I am open to anything to get my life back

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Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 5/29/2008 8:30 AM (GMT -7)   
Hi Everyone, I posted this in the fibro forum and thought maybe someone here could help before I see my doctor today. Any advise would help. Thank you so much!
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Hello Everyone! I am not new to this great Healingwell forum. In my opinion, it is the best, with the most compassionate people, so I come here today for help.

I have been in chronic pain almost 3 years now. It is from my lower back down. My legs are very sore, that is the muscles are sore. I know I have some arthritis in my back and hips and I believe knees. I've had mris of my back and knees, had epidurals, pt, you name it. Nothing has helped. They(the orthos and nuerologists) say that my mris do not explain why I have so much pain.

I will go for awhile and it is not too bad, meaning I can go for walks and take the car out but these past few weeks, it really seems the pain has flaired up. I've had these flair ups before.

I am taking Ultram and valium.

I have never been given a diagnosis. SO...my question is, can you have fibro from your waist down? My upper body seems okay.

And any suggestions what drugs work best? I am going to the doctors tomorrow, I should have wrote this earlier but I hope someone can help me.

This is all making me very depressed. I am a christian and have faith but am thinking maybe asking my doctor to change my medication. For instance, today, the ultram did nothing and I was in pain all day with no energy or desire to do a thing, I can't go on with this plus my husband has afflictions also that cause me to worry.

I can't take anti depressants with ultram, (because I read and was told the ingredients could not be combined) and have always been against taking anti depressants, but I am open to anything to get my life back. I would love your suggestions. My way doesn't seem to work and I pretty much haven't been doing anything outside.

Thanks so much for reading this and any advise you can give I would appreciate.

Denim~

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 5/29/2008 9:02 AM (GMT -7)   
Hi, Denim. I am so sorry that you are having these problems. I wouldn't suggest that you request any specific medication when you go to the doctor. I always try to be an informed patient and research potential options before seeing the doc so that I know what questions to ask, but the one time I asked about a particular med (this wasn't w/my regular doc) I was accused of "drug-seeking" behavior. I have learned from reading around this forum that many doctors take that stance - if a patient asks for a drug by name, they assume they must, by default, be drug seeking. Of course we all know that wouldn't happen to someone who asks about a new type of insulin or a specific antibiotic, but unfortunately as we all know there are serious inequities in the treatment of pain for most people.

I will say that Ultram is really a very mild pain-killer, so I'm not surprised it doesn't do much for you. I would just be honest with the doctor and tell him that it is not helping and why. Many of the people here keep pain journals as that is an excellent way to facilitate the discussion with the doctor. If they can see evidence of the negative impact the pain is having on your life, they may be more understanding and ready to help.

I also wanted to respond to your comment about anti-depressants. I am also a Christian, so I understand where you are coming from. The use of anti-depressants has been somewhat vilified by many churches. The more I learn about depression and pain, though, the more I feel open to using these medications. Depression is a very real thing, and there should be no shame in taking medication to treat it. Just as one wouldn't feel ashamed of taking insulin to treat diabetes. Also, science has shown that anti-depressants act upon the part of your brain that processes pain signals. Doctors now routinely prescribe these medications as part of a comprehensive pain management plan. And for many people, they really work! They didn't help with me, but they may for you. I would encourage you to at least try it. As you said, once you get to a point where the pain is taking over your life, there is nothing you wouldn't do to treat it.

Best of luck to you. I pray you will have a good visit tomorrow and the doctors will modify your treatment to better help you cope.
Ry

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 5/29/2008 9:59 AM (GMT -7)   
Denim,

As always, Gramps has given you some good feedback. I too think the pain may be related to spinal issues, but to respond to your question, my fibro affects the lower part of my body more than other parts of my body. Also, please note that fibro can exacerbate a weak area in your body, such as back pain. It certainly does this to me.

As for ultram and antidepressants, I was on ultram for years along with my antidepressants and experienced no problems at all. I need my antidepressants and will need them for the rest of my life so I never considered not taking the antidepressants. Unfortunately, the ultram didn't work after a while and I moved on the percocet to control my pain which is every day, all the time except for brief periods when the percocets relieve me.

Tell your doctor you are in pain and that you don't think the ultram is working and can he prescibe something stronger. Leave it at that, rather than asking for something by name. I again agree with Gramps on that as well.

As a fellow devout Christian, I too will pray for you and know that my prayers will be answered.

God bless.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 5/29/2008 11:58 AM (GMT -7)   

Thank you one and all for the time you gave me and compassion in answering my questions.

I greatly appreciate all your answers and your prayers.

God bless you all!

The problem is that my doctor and every site I have gone to says you can not mix ultram with any anti-depressant. I tried percocet a few years ago and it worked then made me so sick. I am definitely in a quandary. He did give me hydromorphine also. I didn't go in asking for anything by name. He knows I'd rather not take a thing and I know he would be willing to give me anything that he thought would help in careful amounts. Narcotics do make me sick. Ultram doesn't, it just isn't strong enough at times. Every test has not shown anything outstanding and that is the hard part to deal with, accepting it. I always feel there should be an explanation for the pain, but none has been found. So, I shall go on praying and try my hardest to be of good cheer, lol. Tough some days.

Again, thank you and God bless you all. This forum is the best!!
Swallow your pride, you will not die, it's not poison.- Bob Dylan 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/29/2008 2:30 PM (GMT -7)   
Dear Denim,
You've been given some excellent advice already. I would encourage you to follow it, and even though you may not have been keeping a pain journal, I'd make a list of all the activities that your pain interferes with - ADL's (activities of daily living) can help doctors assess how much pain is affecting your life. As well, I'd list all your symptoms.

I'm going to do a little research on ultram. I can't take it because I have a seizure disorder, but as far as i know there's no contraindication with anti-depressants. Remember there are many different classes (types) of anti-depressants. Often what are called MAO inhibitors can't be prescribed with many meds, including over the counter meds. But I've not heard of the newer anti-depressants such as prozac, zoloft, paxil, etc. being a problem. Ask your doctor about that.

As far as being a Christian and taking anti-depressants, there's nothing that says you can't also use prayer and faith along with medications. As has been said, you'd take insulin without thinking about it. And it's also true what's been said that pain acts on the same neurotransmitters that affect depression. Depression is as much a physical problem as diabetes, but it's probably never truer than with chronic pain.

Let us know how it goes!

PaLady

Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 5/29/2008 7:50 PM (GMT -7)   

Thanks for your reply, Palady. I have researched it a long time ago, you are not suppose to take ultram with any antidepressants, there is a warning. It's not something I just heard, I read it and my doctor also looked it up and says there are warnings that it can cause seizures.

As far as being a Christian, I guess I didn't express myself well. I am not saying a Christian shouldn't take antidepressants. I actually was thinking of trying it but the harder narcotics don't agree with me, so I will continue with the Ultram.  I was just saying that I will continue in my faith for relief.

Thanks for your input.

God Bless.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/29/2008 10:31 PM (GMT -7)   
Denim,
I did research ultram and it does appear you're correct that it's not recommended with many anti-depressants. That being said, perhaps it's time to discuss other possible pain management strategies with your doc. You even said at times the ultram isn't effective, and there may be other pain meds other than the opiods you've tried which you may be able to tolerate. Also, if you're getting increasingly depressed, not treating the depression isn't going to help either the depression or your pain. It sounds like you need to really brainstorm other possiblitlies with your doc. Also, although you may need the valium (if you're using it for pain/muscle relaxant purposes) be aware that can increase depression because of the way it acts on the central nervous system.

Certainly I think incorporating your faith and whatever practices you have into your overall plan for healing is important, but the right treatments are, too. I don't think they have to be mutually exclusive.

Take care,

PaLady

Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 5/29/2008 10:48 PM (GMT -7)   

Dear Palady, I know I was correct about the Ultram and antidepressants, I would never had said it if I didn't know it as a fact and I never said I was getting increasingly depressed. I just reread what I wrote. I don't think you undestood my post. Yes, it gets depressing being in pain but I never said I am getting "increasingly depressed" nor that as a christian, I shouldn't take anti-depressants. and I have spoke to my doctor. Thanks, it appears I am not being understood properly. This is not a new issue for me and I have researched much and have had many consultations. If you look at my original post, I only asked if you could have fibro from the waist down. But thanks for your time. 

 


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 5/29/2008 10:57 PM (GMT -7)   
PAlady said...
Denim,
I did research ultram and it does appear you're correct that it's not recommended with many anti-depressants. That being said, perhaps it's time to discuss other possible pain management strategies with your doc. You even said at times the ultram isn't effective, and there may be other pain meds other than the opiods you've tried which you may be able to tolerate. Also, if you're getting increasingly depressed, not treating the depression isn't going to help either the depression or your pain. It sounds like you need to really brainstorm other possiblitlies with your doc. Also, although you may need the valium (if you're using it for pain/muscle relaxant purposes) be aware that can increase depression because of the way it acts on the central nervous system.

Certainly I think incorporating your faith and whatever practices you have into your overall plan for healing is important, but the right treatments are, too. I don't think they have to be mutually exclusive.

Take care,

PaLady
I just wanted to quote part of the post, but couldn't--I wanted to add that it goes beyond "not recommended", I can find a FDA WARNING against ALL anti-depressants and ultram. I don't understand why you felt you needed to double check me. I have tried many ways to decrease the pains. Thanks again. I'd like to leave it at that.  

Swallow your pride, you will not die, it's not poison.- Bob Dylan 


Muzz
Regular Member


Date Joined Mar 2008
Total Posts : 395
   Posted 5/30/2008 4:35 PM (GMT -7)   
Denim, the fine folks here were only reaching out to help you. Maybe there is a reason that you can't seem to find help on forums. Good luck and God bless.

If pain could have cured us
we should long ago have been saved.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/30/2008 5:36 PM (GMT -7)   
Denim,
I'm sorry if anything I said or did offended you. It wasn't a question from my standpoint of double checking you; I was just doing a little of my own research out of curiousity since Gramps and Lindaloo said they had taken ultram with anti-depressants. I wanted to know I was going to an original source for my own sake, but it wasn't about not believing you. Many of the medications and their uses are complex.

I was just trying to help. But I will leave that to others now.

PaLady

Post Edited (PAlady) : 5/30/2008 8:15:21 PM (GMT-6)


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/5/2008 9:03 AM (GMT -7)   
Muzz said...
Denim, the fine folks here were only reaching out to help you. Maybe there is a reason that you can't seem to find help on forums. Good luck and God bless.

 Dear Muzz, I adore this forum and have always stated so. I have found help here on many occassions and would always advise anyone to come here. I apologize if I took a post in the wrong way, but I believe you are belittling me now. We are all here to encourage each other and I guess through my pain and frustration, took a post in the wrong way and felt misunderstood. 
Swallow your pride, you will not die, it's not poison.- Bob Dylan 


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/5/2008 9:12 AM (GMT -7)   
PAlady said...
Denim,
I'm sorry if anything I said or did offended you. It wasn't a question from my standpoint of double checking you; I was just doing a little of my own research out of curiousity since Gramps and Lindaloo said they had taken ultram with anti-depressants. I wanted to know I was going to an original source for my own sake, but it wasn't about not believing you. Many of the medications and their uses are complex.

I was just trying to help. But I will leave that to others now.

PaLady
I am sorry PAlady for over-reacting. I thought you didn't trust what I was saying and I believe I over-reacted. Pain and the frustration of it and not being diagnosed is not a good excuse.
I wouldn't mind taking an anti depressant to see if it would work. I know yesterday was the pits. We are even thinking is it possible that living in the dry desert is doing this to us. We are from the east and now both my husband and I are suffering from joint and muscle pain but mine is half my body.
I know my doctor wouldn't give me an anti-depressent with ultram, even though others have. I am the one who rejected the anti depressents after reading about them. What is most frustrating is that only a couple of weeks ago I wasn'tthat bad. I was walking and driving.
Again, I apologize for over-reacting. Sincerely.   

Swallow your pride, you will not die, it's not poison.- Bob Dylan 


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/5/2008 6:02 PM (GMT -7)   
Dear Gramps, I don't believe this, I wrote you a nice long reply and lost it, grrr--shoot. Thank you so much for taking the time to write me and care enough. Bottom line, I think it's a spine problem too, in your other letter you mentioned EMG, RSD and peripheral neuropathy. Do you know much about them, or should I google them? I was never tested for those and do you know if there is anything they could do about them? My pain did start RIGHT after I hurt my back and transferred to both legs. The mri's show bulging disks and stenosis but I'm told nothing to cause this much pain.
My doctor gave me another pill to take with the ultram that is stronger. Another problem, pain pills make me sick, that is coming down off of them. Only a few weeks ago I didn't feel as bad, I was walking and driving. It's been a nightmare of ups and downs for 3 years, but the pain is never gone, just the levels change.
I thank you so much for your time and concern. If I knew for a fact that an anti-depressant would help the pain, I'd take it, but honestly, when I don't feel bad, I'm not depressed and to take the anti-depressant I would have to get off ultram--it's semi complicated because of me. Thanks again for your kindness. I hope you are doing well. My very best to you.
Swallow your pride, you will not die, it's not poison.- Bob Dylan 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 6/6/2008 8:10 AM (GMT -7)   
Denim
My fibro is causing more probs in my lower body but it does affect my whole body as well

I have only been DX for last few months so I am just all new to this...not the pain but the other that goes with it

I wish you all the best

LYN
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                               FIGHT the FIGHT with all YOU HAVE
         Be Well All and Stay With Us We are Here To Help
                               LYN 
   
 
                   
 


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/6/2008 11:14 AM (GMT -7)   

Dear Gramps,

Thanks for all of your helpful advise. No, I have never had the EMG test, you would think a doctor would have ordered that.

I looked up RSD and it doesn't sound like I have that.

I will give everything more thought, though honestly I hate thinking about it. I tell you, just a few weeks ago, I had noticed a great improvement but it has changed course.

My husband thought about liquid meds, not sure what my insurance covers. Right now, do not know what is best. I imagine and hope it will become clear and appreciate all your input and prayers. God bless you, you have been so kind.


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/6/2008 11:24 AM (GMT -7)   
Howlyncat said...
Denim
My fibro is causing more probs in my lower body but it does affect my whole body as well

I have only been DX for last few months so I am just all new to this...not the pain but the other that goes with it

I wish you all the best

LYN

Hi Lyn, thanks for your input. I am sorry to hear of your struggles also. I haven't been diagnosed with fibro. I was just asking can you have it in half of your body since I can't get an answer from the many doctors I've seen. It's both legs that are sore.
 
I hope you are getting relief. I know we are all different, but what do you take or do for your pain, if you don't mind me asking? Thank you and I too wish you the best. 
Swallow your pride, you will not die, it's not poison.- Bob Dylan 

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