foot pain coming back hard as a taper off Oxycodone.. HELP!

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mindymoo
New Member


Date Joined May 2008
Total Posts : 1
   Posted 5/22/2008 6:59 PM (GMT -7)   
i am coming down off 120 mgs of oxydone. i went up to so much oxycodone because of bad foot pain, now that i am trying to come off it i can hardly get around. every boyfriend i have had has dumped me sooner or later due to my not being able to ru.n around and have some fun (sorry i kept bringing up the boyfriend stuff, i am just really hurting in my heart and my feet...). i dont hear about much foot pain, atleast not to the degree i have it. so i get more then hopless around it.
i would love to hear from anyone!

hugs,
melinda

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/22/2008 7:10 PM (GMT -7)   
Hi, Melinda,
Welcome to the forum. Why are you decreasing the oxycodone - is it under your doc's supervision and recommendation? And what's the cause of your foot pain? I have numbness/tingling in both feet and take neurontin to help, but also take percocet because of back and leg pain.

Yes, chronic pain certainly limits our activities, and that means it affects our sociai life, friendships, etc. Lots of grieving to do. It can be helpful to have a therapist to talk with, along with good pain management.

There's a lot of good support here. I don't know if anyone else has the kind of foot pain you have, but perhaps others will respond.

Take care,

PaLady

Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 5/23/2008 2:37 AM (GMT -7)   
I agree with PaLadys question. Are you coming off because your doc would like you to or because you would like to?

If you still have such terrible pain, there are other options to try if you dont want to take narcotics anymore. even while you are coming off the oxycodone. Myabe chat with your Doc about NSAIDS, anti-depressants or anti-convulsants. My PM doc has suggested I consider trying those also along with my medication because they are known to help relieve pain.

Also seeing someone to talk about how the pain is effecting in your life. I myself have just been referred to someone in order to help me cope with what my pain has kept me from doing.

I dont have foot pain but I'm sure there wil be someone along who has experienced the pain you are feeling.

I hope you begin to feel better and find some options that work for you.

Hugs

Freya

I think we all understand what a broken heart feels like. I may be married but I kissed alot of worty toads before I met someone who didnt care about what I could or couldnt do. I had my heart broken too many times than I care to remember. Those guys who break up with you because of what you can or cant do they arent worthy of you. The one your waiting for will come along. He may be wondering what in the heck is taking YOU so long!!
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 5/23/2008 3:19 AM (GMT -7)   
Melinda: I have it all . Osteoperosis , Osteoarthritis, 3 ruptured upper disks, pinched nerve, lower back degenerative arthritis, knee problems and of couse any thing else that happens to come myway. Within the last six weeks Iv'e had 6 operations on my feet. Three the first time then two weeks later two more. Just wanted to get some releaf after being in pain for so many years. I had a bone spur removed probablly about eleven years ago. So it was time to work on the rest. next it will be the knees. Hoping for an alternative to surgery. Have any questions ?. I may be able to help. I can't take anything for pain but they insisted I take it for two days after surgeris at least. I'm allergic to Oxycodone . I do take gabapentin (neuronton) It helps some...
I am ususally around reading the posts after midnight. june

Muzz
Regular Member


Date Joined Mar 2008
Total Posts : 395
   Posted 5/23/2008 5:30 AM (GMT -7)   
Welcome Meinda, I see this is your 1st post here. You will find this a great bunch of folks and I'm sure that someone here can give u good advice. I don't know what kind of foot pain that u r having but I've been having intense burning, vibrating and throbbing pain in my feet and hands, I'm on Lyrica now and it does seem to help. I don't how how I would manage w/o some srtong pain meds. Don't know why u r coming off the Oxy but I'm sure that there are other meds u can try. Good luck!
I like the worty toad comment...and I agree, there's someone out there for u kiddo!

If pain could have cured us
we should long ago have been saved.


Robin Hood
New Member


Date Joined Mar 2007
Total Posts : 5
   Posted 5/23/2008 3:51 PM (GMT -7)   
Hi Meinda

I post here very infrequently but do read the posts from time to time and felt I had to respond to yours as I can so relate to what you say. I have neuropathic pain in both my feet (diagnosis was Transverse myelitis). The neuropathic pain is waist down but it all started in both my feet (and went up to my waist) and my feet are by far the worst pain area. I have pain all the time but it is made worse by standing or walking. Like Muz my pain is burning (or freezing) pain stabbing electric shocks and the deep aching throbbing pain starts the moment I put my feet on the ground when I get up in the morning. I vibrate and pulsate from the waist down all the time but this is worse when I am tired. I fall over a lot too! But by far the worst aspect of all this is the debilitating pain in my feet which restricts my mobility so much. It is hard to explain to someone who has not experienced this, what it is like to have to plan everything around the pain and not being able to walk far or stand for long. This is very isolating (chronic pain is anyway) but the inability to “join in” because the foot pain is so limiting is just another “thing" to have to deal with. I tried to pretend that I was Ok but this just made me miserable, Then I avoided going out anywhere and that made me even more miserable.

It has taken me a long time to come to terms with this and how it affects my lifestyle. Before I got this condition my partner and I were keen backpackers and walkers, we would sail in a small dingy and do sports together. As I have balance problems I had to use a stick right from the start but over time I also came to accept that I had a choice - stay in and be depressed or use a wheelchair - sometimes, but not always.

But the hardest bit was admitting to myself that I had mobility limitations and then summoning up the courage to tell other people that I couldn’t walk far instead of bottling it all up and ending up upset and depressed. Once I did that all the tension between me and my partner became to evaporate and now if I say I might find something difficult cos of the walking he is the one who checks out that I will be able to use my chair wherever it is we are planning to go visit.

I am not suggesting that using a chair is something you would want or need to do, I am really just saying that for me anyway really coming to terms with and accepting my limitations and sharing this with my friends was a really freeing experience and I get a lot less distressed about it now than I did. After all its not like we asked for this to happen to us and other people should try and understand and accommodate our needs - if they don't try and do this then I usually come to the conclusion that I don't want people like that in my life anyway, it their loss not mine!

Fortunately I have fantastic Drs and after trying various combos of medication I now take Lyrica 600 mg and tramadol 400 mg every day. I am allowed to be flexible with my medication and take a dose of 20mg cxycontin in the morning (the slow release one) when I need it for times I know that I want to do something which will involve walking. The oxycontin really helps with the pain but my brain turns to mush so I tend to use it in place of tramadol for times when I need my physical pain to be relieved but I don’t have to have my brain in working order! You should try and work with your dr if you can to find a medication regime that will maximise your ability to stay mobile and get the pain levels down as far as possible, there is a combination out there that will work for you

Anyway I wanted to say that I do understand and it will get easier.

Keep it real and stay positive!

Fribster
New Member


Date Joined May 2008
Total Posts : 14
   Posted 6/4/2008 4:52 PM (GMT -7)   
I had a friend (I say that because he hates me now) who just started on methadone so he could get off of oxycotin = I know he is going up to 130mg on the methadone so he was probably on quite a bit of oxy.  He has terrible foot pain too and found this to be a good alternative and cheap.  There are clinics to help with the process.  You might try that.  yeah thanks for listening

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 6/5/2008 5:49 AM (GMT -7)   
Melinda, Robinhood and Fribster........welcome to the forum. Thanks for all joining in and thank you Melinda for posting your thread. You have gotten a lot of interesting and informational responses. You will find that among these wonderful members. They all care!

I have had foot pain from fibromyalgia for about six years and I can tell you it is no picnic. It is mostly on the tops of my feet and it feels like I have broken bones all over. I take Percocet 10/650 every four hours for the pain. It helps me tremendously. I am pretty used to it now, so my brain doesn't feel like "mush" like you say, but it makes me tired sometimes, I'll admit.

I too, use a wheelchair whenever I have to go somewhere that requires a lot of walking. My wonderful son in law just bought me one and it has been a Godsend and has allowed me to go places I had given up on before.

I hope you contact your doctor with the wonderful suggestions the others have posted about trying other methods while you are coming off the oxycodone. Particuarly, I agree with Freya and hope you find a therapist to talk to about coping with your pain. That is an excellent suggestion.

Good luck, sweetheart and please keep us posted on how you are doing.

Warm Hugs,

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 6/6/2008 6:54 AM (GMT -7)   
Hi
I too have daily foot pain.  Averaging from 3-10 every day.  It can be such a challange to do anything at all.  And when I push myself, I inevitably pay for it later.   I agree, most dont understand, not even those closest to me.  I was on the oxycodone the months follwing an accident and it was a tremendous struggle to quit taking it.  I think that class of drug is extremely addictive.  I had physical withdraw symptoms for over 2 weeks.  I now take a very mild narcotic pain reliever and I reserve it only for those days that I feel pain level 5 or higher. the other days I just deal with the pain.   Even on the mild pain reliever If I get going through a particular painfull period, not nly do I feel the side affects from the med, but also the withdrawels when discontinuing or cutting back.  If you have not already, learn to walk with a cane or a walker, which can be exausting as well, and overall a pain in the &**.  Other than rest, my best alternative pain releiver is the local indoor pool.  I am fortunate to have one near me, that has both a large pool and a small warm theraputic pool where I can get in and walk almost normal in the shallow end.  It feels so good to actually move my body in a normal way and in normal allignment, as the constant limping and dragging and cane walking makes everyting hurt!  Good luck to you.
 
Su
CRPS what a piece.
 
Permanent severe nerve damage from crushing injury.
CRPS, unwillingness to take meds.  Doomed to a life of misery but with a positive outlook.
 

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