URGENT PLEASE REPLY ASAP, NEED SSD/SSI ADVICE!

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ReactiveConstellationNE
Regular Member


Date Joined Dec 2005
Total Posts : 256
   Posted 6/3/2008 7:25 PM (GMT -7)   
I am finishing my paperwork to appeal my initial denial, the 60 days will be up in less than a week now. I have an appt with a disability lawyer soon, but not soon enough to get advice on this.

I am actually not sure that I have even been denied from SSI, only SSDI.....but the paperwork I received asks which of the three types of appeal/hearings I want for SSI.

I am applying for both, on their advice, so I think I should answer this one way or the other, rather than leaving it blank.

I think that this is an issue that almost all applicants come up against at this point in the process since almost everyone gets denied initially.....does anyone know what the best choice is for this?

I figure that there is probably one "best choice" for almost all cases, but if there is any information needed to answer the question, please ask quickly because if at all possible, I really need to put this paperwork in the mail first thing tomorrow.

I know it's very late (almost 10:30 Eastern), and this is probably asking a lot in terms of quick response, but I thought this was probably the best place to ask. Does anyone know which of the three types of appeal hearing I should request?
Conditions: Reactive Arthralgia/Reactive Constellation, Chronic Pelvic Pain Syndrome, Sacroiliitis, Costochondritis, widespread Tendonitis, severe back pain & spasms with numerous spinal problems, barely able to type anymore due to severe full-body runaway inflammation, and on and on. Typical daily pain levels exceed 8.5(!)

Medications: Methadone, Dilaudid, Oxycodone, Marinol, Cesamet, Lidocaine Patches, Flexeril, Zanaflex, Soma, Desipramine; many herbs & supplements.


Previous medications: Oxycontin, Opana, Fentanyl patches, Kadian, Avinza, MS Contin, Lortab, OxyIR, Baclofen, Testosterone (oral, patches, gel), Cymbalta, Lyrica, Neurontin, Amitryptyline, every NSAID known to man, Prednisone....and many, MANY more.


lassieluv
Regular Member


Date Joined Apr 2008
Total Posts : 254
   Posted 6/3/2008 7:48 PM (GMT -7)   
I didn't want you to think people were reading and just not responding. I wish I could help you but I have never had to deal with these agencies.

Good luck & I hope you will get the answer you need in time. If not, say a prayer and listen closely for an answer.
Do not forget to entertain strangers for by so doing some have unwittingly entertained angels.  (Hebrews 13:2)


ReactiveConstellationNE
Regular Member


Date Joined Dec 2005
Total Posts : 256
   Posted 6/3/2008 8:00 PM (GMT -7)   
thanks, lassie, I definitely appreciate the response even though you don't know the answer.....i've been following your recent problems and hope that you can find peace as well...... :-)
Conditions: Reactive Arthralgia/Reactive Constellation, Chronic Pelvic Pain Syndrome, Sacroiliitis, Costochondritis, widespread Tendonitis, severe back pain & spasms with numerous spinal problems, barely able to type anymore due to severe full-body runaway inflammation, and on and on. Typical daily pain levels exceed 8.5(!)

Medications: Methadone, Dilaudid, Oxycodone, Marinol, Cesamet, Lidocaine Patches, Flexeril, Zanaflex, Soma, Desipramine; many herbs & supplements.


Previous medications: Oxycontin, Opana, Fentanyl patches, Kadian, Avinza, MS Contin, Lortab, OxyIR, Baclofen, Testosterone (oral, patches, gel), Cymbalta, Lyrica, Neurontin, Amitryptyline, every NSAID known to man, Prednisone....and many, MANY more.


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 6/4/2008 2:34 AM (GMT -7)   
I too wish I could answer. I have no clue. Let us know when you have your answer.
Pamela Neckpain

ReactiveConstellationNE
Regular Member


Date Joined Dec 2005
Total Posts : 256
   Posted 6/4/2008 9:32 AM (GMT -7)   
Yeah, I know most of the standard information about soc-sec such as those things, Gramps, though I always appreciate the sharing of any information that anyone has of this sort -- regardless of whether or not I already know some parts of it. For the sake of myself, in confirmation and nuance....

Unfortunately, this has to go out today, and virtually nothing I have been able to do in terms of searching, on specific sites or Google generally, seems to have clarified the kernel of what I'm actually trying to figure out well enough to summon me up a useful answer. :-(

On top of all this, I have to undergo what is for me just about the most difficult thing I do these days....submit myself to being a passenger in a moving vehicle, on extremely rough, rolling country roads and busy highways in between.....a long trip over and back, when these days on top of all my other terrible pains and tribulations I now have a nasty case of post-antibiotic "scorched earth" in my poor guts...better known as post-antibiotic IBS. Lovely; I've managed up until now to be more or less the one member of my immediate family (parents and my one sibling) that had avoided serious digestive problems through an intensive regime of probiotics, a careful vegetarian/near-vegan diet, cannabinoids and anything else that I can find to help....and now I've stepped on the one landmine I least wanted to add to my long and horrifying list.....

Anyhow, I don't really have time for posting, but I wanted to thank those who perused the thread and did their best to listen, read, and at least try to see if they had an idea of the answer to my dilemma....

Ultimately, I think that straightforward and focused letters are what may win this for me, or similarly presented testimony at my third-stage hearing before a "judge" or similar person capable of seeing the human equation in my situation......but for now, I'm trying to cover my bases.

Especially because Maine has a brutal lack of decent Rheumatologists, and the one who I decided to throw myself on the mercies of, turned out to be as bad as any known jackass I could possibly have chosen.....stubbornly insisting, without even explaining why, that I *MUST* have classic Fibromyalgia and nothing else, not the far more accurate diagnosis that I and a team of numerous other doctors, including many respected rheumatologists around the world with whom I have communicated and who respect my hard-won expertise......certainly NOT anything remotely resembling Reiter Syndrome, which is an obsolete title anyway for a condition, a cluster of syndromes with a common cause, that is clearly way beyond the pathetically lazy scope of knowledge of this so-called Rheumatologist who obviously doesn't know even the most basic facts of Reactive Arthritis/Arthralgia/Myalgias/"Constellation".....

I have to fight hard, because this guy is cutting me off at the knees every step I make now, on the documentation that SS sees. I have to rally around my world-class primary doc, and pray that I will eventually find a rheumatologist within Maine, who will take MaineCare and not look down his/her nose at me, feel threatened by the fact that I have a ~193 IQ ("borderline immeasureable" according to the official IQ system now most in favor) and that I have put seven plus years of research into my knowledge and self-treatment, that docs can either work with me or get the hell out of my way; I have a family to take care of and no time for greedy games played by rich golf-playing fools who've never been seriously ill and have never had to take any of the horrifying medications that they so blithely prescribe at the drop of a hat.....
Conditions: Reactive Arthralgia/Reactive Constellation, Chronic Pelvic Pain Syndrome, Sacroiliitis, Costochondritis, widespread Tendonitis, severe back pain & spasms with numerous spinal problems, barely able to type anymore due to severe full-body runaway inflammation, and on and on. Typical daily pain levels exceed 8.5(!)

Medications: Methadone, Dilaudid, Oxycodone, Marinol, Cesamet, Lidocaine Patches, Flexeril, Zanaflex, Soma, Desipramine; many herbs & supplements.


Previous medications: Oxycontin, Opana, Fentanyl patches, Kadian, Avinza, MS Contin, Lortab, OxyIR, Baclofen, Testosterone (oral, patches, gel), Cymbalta, Lyrica, Neurontin, Amitryptyline, every NSAID known to man, Prednisone....and many, MANY more.


quahog
Veteran Member


Date Joined Sep 2005
Total Posts : 535
   Posted 6/4/2008 2:58 PM (GMT -7)   
Howdy Exit,

First let me tell you I know all too well what you mean about Maine not having decent Rheumatologists. I wonder if you and I had the same one because I was also Dx'd with Fibromyalgia and I don't believe a word of it. Especially when most of my symptoms don't fit the syndrome.

As for SS if you are denied one because the feel you are not disabled then you would be denied for the other.

When you do get the forms in may I suggest contacting your district's representative. For me that was Michael Michaud. His office was FANTASTIC! His office was able to get my ALJ hearing moved up and they also were able to get me what's known as an on the record decision and I did not have to go before the judge. They were able to grant me SSDI based on what was in my case file. I was told that I should've been approved the first time but we all know that doesn't happen very often.

Post Edited (quahog) : 6/4/2008 4:01:18 PM (GMT-6)


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 6/4/2008 3:39 PM (GMT -7)   
O Exit,
IBS ... Oh, I know that one. You are having some bad daze there, friend.
Best thing anyone said to me lately ... "Tomorrow is another day." It works for awhile.
I am having horrid days -- didn't make it to the pharmacy to get my Dayquil. I would cuss but I have a feeling I would be deleted. OMG! "DELETED"
Pamela Baddaze II

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 6/4/2008 4:50 PM (GMT -7)   
I applied for SSD and was awarded benefits on my first try. Social Security told me on the phone in a telephone interview I did not qualify for SSI because of my husbands income. From what they told me people can get SSI while waiting to get get approved for SSD if they meet the qualifications. I was told if we had 0 income I would have qualified. I do wish you well on your denial, just keep at it, don't give up. I did not need to hire an atty when I applied, but I also have a ton of experience in SSD. I worked for attys who handled their clinets SS claims because we already had their medical records in our files. If you have a contact person assigned like I did, I kept this person informed of what transpired at every dr appt. Susie


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/4/2008 5:09 PM (GMT -7)   
Straydog - do you hire out as a consultant? I'm serious!!

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 6/4/2008 5:14 PM (GMT -7)   
PAlady no I do not hire out as a consultant but I will help you anyway I can. Susie


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/4/2008 5:24 PM (GMT -7)   
Thanks, Susie. I'll definitely keep that in mind. I know it's a complicated process, and takes a long time, but I can't file right now until my unemployment runs out. And there are a couple of other reasons I won't go into here. There's some mutually exclusive stuff; once I actually admit to disability, I will have to pull out of certain professional activities. But unless I get some pain management that changes things for me in terms of my stamina and mental clarity, there's no questions after a couple of months I'll have to file. Probably by summer's end.

Hmm....just thought -let me ask. What would you advise someone to start doing (getting ducks in order strategy) who was planning to file in the near future? What needs to be in doctor's reports, and what can hurt. For me, my PCP just doesn't get all I've gone through, so I've not even seen her since my surgery. If specialists are evaluating and documenting my disability, will that be enough? My PCP probably won't go against them, but she doesn't have enough knowledge to accurately and adequately support me on paper, iMHO.

Post Edited (PAlady) : 6/4/2008 6:27:36 PM (GMT-6)


quahog
Veteran Member


Date Joined Sep 2005
Total Posts : 535
   Posted 6/4/2008 10:40 PM (GMT -7)   
Wow Gramps! When it rains it pours.

If heard all kinds of horror stories concerning the federal govt, IRS, VA, SSA. and it just makes me mad that our govt the people that work for us (supposedly) can treat people in this manner.

They will freeze your bank accounts, credit accounts, arrest you and then make you pay interest on top of what they say you owe. Unbelievable! But if the feds owe you money, good like getting it. They take forever paying you and certainly won't pay interest. Anyone else see a problem?

I know this is the best country in the word but things are going downhill and fast. This is not the nation our founding fathers had envisioned.

How much more are people willing to take ?


"Sorry for ranting everyone. It's just that this sort of thing makes me very upset"

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 6/5/2008 1:19 PM (GMT -7)   

PALday,

I would not worry so much about the PCP if she/he is not taking care of your medical condition that can lead to disability. Your specialst will hold more "water" as they say over a PCP anyway.

It was my gastro that insisted I "retire" and said I will write any letter needed to SSD for you. WOW. I am his 2nd patient he has ever insisted on retiring because he told me he believed people should work as a rule. I have worked for attys all my life and it is a very stressful job.

One thing I want to caution you about is; with you drawing unemployment you are getting I assume far less than what you made working. SS uses your income to determine your monthly benefit and the unemployment will be counted, which can result in you receiving less per month in SSD. In other words, lets say you were working and became disabled, your income from working would be much higher, therefore, your SSD monthly check would be paid at a higher rate. The unemployment may hurt in this case. Also, I do not know how long you have been receiving unemployment.
 
I do know you will need your doctor backing you 100% in helping get you get disability. Your specialist is going to have to give a date that that you became disabled as well. In addition, your dr needs to state that you are unable to do any type of gainful employment. One of the 1st questions asked is when you became disabled. SS as a rule goes by the date the dr says you are disabled. When did you last work prior to applying for unemployment? When applying for unemployment you are stating you are fit for work but unable to find a job. So, be care full and tread lightly as it could become very conflicting.
 
My own thoughts are your condition has progressively worsened over time. This will be up to you to relay to your dr. If you are not doing well, by all means make sure this is documented in your chart. I do not know what your relationship is with your dr, does he/she know you are not working at this time & getting unemployment. If the dr cannot get your pain under control without giving medications that would make it impossible for you to get up every day and go to work, then its time for a heart to heart about applying for disability.
 
In reality, since you are not quite sure what direction you are headed in, its difficult to give you some ideas. I think its best we wait until we really know what is going on with you. You stated you would know more by end of summer so we have time to talk about things. The main thing I wanted you to know is the possible effect of the unemployment having on the monthly amt received from SS. I was very fortunate I made very good money, and I do receive more than alot of people here. A long time ago it was one of the topics, I don't think some of them understood it was based on their income, so they were shocked at how little they were paid. Even with what I get a month, I would much rather be healthy and making the real money any day of the week, rather than in state I am in now. No one will ever get rich while drawing SSD unless they win the lottery,lol. But, who can afford to buy lottery tickets.lol
 
Let me know if I can help. Susie
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/5/2008 7:00 PM (GMT -7)   
Thanks straydog and Gramps. I really appreciate the info. Gramps - yes I'm aware of the need to pay taxes on unemployment. I've been partially self-employed for so long I don't assume that any more! Gives one a whole different perspective when there's no one paying your taxes, and you pay for all your own benefits, don't get sick days, etc. But that's another topic, and my business is dwindling now and barely paying its own expenses. I'm only working a handful of hours/week, and there's a reason why I'm doing it but it becomes too technical to explain.

I know a few things about programs. SSI is an income maintenance program, like various forms of general assistance, and there's a means test (income level) to be eligible. SSD is not income based, although as you say there's a limit to how much you can earn. I sure won't have to worry about lots of other income sources that's for sure!

Straydog - I'm printing out your reply. Perhaps sometime we could e-mail; I see you have what looks like an e-mail address in your profile. Or is this just an address for IM's?

Anyway, thanks again to both of you. And you're right stray, part of the reason I've not yet applied for disability is the conflict with unemployment, which ends at the end of this month. Only had it for 6 months. That's it.

Enough for tonight!

PaLady

razzle51
Veteran Member


Date Joined Jan 2005
Total Posts : 763
   Posted 6/8/2008 5:59 AM (GMT -7)   
you might want to look and see if your diease is listed in the SS blue book and always use the one that is in the book as your main diax.
 
Chiari Malformation
Decompression Surgery 1999
 
"Remember That Life Is Short!!!" Life is short, break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile. <!-- / sig -->
 

 
 
 



PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/8/2008 12:51 PM (GMT -7)   
Thanks, razzle! I bookmarked the cite and will study it later.

PaLady

nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 6/9/2008 12:31 AM (GMT -7)   

There is a wealth of great info here for those applying or thinking of applying in the future.

Making contact with your state Rep is one for sure and not everyone will agree with this as I am sure some states have Reps that dont or wont interven in a timely manner but I have found that not to be norm. I contacted mine after the appeal process began and I had not gotten a hearing date a year later! He and I agreed to file a "dire need" and by this point in the process of denials and waiting most everyone is in dire need! I did have to grant him a release of info and but after writing my letter and stating why this was dire need at this point and his office got things rolling I had a hearing date within a 60 day time frame.

As for your origional question they were right in saying if you dont qualify for one then you dont qualify for the other and it is your income and the credits you have paid in that differentiates how much of each you draw or whether you draw it at all. Some states you are far better off drawing at least a dollar of SSI as it also qualifies you for state medcaid benefits therefore not leaving you with no coverage medically until your two year limit is up for medicare.

If your going to bat here with a Doc that says your NOT disabled you may be in for the fight of your life. Even when they alll agree you are SS still denies folks. I had 3 Docs pulling for me from my corner and still was getting denied and during the ALJ hearing I found out the two they had sent me to the previous year had also agreed with my Docs and they still denied me when their own Docs said I was disabled under the guidelines! Unbelievable isnt it? They send you to Docs they set up and when those Docs say your disabled they still deny you and force you to take it all the way to the Judge!

Good luck to you and here is hoping you win on appeal or review but if not going to the ALJ is usally a wise decision.

 

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