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papatini
New Member


Date Joined Sep 2006
Total Posts : 16
   Posted 6/4/2008 3:58 PM (GMT -7)   
Anyone familiar with the spinal stimulator implant and how well it works on the pain?
 
Is it better to stay on pain meds? I had a tens unit before and really wasn't to fond of it.
 
Any recomendations???  Thanx!!!
1998 ACF level C4-5 , 2001 DDD, 2006 ACF level C6-7, Herniated T6-7 , and bulging C3-4
 Diagnosed 1995 - Crohns Disease, 2006 diverticulosis
 Hep C - COPD - Glaucoma - Cateract - Permanant floater - 1 clogged artery
take kadian 50mg, Morphine Sulate IMM 30mg , flexeril, sulphasalazine, bentyl, lomotil, klonopin, and
cymbalta 120mg
               
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 6/4/2008 4:22 PM (GMT -7)   
Papaa I have not ha one, but there are others on here that have them and they will probably answer your post before long. I notice you have CD. What meds are you on for your CD? I am a CD sufferer as well. Hugs, Susie


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/4/2008 4:57 PM (GMT -7)   
Papatini,

Welcome to the CP forum. I don't have a stimulator, but there's been a lot of discussion about it in some recent threads. You may just want to scan the topics in the first couple of pages and do some reading.

PaLady

papatini
New Member


Date Joined Sep 2006
Total Posts : 16
   Posted 6/4/2008 4:59 PM (GMT -7)   
Thanks.

Not on anything right now. CD is in remission. Main trouble now is more IBD and that is just a roller coaster with no real answer.

Now I have cardiac ischemia, and ischemic colitis and they don't want to seem to do much for either.

Good luck to ya!!
1998 ACF level C4-5 , 2001 DDD, 2006 ACF level C6-7, Herniated T6-7 , and bulging C3-4
 Diagnosed 1995 - Crohns Disease, 2006 diverticulosis
 Hep C - COPD - Glaucoma - Cateract - Permanant floater - 1 clogged artery
take kadian 50mg, Morphine Sulate IMM 30mg , flexeril, sulphasalazine, bentyl, lomotil, klonopin, and
cymbalta 120mg
               
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 6/4/2008 5:04 PM (GMT -7)   
Ouch Papa, on no meds for cd. It is a silent disease that continues to work & do damage. Most gi's have their patients on a maintenance drug to prevent this. Per my GI, if we ever get my CD in remission, I will be maintained on the Imuran that I am on. So, far Entocorte is one of my friends, been on it a long time. Tried to get off, not possible symptoms hit with a vengence. So, it may be another life long buddy, but thats fine with me as long as I can tolerate where I am at now.lol Susie


lassieluv
Regular Member


Date Joined Apr 2008
Total Posts : 254
   Posted 6/5/2008 2:14 PM (GMT -7)   
Welcome papatini,
 
I have a couple of threads dealing with the Spinal Cord Stimulator.  I will try to recap a little of what I have been through.  I am dealing with chronic lower back, rt hip & thigh pain.  Surgery, epidurals, and other treatments were tried with little success.  I was considered a candidate for the SCS and was so looking forward to finally getting some relief from this dibilitating pain.  I knew of other people who had great results.  This was not the case for me though.  The trial implant was excrutiatingly painful thus I didn't opt for the permanent one. 
 
I don't know what kind of pain you have or how long you have been considering the SCS but read everything you can get your hands on and make the decision for yourself.  Do not be intimidated by the implant manufactor into pushing you into something you are not sure of.  There are many pros & cons; just because I had a negative experience does not mean the next person will.  As I was told by other caring people, don't get depend on the SCS as a cure all and don't get your hopes up too high.
 
I wish you the best of luck and if you have any questions, please feel free to ask. 
 
lassie smurf
Do not forget to entertain strangers for by so doing some have unwittingly entertained angels.  (Hebrews 13:2)


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 6/5/2008 6:31 PM (GMT -7)   
Gramps-I like that quote another of my favorites is "Scitzophrenia is a sane reaction to an insane society." Thomas Zasz.
Sj

A. Nonymous
Regular Member


Date Joined Jan 2007
Total Posts : 183
   Posted 6/8/2008 7:58 PM (GMT -7)   
Sorry I'm a little late to this party, but since I've got an SCS implant, I thought I'd add my 2 cents.  Mine sucks.  I did tons of research before I went through with it and really thought I was making the right decision, but now I realize it was really just desperation for relief.  I did NOT have a fully successful trial, and yet my surgeon talked me into proceeding with the implant anyway, the justification being that the leads couldn't be placed where we wanted with a needle during the trial.  Still, it would have been way more appropriate to implant just the lead and then do another trial instead of proceeding with the battery pack implant as well, which was incredibly painful.  Now, let me be clear; my system works.  It provides a "tingling" sensation to maybe 70% of my painful areas.  It just doesn't relieve any of my pain.  I just have tingling on top of pain. 
 
I've heard many reports of these being successful for people.  They are typically more successful for radicular pain, like leg pain radiating from the lumbar spine (my case).  We unfortunately live in a society that despises effective pain medication, and therefore would much rather we implant a battery pack in the small of our backs and attach wiring to our spines than to pop a couple of pills for relief.  In retrospect, I see how insane this approach is.  My advice would be to attempt to control your pain with medication before all options, and proceed with surgical intervention if this isn't possible.  If you go through with an SCS, make absolutely sure you have a fully successful trial before you have anything permanently implanted in your body.  And, like Lassie said, don't let the SCS reps or surgeon influence your decision, which I know from experience is a very difficult thing to do.  I'm very independent and a strong decision maker, and they heavily influenced my thinking.  My surgeon was pitching this option to me before I ever even had an EMG.  I now wonder if there was/is some "unholy" collusion between the surgeon and the stimulator provider, or perhaps the surgeon just "likes" to do this surgery because it's fairly new technology and it interests him.  Either way, mine should have never been implanted under the conditions of the trial, and although it doesn't really bother me now (the implant did cause pain for probably 9 months), I'd sure prefer not to have this big lump in my left "love handle"!  Hope this helps.  Good luck and God Bless.
 
Anon

maggie
New Member


Date Joined Feb 2003
Total Posts : 18
   Posted 6/12/2008 6:27 PM (GMT -7)   
I just completed the week long trial of the SCS.  My pain level was reduced from 8/10 to 4/10 and  I LOVED it and am waiting to be scheduled for the permanent.  I researched the SCS for over a year before making a decision on the trial.  At least you can test drive it to see if it works for you.  I have Piriformis Syndrome, ITB, Glut Max Syndrome, Sciatic, FBSS and have been in bed for almost 6 years now.  I very good site for info on the SCS is Raceagainst pain.com.  It is a very personal choice and one that should be made after you find out all the possible information you can (both pro and con).  Good luck to you.

Mami0704
Regular Member


Date Joined Jun 2008
Total Posts : 59
   Posted 6/13/2008 4:03 PM (GMT -7)   
That's sick that people come in places like this and try to push products on people. I can't believe anyone would do that on a moral level. I'm gonna try to take the high road here, but maybe they were a regular person who knew of something that people could benefit from and wanted to spread the word? Just saying because I know when I learn about anything, medically related or not, that I think is cool and beneficial for others to check out, I like to spread the word. My friends always tell me to shut up because I do that to them, so now I'll shut up here on this issue. 
 
Mami
 P.S. skull scool  (I really like these emoticons. Maybe more can be added?)

lassieluv
Regular Member


Date Joined Apr 2008
Total Posts : 254
   Posted 6/14/2008 10:56 AM (GMT -7)   
Yes, there are sick people that play on other's vulnerability when they are in so much pain and looking for relief. I am also aware of the aformentiontioned rep who posed as a CPP trying to boost her (or his) company's product.

I had done my share of research before having the trial SCS implant. This implant caused me so much increased pain that needless to say, I did not get the permanent one. This CPP had been "with me" all the way until my decision was final then I heard nothing else from her/him.

Do your own research, make your own decision. My thoughts & prayers are with you in whatever you dicide. I wish for you pain free days ahead!
Do not forget to entertain strangers for by so doing some have unwittingly entertained angels.  (Hebrews 13:2)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/14/2008 11:36 AM (GMT -7)   
Lassie,
If I'm not mistaken, the website mentioned in maggie's post was the same one that "CPP" mentioned, isn't it? Perhaps one of the moderators may want to take a look at that site?

PaLady

lassieluv
Regular Member


Date Joined Apr 2008
Total Posts : 254
   Posted 6/14/2008 1:36 PM (GMT -7)   
Yes PAlady it is the same. And these two posts are too similar to think they are just coincidental. I wish one of the moderators would check this situation out.

lassie

BTW, how is your pain today? I'm doing better every day but live in fear of moving wrong and breaking the spell. Also, Blaze is home with "Mama" and I have never felt so peaceful in I can't remember when.
Do not forget to entertain strangers for by so doing some have unwittingly entertained angels.  (Hebrews 13:2)


lassieluv
Regular Member


Date Joined Apr 2008
Total Posts : 254
   Posted 6/14/2008 1:56 PM (GMT -7)   
papatini - you also mentioned using a tens unit in the past that you didn't like. I have a tens unit which I used before the SCS trial implant. I didn't get any long lasting positive results from that either. The SCS feels similar to having a tens unit implanted in your body. If you didn't like the tens unit you will more than likely not like the SCS. Again, give it a try if you want so you will know what others are trying to describe to you. Just read all the information you can get before making a final decision. Good Luck to you.
Do not forget to entertain strangers for by so doing some have unwittingly entertained angels.  (Hebrews 13:2)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/14/2008 2:20 PM (GMT -7)   
Hi, Lassie,
I'm actually having a "relatively" good day, but the weather is great and the humidity and storms have finally passed. But like you, I do very little, and am very cautious of every move - even opening a window! And so much doesn't get done around the house. I'm almost reluctant to tell anyone when I have a "good" day because everyone thinks you're getting better, or are cured or whatever.

Just realized this isn't your thread so I won't hijack it! Thanks for asking! And I'm glad you're feeling more peaceful, which has to help your pain decrease.

PaLady

Mami0704
Regular Member


Date Joined Jun 2008
Total Posts : 59
   Posted 6/16/2008 5:00 PM (GMT -7)   
I really hope this forum doesn't have the habit of jumping to false assumptions about people and running with them. It sounds like a witch hunt is underway for anyone who says something questionable. We shouldn't let one bad person cause us to question everyone else. Maggie, I went to that website and found it helpful to anyone who wishes to talk to people who have first hand experience with SCS devices. While the site is not for me I've believe that it can be helpful for others going through the SCS process. I will recommend it to others who have questions about the SCS as I have never come across another site that helps people specifically with SCS.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/16/2008 5:32 PM (GMT -7)   
No, Miami, we don't have any such habit. This is actually the only situation I've seen come up. But there are some rules (see the forum rules for details) about sharing other websites and such. The rules are set up by the administrator and they've served a good purpose. Lassie actually had more experience with that other person re: the SCS. But it's a rarity here as far as I can tell.

PaLady

maggie
New Member


Date Joined Feb 2003
Total Posts : 18
   Posted 6/17/2008 7:35 PM (GMT -7)   
I am sorry if I broke any rules by giving out that website. I think anyone considering a SCS should do all the research ahead of the trial. I found alot of postive and informative things there. BTW I know it is sponsored by a SCS manufacturer, however, the implant I am awaiting is not by the same company so I am in no way endosing any makers of the SCS. I didn't understand what you meant by CPP's post being similar and should be looked into. Sorry new here and learning my way around.

DX: Piriformis Syndrome, Glut Max Syndrome, FBSS, ITB, Chronic pain since "98 after on the job injury as a Critical Care Nurse. Meds: Kadian 60 BID, Perc 5/325 Q6/hr, Zoloft, Xanax.
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