Post Edited (quahog) : 6/15/2008 11:26:16 AM (GMT-6)
Post Edited (pieceOfCRPS) : 6/15/2008 10:05:48 PM (GMT-6)
Hey Qhog, I just wanted to say that I read your post when you fisrt put it up and didnt respond as I had no answers but I have a very close friend who suffers from RSD so I waited to talkt o her and she described basically the same "strange" feelings as you did. I say strange as she said that and also noted there is no other feeling in the world or words to describe those occurances. She also said she spent along time being not treated and not even mentioning it to the Docs she was seeing becuase she felt the sysmptoms were so very odd that she wondered if they were not in her mind at times. I know she was in a great deal of pain before she found a Doc at the University of Louisville that knew what she had and how to treat it in some way and that is a far travel from where she lives but she went thru several different Docs that had no idea what was gong on with her.
I cant really tell you any more then this sorry but she did say you needed to find a teaching hospital that knew of RSD and are treating it. She wanted to move to Florida a few years back just to get away from the winter cold here since she avoids going out at all in the cold and winds of winter and fall months as it kills her to do so but she couldnt find a Doc or University that seemed well educated with RSD so she is still here and being a virtual hermit to the weather.
Hi to both CRPs and hoping you all have Docs that are well versed in this as well. I have seen a few forums on RSD and CRPS on other sites so maybe one of them can offer some help if others here have no isite but only go visit dont move from us!
Since I have developed crps I have definately gone downhill. I hate to be so negative all the time when I post but honesty,piece of mind and friendship is what Healing well means to me. I just have had so many operations and procedures that never worked out for me that in the hope of curing myself, I think I have made it worst. In the begining I could walk and wear a sneaker with a lot of pain, but I could do it. Now I have to use my cane and no way could I ever put a shoe or sneaker on my foot and I'm so slow that I agravate myself.(i wear one of those blue surgery shoes if i have to wear anything)
I really dont know why doctors say the things they do, but I havent found any doctor that can predict the path of crps or just nerve pain for that matter. I do find that the warm weather is a plus, but I have to heat my foot just about all day or the pain is increased. It's been like that since the start. I just use a heat pad, but the bummer is I cant use my lidocain patches as much because like Gramps said it releases all the med too quickly and I start to feel sick. My pain doc said it can lead to siezures and heart attack so I take it more seriously these days.
Well I guess I chewed your ear off enough for one night!!
I hope your crps path takes a turn for the best. Also thanks nvrthesame98 for the kind words.
I Hope Everyone Has A Pain Free Day!!