a double foot nuerectomy completed

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crps
Regular Member


Date Joined Oct 2006
Total Posts : 174
   Posted 5/20/2008 10:51 PM (GMT -7)   
 Hello H.W., 
     I have been just reeding lately. Last week I got my double nerve cut out and had to stay overnight, becuse they use a eperdural in your back, reason thinking that we wouldnt disturb the foot and rsd by keeping it numb. Anyway I got home with the same amount of pain as the day I had left, and also with another surgery in the same erea.
 
    The endless procedures you endour, have such a immediate inpact of it will never be the same, but with "sorry" hapenning over and over, I understand the high class doctors are trying to do thie best, but it always so overwhelmingly disapointing for myself , family and the doctors who really tried.
 
    I am absolutly crashing out hard........... sad
 
     I usually dont give the upcoming procedures too much hope, but I slipped on this one and thought this deffinaltly could be the big one. nono
 
  Live to learn  AND LEARN TO LIVE
 
                                      Hope everyone hase a pain free day!
                        
                                                              mike

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/20/2008 11:25 PM (GMT -7)   
Dear Mike,
I'm so sorry to hear that the procedure hasn't worked. Is there any possibility you could get some relief over time? Nerves seems nearly impossible to predict.

I can certainly understand putting some hope into a procedure. I mean, what choice do we have sometimes, to take a shot at some relief? How are we do know until it's too late? Desperate people we are. And we do desperate things at times. All I can say to you is that it's so very human to want relief, to take a shot even if it's a shot in the dark....and doesn't pan out. I've had failed back surgery, along with many, many injections.

I'm glad you reached out here. Sometimes I think we're all we've got at times like this. A dependable group of like-minded souls who understand.

I'm hoping something turns around for you and you get at least some improvement.

Hugs as you go through this,

PaLady

Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/21/2008 2:03 AM (GMT -7)   
Mike, so sorry this procedure didnt turn out as you were hoping. Like PaLady said you took a shot at getting some relief and sometimes we have no choice but to do things we normally wouldnt consider.

Perhaps the pain will improve over time and your body just needs to adjust some more to whats ben done.
I have never had a surgery for my problem so I cant say I know exactly what your feeling, but I know pain so I just wanted to pop in and say I am thinking of you and hoping that it does get better.

Hang in there and hopefully time will pay off. I know thats so easily then easily done.
I wish you all the best and for some major relief to come your way.

Hugs
Freya
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 5/21/2008 4:13 AM (GMT -7)   
Mike:

I am so sad to hear this didn't work for you. I completely understand how you could still get your hopes up. Even after repeated failed procedures and treatments, I still can't keep from hoping that every next thing they try will help. No matter how cynical I get about finding an answer I can't stop from just wishing I felt better. There's no shame in that. I think it's important that we DO keep hoping. That's what keeps us searching for the solution. I hope yours is on the horizon.

Ry

blizzardlizzard
Regular Member


Date Joined Feb 2008
Total Posts : 23
   Posted 5/21/2008 8:15 AM (GMT -7)   
I'm truly sorry that you had to go through this. I have RSD in my R leg so I understand how frustrating it can be. I too have gone through numerous epidurals and nerve blocks and not one worked. In fact I'm sure they made my condition worse. Anyways I was seeing a doctor in Syracuse and they wanted to do experimental surgery on my leg. They have these things called BYONs which are tiny stimulators that they put in the area of the pain. Is that maybe something you could ask your doctor about? I hope you all have a lpd.
CRPS 1 in the right leg
Spinal Arthritis
Anxiety Disorder

One day at a time


hopeisreal
Regular Member


Date Joined Sep 2007
Total Posts : 345
   Posted 5/21/2008 8:34 AM (GMT -7)   
Sometimes, I feel the same---high hopes with not-much results (or feeling better). BUT-- I am no where near the surgery stage(s) for my back problems---and hold out hope that I won't have to go that route! But, some days I get so down b/c of the pain! I don't have a high-threshold for pain though---so, I think that is part of my problem!

I am sorry you aren't finding relief!
Laurel

Muzz
Regular Member


Date Joined Mar 2008
Total Posts : 395
   Posted 5/21/2008 12:26 PM (GMT -7)   
Bless you rheart, Mike, of course u were hopeful. Please con't to have hope, it's the main thing that keeps CP folks going. I hope  that u r feeling much better today and will eventually have pain relief.

If pain could have cured us
we should long ago have been saved.


TDoern
Regular Member


Date Joined Jul 2006
Total Posts : 495
   Posted 5/21/2008 1:41 PM (GMT -7)   
Mike - so many people go through exactly what you've said - and many openly confessed to it above. It is so easy to tell yourself that this isn't going to work over and over and over again, and yet find yourself broken down because it didn't. I feel that everyone of us in chronic pain suffers that - we are all waiting for the "miracle" that is going to fix us, and allows us to take back the life that seems to slip farther and farther away from all of us.

I wish I could tell you that everything would be fixed tomorrow, but I can't. I can tell you though - do not give up on hope. Doctor's are learning new things every day, new procedures are being created, and perfected each and every day as well. Gramps is always posting things about doctors fighting on our side to help us achieve the relief we wish for and deserve that seems so elusive at times.

Each person reacts to things differently - and there is always that bit of light that says soon they are going to find a way to help your/our pain. Don't let that ray of hope get away from you, as there are some days it might be all you have to hold onto to keep you above the water. Don't give up because your may still be suffering linger pain or nerve damage that needs to heal before you'll feel relief. Keep fighting, because one day someone will be able to help you get the pain under control - even if it's not gone.

I'll be thinking of you, know that everyone here at healingwell is hoping the best for you!
Tammy
"When we come to the edge of the light we know, and are about to step off into the darkness of the unknown, of one thing we can be sure; either God will provide something solid to stand on... or we will be taught to fly.'"

"Cause when push comes to shove You taste what you're made of, You might bend, till you break Cause its all you can take; On your knees you look up Decide you've had enough, You get mad you get strong Wipe your hands shake it off, Then you Stand" From "Stand" by Rascal Flatts
_____________________________________________________________________________
Dx.: Polycystic Ovarian Syndrome, Ulcerlative Colitis, Chronic Inflammation of the Colon, Ruptured & Fused L4-L5-S1 w/pinched nerves, Degenerative Disc Disease, Chronic Costochondritis, Back Muscle Spasms, Asthma, Benign Tremmors (hands)


crps
Regular Member


Date Joined Oct 2006
Total Posts : 174
   Posted 5/24/2008 10:59 PM (GMT -7)   

  Hello H.W.

    Thank You all so much for your positive and heartful prayers. tongue

    It was really great, I got emotional on this one and everyone picked me right up.
 
    I've had a spinal cord stimulator in my back with 8 wires going up, and 4 wires going down. Brutal procedures 2 weeks in a row 5 hours each day and it would electrify me everywhere but where I neeeded it. I say this Blizzardlizzard because if this is your first stimulator, use the trial one for a couple of weeks out of body to see if its worth it. I did hear they are alot smaller.I got mine removed 6-8 months later.
 
        Thank you Tammy,Muzz,Laurel,B.L.,Gramps,ry,Freya and PaLady.
 
                      Maybe some other time you can use my shoulder to lean on..........
 
                                Hope Everyone has a Pain Free Day
                                    
                                                 mike

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/24/2008 11:07 PM (GMT -7)   
Will definitely take you up on the shoulder, Mike!

PaLady
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