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pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 6/15/2008 4:28 PM (GMT -7)   
Anyone have pain from nerve damage due to an injury of an extremity.  I am interested in hearing what relieves and worsens your symptoms.
 
Su
 
CRPS what a piece.
 
Permanent severe nerve damage from crushing injury.
CRPS, unwillingness to take meds.  Doomed to a life of misery but with a positive outlook.
 


Morgoth
Regular Member


Date Joined May 2008
Total Posts : 177
   Posted 6/16/2008 12:10 AM (GMT -7)   
From 1998 to 2003 I received several hundreds of IM iron injectioncs. The chance of a nerve being damaged is very small per injection. In the long run, it because a statistical certainty however. I have nerve damage from both my upper arms down to my hands. I often have spasms in these arms and tend to drop stuff. So far I haven't found anything that has any kind of impact on these matters.

In 2000 however, I was run over by a car and after a ballistic flight of 13 metres came to a sudden halt when crashing into a steel container. My right side was broken, my left crushed and almost everything inbetween ruptured. I had minor nerve damage in my right arm similar to those of the IM injections (the damage from both the accident and the IM injections enhanced one another probably). Furthermore I had major nerve damage in my left arm and left leg. My left foot was mostly paralyzed and my left hand's movements were severely limited (due to a combination of nerve damage, broken bones and a crushed wrist and forearm).

Now the good news. My fractures healed rather well, the crushed elemets were removed and replaced by either new human components, artificial components or a mixture of both. Once the bones and their replacements were in place, the arteries and nerves patched up and connected again; regeneration began.

Most nerve damage in my left arm has disappeared with the exception of damage to the left index, the right-side of the left middle-finger and the left-side of the left thumb. My left foot and leg are operational again for 75%. I had extended therapy, including electronic stimulation therapy in my left leg and manual therapy for three years for the left hand/wrist and left ankle/foot. During this period I was given massive amounts of nerve-regenerating medication. I don't know the exact composition of this cocktail I was given).

Nowadays I still have more pain in cold and wet wheather. This is still the result of the nerve damage, I had it checked (not that the cold and wet doesn't cause additional discomfort for the crashed pieces of course). Keeping the extremities warm might help (a dry kind of warmth) and keep them out of the draft. My doctors told me that, if the situation hasn't improvd in 3 years, it won't anymore. I assume they meant after 3 years of therapy. If you haven't had therapy yet, then it might be possible to improve the situation even after those 3 initial years, but I'm not sure about this.

If you want me to, I can have it checked out.
To stand and be still at the Birkenhead Drill is a mighty bullet to shew.


NIZZAN6010
New Member


Date Joined May 2008
Total Posts : 18
   Posted 6/16/2008 1:16 AM (GMT -7)   

I suffered severe damage to the common Peroneal nerve. My foot and ankle feel as if 4 million bullet ants with red hot ice picks are crawling all over the place.  It's a miserable pain 24/7 with the only relief coming from 40 mg of Methadone every 6 hours. The cold always has a negative effect and I hate it when anything touches my foot or ankle unless I have prepared for the contact.

I have tried every med from non-opiates, to opiates, SCS, Peripheral nerve stimulators, Lyrica, Cymbalta, etc. etc. etc. with no luck whatsoever.

The only things I have tried that worked was Accupuncture and Brytillium blocks, but Brytillium blocks proved so dangerous to the heart that they had to be stopped. I tried Methadone about 5 years ago and was finally able to recover some quality back in my life.

I wish I could provide you with a list of meds and/or treatments that ease the pain of nerve damage but I cannot. In my case 2/3rds of the nerve were carved away leaving me with a life of pain and a very, very short list of things that provide any relief whatsover.


nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 6/17/2008 3:00 AM (GMT -7)   
Unfortunately nerve pain is one of those most trying pains to relieve. There just isnt alot of anything that works for everyone. I am sure some folks here will chime in with some things they do to help manage it when it is at its worst but even those will most likely be each to his own.

There does seem to be a rash of new meds coming out often that have potential to assist in helping to alleviate nerve pain to some extent but in saying this alot of folks have some very trying side effects to the point they cant take them at all even short term.

With each new one that presents hope is on the horizon that possibly this will be the one that works without causing all the side effects but for now it is touch and go for most folks and not alot of relief in sight for many.

So sorry I cant help anymore then that and given the bad news I apologize that you have to deal with such pain on a daily basis.

Good luck in your search and hoping someone can give you some things to try at least.
NVR
 
Bilateral knee replacements,spondylosis of L-3,4,5 and S-1, osteoarthritis,premenopausal migraines.
 
Meds: Methadone,xanax,zanaflex,maxide,prempro,K+,indocin,lexapro,neurontin(coming off) lyrica(going onto)
 
 

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