It's been awhile

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quahog
Veteran Member


Date Joined Sep 2005
Total Posts : 535
   Posted 5/11/2008 9:34 AM (GMT -7)   
I know it's been awhile since I actually sat down and posted here.

There is just so much going on these days that I don't really get on here as much as I used to.

Hopefully everyone is well and your pain levels are low.

As for me personally I just recently found out that I'm anemic although with some of my doctors seem concerned and others do not.

My ESR or Sed rate is also elevated I suppose it could be due to the Anemia but boy does my body hurt something awful. A fee weeks ago when my young nieces were visiting I was feeling fairly well and I took them for a short hike. It was only a .5 mile hike but it was almost straight up over rocky slabs. Now I exercise everyday but this hike kicked the **** out of me. I haven't really recovered or so it seems. My doctor scolded me but despite the pain it was fun.

I've also found out that my Magnesium levels are virtually zero. I am now taking high doses of it but if my levels don't rise and soon I will need to start on parental doses. I never really thought about it before but I guess it could be related as everything seems to be especially with me.

The good news the enlarged Lymph node I was dealing with was from an infection of some sort. It has since returned to normal but I still have some abdominal pain. It was a huge relief to learn that it wasn't more serious but they are still keeping tabs on it.

It really is hard to live life like this never knowing what your body is going to do. If you over do it as I did with the hike you end up in so much pain as a result. My wife is understanding but even she forgets that some days I have all I can do to just get out of bed.

Then there's the pain medications. I really want to stop taking them but really don't know how to go about it. I know I need to talk with my pain doctors but for some reason I haven't been able to bring it up. It's true that the meds help me but I absolutely hate being so dependent on something. What if something occurs and I can not get my meds like what happened at the pharmacy. Because there is no longer any generic Oxycontin everyone who takes this med now must take the name brand and as a result there have been shortages. I wasn't able to get my normal script for about 2 days fortunately I had breakthrough meds but if I had to wait for a longer period I would be in serious trouble. I do know there is a difference between being dependent and being addicted but when you run out your body certainly doesn't know the difference.

I'm also toying with the idea of starting treatment for Lyme disease once again. I'm still not all that convinced I have it but figured I owed it to myself to see what happens when I try the antibiotics again. I'm seeing a new doctor who treats Lyme who has said the symptoms I have fit. It bothers me because in my case there is just no way to know for sure if that is what I truly have. My PCP does not believe in chronic Lyme and feels it is nothing more than a wastebasket diagnosis but the funny thing is he does believe Fibromyalgia exists. Both diseases are mostly clinical in nature and to believe in one but not the other just seem a bit odd to me.


Wow, I've written a book and I really didn't mean to. Hopefully I didn't bore anyone to death over my self centered post.

Take care and stay well! :-)

quahog
Veteran Member


Date Joined Sep 2005
Total Posts : 535
   Posted 5/11/2008 10:29 AM (GMT -7)   
Thanks for your reply Gramps. I had a bit of an issue while trying to update my original post. Thankfully I still had my post sitting in my PC's memory.

I do agree with you about the pain meds it has been a difficult subject for me. I guess it was a neurologist that I saw that made me think maybe she's right maybe I should discontinue them. Of course, this neurologist left me with no other treatment options. All she was doing was suggesting I try the same meds over again and I simply can not do that.

If it was any other medication such as those for Diabetes or Hypertension I wonder if the neurologist or other physicians for that matter would tell me to stop taking the medication.


You said that you had anemia as well and I'm curious to know if you've ever tried B-12 or Methylcobalamin injections or even the sublingual tablets? I was on them for a short time and they were of course very expensive and my insurance did not cover them at the time but they did help, especially with the fatigue.
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