chronic pain and subsequent problems

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grammargirl
New Member


Date Joined May 2008
Total Posts : 9
   Posted 6/2/2008 5:12 AM (GMT -7)   
Hello everyone,
I am new to this site but was wondering if anyone had any advice for me or suffering fom similar feelings.
 
In October last year I suffered a very bad injury at the hands of a medical professional which has resulted in intense pain in my ribs every day since. On the third day after my injury I was in so much pain that I was taken from my car (which i nearly crashed) on the way to work, to A and E where it was assumed at first i was having a heart attack (at 35!!). Since then if I get stressed in the slightest I start to feel dizzy, nauseous, sweaty and the feeling that I can't breathe, resulting in hyperventilation. The pain is constant as a dull ache radiating from the right front side of my ribs round the back almost to my spine. I get constant spasms which make my entire upper body jerk coupled with alternate feelings of like someone sitting on my chest so I can't breathe or being punched really hard in my ribs or sharp stabbing pains like a knife is being used to prise my ribs apart. Lately I have also been getting feelings like something is trapped in me and my ribs are pressing on it. I have practically lived on 30/500mg co-codamol since
 October just to get some sleep and to help me get up in the day. At times the pain is so bad I get up in the night, pace up and down or sit in the garden at 3am. I have been unable to do any simple housework without causing additional pain, so (as I can't expect my husband to run the house and do a full time job as well as support me) I take additional pain control by using a rib belt (bought in the USA as nothing exists like this in the UK) and a TENS machine. This just to say takes the edge off the pain while I clean up or do a small bit of ironing, but then i really suffer when I stop. I have never been very good with pain but thought that after the pain of a fractured knee and torn ligaments, that disintegrated, back in 1994 I could cope with anything.
 
However, after my visit to an osteopath, and the injury I sustained, this was the final straw in the last 4 years of my life when I have injured my back so badly after slipping on ice that I was off work for 5 months; have lost my 4 year job after being bullied horrendously by my managers; suffered a severe sprained ankle at a subsequent job interview; got the sack from another job after 3 months of starting and doing a fantastic job (as the manager did not like the fact I could do the job better than her after she left me in charge and went on holiday at a day's notice with no contact details!); had a great job with lovely children in a school on  a 1 year contract, but working under the teacher from hell who caused me upset on a daily basis by emotionally abusing/bullying the children in the class and despite complaining (all the staff had experienced him at some point) nothing was done to stop him; suffered with severe vertigo (reason why I was seeing medic) and now at the point where I have not worked since October, have had to sell my car as I am unable to drive now and cannot see an end to this misery or anyone ever employing me again.
 
I also have a new problem in that I am unable to leave the boundary of my house and garden unless someone is with me.
I feel totally ridiculous as I am highly intelligent and rational person but I am terrified that if I go out by myself I am going to fall over or hurt myself in some way. I do not know whether this is down to the pain I have suffered every day since I was injured, an accumulation of everything that has happened to me in the last few years or just a ridiculous thought that has stuck in my head.
 
Since October i have left the house only to attend hospital appointments and medicals/interviews that the UK government insist I do so they can decide whether or not I am fit to do work.
I believe that this is also adding to my stress levels as I convinced that they will say there is nothing wrong with me and demand I find a job (as all tests have been negative and I have basically been abandoned and referred-approx 13 week wait- to a pain management clinic- I do not want to "manage" the pain as it is not manageable and I want to know what is causing it). I am going to see another doctor this week in the hope of getting further tests but feel ridiculous as my husband is having to have time off to come with me and also for further appointments in the next 2 weeks. If i mention my fear of going out alone to the doctor they will say I am making it up. I have always loved going out on my own in the past, especially to wide open spaces. It is not a fear of open spaces but just that I am going to hurt myself if someone is not with me.
I do not know what to do as I feel stupid. People keep telling me to pull myself together reagrding the pain i feel so i have only confided this fear to my husband, who does not really understand, having never suffered like this. He also gets frustrated with me at times when I can't stop crying due to the pain and my whole situation and this makes me feel worse. It is a vicious circle.
 
Am I alone in feeling like this?
What can I do to overcome these problems, especially as I can't expect my husband to take me to appointments for ever as I need to be able to get the bus.
I feel totally trapped, bored, frustrated, useless and am terrified that I will have this pain for the rest of my life but that noone will believe it is real as all their tests have been negative. Some days i doubt my own sanity and think maybe it is all imagined but then the pain returns with a vengeance just to prove otherwise.
Please help.
 
 
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pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 6/2/2008 8:09 AM (GMT -7)   
Have you considered therapy to deal with your anxeity issues.  Anxeity is so debilating and makes pain so much worse.  I am a true believer in talk therapy if one has the right therapist. 
 
Anxeity can break you.  You must learn how to deal with it, and accept it as a part of your life or it will rule you. (which it sounds like it has already started to do so) When you learn to deal with the anxeity (without more meds) you may find it easier to deal with pain.
 
Good Luck
 

Morgoth
Regular Member


Date Joined May 2008
Total Posts : 177
   Posted 6/2/2008 11:56 AM (GMT -7)   
You can't get through life unless you trust a certain number of people. Close family and friends are one category, doctors are another. You're problems are clearly lingering for some time, certainly from before October last year. You should find yourself a trusted doctor, someone who will listen to you, but especially look at your problems from a medical point of view without emotional involvment, something family and friends usually can't do.

Pain is relative. Some people's tolerance level is much higher than others. Some people can take a level of pain without flinching that could actually kill another person. Pain also often causes psychological problems and psychological problems often cause physical pain. It is the age old question of what was first, the chicken or the egg. In medical conditions, they usually go together. Physical pain over long durations usually rises your pain tolerance level but at the same time increase stress to the point of breakdown.

I think most of your problems can reduced to psychological issues (and I know this is not what you wanted to hear). I also know that in the UK, you are supposed to "pull yourself together" (I live in Belgium and have served in the UK), stiff upper lip, etc.; you know the situation better than I do. Now just look at what you've posted here. Regardless of what happened and how you experience your pain, you basically do nothing but complain (not meant as an insult, just an analysis), consider yourself to be far worse of then other people, acknowledge you might have a "ridiculous thought stuck in your head", and finally admit you "feel totally trapped, bored, frustrated", etc. This is a psychological problem and you know it.

Question is what are we going to do about it. Suppose your pain is caused entirely or mostly by psychological problems, then it is quite normal all test are negative. Even if your pain is caused by physical problems, then your main problem is still a psychological one. I'm not a psychologist (although I studied it, among other things), but I think you are having or are very near to a nervous breakdown. You need serious psychological help and you need to get it right away.

Practicle way to deal with your problem. If you have a doctor you trust, call him/her and explain at great length what you told us. If not, get a doctor, preferably one who lives relatively nearby and is readily available. If you don't know any one at first glance, pick one from the dictionary. Don't keep your husband in the dark, tell him everything you told us, you'll need his support and you'll get it as soon as he's able to more or less understand the problem. Together with this doctor and your husband decide on professional psychological help. Don't worry about what other people might think, it is not their life, it's yours.

The first step towards recovery is the knowledge that something is wrong. You are certainly not alone in this, although I guess at times it looks that way.

I can't say I know what you're feeling as I've never had psychological problems, notwithstanding being in constant pain (probably a psychological disorder I guess), but I know enough of the matter to realize that you might need to talk and vent about your situation. Talk to us, or someone else you feel you can talk to. Call a doctor in the morning and start your road to recovery. Keep us posted.
To stand and be still at the Birkenhead Drill is a mighty bullet to shew.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/2/2008 12:56 PM (GMT -7)   
Dear Grammargirl,
First let me say I do not think your pain is all psychological. I think you have multiple problems going on which are likely related.

The feelings your describe of feeling dizzy, sweaty, nauseaus, hyperventilating, etc. are clear symptoms of a panic attack. That can feel like a heart attack and many people end up in ER's to rule it out. It also sounds like there are signs of agorophobia - fear of leaving the house, which can go with a panic disorder. Since you say you used to love open spaces, if these symptoms only developed with your injury last October, it's possible the trauma of what's been happening is what triggered the panic attacks. If you've had a history of anxiety in your past, certainly any new traumas or injuries can activate it. It's all about the nervous system, adrenalin, as well as our thought patterns. But it also appear to be you have real pain that is in addition to the panic/anxiety issue. Both need to be addressed. And each can play off the other.

You have legimate reasons to fear going out on your own, yet the fear may be building to the point that it is more of a problem than your risk of falling, etc. However I say that very tentatively since I'm not the one who's examined you to see exactly what's causing your pain. I've got a background in mental health, so the anxiety/panic is pretty clear to me, but what's also clear is that you have more than that - pain that needs to be identified and treated. Whether or not is can be cured or needs to be managed (everyone of us here would like our pain to be cured rather than managed) depends on what's causing it and what the treatment options are. But while you're waiting for pain management, I'd encourage you to see a therapist or psychologist (not sure who's readily available to you there) and/or psychiatrist (the psychiatrist is an M.D. who can prescribe meds for psychiatric conditions, but may not be a good therapist) to see about treating the anxiety and panic. And there ARE treatments for it, not all of which are medications, although you may need some medication in the beginning or on a prn basis.

By the way, although I've got a background as a mental health professional, I'm not offering professional advice. Just using what I know to help guide you. I'm here posting as another CPP, just like everyone. And there's no such psychiatric diagnosis as a "nervous breakdown", although a panic attack certainly feels like it. There is a great workbook by Edmund Bourne, Ph.D. and I'm not sure if I can list it here, but plug into the Healing Well books directory and put his name in and you can find it. You can find used copies fairly cheap, and it gives you something to start with on your own. May even find it at your library. It's all based on Cognitive Behavioral Therapy, which is very effective with anxiety. And as I've suggested to others, also type in Belleruth Naparstek's name; her latest CD is precisely for panic attacks and her work is very credible.

Good luck!

PaLady

grammargirl
New Member


Date Joined May 2008
Total Posts : 9
   Posted 6/3/2008 6:10 AM (GMT -7)   
Thank you for the replies.
I have always been an anxious person-even as a little girl i can remember the fear I felt at being left at school or if i fell over and scraped my knee etc. "Highly strung" my teachers used to say but I grew slightly more confident the older i got. I have never been a party person, preferring quiet, open spaces to pubs etc and have always avoided the over confident, loud critical people that everyone seems to be these days. I am not agoraphobic as someone suggested-i just can't face going out alone for the fear of hurting myself and having noone there to help me (people walk past incidents these days for fear of consequences of getting involved).
I became very confident in the 4 year job I had and was successful, productive and respected by the people I cared for, their relatives and my colleagues. but all that changed when i became a victim of bullying and harrassment from a newly promoted manager, eventually losing my job. Even winning a discrimination and unfair dismissal case against them did not boost my confidence or how low I had become, especially as she still remained in her job and i found employment impossible. I can almost identify this as the trigger for what is happening now. yes, i have seen a counsellor who worked with CBT but this did absolutely nothing for me as talking about issues that cannot be fixed seemed completely pointless and made me even more depressed. I suppose i could win awards for excellent acting as i can say the things that people want to hear so they put the right things in their notes. I know this will probably make you all think I am some sort of idiot but if I said how I really feel they would lock me up in a unit meaning my life is over for all future prospects. i can say this with confidence having had a bad morning last year and drove off by myself to a quiet country car park to think for a while (my coping mechanism). Next thing i knew I was surrounded by police and an ambulance who gave me a choice of I either go to hospital or get arrested. Fine way to treat someone who is just depressed and wanting some space to work things out. after that all hell broke loose as i refused to do either. let me tell you that having police officers steal your keys and try to force you out of a car does nothing for your confidence or sanity. also to be lied to as well does not help as despite eventually going in the ambulance (to prove i was alright as they requested) I was taken off to a secure unit and made to wait for hours until a psychiatrist came to evaluate my "state of mind". Having pronounced me "sane" (of which i had been all the time) I was allowed to leave after 7 hours. This event has had a significant effect on my life and i no longer trust anyone who deals with mental issues as they are all out to ruin a persons life in the UK. (No employer will hire someone who has talked to a counsellor despite all the laws in place as they see you as some kind of nutter). My anxieties are best dealt with in the way that I find best at the time as noone can understand how someone else is feeling unless thay have shared the same experience.
Yes, I may appear to moan a lot but I am always aware that there are people worse off than myself, then i feel guilty for moaning and this increases my anxiety and depression, which in turn makes the pain worse. the worst thing about pain is having people assume you are making it all up when their tests prove nothing and then they start to query why you are not working. Also in the UK, so many people have scammed the benefit system for so long that schemes are now in place to find these people. i believe that my fear of going out stems from this-the fact that people might be watching me to see if I go out and what I do so they can prove I do not suffer with pain and can't work at the moment. It's a vicious circle of paranoia, fear and pain that I have found myself in as it would be guaranteed that the day i went for a short walk for exercise on my own is the day that the benefits agency would be watching and assessing my capabilities. Yes, it sounds like conspiracy theories and an episode of the X files but, as an educated person who knows how the UK system works, I have become a prisoner with my knowledge. Maybe I need a psychiatrist to deal with this issue too, so they can tell me it's all in my head and does not happen. This is the problem with being too educated, you can see the pitfalls and know when you are being pacified and lied to for their own end and not for my benefit. My brain is constantly active thinking if I do this then that will happen or people will think I am lying etc. All these thoughts have added together over the months to make me into the moaning, anxious person that is on this site.
Despite most of the replies on here I know that Psychological issues are not my problem-the pain is. If i was free of the pain and had someone who took me seriously then i know my other feelings would go away as I could try for jobs, have my independence and feel worthy again. at the moment all I do is think what if i had not seen the osteopath that day and she had not caused me this injury. If that was the case then i would be very happy still working as a teacher in a gorgeous little school in the middle of the country, earning good money and being successful, confident and worthy. If bitterness and loathing of the minute my life was ruined in this way means i need a psychiatrist then I will research it but I know the only help I need is to be pain free so i can return to the life I had before last October.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/3/2008 9:11 AM (GMT -7)   
Dear Grammargirl,
I'll try to resond in more detail later, but I want to say a few things clearly. First, I believe your pain is real and is not of psychological origin. You need to continue to search for an accurate diagnosis and treatment, although that's not always possible. By that I mean there are a lot of people in pain whose precise source can't be located or seen on tests, but the pain still needs to be treated. And treating it, as you read from most of us on this site, is easier said than done even IF you're lucky enough to have a great doc. And I don't know the UK system so I can't speak to that, but our system here in the U.S. re: pain management is pretty lousy.

But as you even acknowledge you've had a history of anxiety issues. That also is not only psychological; it's both physical and psychological. And I'm getting a sense of that possibly you're experiencing some trauma issues (again, that's physical and psychological - both and, not either or) as a result of all you've gone through. Even in this country I know that finding the right mental health help is important - not only in terms of competence, but there are some people who care enough to dig into the complexities, and some who just through out meds or cookbook strategies. CBT is good, but it's very cookbook oriented. That's why the insurance companies like it. But in and of itself it may not be enough. You indicate you've done a lot to build your own confidence over the years. How about at least trying some good self-help strategies (it's a little harder this way, but it's bette than letter than anxiety take complete control of your life), and maybe you could even find a support group or even a good meditation class. It's hard with anxiety to learn to relax; they're the exact opposite regarding what the body is doing. So it will feel difficult, scary, and you'll want to give up. But if you can learn a little bit of how to calm your body, that's a good start. It will take a commitment. All this should be in conjunction with seeking treatment for your pain. Once again I want to say I do not believe this is all psychological; it's just that both conditions do feed off eachother. And while you may not be agorophobic now, there are signs you're moving in that direction. Agorophobia can start because of a physiological cause - and as I said I think you have real reasons to fear going out alone. If you continue to let your fears predominate, though, that's how it MAY turn into a full blow phobia. And you could find that even once your pain is treated you still have fear of going out. Do you see what I'm saying? That just means it's even more important to get the pain treated as soon as possible, but to resolve you won't let the fear take over your life.

Guess I went on longer than I thought. Please at least explore some of the resources I suggested. Belleruth Naparstek is superb. I make no money and have no connection with her other than I use her resources myself.

Take care,

PaLady

p.s. Your last sentence - about wanting to return to the life you had before you were injured - is what most of us struggle with at one point or another. I still am. I want my life back. My work life, and the rest of it. The grief over all this is an enormous piece of the process, and I know that firsthand.

Post Edited (PAlady) : 6/3/2008 10:20:46 AM (GMT-6)


grammargirl
New Member


Date Joined May 2008
Total Posts : 9
   Posted 6/4/2008 5:58 AM (GMT -7)   
Hi all,
I have made a little progress in the last couple of days. I saw another doctor at my surgery who was disturbed to hear all I have been through lately. She has referred me, under our private health insurance (as get seen next week as opposed to 16 weeks wait) to see a doctor who specialises in pain and who is likely to do further tests to find a cause or at least help ease the pain.

I think I have survived the Government medical. Although the medical examiner was very harsh at first (they must see 100's of people who are faking symptoms) he soon lightened up, smiled and was not as severe. I reckon my professional background in teaching helped convince him i was genuine, especially when I said i was desperate to find another job. I will get the outcome of this report on 17th June when I have to attend a meeting at the job centre to discuss my future working ability. Fingers crossed i will have had some good medical input/treatment by then so can prove I am trying to work my way out of this situation.

I am trying to keep busy by entering some of my poetry in a few local and national competitions. I am also booked into a local carnival event in the next few weeks to sell copies of my children's book, which was published in february but I have felt unable to promote properly.

My pain has eased a little today which i think is down to the warmer weather we have in the UK today (it has rained non stop for the past week). i have also been using my TENS machine as I knew the medical exams would be uncomfortable.

I have also decided that tomorrow is the day that I am going to venture out of the house alone, to the Post Office to send my poetry entries. I am feeling more confident about this now as I have thought it through and decided it was ridiculous. also now I am able to walk a lot better (after having my toenails removed 3 weeks ago) I am going to take that first step out of the house unaided. I think this was also part of my fear that I would be unable to steady myself if I fell (due to toe surgery) and in turn this would affect my ribs even more. I am going to take a deep breath tomorrow and go for it. I know it will be hard but I cannot let irrational thoughts invade on top of the pain. One small step at a time is my new motto.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/4/2008 11:50 AM (GMT -7)   
grammar -
Good news! By challenging your own irrational thoughts and the behavior they lead to, you're doing your own CBT! Not letting the fear build is exactly what I was talking about - so as to not let agorophobia take hold. Even if you have to use a cane or other aide, it's better than staying home. I know I've hated at times to go out with a cane, but after I had surgery it was the only way I could get out alone, and since I live alone I have no choice. I'd cringe when people I grew up with came up to me in the store and said I was too young for a cane. Well, Duh! It wasn't exactly in my life goal plans either, but sh**t happens!

Good luck getting out and I hope you have better results than many of us finding good docs!

PaLady

Kisa
New Member


Date Joined Jun 2008
Total Posts : 2
   Posted 6/4/2008 12:10 PM (GMT -7)   
Hi Grammargirl,

Kisa
New Member


Date Joined Jun 2008
Total Posts : 2
   Posted 6/4/2008 12:21 PM (GMT -7)   
Hi GrammarGirl, I hit the submit button by accident, I too am new here and understand everything you are going through. I have to accept that I cannot do certain things and it hurt alot. But when I finally accepted the things I can do from the things I cannot do, somehow it got a little easier. It took my son to come over and sit down and say "Mom you cannot do these things anymore, you have to accept it". I cried and he said it's okay Mom. I am so blessed to have him. I live with chronic pain 24/7. Was operated on my spine 15 years ago, and now have nerve damage from the neck down to my legs.

I don't know if this helps any, but I've been like this for so long and somehow it's gotten easier in my heart and in my head.

Good friends and family help alot. And a great doctor.

My hopes and prayers are with you girl.

Just a note...I push myself to do alot of things, I know I'm going to hurt afterwards, but mentally it feels good. Hey, and if you can't do it, don't sweat it. Tomorrow's another day. I know that sounds corny, but it works. For me at least.

If you see added letters in here, my hands shake, so I sometimes hit the wrong key... like hitting the submit button to soon LOL.

Look forward to meeting you all and nice chatting with you GrammarGirl.

Kisa

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/4/2008 12:38 PM (GMT -7)   
Hi, Kisa,
Just wanted to welcome you to the forum. Please join in on any thread or start your own. One thing - up in the corner of your post you'll see two icons (at least I do on my computer!). One is a pencil, and if you click on that it allows you to edit your post and re-post it. The other is an "X" and that allows you to completely delete your post. You can't edit or delete the postst of others; only moderators or the administrator can do that. But you can edit or delete your own pretty easily.

Hope this helps!

PaLady

grammargirl
New Member


Date Joined May 2008
Total Posts : 9
   Posted 6/5/2008 6:21 AM (GMT -7)   
Hello Kisa,
Great to hear from you, although I have to say i feel really guilty going on about my pain when i read about your pain and surgery. At times it seems like I am the only person in the world who is constantly suffering, but when i read about people who are worse off than me i feel really bad and try to do more (which has negative effects on the pain-it's that vicious cycle again). Incidentally i have used a cane for the last 4 weks after having my toenail surgery and was very grateful for it. i gave up a long time ago feeling ashamed about being totally knackered and having to use aids etc that are usually reserved for people twice my age! I still find it hard though sometimes when i read about old friends from school who have such amazing jobs, children, high salaries etc and have really achieved in life, especially when I was the one that these things were going to happen to whereas they all wanted the party lifestyle. It seems that life has dealt me a cruel blow in comparison, but I am blessed to have my fabulous husband to support me constantly (who needs loads of cash when I have my meagre sum of disability benefit to look forward to every 2 weeks?!!!)
I am now hoping that the pain specialist i see next week can help me so i can stop taking my strong Co-Codamol painkillers, which send me to sleep and make me feel like I have run 20 marathons when i finally wake up! Does anbody else have these painkillers with similar effects?
I am smiling more today as the good weather helps-hope everyone else is feeling good too.

grammargirl
New Member


Date Joined May 2008
Total Posts : 9
   Posted 6/12/2008 5:40 AM (GMT -7)   

Hello all,

Hope everyone is feeling good today.

Great news for me. After all the tests I have had for my rib pain and subsequent findings of "nothing wrong", I have finally found someone who believes me and has disgnosed a major problem. The pain specialist consultant , whom I saw yesterday, did a variety of minor tests before pricking me all over my back and ribs with a pin. The area where I have been having the pain since October 07 felt very different to the rest of me-like a numb pricking rather than sharp like on the rest of my skin. In some areas I could not feel a pin prick at all although I was aware that something was touching me. Instantly she diagnosed that the thoracic nerves (from number 6 to 9) are inflamed, irritated and badly damaged. She is doing an MRI scan in 2 days time to rule out a trapped, bulging disc before I am given some injections near my spine, and a possible epidural as well, so see if this blocks the nerves. Apparently sometimes it does but not in all cases in which case she has to consider what to do next. I am not looking forward to this but have got to the point now where almost anything would be an option to the pain. She said having constant spasms are debilitating enough without all the other pain symptoms that go with this injury. She was also dismayed that it has gone this long undiagnosed and untreated as it makes treatment a lot more difficult. Goes to show that if the doctors had listened to me in the first place I would not be in this situation, as she found it unbelievable that they had all been insistent it was gall blader problems or similar for so long. She also pointed out what we had been saying all along in the fact that if a specialist orders an MRI scan all they are looking for is the problem that they think it is, and even if a major injury was right in front of them they would not see it as they are only able to identify the things they know about!!! Therefore all the nerve damage could have been detcted back in December 07 if the pain consultant had seen the results and not just a gastroenterologist. Unbelievable! Makes you lose so much faith in the medical profession.

On top of this the Government medical I underwent, to be eligible for benefit, also found that I was incapable of work due to the injury so at least I still have a little money coming in to pay my bills. This has all helped in somewhat reducing the anxieties and depression I was having on a daily basis as it takes away the financial pressures and proves that I was not going mad and imagining all this pain!

Although the specialist is hopeful about the injections working, she is doubtful if it will be a permanent solution and it is apparent that I will continue to have nerve damage for life but it may ease my problems just enough to be able to find some kind of work again. Fingers crossed. Good luck to everyone who is suffering and let's hope we all find some solution soon.

 


SJH
Regular Member


Date Joined Jun 2008
Total Posts : 87
   Posted 6/12/2008 8:46 AM (GMT -7)   
See? It's not all in your head. They had me thinking that for 2 years. Then you get someone who went to medical school to actually help people and great things happen. Isn't it odd?

I have yet to mee that doc...
***** Fibromyalgia 2007 ***** Degenerative Disk Disease with Herniation T7, T8, T9***** Generally pissed off broad ******


explainpain
New Member


Date Joined Jun 2008
Total Posts : 2
   Posted 6/12/2008 6:52 PM (GMT -7)   
Does the pain worsen after you eat? the fact that it is right side ribs could be liver/gal bladder issues... I would take a lok at that. I took ambien for 2 years, and when I tried to stop, I had this horrible pain in my right side including the outside of ribs. WHen i took the ambien, the pain went away. if I stopped, it started back up. I really think most new drugs are poison and i now avoid all if possible. I finally got off the ambien, but started taking klonopin to offset the ambien withdrawel pain. i almost didnt make it. but i do feel better now. are you taking any meds that could cause something weird like i had?      good luck      chronic pain=ur own little private hell...   

nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 6/13/2008 2:00 AM (GMT -7)   
Hello Gramm and was so glad to see you had gotten some help as I could feel your despair really in your words and you do have that, a way with words so I am fairly certain your books and poetry must be great.

We all in this CP life experience feelings of hopelessness and despair and some way more then others, I didnt see anywhere that you have actually seen a Psych Doc and please dont take this to mean I think everything is in your head! By all means that is the furtherest thought I had reading your posts. They come in so handy when working in conjunction with our pain Docs since this life leaves us with so many emotional rollercoasters to ride. They are wonderful in helping and aiding our PM Docs with the stress and anxieties of knowing our lives as we knew them will never be the same.

As CPers we go thru some of the very feelings and stages of grief and loss that those who have lost someone thru death does. We have in essence lost ourselves in this world of tests,docs,pain and everyday dealing with all that being in this place brings us. Not only do we have to deal with the challenges of living in constant pain we live with those folks who dont take our pain seriously, getting where we need to go when we need to get there, figuring out a way to do the things we took for granted for prior to all of this not to mention finding the right meds and not being zonked at all times.

It isnt an easy road we travel and the stressors are sometimes far more then our pain and once we can get the depression and anxiety under control we then can rationally see the road to find answers for our pain issues and be able to carry out those plans needed without falling apart.

Once I was able to put my mind in a better place my thought processes became clearer so I could actual aide in my own treatment plan and therefore settled into a more comfortable routine of dealing with this all of it.

You have gotten some very good advice and this bunch here is one of the best most compassionate group and you were lucky like me to have stumbled across them.

Just wanted to drop ina nd say Hi and ad my two cents worth and the nerve damage the Doc suggested might be wrong sounds like a starting point for you.

I did want to add here that your Doc sounded like a good one when she suggested to not get your hopes up as far as the injections and not giving you a false sense of them working for you long term as not alot of folks have great success with them for any length of time but for many it is a last resort attempt to try something and in most cases what can it hurt? If they bring about even a days worth of relief in my book it would be worth it.
NVR
 
Bilateral knee replacements,spondylosis of L-3,4,5 and S-1, osteoarthritis,premenopausal migraines.
 
Meds: Methadone,xanax,zanaflex,maxide,prempro,K+,indocin,lexapro,neurontin(coming off) lyrica(going onto)
 
 


grammargirl
New Member


Date Joined May 2008
Total Posts : 9
   Posted 6/18/2008 4:53 AM (GMT -7)   

Hello all,

How is everybody doing today?

I just wanted to say thanks for the replies I had after my last post, and also to make a confession. After saying I was going to go out on my own, I am afraid I still have not done it (apart from the garden). I am not so much scared at the moment about doing this but more about how I would cope if I suddenly had a severe pain attack whilst out in public and on my own, especially with everyone staring at me like some kind of freak. I have been out a few times with my husband, to the usual appointments etc but still have to take that first step on my own. It is so frustrating because when I decide the night before (having had a fairly good evening pain -wise), to go out the next day, either the pain hits me again or the weather is so bad that it is impossible to go out! Good old Britain-we might get a summer day this year!!

In reply to a couple of questions or points made on other posts:

The pain does not get any better or worse with eating/drinking and I was tested for gall bladder problems right at the beginning of this nightmare and all was clear.

I have absolutely no faith in, or time, to subject myself to interrogations by Psych docs (very bad experience last year-but that is a whole different story on the depression forum!) or even admit how depressed this pain has made me at times- everything goes against you in the UK if you admit something like that and can make the situation 100 times worse. The US is actively encouraged to discuss all problems like this (hence Jerry Springer!!) but if you admit problems in the UK they will have you in a straight jacket before you can blink.

I find that my best therapy for when I am feeling down is to do my writing or listen to music (as I can't drive anywhere remote any more to think, which used to be my best therapy-incidentally, not being able to drive now was definitely a great thing to happen, as the price of petrol is so astronomical  I do not know how anyone can afford to drive. Also it was only a matter of time before I was killed by one of the many idiots that drive in our country now). It is also a massive release of stress not to have to put up with that any more. I can recommend it to everyone.

After speaking to the physio that I had been seeing for a while, I filled him in on seeing the pain specialist and he is glad that things seem to be heading in the right direction, but also said (like the specialist) that he is doubtful whether the injections will have  a long term effect. It will be at least 6 weeks after having them to decide if they work or not and he told me not to do anything mad if I feel a positive effect straight away! I am just looking forward to a possible day without pain, as I have forgotten what that is like!

Anyway, that's all for now I think as I am suffering a bit today due the rain and wind. One week today to the injections-can't wait!!
 
Keep smiling everyone.
My thought for the day: Do not put off until tomorrow something you can do today. If you find you enjoy doing it today, you can then do it again tomorrow!!
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