im a big believer in "talk therapy"....so, just wanted to share my experience.

I have delt w/ alot of female stuff also...from the endo to the cysts, to PID(an inflamation problem in my uterus/cervix_), to HPV, (not HIV), to tilted uterus making sex painful, to twisted ovaries/blocked ovaries, infertility,chronic UIT's .....the list goes on honey!!!! lol

so, let me know if u want to chat! hang in there!

Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/7/2008 9:52 AM (GMT -7)   
Ryand- thank you for your suggestions I appreciate your help. Unfortunitly my "woman parts"(thats cute LOL!) arent reaally the problem, more woman have mt dx, but a few men have it to. Infact my specialist is urinary so I'm joined in the waiting room by mostly men. There is only one forum for it that I found and everyone seems to post only once and a while. But of course I do read there suggestions and information. I looked at the chronic pain forum that had my dx forum on it, and there are a few people with it, but they seemed very un-inviting telling people to find another forum because the mojority of them had pancreiatic pain. I figured why feel like I dont belong there when I'm almost starting to feel better here.
The condition is really un common, infact I had never heard of it before. Its pretty much a forever thing, there is no reason for it, no cure and no answeres except for 'theories' Thats what makes it very infuriating.
I guess I get enough exercise getting up and down 50+ times a day to pee so anything else seems like un-nessesary tourcher. You think I'm jealous of my husband, dont even get me started on people who dont pee there pants!! :):)
Although , I do have a hilarious story about that that maybe I'll share since I'm putting it all out there anyhow!!
They think I have had this for some time possible since I was a teenager but that it just progressed within the past few years until it reached this point, but like I said the know so little about it everything is pretty much a theory.
Oh, I did do another search throught the forum and found one topic on it but the member doesnt seem to be around anymore. Maybe they still check in and dont post so I'm crossing my fingers
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/7/2008 10:23 AM (GMT -7)   
Oh, shannon thank you for your offer I will defenitly take you up on that!
and gramps thank you for your reply.... if I did hurt feeling I do apologize for it wasnt my intention to do so. I'm pretty new at this and I guess I've never been tight lipped when it comes to my hurt feelings(I'll still hold to the end that I did not attack anyone, but that seems like a mute point) I am sorry you've had a tough road to follow, I am sure you will find the help you need.
Hang in there

Freya
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 5/7/2008 3:03 PM (GMT -7)   
Freya:

I am so glad to hear you say you are starting to feel a little better here. We are glad to have you with us. I will keep praying that you will find adequate treatment for your pain. I am still in the searching for a dx part of my issue, so I can empathize with you there. Some days I think they are never going to find out what is at the root of all of my symptoms, but it is encouraging to hear that you have at least gotten a diagnosis. Maybe there's hope for me. It is just ridiculous that your doctor is not doing a better job of treating you right now - especially if they are telling you there is no other (non-medicinal) intervention that can help.

Can't wait to hear your hilarious story! I hope you have less pain tomorrow than you did today.

Ry :-)

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/7/2008 3:20 PM (GMT -7)   
Freya,
I'm glad you started sharing with us some of your struggles. I think someone else said you could go back and find threads from each of us where we're having a dark time (I still am and one of these days am going to start another more philosophical thread, but I don't have the energy now). Anyway I did want to add I didn't think you attacked anyone. I think you were just feeling scared and desperate and reaching out - that's not attacking. We've all been there, and I for one know I'll be in that place again. Hopefully, we'll help eachother move through each layer to the other side - whatever that may mean!

PaLady

Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/7/2008 6:26 PM (GMT -7)   
Thank you both so much. Yes its true this is a dark time and I am very frustrated and worried for mine and my husbands future. You both have helped me immensly and given me the understanding a room to finally ask for the help I've needed for a while. I'm sure I will learn much in being here and exploring information about this perplexing diagnosis. It helps to know I have a place to go.
ry- keep staying strong, they will find what is causing you pain. It took a long time for them to find my problem and just as I was ready to give up it was like a light bulb went off in my Doctors head. I never considred a urinary problem for one minute. I've learned conditions have a way of hiding themselves behind every other darn thing they can. You never know what your going think tomorrow that may lead you down the road to your answere.
I'll defenitly tell my story as soon as I figure out if I'd be the only one laughing, as some have pointed out to me lately, my sense of humor is a little...different!!
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 5/7/2008 7:47 PM (GMT -7)   
Hi Freya, I am so glad you gave us a second chance. We really have a great group here. We dp support each other and try to help any way we can. I have UC/Crohns disease, CP for so long. I have a host of other problems from the two diseases, most current is a fistula that came out of the scar from my hysterectomy. I told my gi recently I just think my old body just does nothing but attacks itself. My life is no where close what it was 6 yrs ago. Some days I still cry trying to figure out why. Then I just have to be realistic and not visit that place much.lol I have pity parties sometimes, you will be invited to the next one. Hang in there and I sure hope your pain eases. Hugs, Susie


Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/7/2008 8:13 PM (GMT -7)   
Well your personally invited to mine..come on come all:):)
Its nice to meet you!
Its hard to just throw caution to the wind and open up to people, but I'm doing it. Some things are easier than others, but for some reason my pain conditions have been very hard for me to talk about. Maybe because I started to feel crazy when they couldnt find my problem at first.
I'm totally with you about feeling like your body is just attacking itself! Its defenitly a strange feeling to not have control over what your body is deciding to do, kinda like hey-I thought we were in this together!

I was going to post a question in the UC forum about some symproms I've been having- Talk about jumping in deep(no pun intended) whats more difficult to talk about then bowel movements! Maynbe you could help give me some feed back
Hope your night is as comfortable as possible
Freya
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


Muzz
Regular Member


Date Joined Mar 2008
Total Posts : 395
   Posted 5/7/2008 9:36 PM (GMT -7)   
Freya, first of all, I don't think that what u ar feeling when your hubby leaves for work is jealousy, but rather, envy. We all envy folks who don't have CP issues but I'm sure that ppl who have worse probs than we do envy those of us able to even get out of bed, much less walk.  And ppl who can't even move a finger prob envy those folks. It's just human nature. It doesn't mean that we wish some one to be like us, but that we wish that we could be like them.
As for getting up and moving around......it hurts, plain and simple. I'm spealing only for myself, but I have to make myself get out of bed almost every day(sometimes I have that rare, elusive day creature called No Pain). It hurts to get up out of that comfy bed, esp if it's someplace like mine, a little nest where I am most comfortable. But, that said, I know that FOR MYSELF, I do feel better when I get out of bed and do something, albeit a small thing, to get my blood flowing. If I do the dishes(hubby usually does them) I have to sit down at least once, my legs and back hurt so much. But it forces me to breath deeper, and get more O2 to my heart and brain.
I'm sure that no one was putting u down, sweetie, just offering helpful suggestions that they have found, often over many yrs, that help them.
As for the neuropsychiatrist, my PM clinic offers this service and I imagine that most do. They can help a person cope with what well may be a lifelong affliction, and not just with meds. Coming here does much the same thing(and I can get good advice and support in my jammies lol). Hope u decide to stay, I'm sure that u have something to offer here that could help someone else cope better.
As for your dx being embarrassing, it's not like you'll ever actually meet any of us. To me, that makes it easier to share some things that could be a bit embarrasing.
As for the joke, as I stated in the thread with the jokes, I have a goofy sense of humor too. If u decide not to share it here, email it to me, I'll prob love it ;) I think my email is in my profile, I'll check.
Hope to "see" u around yeah
I am not my pain, it does not own me.


Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/8/2008 12:58 PM (GMT -7)   
Thank alot Muzz, everyione here has helped so much!
Its true I never have to look anyone in the eye so what I say shouldnt really cause any embarassment, that is very true and it does help to think of it that way

Iposted a question on the UC forum last night and someone came back asking if Interstital Cystitis was my diagnosis, so yes I have IC(not much to be embaressed about I guess!)
I do think its more of the torcher I went through mentally with everyone thinking it may all just be in my head. Especially with a diagnosis of IC, many people still seem to think that. I should know better than that that people here would never judge anyone for having an uncommon condition that doctors still disregard!
Thank you for bringing up the word envy, for the past few days I have been trying to think of the word and for the life of me couldnt get it off the tip of my tounge. Welcome to the pain fog I guess!
To me envy is more of wishing you could do something that you cant and jelousy is resenting someone because they can do something you cant. There's probably not much difference minus the resentment and bad feeling twords an actual person.
But we all have it at some point, mine just happens to be now!
Thank you for sharing with me what helps you. It is hard to get up and do things. Yesterday I made myself cook diner, well I put sandwiches together, but I did make the dressing! I felt awful afterward and the sandwiches were awful(if thats even possible) but I was proud with the accompishment.
I was wondering just how much I got up during the day to run to the potty and realized I'm getting up much more than I think, so thats a bonus and maybe I can start to take the long way around back to my bed!
Small steps!
Okay, I'll babble for days
Hiope everyone is well and having a pain free day!
Freya
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


Muzz
Regular Member


Date Joined Mar 2008
Total Posts : 395
   Posted 5/8/2008 2:26 PM (GMT -7)   
Why, Gramps, I ALWAYS use the right word!! LOLOL I'd run for cover but u could prob catch me. devil

If pain could have cured us
we should long ago have been saved.


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 5/8/2008 7:20 PM (GMT -7)   
Freya:

I can SO relate to the pain fog! I told a friend once that it was like a radio set to just static was wrapped around my head, but even that doesn't really describe it, does it?

Can I ask, does IC cause you pain in your back? My back pain is higher than my kidneys (mostly L1-L2-L3), so it doesn't seem like it could be caused by any GI or bladder problems, but I'm wondering if I should ask my doc to consider this just in case...

Thanks,
Ry

Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/8/2008 8:43 PM (GMT -7)   
Your right Gramps, black and white print, certain words, they all can lead to a mis understood post. And I'm sure my words are not always right. I see now that you all only had the best intentions. We are all suffering and so it is important that we all give eachother a little room when it comes to the things we say or how we say it. I'm glad I was able to realize that with everyones help before I screwed myself out of getting the help I need and being apart of a community that really is very supportive.
I read something a while back that said no matter who we are or what kind of pain we have were all in this together. Thats so very true. We all put up with a great deal from doctors, our pain, and people who really dont understand.
all of that can become too heavy on our shoulders if we dont have the support of people we care about and the understanding we need. I'm glad there are people here who offer that suppost and understanding.

(((hugs)))
Freya
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/8/2008 8:57 PM (GMT -7)   
Hi Ry(you always make me think of my brother, his name is Ryan and I call him ry-ry)

IC pain, as I understand it, causes pain in your back, thighs, legs...basically anything from your upper ribs down to you feet. All the symotoma can be different for everyone. I personally have pain in my bladder when it fills , muscle spasms in my urethra , thigh pain , and middle to lower back pain. But some people dont have any pain and onlt have an increase in using the bathroom everyday
I would think its defenitly worth checking into. I'm not sure what the symptoms for males are, I think they may be a little different. But I have seen a few men who have it in my internet searches.
With IC, alot of the time the patient has toi mention it to the doctor because so many of them dont even know too much about it or dont really believe in it even though its real.
Do you have a urologist? they would be my first stop if you want to do a little checking out.
I hope this helps
Keep me updated and I'm always here(literally) if you want to chat or have anymore questions!

Many hugs

Freya
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/9/2008 10:27 AM (GMT -7)   
You too gramps!!!!- very wise you are.
You'll be in my thoughts:):)
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.

New Topic Post Reply Printable Version
33 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Sunday, December 04, 2016 3:25 AM (GMT -7)
There are a total of 2,732,437 posts in 301,021 threads.
View Active Threads


Who's Online
This forum has 151185 registered members. Please welcome our newest member, monjurmuradd.
179 Guest(s), 0 Registered Member(s) are currently online.  Details



Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer