I hope this post doesn't turn to be too political in nature, but it might be. We shall see. . . anyways . . .
With the 2008 elections coming up, and so many offices up for grabs, so many important topics are also going to start coming up. I want to encourage everyone to email, fax, write, or whatever those who are currently in office and looking for re-election, and those hoping for your votes in the near future. These people that get voted or don't get voted into office are the people who could very well hold the futures of the world of chronic pain.
I plan on writing everyone who will be up for election here in Arizona, and ask them what their view is on chronic pain. Things such as how they feel about
the way many of us are treated (like addicts) when trying to get legitimate medical treatment? What do they think they can do to help change things so that we no longer have to worry about
being labeled when we NEED to go to the emergency room because we are in so much pain. What are their opinions on the fact that it takes years to get through the maze of social security system? The fact that it has taken me 2 years and I still am expected to wait 6 more months to get to the court appeal on my case - and this is with doctors on my side? Do they realize that I'm lucky in that my husband can support me and we have insurance, even if our medical bills are quite behind in being paid? What about
the people who are by themselves or raising children and unable to work due to a disability, what are they supposed to do while they wait for the disability system to work?
I want to know what these guys plan on doing for me, and the millions of other people out there who suffer pain day in and day out. I want to know whether they agree that rules for narcotic medications should be standard across the country, not varying by county and/or state. I want to know if they agree that I deserve the medical treatment I need to live a life not haunted by debilitating pain.
Now is the time to ask for change. Now is the time to start demanding it. If we don't stand up for ourselves and start asking people to help us, to start treating us like people, no one else will. If we don't ask for change it's not going to happen.
I think it's horrible that someone can go into an ER who's suffered pain for ten years, has a spine full of rods, plates and screws, and still be refused help for their pain because they take narcotic medication. If we are in so much pain we can't even think straight they want to label us as addicts. I've never had that label put on me, I'm lucky, but I feel for the thousands who have. I don't think I should have to fear the stigma, and label that comes with taking medication to make my life livable.
Anyways this ended up being a little more rant than I wanted, and as usual I'm not sure it makes any sense, I hope it does. (Back pain tends to make rational thought hard to come by).
Please start contacting people who can work to change the world of chronic pain.
"When we come to the edge of the light we know, and are about to step off into the darkness of the unknown, of one thing we can be sure; either God will provide something solid to stand on... or we will be taught to fly.'"
"Cause when push comes to shove You taste what you're made of, You might bend, till you break Cause its all you can take; On your knees you look up Decide you've had enough, You get mad you get strong Wipe your hands shake it off, Then you Stand" From "Stand" by Rascal Flatts
Dx.: Polycystic Ovarian Syndrome, Ulcerlative Colitis, Chronic Inflammation of the Colon, Ruptured & Fused L4-L5-S1 w/pinched nerves, Degenerative Disc Disease, Chronic Costochondritis, Back Muscle Spasms, Asthma, Benign Tremmors (hands)