Burning Mouth Syndrome

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marthamae
Regular Member


Date Joined Jan 2008
Total Posts : 285
   Posted 5/15/2008 7:24 PM (GMT -7)   
Hi!
 
I normally hang out on the GERD board but I am coming to you all with a problem. I've been having trouble with painful burning of my gums and tongue. It is okay in the morning, but gets worse in the afternoon and nasty by evening. It's hard to go to sleep. It sounds like a dumb problem but it is unbearable at times. I actually have cried from the pain on two occasions. One of those times I took an old Vicodin left over from dental surgery. Things were a little better but I got nauseated.
 
I looked around on the internet and I think I have "burning mouth syndrome". I have several risk factors for it...I am 49 (near menopause), suffer from anxiety and depression, and have GERD. My symptoms all fit.
 
The net isn't very hopeful on treatments. I'm not even sure which doctor to go see. A GP? A neurologist? A dentist? (I just had an exam and my teeth are fine.)
 
Has anyone else heard of this or suffered from it? Any ideas? Thanks for all answers.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/15/2008 7:46 PM (GMT -7)   
Hi, Martha,
I don't really know anything about burning mouth syndrome, but since you just had a dental exam maybe calling your dentist and describing your symptoms and asking if it's a dental issue, or what specialist you should see. I would think the dentist should know, although who knows. If your dentist can't help I guess your PCP, but I'm just takin a shot in the dark. Keep researching on the net; you never know when you'll stumble onto some useful resource. And maybe there's someone else here who can help more than me!

Take care,
PaLady

marthamae
Regular Member


Date Joined Jan 2008
Total Posts : 285
   Posted 5/17/2008 6:19 AM (GMT -7)   
Gramps,

Gramps,

Thanks for your help in researching these posts. It does really help to know that I am not the only one out there going through this.

I did read on one site that clenching your teeth and grinding them can be an irritant to this so I purchased on of those make-it- yourself mouthguard kits. It was easy to make and surprisingly when I wore it last night it seemed to take some of the pressure off the throbbing. I didn't sleep wth it...just wore it in the evening while I watched TV. This is a weird problem as I have no problems in the morning, but it gradually gets worse till it is really bad anround dinner and bedtime. It eases as I fall asleep.

I don't think anxiety causes it because Xanax doesn't help. Aleve relieves it some.

Just like the person above said, I would love to talk to someone who has it. I've read all over the net, but could use someone who has been there.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 5/17/2008 8:34 AM (GMT -7)   
I have never heard of burning mouth syndrome so I searched it and here is a link from the Mayo Clinic that may be helpful.
 
 
I have Crohn's disease and would get terrible sores along my tongue and the soft tissue inside the mouth.  I thought it may be caused by bacteria so I rinsed my mouth out with straight rum and then spit it out.  It burned like the dickens for about 15 seconds but then it slowly improved.  I did it again that night.  By the next day the sores were gone.  I know this sounds weird but  I have told many about this and they tried it and it worked for them too.  I sure don't know if it would work for your problem but it couldn't hurt to try.
 
Sherrine
 
 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 5/17/2008 10:13 AM (GMT -7)   
I have taken Prednisone, Azulfadine, and Librax for the Crohn's disease.  I am pretty fortunate, though.  I had to have my colon removed and the Crohn's has been at bay ever since.  I will get a little cramping and diarrhea sometimes, but the huge problem is pretty much under control...so far.  I will get iritises, I have even gotten a vaginal fistula~after the colon was removed~ and that shouldn't have happened.  I was written up in the medical journals for that.  I have also had a couple of ulcerations of pyoderma, I believe, on my abdomen.  But, the ostomy really helped me because that's where the bulk of my problem was.
 
I know it was the alcohol in the rum but it worked so fast!  I even used rum on my children's canker sores.  I would dip a Q-Tip in the rum and then put it on the sore.  It cleared it up for them too.  They knew it would burn for a few seconds but their mouths would feel better after, so they would even come up to me and ask me to do that!  I still have that bottle of rum...27 years old, now!  I don't drink, obviously!  tongue
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


JW1985
New Member


Date Joined Mar 2014
Total Posts : 1
   Posted 3/19/2014 7:43 PM (GMT -7)   
Hi, I was just diagnosed with Burning Mouth Syndrome and want to keep in contact with someone who also has it. To discuss hard days and such. I was wondering if you were still going through your symptoms and if so, if you wanted to keep in touch and trade some coping methods and such.
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