A bit of a rant about PM clnic

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Muzz
Regular Member


Date Joined Mar 2008
Total Posts : 395
   Posted 5/16/2008 9:00 PM (GMT -7)   
I mentioned a bit ago about the rule at the PM clinic I go to about me having to pic up the rx myself, not hubby. I was under the weather Thurs and he went up to get it, they wouldn't give it to him, so now I do w/o the Lortab. I have an office appt for Tues with this doc, seeing as how he's done 8 "injections" and "procedures"that were never helpful, guess he figure he won't be making much on me now. I'm just so weary of this. This is the 2nd PM doc I've been seeing, the 1st, I felt wasn't doing anything but give me meds after 3 rounds of injections, but now I regret leaving him. At least with him I didn't have to jump thru hoops to get stupid Lortabs, which don't help alot anyway. And to top it off, the pain, burning and tingling I've been having in my feet, legs and hands is getting worse. I see a neuro in a few weeks. Has anyone had any prob with this? I posted on the heart-cardio board about the BP in my legs at the ankle being very high and els was very helpful but I just felt too lousy to even do anything about it today....lethergy is my enemy. I've had some heart issues, a weakened left atrium and arryhthmias, but had ht cath in 04 with no blockages. I know this post is sort of all over the place, I'm just so weary tonight, it took all I had to get thru the day. I try not to let hubby know how bad I really feel, he feels so bad for me as it is, God bless him, and he's 17 yrs older than me, he's in better shape than I am. TY for listening :) Hopefully, tomorrow will be a better day, but then, I say that every night :-)

If pain could have cured us
we should long ago have been saved.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/16/2008 10:29 PM (GMT -7)   
Muzz,
I wish I had a solution for you. It sounds like this PM doc you're seeing mostly does procedures. Could he refer you back to the other one who relied more on meds? I know I got caught in a bind between two pm docs a couple of years ago because I left one who my neurologist told me did procedures and prescribed, but it turned out he didn't. And the first doc wouldn't take me back because I left him. They start to think doctor shopping. But if your current doc could make the arrangements for you - but be careful you don't get left out in the cold. Make sure the other doc will take you back first. Are there any other options?

As far as burning and tingling I've got it in both feet, and down my right leg. Odd it's in both feet but only rarely in the one leg, but nerves do weird things. Only have the tingling in my hands when my neck is screwed up, but I can usually stop that with stretches. I know what you mean about the weariness, though. Sometimes I think that's the worst part. I have so many things I should be doing - very basics like applications for money, trying to find a pm doc for myself (my neurosurgeon is still prescribing and they just mail me a script every month and it's worked out fairly well so I hate to rock the boat, but they won't do it forever)...anyway, sorry to start rambling on my own stuff.

It's scary, isn't it - seeing people who are a decade or two older and knowing they're in better health? Stress does age us so much faster.

Sending hugs,
PaLady

Muzz
Regular Member


Date Joined Mar 2008
Total Posts : 395
   Posted 5/16/2008 10:46 PM (GMT -7)   
Ty kiddo.....I just had to vent a little. I don't know what to do about the appt this Tues, wether to keep it or not. If not, I'm out any meds at all, except hubby has a few Darvocet. Actually, the pain meds don't do anything for my feet, legs and hands but they do help my back. My PCP rx Lyrica for it and set me up with the neuro in June, but I was afraid that taking it might mess up nerver conduction tests and stopped taking it, tapering, of course. It did help a little and it was a ver low dose. If I can struggle thru til I see the neuro, maybe I can get an answer. I've had CP for yrs due to spine probs but this is a whole new ballgame for me and it's misery. And no, it doesn't like company.. :-)

If pain could have cured us
we should long ago have been saved.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/16/2008 11:00 PM (GMT -7)   
Now I remember about the EMG (nerve conduction). Did you have them yet - or when are they scheduled? A pharmacist ought to be able to tell you how long the lyrica stays in your system as far as affecting test results, or maybe even ask your neuro. I'm not sure, but I think I was taking a low dose of neurontin when I had my EMG, but I'm not certain. It was over 2 years ago. But it should be an easy question to answer.

I think it might be best to keep your appointment. First, you can get some meds., and second discuss other possible options. If you don't go, and it's written in the record that you cancelled (probably without adequate explanation) it may make going to another pm doc more difficult. Again, the appearance of doctor shopping (not that you are - just the appearance, which is all it takes), and may be construed as you not following through with recommended treatment protocols. You know what an uphill battle it is for us CPP's to get meds and the slightest thing can make it even tougher. So IMHO keeping the appointment would be best.

I wish I had a magic wand for all of us.

PaLady

Post Edited (PAlady) : 5/17/2008 12:03:19 AM (GMT-6)


Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/16/2008 11:44 PM (GMT -7)   
Hi Muzz,

Hope your getting some good rest and not having problems sleeping without the small relief the lotabs give you. I really an perplexed by the Docs who dont allow peoples husbands or wives to get there meds. Isnt the point of taking them that you are in pain, and pain means your not always feeling good enough to run out here and there. I think everyone should be able to sign a waver at the very least giving permission for signifigant others to pick up there meds.
Although my little rant there doesnt help you tonight, sorry bout that.

My opinion is that you keep that app. with the idea that you may try to return to your other Doc. If you dont go you may be left without anything if the other Doc isnt available. It may be better to have something that barely works than nothing at all.

I hope everything works out and you find a Doc who is going to treat your pain the way you need(and let your husband pick it up if you cant get out)

I hope you'll post an update on how things are going.

Hugs

Freya
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


Muzz
Regular Member


Date Joined Mar 2008
Total Posts : 395
   Posted 5/16/2008 11:55 PM (GMT -7)   
TY sweeties....I guess I will keep the appt, I do have a few points that I would like to bring up with the "good doc"...lol I saw the written MRI report that was done in Feb, and it stated no extensive scar tissue, but he did these last 2 procedures based on the fact that the MRI had not been read correctly and that I DO indeed have extensive scar tissue from my back surgery in 04. So who do I believe? I really was excited when I began with this guy in Sept cos he seemed caring and had alot of good options for me...well, they were all injections and few of them did much good at all. This last one has left me in worse shape than before he did it. Again, TY for the concern and I'll keep in touch. I'm not much of a fighter, I'm more of a giver-upper..

If pain could have cured us
we should long ago have been saved.


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 5/17/2008 6:47 AM (GMT -7)   
Muzz:

Don't be so hard on yourself. I don't think you are a "giver-upper" at all. I honestly think that if most people (including the doctors) had to feel what it is like to be in constant, intractable pain 24-7, they would be curled up in a ball on the floor screaming. I know that's what I feel like doing most days because the pain is so bad. But we don't. We get up and do our very best to suffer in silence and endure the "treatments" and procedures that hurt almost as much as the pain itself. We try not to grimace or wince and to pay attention to the world around us through the fog of pain. No, you are not a "giver-upper," friend. You are a survivor. Keep your chin up. We're here for you when you need to vent, and our prayers are with you.

Ry

Muzz
Regular Member


Date Joined Mar 2008
Total Posts : 395
   Posted 5/17/2008 1:33 PM (GMT -7)   
TY :-) Boy, sometimes it's so good to just come in and take off the ole shoes.
The burning and tingling, Gramps, is in my hands and feet and alot of days my legs ache. No real discoloraton except in the feet, which are sometimes red. Very little edema either, just a constant buzzing, tingling, burning, aching. I was feeling so down last night, it was good to rant a bit. I had taken a few vacation days to get some things done and ended up getting nothing done and it really had me down. I don't stay down long tho :-) And yes, I did put too much faith in the 2nd PM doc and now I feel foolish, wasted time and money. We live and learn, don't we?

If pain could have cured us
we should long ago have been saved.


Muzz
Regular Member


Date Joined Mar 2008
Total Posts : 395
   Posted 5/18/2008 12:24 AM (GMT -7)   
ok...I've slept on it...several times, in fact :-) and I am going to keep the appt with th PM doc Tues. I need facetime with him to get the bottom line and get a few things straightened out. TY guys for the encouragement!! Let ya know how it goes :-)

If pain could have cured us
we should long ago have been saved.


Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/18/2008 7:10 AM (GMT -7)   
Muzz I'm glad you are feeling a bit better having decided on what your going to do. I'll be looking forward to hearing what happened. You'll be in my thoughts.

Many Hugs

Freya
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.

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