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Regular Member

Date Joined Jun 2008
Total Posts : 59
   Posted 6/12/2008 4:22 PM (GMT -6)   
Hi I'm new here and just thought I would introduce myself.
I have been sufferering with chronic pain for as long as I can remember. I think it started when I got hit riding my bike. Since then I have been diagnosed with two conditions that cause chronic pain. I'm still undergoing tests in order to diagnose more of my long time pains and other ailments. I'm on a muscle relaxant and pain medication and I have another medication for something dealing with my GI track that I haven't picked up yet. I found this site by surfing the internet and putting in chronic pain forums. Actually I think this was the first one on the list and seems to have the most activity. I'm looking for support from people who understand what I'm dealing with and am looking forward to learning things from those on this site.
smurf  LOL He reminds me of my childhood that seems like forever ago.

Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 6/12/2008 4:40 PM (GMT -6)   


Welcome to Healing Well.  This Chronic Pain Forum is quite excellent, indeed.  You will find many many wonderful people, most of them with much experience who offer a lot of suggestions and support.  I hope you find a home here.  I know I have.

May I ask what are the two conditions that cause you chronic pain? Keep us informed with the results of your tests and tell us more about yourself too. Don't forget the chat rooms too.  There you will get a lot of info and support as well.

I look forward to seeing more of your posts and getting to know you better.  Take care and keep positive, Mami.

Gentle Hugs,

Lindaloo  tongue



Moderator Chronic Pain
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.

Regular Member

Date Joined Apr 2008
Total Posts : 33
   Posted 6/12/2008 5:22 PM (GMT -6)   
welcome...and thanks for replying to my cry for help "with my bank"! (ha) I too have suffered chronic pain for about 10 years (since 99) with my kidney/flank pain. I take Norco 10/325 and nothing else. I don't even take vitamins...which I probably should. I have no other health problems except damage to my left (only) ureter (damaged from a kidney stone the size of a golf ball in 99) since then, I've had too many to count surgeries,procedures,etc. which has left me with chronic left flank pain (8-9) on some days w/spasms (like when passing a kidney stone) most people would be in the hospital in a minute, but I guess I just have gotten used to it. I worked full time as a nurse (private dr's office-obgyn) up untill 3 weeks ago, and due to slowing here (very slow...) my hours were reduced to part time 1-5pm every day...I was just approved for unemployment (thank goodness) and am very active w/ my family. I am married for 10 years, but been with my husband since we were kids (15 years old) and have 3 kids, 2 boys and one girl. My daughter was born in 11/03 and was a record baby weighing 13lbs (she was on the news and newspaper!). We hike every weekend (hiked "Hell's Hole" last weekend) it was mostly uphill!!! both ways! nah, just felt like it! SO, I definatly don't let my "condtion" affect my life (in fact, noone knows what medication I take..except my husband) and I like to keep it that way (I've worked pain management and know the "stigma" of narcotics....Anyway, I'm rambling now...nice to meet you and have a "painless" night....

Regular Member

Date Joined Jun 2008
Total Posts : 59
   Posted 6/12/2008 5:41 PM (GMT -6)   
My two diagnosed pain conditions are:

Chondromalicia(sp) of the knees which causes the cartilidge to fray and my knees to swell and constantly be stiff. I don't know how common it is, but people have told me its not as bad as I say. Well when my knees give out when I'm going up or down stairs or when I'm walking on flat ground I think its bad enough. It could be a mis-diagnosis, but my current doctor could care less because its not bad enough for him to do anything except give pills. X-rays were supposedly fine, he never showed me so I don't know for sure. I was given Celbrex that didn't help and I think one or two other things that didn't help. Now I just use hot/cold packs and masage them myself.

Pinched nerve(s) of the neck/shoulder. Because of this my arms feel heavy sometimes and I have lost a considerable amount of strength and endurance with them. My shoulder, arms, and neck also cramp up and start to spasm especially when I have used them too much. Not to mention it can be very painful and I end up begging for relief. I am on a flexerol(sp?) I think 10mg and Ibuprofen 600mg. I have taken more potent pain medication like vicodin and codeine? in the past, but not specifically for my pinched nerve(s). I don't remember them really working and if they did I didn't like the side effects. I can't remember much of when I was on other pain medications let alone the actual names of them or how I was on them. I think I subconciously blocked it out. IDK. I was also too young at the time to know that it is important to remember all those things like the name and mg's.

I also have dislocated vertabrae in the neck/upper back that also causes pain and stiffness from when I was rear ended. 

I recently had a blood test to make sure everything was fine. Supposedly it is which surprises me. I have always had borderline high cholesteral since I was born and was expecting her to say it was high. Nope. Thyroid is fine as well as others. She didn't let me view the results myself. My urine analysis was also fine. So now I go get tested for ulcers and have an ultra sound to see if I have stones, cysts, and IDK what else since I'm complaining of abdominal pains and GI upsets. I know I have some sort of thing that is causing my adbominal issues. It would be nice to know what so I can start treatment if there is any and cross another thing off my list. In two weeks I see my regular dr again to discuss results and I'll ask for a copy of my blood test. I also am going to talk to her about my dizzy, spaced out, vertigo (i think that is the right word), and nauseaness assoiated with all that. Also my upper sinuses always seem to have pressure. So we'll see if I can start getting some answers and get back to 'normal', like I'd even know normal if I felt it...

BTW I'm a 22 yr old F engaged to my high school sweetheart of 6 yrs. We're too poor now to do anything and rely on our parents for financial support.

Post Edited (Mami0704) : 6/12/2008 4:48:41 PM (GMT-6)

Regular Member

Date Joined Jun 2008
Total Posts : 59
   Posted 6/12/2008 5:54 PM (GMT -6)   
Porteyoz, I also don't like taking my pills. I only take my muscle relaxant and pain pill when I'm really bad. Otherwise I just tough it out. I have a perscription for something else that I haven't gotten filled since Tuesday. I'm not even sure what its for except that its something to do with my abdominal issues. I also don't take vitamins or supplements although I probably should. I like doing things all natural if I can and relying on God to cure me depending on what it is. With that said I do like knowing what is wrong with me though although Like I said I do like believing God will cure me.

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 6/12/2008 6:05 PM (GMT -6)   
Hi Mami,

And welcome to our Chronic Pain family. Sorry you have to be here but glad you chose us. You will find many forms of pain relief regimes and some who's doctors refuse to help. My pain if mostly from fibromyalgia and I have a wonderful doc who helps me live a productive life. I know you'll enjoy the gang and get lots of support. Let me know if there's anything I can do to help you. Email if you wish. My email address is available by clicking the envelope under my name over there <---,

Co-Mod Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 6/12/2008 8:47 PM (GMT -6)   
Hi, Mami,
I just wanted to add my welcome to everyone else's. I just got home a bit ago so am tired but I come first to HW to catch up before even eating! It's become a true support group for me, and we love new people. I hope you will find what you need here, too.

There's lots of information on old threads or feel free to start your own. I look forward to getting to know you more. It's sad to see that you're in so much pain at such a young age, but I'm glad to see you taking such an active role in finding out what is wrong and what you can do to help yourself.


Regular Member

Date Joined Dec 2007
Total Posts : 450
   Posted 6/12/2008 9:53 PM (GMT -6)   
Wanted to say hello and welcome to you, too. You've definitely stumbled upon a great place for support.
Mochiah/a.k.a. Sue
cervical fusion 2006
L4-5 surgery with cages, plates, and screws in 2005
MEDS:  Fentanyl patch, Norco, Celexa, trazodone, and Flexeril
To handle yourself, use your handle others, use your heart
I'm going to smile like nothing is wrong, act like everything is perfect, and pretend its not hurting me.

Veteran Member

Date Joined Dec 2007
Total Posts : 639
   Posted 6/13/2008 12:48 AM (GMT -6)   
Hi, Mami! Welcome to the group. I am sorry to hear you are suffering with such pain at such a young age. You will find much help and support here. A wonderful group of people!

Forum Moderator

Date Joined Jun 2008
Total Posts : 6706
   Posted 6/13/2008 4:19 AM (GMT -6)   
Hi Mami and welcome to the forum. This is certainly a nice place to call home.

As for your condition re the knee's at your age it may NOT be a big deal to them but when those frayed and worn cartllidge becomes say 20 years older then it will be a major ordeal. It is the cartlidge that allows free movement of the knee without friction and when this is worn or frayed it allows the bones to rub together and eventually will wear the bone down as in my case and it makes knee injury to become a real potential as it did in my case.

As you can see from my signature I have had numerous knee arthroscopies to deal with this over the years and eventually a bilateral knee replacement when all of it had worn out and I had a twisting injury to the left one at work about 10 years ago now.

Dont ever let any of them tell you that bone rubbing against bone doesnt cause pain and if that was the case then we wouldnt have the padding to begin with.

Anyway welcome to the forum and hoping you find many great friends here!
Bilateral knee replacements,spondylosis of L-3,4,5 and S-1, osteoarthritis,premenopausal migraines.
Meds: Methadone,xanax,zanaflex,maxide,prempro,K+,indocin,lexapro,neurontin(coming off) lyrica(going onto)

Regular Member

Date Joined Mar 2008
Total Posts : 395
   Posted 6/14/2008 6:03 PM (GMT -6)   
Hi miami and welcome! Also sorry to meet u here, wish no one had to come here with pain issues but we do. You'll find a lot of good info here, on coping and helping to manage CP and it's also a good place just to rant every so often(not that I ever do...LOL)

If pain could have cured us
we should long ago have been saved.

Regular Member

Date Joined May 2008
Total Posts : 177
   Posted 6/14/2008 8:52 PM (GMT -6)   

The knee thingie (Chondromalacia sounds so severe) can actually be treated in a simple, relatively painless way. Two part sequence. One is rest, rest ans more rest. No steps, stairs, running or walking for several weeks/months. Step two is a limited revalidation by professionals to prevent you from rushing back into life and getting the inflammation started again (the inflammation is the source of the problem). Medication such as antibiotics might be necessary and advisable. Consult a specialist on this one.

I don't have enough data on the neck/back issue to give detailed advice.

What about your abdominal ailment? Such ailments can make you feel really sick and grind you down. Feel free to talk about the issue, we're all here to help you.

Concerning God. The Holy scripture says God helps those who help themselves. I think waiting and doing nothing is a bad strategy. You can believe and trust in GOd, but you can't expect the Almight to come down and change some bandages now can you? Leave those things to the doctors.

And of course keep us posted.

If you need more information on Chondromalacia, drop me a line.

Take care.
To stand and be still at the Birkenhead Drill is a mighty bullet to shew.

Veteran Member

Date Joined Dec 2007
Total Posts : 1228
   Posted 6/14/2008 9:19 PM (GMT -6)   
Hi Mami,
I'm just adding my welcome to everyone else's. I know that you will come to love this forum. It's full of knowledgeable and great people.
If there is anything that we can help with, just ask away. I'm pretty sure that someone will have an answer.
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..

Veteran Member

Date Joined Dec 2007
Total Posts : 639
   Posted 6/14/2008 9:30 PM (GMT -6)   

I don't want to hijack this thread or start an off-topic debate here, but I feel compelled to comment. The Bible does not say "God helps those who help themselves." In point of fact, Proverbs 28:26 say quite the opposite. Of course trusting in God's wisdom and relying upon Him for healing does not mean one may not seek out the advice and care of physicians and therapists. I (along with many others here, I think) pray daily that God would heal me and the others I know here and elsewhere who suffer from debilitating chronic conditions. I also thank Him for the medication I've been prescribed which, though it barely takes the edge off this pain does make it possible for me to perform the basic functions of life on most days.

Thanks for listening. As I said, I don't intend any offense here. Just wanted to clarify the misquoted scripture.

Regular Member

Date Joined Apr 2008
Total Posts : 164
   Posted 6/15/2008 12:20 AM (GMT -6)   
I just wanted to say Hi and welcome to this wonderful forum!
I am somewhat new here also and have never seen so much compassion and knowlege in one place...even a room full of DR's(if you scratch the compassion part!!) I dont get on as much as I like but it has become such a great support for me when I'm able.
Like Palady said, it's like a big support group. All thats missing is the coffe and stale donuts:)
I really hope you will soon find the answeres you are looking for and be able to get back to your "normal" day to day..were all routing for you:)

I'm in no way Religious as the general defenition goes(BTW ry, totally agree) But am extreamly spiritual.
I think God heals us in different know that story of the man lost at sea...
Another man in a boat comes by and asks him if he needs help, he says no because God will save him, so the man says okay and goes on. A few days later another boat comes by and they ask if he needs help. He syas no, God will save me. The man sending away all the help eventually passes away and says to God, where were you I thought you would save me..and God says, I did I sent 2 boats by to help you.
Of course by my telling that story I am in no way insinuating that your faith will lead you to that situation. And I also am defenitly not saying your belief is wrong...I commend your unwavering faith in your higher power.
I like to think that our higher power does heal, just not always in the way we expect. Like for me, guiding me to a place where there are others who can offer me knowlege and support and in return I am able to offer my support and knowlege. Or guiding me to the animal shelter where I found my Baby Girl who has helped me tenfold in coping with everything CP does to us.
I just wanted to share that with everyone:) I guess I needed to remind myself that I'm not alone.
Wow...huge dejavu..seriously...

But I dont want to start some religious debate so I will stop at that.

Hugs to you and everyone

  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.

Regular Member

Date Joined May 2008
Total Posts : 177
   Posted 6/15/2008 3:48 AM (GMT -6)   
Freya, Ryand,

I did not know you were so interested in the scriptures. If you'd like, we could talk about these matters in private a little. Although I myself am not particularly religious, I did study Comparative Religion in between my other studies some 20 years ago. I've always been interested how other people experience Divinity (in the broadest term of the word). Here in Belgium, religion and spiritualism are almost never talked about. People just aren't interested anymore and those few who are don't dare say so in public for fear of ridiculing themselves (the lunies not included of course).

My e-mail is listed on the forum. Think about it will you.

To stand and be still at the Birkenhead Drill is a mighty bullet to shew.

Regular Member

Date Joined Feb 2007
Total Posts : 155
   Posted 6/15/2008 7:08 AM (GMT -6)   
Hello there (((HUGS))) from me
I also just wanted to say Hi and welcome to this wonderful forum!

You have come to a very helpful forum, of friends, and co-Cper's
ask your questions, vent, or come to chat
its helped me to keep on keeping on...
and learn a little as I go

talk soon,
They that wait upon the Lord shall renew their Strength, they shall mount up on wings as eagles, they shall run & not grow weary, they shall walk & not faint..."  Ish   40 v. 31 
Sjrogrens Syndrome, Asthema, Chronic Fatigue, Chronic Pain, Head aches, Migraines, Gastro Intestinal Problems , Esophegial Spasms;   Fibro Myalgia , Kidney Stones,  & CP (SI joint,   low mechanical back pain..L4 & L5 Vertebrae Misaligned,  Spinal Stenosis and Degenerative Disc Disease, Bulging Disc, anterolisthesis L4 L5L4 -- S1 pain  caused by osteoarthristis ,bone spurs, causing pinching or pressure on spinal chord)

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