Many Constant pains...any advice?

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Sethia
New Member


Date Joined May 2008
Total Posts : 10
   Posted 5/13/2008 1:51 AM (GMT -7)   
Hello everyone,
I have been suffering back pain since 2004 after I had a spinal tap. I had gone to the hospital because I was in severe pain. I had a shocking pain shooting up my sides my back and the sides of my head. The nurses there thought menengitis so they scheduled a spinal tap. When the doctor/nurse [I don't really remember which she was I didn't really pay attention to her] came to do the tap, she numbed me, after I was in position and then she started the procedure, first time, she hit something and I jerked, so she had to start again, that time same thing, final time she got it right. After that, they found out I had just a urinal infection and food poisoning. [yay no need for a spinal tap] But my ongoing side effects from the tap are what worry me. I had a 3 month long migraine, and a headache everyday for 2 1/2 years. I still get frequent headaches. Also my mom just got diagnosed with a brain tumor. [wondering if its genetic... confused ] Anywho..in 2006 when I was in labor with my daughter, I asked for an epidural. [Now I wish I hadn't] The anesthesiologist [sp] was rushed as he was putting the needle in my back [just imagine the flashbacks going through my head while receiving that epidural...my mom had to hold my hand..] 2 nurses came into the room about 4 times each, within 30 seconds of each other asking for the doctor for an emergency C section. [As he has the needle in my back mind you...] So after the second nurse came in for the 4th time he asked the nurse attending my labor to fisnish taping me up. I don't know what happened but the epidural didn't take. My mom later noted, [because I wasn't numbing on my right side only my left] they had me switch to my right side to possibly help the flow, my mother saw a pinkish fluid covering the blankets. [I was induced and my water hadn't broken yet so it wasn't that]
So my lower back..is in extreme pain, constantly, I cannot straighten up while sitting because I will receive an instant headache. I can't get massaged anywhere near the spine in that area, the spine in that spot is sensitive to the touch. I was in consideration to sue the hospital for malpractice, and the lawyer I had talked to told me to get an x-ray to see if the needle tip came off in my spine. My daughter had just been born so I had no chance to get an x-ray and now my insurance was cut off, so I'm not able to go get one now.
 
So thats one pain.
 
When I was 17 I was a cheerleader. Strictly competitional so we did tumbling, stunts, the whole nine yards. While I was new to cheerleading being small I took to tumbling quickly. Sadly enough I fell on my left knee finishing off a backhandspring, never felt much pain after that, but picking up a friend heading to a competition, it had just rained, I had to hit the button to open the gate to her house, and my cheer shoes had no tread, i slipped and fell on my knee twisting it and landing on it with all my weight. Since then its been a constant pain, standing for too long, sitting for too long, someone hitting it hurts, it swells. I've had x-rays, mri's [which I never got the results from mad ] and there have been no breaks. One doctor gave me a sleeve to put on it, but it caused more pain than relief, I cried whenever I put it on. I was on a 3 month long singing tour and since I had tumbling experience, so they had me doing backhandsprings down an aisle. I hit my knee on the aisles many many times, alot of the aisles were slanted.
I have yet to find anything 'wrong' with it. I have pain still to date, in my knee is bent for too long, my foot goes numb. Actually the whole leg from the knee down goes numb. It swells, under the knee and to the right side.
 
Does anyone have or know any of these pains? Same causes? Know of someone who has them? Any info on these could help me research the origin and treatment. [I would like a more natural treatment, not one from a doctor. Since most of my pain is because of doctors screwing up I would prefer a more natural treatment.]
Thank you SO MUCH! <3
Sethia

Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/13/2008 3:54 AM (GMT -7)   
Hi Sethia,

I do not have the same pain or have even experienced anything like that. But I just wanted to ask why your lawyer doesnt go after the Doctors for neglegence. Does the needle have to be in your spine. I could imagine if it was it would have caused alot of damage at this point because when things are left inside they dont stay put and tend to move over time. A needle in the spine is extreamly dangerous and if thats suspected you should find some way to get an x-ray, its just not worth possibly becoming paralized. Thats why they insist that you stay very still during a tao and epidurals, One slight move and they could hurt you or even paralize you.
I'm sorry i dont have much advice to give you except for getting physical therapy, but you said you dont have insurace right now so I'm not sure if theer is a way you could find out if its possible where you live?
I'm so sorry you have no insurance right now. Is there possibly a government program that you can get onto or something of that nature?
I know it must feel very frustrating for you tto be stuck in a way without insurance.
Are you able to take anything for the pain like percocet or vicoden or would you prefer natural remedies for the pain?

Freya
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


Rayosun
New Member


Date Joined May 2008
Total Posts : 1
   Posted 5/13/2008 7:02 AM (GMT -7)   

I'm sorry you are having such troubles!! :(

My only suggestion about the "needle tip in the back" part is that you pay for an xray out of pocket. It's really not that expensive from what I've heard and it might be worth it!

Good luck to you.


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 5/13/2008 7:47 AM (GMT -7)   
HI Sethia,

Another suggestion concerning insurance...contact your local Red Cross. Many members have been helped to obtain health insurance by them. You don't need to go through a natural disaster for the Red Cross to help.

If they don't find any obvious cause of your pain you might ask them to consider fibromyalgia. It's a condition where your muscles keep sending pain signals to the brain even when nothing is wrong. It most often starts after some sort of trauma to the body. A rheumatologist with experience in treating fibro would be the person to see.

Keep us posted,
Chutz
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Sethia
New Member


Date Joined May 2008
Total Posts : 10
   Posted 5/13/2008 2:16 PM (GMT -7)   
I was on medi-cal. I live in CA, and they had wrote me a notice saying since I didn't respond to something they sent me before they were turning off my insurance. I never got any such letter...so when they had called to set something straight, I told them I never got anything so they're sending me a new form. [still waiting]

And Freya to answer your question about taking pain medication. The other day I was helping my mom with her photography, and I had the WORST headache. So she gave me one of her vicodins. [After all the pain medications I've been on throughout 2004-2007 any pain killer smaller than a vicodin doesn't take, my body had built up an immunity.] But I had a negative reaction to it, it killed the pain, but..I was very nauceous [I had eaten a full meal beforehand too] and I was very dizzy. So I can't take many pain killers, I have to take about 4-5 acedametaphin [sp] to do any painkilling.

It sucks that I don't have much to do about all these. I am working part time so I don't have the money to blow to go get a mri or an x-ray.

I also have teeth problems. haha..my calcium was taken by my daughter while I was pregnant, so i have two teeth that had to get pulled because my insurance didn't cover crowns, and they had both broken. One of my crowns has fallen off, it stays there for now, but its seperated from the glue and the tooth. [meh] I'm just a shipwrek...lol

Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/14/2008 2:09 AM (GMT -7)   
Sorry to hear of the *dam* insurace tricks they play. Its so unbelievale. Any reason to cut you off, what crap.

I'm guessing from what you said about your tolerance you have been okay with some pain medications in the past. Could it be that you hadnt taken one in a long time and it made you sick to your stomach. Although I have taken percocet on and off for years, sometimes it still gives me reallly bad nasuia, but it does a good job and after the first few doses I'm fine with it. And although vicoden and percocets have either accetomenpohine(APAP) or Ibprohen, thet are still safer for your body than taking large quantities of APAP or IBprohen. Mostly because you end up taking less with a narcotic pain reliever than just depending on over the counter stuff. But there are pain meds without any apap or Prof. Believe me, dont risk taking too many and getting ulcers or liver damage that would be worse than the nausia.

Just get back some medical coverage so you can get those x-rays or scans you need. Even if you cant sue the doctors, it defenitly sounds like you could use some helo with feling better!
I have heard of few natural remedies for pain that kind of act like apap, but I dont remembr the name or where to find them. Probably in an all natural food store.

I'd say dont even worry about your teeth until you get that x-ray to make sure there is nothing going on from the past taps your concerned about. I know its probably important to to gt that fixed(but I dont know much about it, I am one of those freaks of nature who has never had even a cavity...........................Knocing on wood) possible needle just sounds way more time is of the essence kind of thing.

I hope your able to get back insurance ASAP and get everything figured out.

Freya

P.S-dont even worry, I'm a ship wreck too, although that ship fels more like the titanic right now!
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


Morgoth
Regular Member


Date Joined May 2008
Total Posts : 177
   Posted 5/14/2008 5:34 AM (GMT -7)   
A small note: I live in Belgium, and we have mandatory social security. X-Rays are free, a GPs visit costs you about five dollars and an appointment with a specialist about 35. Compared to othetr countries we have no complaints and the number of tests performed on the average patient is of course considerably higher than in the States. Furthermore, it is almost impossible to sue doctors in my country so they are much more inclined to try out various treatments and remedies to help their patients.

Now, I think the basic problem in your case is not the lack of skill of the doctors involved, but rather the lack of data on which they have to go. It took my docters three years to figure out exactly what was wrong with my back and what the causes were, and this with no delay due to insurance problems. Pain in the back is very hard to diagnose, so it would be nothing less than wild guessing what is wrong with you without any more information. I think you should forget about any lawsuit (I know this is often difficult for Amerians, no offense meant) and concentrate on getting the necessary insurance and money to obtain some serious up-to-date information. See a doctor you trust, family doctors are often fine, to take care of the immediate pain problem. There is no point in suffering when it can be remedied by pain medication, as long as there is a fair chance you might get cured (otherwise, the use of pain medication and its effects in the long run should be seriously studied). Personally, I don't think it is wise to consider alternative treatment as you haven't been given any conventional treatment yet. Give the doctors a chance to figure out what is wrong with you first. No doubt this will cost a lot of money and may require some serious sacrifices, but remember that the longer you wait, the tougher it might get to do something about the matter. We're alking about the remainder of your days here, that's worth some money.

On pain medication. I know the problem of becoming used to pain medication and the need to increase your daily dose or change to heavier meds. Again, lack of information prevents doctors from prescribing the best suited medication as you don't know where the pain originates from. Pain in your back can be very deceptive (and often is). It is possible to problems in your leg are influenced or caused by the problems in your back or vice versa. Apart from the teeth, I suggest you have all the problems looked at together, and I know this will also increase your bill considerably.

Although by know you might think I'm sponsered by the medical industry, I can assure you I'm not. I'm speaking from personnal experience. I also have access to government statistics and studies. Malignent tumors are partially genetically generated, although the chance of you having a malignent brain tumor of the same origin as your motheris extremely remote. I don't know the odds by heart, but I'd bet my money on the lottery instead.

In the meanwhile, try to keep up that spirit. Don't look for instant healing in alternative treatments (not that they don't work, they just require the same information your conventional doctors need. There is no "instant cure"). Keep your head clean (no point in taking pain meds that hardly work), talk it over with your friends and family and come up with a realistic plan to get the insurance, the funds and the information you need. I'm afraid cold, hard logic is going to be much more valueble than sympathy and compassion. Take care.
 


Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/14/2008 10:17 AM (GMT -7)   
Margoth,

No offense intended, truely, and perhaps I mis-understood your statement but cold hard logic is found with text books, doctors and statistic, not on health support forums.

It is extreamly expensive and difficult to obtain medical care in America without medical insurance. I am glad all in Europe and the UK are able to obtain it so freely but hard, cold logic does little when the money is tight and medical problems need to be looked at.

I am $30,000 in debt and I have insurance, you can imagine what would happen if I had no coverage. Not to mention $30,000 is on the low side for medical debt.

Please understand that we come here for support, compasion and advice, not cold, hard logic. I would not come here if cold hard logic was the norm. I and possibly many others get enough of that in other places.

In america if it is between making sure your family has food and shelter or getting an MRI or X-ray(costing thousand out of pocket) The family wins out most every time.
In that way, sueing Doctors for wrongful actions is very beneficial if that Doctor has caused a loss of the patients employment thus causing the loss of a way to pay for fixing or diagnosing the damage they have caused.

I really mean no offense as this is the second post I've disagreed with and am glad you are so knowlegeable about certain medical conditions and problems. And it is your own experience which fuels your replies and I respect that. And while I have no argument to your post in general I have to be honest in saying I am a little put off by your statement of offering less compassion because hardness and coldness and pure logic are what gets results when facing a hard time. And while those were not your exact words, that is message I recieved, I could be mistaken that that was the intent.

I hope you keep in mind that we are here for support, compassion and understanding. And while sugar coated information is not always beneficial, obtaining harsh logic is as easy as stepping out the door.
I believe you can show warm fuzzy compassion and logic at the same time.

I just wanted to explain to you how I took your words, knowing I may have misunderstood. And while you defenitly have not been cruel to anyone, I just dont want anyone having a hard time to feel alone and helpless in there fight to find out what the problem is.

With respect,

Freya
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/14/2008 10:21 AM (GMT -7)   
Oh I should add, that these are only my opinions and thoughts. Everyone here has there own thoughts and opinions and I dont want to speak for anyone else.
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/14/2008 10:59 AM (GMT -7)   
Freya,
I just want to say I thought that was a beautiful response. it's difficult to negotiate this turf in words, and I know you've been in the midst of this before and here you are stronger and giving support to others. Kudos!

Morgoth - I also don't want this to seem harsh in regard to your comments and experiences. I'd like to think that logic and compassion don't have to be mutually exclusive. I welcome you to this forum, and think it's awesome that we can all sit at different places around the world and share experiences, opinions, and information. (I'm old enough to remember pre-internet life as well as dinasors! lol) So I hope we can all keep sharing and learning, but the main focus of this forum is support. Still, logic and knowledge are important, and I think that there will always be some of us around to soften what can seem too harsh to handle. And I hope I'm making sense and haven't offended anyone!

PaLady

Cookie122
Regular Member


Date Joined Apr 2008
Total Posts : 61
   Posted 5/14/2008 11:09 AM (GMT -7)   
Nicely said Freya. And Morgoth I don't mean any disrespect with that. You had a lot of good points, but things in the US are a lot easier said than done.

Sethia
New Member


Date Joined May 2008
Total Posts : 10
   Posted 5/14/2008 5:09 PM (GMT -7)   
Margoth, what you said, is in a way, since you aren't american and don't really understand the economics here, a lil unsettling. I am 21, married, with a 2 year old, I work a part time job, [very much part time] and my husband is still looking for work. The economic problem in the us, is very bad in CA. Finding a job, is extremely hard. And there is no way in hell that I would consider getting ANY medical help without insurance. If it were life threatening I would, but I can stand pain long enough to wait till I get coverage.
I barely have enough money to pay for gas [3.91 per galon] to get myself to work. I have diapers, juice, baby wipes, milk, etc to buy for my daughter. And thats just for her.

And in my defense, I have every right to sue the doctors that wronged me. the doctor or whoever it was that did my spinal tap, had to stab me 3 times before she could get the right spot. There was no 'lack of data' on which they had to go on. They suspected spinal memengitis, so they performed a spinal tap. And since that spinal tap, my back has been ****ed up. In my honest opinion I believe I have every right to sue just for that. And with the doctor that did my epidural, he was rushed, the hospital is understaffed, he was bothered 8 times, before he finally got fed up told a nurse to finish and left! the epidural didn't take, my baby and I almost died because of this! My heart rate rose above 280 bps and my daughters dropped to 30. They had to put a suction cup on her head to pull her out. OH and on top of that an episiotomy with NO numbing. All because the nurses had to rush my anesthisiologist. I have every right to sue for malpractice and neglegence.

I have severe back pain BECAUSE they didn't do their jobs right. Not any 'lack of data'. I respect and understand what you were saying in your post, but did you really read my post? I explained in detail. I have no memengitis, and how is there a 'lack of data' in an epidural? 'Oh she didn't want an epidural? Well I did a shatty enough job to where it won't take..don't worry'. 'Lack of Data' Doesn't make sense. All of the pain I am in is because of the doctors. Not me.
<3VIEW IMAGE


Sethia
New Member


Date Joined May 2008
Total Posts : 10
   Posted 5/14/2008 5:11 PM (GMT -7)   
i <3 you freya.
<3VIEW IMAGE


Fox
New Member


Date Joined May 2008
Total Posts : 2
   Posted 5/14/2008 5:29 PM (GMT -7)   
Morgoth Bauglir I name thee

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/14/2008 6:05 PM (GMT -7)   
Sethia,
I don't quite understand the image (and have an older computer so maybe that's the problem!) but I do agree you've got good reason to at least try to use the legal means you have to get some recourse for all that was done to you - and your child. I'm glad you reminded us of your initial post to this thread. Putting needles in our spines I think is starting to be taken much too lightly.

I wish you the best in getting some insurance and justice!

PaLady

Sethia
New Member


Date Joined May 2008
Total Posts : 10
   Posted 5/14/2008 6:09 PM (GMT -7)   
=) The image is from one of my favorite movies. Across the Universe.
I lost contact with the lawyer I was talking to because there were moves, and baby, and crazyness, so I have to try to find one, that believes I have a strong case. And I need my medical reports. [ugh more money] I hate money. grrr.
<3VIEW IMAGE


Fox
New Member


Date Joined May 2008
Total Posts : 2
   Posted 5/14/2008 6:16 PM (GMT -7)   
If only we all lived in Belgium. I live in the U.S. and I can vouge for Sethia that it is indeed very expensive for healthcare. If you dont have ample insurance, and you are juggling work, baby, and living... it is impossible to pay your own way because your doctors screwed up. I disagree with you Morgoth, ofcourse not for personal reasons. I disagree with your opinion of logic. To be practical and logical, if one is experiencing chronic pain, one should identify where this pain originated, and actively seek to stop it. In Sethia's situation, she simply cannot due to lack of funds because of the rediculous prices and fee's. It is not the fault of the patient if the doctor messed up. Epidural and spinal tap precedures leave little margin for error. The doctor needs enough time, expertise, and consentration to perform such delicate tasks. Sethia commented that her epidural was rushed and the fluid that was supposed to be in her body, was leeking down her back. Her doctors, and nurses, could have taken a great deal more care. Not only did the epidural not perform its task during her labor, but now she has ongoing chronic pain in that spot. More then that, they knew full well that she had previously experienced a painful spinal tap because of food poisoning, in which case they should have taken extreme care during the epidural and delivery. They knew the facts, and yet her precedures were rushed and not done correctly, which has resulted in chronic ingoing pain for her. Not only did this negligence cost her LOTS of money to begin with, fixing the problems that the doctors caused will cost even more. Her money, time, and health is the cost aswell. We trust our doctors to perform well, and they should indeed perform well and with care for the wages they charge. You see, in order to even get the treatment she needs to fix the damage done without going into huge debt she would need to be compinsated for this malpractice. Otherwise it wont happen at all. Thats cold hard logic. Whether you call it karma, justice, right, or wrong... its what is practical here. In belgium the cost of healthcare is next to nothing of what it costs here, and so if this type of problem happened in belgium, getting the proper treatment to remedy the pain would not be a big issue. Its extremely expensive here, rediculous really. That is probably why Americans demand compinsation more then others. This way provides compassion and compinsation for Sethia. To be logical and practical in this situation, there needs be a balance of funds and care. I feel for Sethia... it is not her fault that she is suffering right now, and I hope that she gets compinsated with funds so that she can pay for the right treatment and fix the pain.

Sethia
New Member


Date Joined May 2008
Total Posts : 10
   Posted 5/14/2008 6:25 PM (GMT -7)   
Thank you Fox, your words mean alot to me. [tears up] I hope I can get compensated for the bullcrap I've had to put up too.
<3<3
 
'Hey Jude, Don't make it bad, Take a sad song and make it better. remember to let her into your heart, then you can start to make it better.
Hey Jude, don't be afraid, you were made to go out and get her, the minute you let her under your skin is when you begin to make it better.
 
And anytime you feel the pain, Hey Jude, refrain don't carry the world upon  your shoulder. Cuz well you know that its a fool who plays it cool, by making his world a little colder. Na na na na na na na na NA.
 
Hey Jude, don't let me down. You have found her, now go and get her. Remember to let her into your heart, then you can start to make it better.' <3 <3
 


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 5/15/2008 10:30 AM (GMT -7)   
sethia, what about contacting a not for profit hospital? maybe they could find a way for funding for you to get an xray at the very least??? good luck, shannon

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/15/2008 10:36 AM (GMT -7)   
Shannon,
Just about every hospital is a non-profit corporation, although they are considered "private non-profits". They have to be if they want any government funding. A lot of hospitals may have accounts for people who have lower incomes but are ineligible for government medical insurance; they may either waive fees or lower them, and offer a payment plan. I had to do this for the deductible portion when I had my back surgery. I'm still slowly paying off the $750 deductible. So you could call a hospital's business office and ask if they have any such plans.

shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 5/15/2008 10:45 AM (GMT -7)   
our local hospital is a non profit (didn't know all were?), but our hospital has programs for lower incomes for either payment plans or for free medical care. it would seem that if sethia is working pt, and her husband is out of work that they would qualify for sometype of help somewhere....i dont know much about the system,but i hope she can find some help out there!

Sethia
New Member


Date Joined May 2008
Total Posts : 10
   Posted 5/16/2008 3:35 AM (GMT -7)   
I have to say thank you to all that have shown their support and care. It really means alot. =)
<3<3
 
'Hey Jude, Don't make it bad, Take a sad song and make it better. remember to let her into your heart, then you can start to make it better.
Hey Jude, don't be afraid, you were made to go out and get her, the minute you let her under your skin is when you begin to make it better.
 
And anytime you feel the pain, Hey Jude, refrain don't carry the world upon  your shoulder. Cuz well you know that its a fool who plays it cool, by making his world a little colder. Na na na na na na na na NA.
 
Hey Jude, don't let me down. You have found her, now go and get her. Remember to let her into your heart, then you can start to make it better.' <3 <3
 

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