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Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/22/2008 10:41 AM (GMT -7)   
Hello one and all,
 
As the rest of you, I am turning to HW for support and maybe ideas.
I have been a member awhile, but come and go. I have great pain in both legs that happened to occur right after I pulled my back. I have never been diagnosed, except with osteo-arthritis.
My lumbar mri does show moderate stenosis, bulging disks(I think everyone) and ddd.
Every doctor has said, the mri does not reflect the pain I am in. It will be 3 years. I will have periods that it calms down and I am thrilled. I was able to get away with taking ultram and not squarming all day with leg pains. Now I am back to squarming and more pain.
My doctor has not been helpful. It was others who told me about EMGs, so I asked for one. I have been the one asking for tests, he is a blank slate but since I wasn't too bad, dealt with him.
I asked for something stronger than ultram for pain and he gave me hydromorphine, which was prescribed by another doctor but gave me only 1 a day. I went back and asked for 2 and he said no, I would only want more and more. I told him that it wasn't that I was taking the one and it was working and I need more, the one was never enough. My husband was the one who forced me to take 2 just to get out of the pain. After that I tried taking 1 in the am and 1/2 later. He wouldn't go for that and gave me morphine sulfate er. He didn't tell me the side effects. Well, I took it and freaked out. My pulse was racing, I was dizzy, nauceous, headachy and scared!! My husband got a hold of him and all he said was that it was "normal"!!! To keep taking it!! After that experience I didn't want to go through with that. I called his office. He is only there 2xs a week, which I know is bad. I left 2 messages for his assistant and NEVER got a call back. I said I needed something else for the pain.
I can't believe that this is how we are treated. None of us want this pain! I HATE pills! I was an exercise nut for years, now I feel housebound and useless and can't even get help.
The ultram barely does a thing when you have a lot of pain. I had tried percocet in the past and it made me sick after awhile, that's why I figured if the hydromorphone didn't, let me have some to deal with this.
I don't know what to do, besides changing doctors, that is such a hassle and the thought you may get someone even worse is scary.
I just want something now that will allow me to function in the day, not lay round, which is what I feel like doing because I'm hurting.
Has anyone tried morphine sulfate er? I didn't think my request for 2 pills a day was so wild and am so surprised he said no, meanwhile he had given my husband 3 a day for fibro.
We are a mess. I know we all can tolerate different drugs and I've been told not to ask for anything specific, but that doesn't work with him--what he gave me, and never warned me about or followed up with, really scared me. So I am asking is there any known pain killer that is more helpful and tolerable than others?
Thanks for listening. I am so fed up right now. Having 2 people in your house not well is difficult and we are doing the best we can.
Thanks for listening. 
Swallow your pride, you will not die, it's not poison.- Bob Dylan 


TDoern
Regular Member


Date Joined Jul 2006
Total Posts : 495
   Posted 6/22/2008 12:13 PM (GMT -7)   
Denim - I honestly don't know what to tell you. I'm pretty sure (not 100%) that the morphine sulfate ER is the same as MS Contin - or pretty close. I took it and I had no problems at all. I will say though that it might not have just been you reacting to a new medication - your body may have needed to adjust to it. I had the same problem when I started Kadian - basically felt like I had the flu. I called the Pharamacists who said it was because it was such a strong dosage and to try to make it at least a week, and after 4 days everything went away.

It appears to me that as horribly as he is doing it, your doctor is trying to help. The fact that he was up to giving you morphine sulfate er says that to me. Just based on what you've said he's said to you it looks like he is trying to avoid the short acting, or breakthrough pain medications. These are known to give highs and lows, and to be highly addictive. Instead he is trying to find a extended release pill that would give you the same effects without the addictive tendencies. (I guess the way the long acting pills work is they give out a slow release constantly - meaning no high, versus the short acting that slam it into your system and have it leave as quickly).

I know it doesn't help, but right now on another thread there is a discussion about the pressure that go on behind the doctors doors, and in DEA buildings down the street and such. How many doctors do TRY to help, but are just afraid to because of all the threats they get from prescribing pain medications.

You could ask your doc for a lower dosage (if their is one) of the morphine sulfate ER and give that a try. Whatever you do, do NOT break the pill in half or anything like that. Taking a extended release medication and breaking it in any way can cause a major overdose, lethal in some cases.

I know you said that it's hard to look for a new doctor and it's always scary, because you don't know if you are going to get standard stock, low grade bad stock, or for the lucky, an incredible doctor. But, if this doctor isn't working for you you should look for a new doctor. It doesn't hurt to ask for a consultation with other doctors. Just make sure that they don't specifically prescribe anything for you. They can however go over what their game plan would be. Which is what my new pain doctor did before he asked me if I would be his patient. It was pretty much "this is how I would like to do things" if thats okay with you. (I got lucky).
"When we come to the edge of the light we know, and are about to step off into the darkness of the unknown, of one thing we can be sure; either God will provide something solid to stand on... or we will be taught to fly.'"

"Cause when push comes to shove You taste what you're made of, You might bend, till you break Cause its all you can take; On your knees you look up Decide you've had enough, You get mad you get strong Wipe your hands shake it off, Then you Stand" From "Stand" by Rascal Flatts
_____________________________________________________________________________
Dx.: Polycystic Ovarian Syndrome, Ulcerlative Colitis, Chronic Inflammation of the Colon, Ruptured & Fused L4-L5-S1 w/pinched nerves, Degenerative Disc Disease, Chronic Costochondritis, Back Muscle Spasms, Asthma, Benign Tremmors (hands)


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/22/2008 12:57 PM (GMT -7)   

Thank you for your thoughts. To be honest, I do believe he was trying to help in giving me an ER and it is the lowest dose! The side effects were just so scary, I was afraid to go through it again, though I admit, the following day, I didn't take any, and I imagine it was still in my system, and my pain was definitely less. Maybe I'll have to rethink this. I had never heard of this drug and was curious if anyone here had used it. I thank you so much for your thoughts, you brought up very good points. I am used to and want easy, instant relief, but I know I felt pretty good the next day, so that just might be the effect of taking it. I am still scared of going through the side effects and putting my husband, who isn't well either through it too. But I do value your opinion.


Swallow your pride, you will not die, it's not poison.- Bob Dylan 


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 6/22/2008 8:44 PM (GMT -7)   
Denim,

After reading your post, I do feel for you. I had been given Kadian which is a 24 hour release of morphine and I can tell you , the reaction I got was awful and I felt close to death. I had this bad reaction and was awake for 24 hours as well. My muscles cramped up and continued to tighten up and nothing seemed to help. I was shaking and my heart raced as well. I never want to go through that again. I called my pain doctor and got in to see her that same day and was put on a different medication right away. Everything was made right.

My advice to you is to find another doctor. Being available on a limited basis is not acceptable.( 2 times a week? Really?) You need a doctor that is going to be there for you when you need him or her. I know it's scarey to find a new doctor but you have to try to find someone that is going to be responsive to your needs and get you on a medication that is going to work, not tell you that you can't have a medication and not put you on something that actually works for you. Remember, you are the patient and you deserve to have your pain controlled. Don't give up and don't settle for a doctor who only has half his heart in your care and well being.

Please keep posting and let us know how you are doing. I care!

Gentle Hugs,

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 6/23/2008 12:24 AM (GMT -7)   
I have to agree and I know that doesnt help you much but it looks as if he is at least attempting to help and at the same time avoid those drugs that might send a red flag to the authorities as would the hydromorp.

What you said you felt with the MS is not uncommon and it can occur with all narcotics if someone isnt use to it,simply it is that "buzz" all the folks addicted felt at one time. It sounds as though you just got too much opiate far faster then your body was use to and the reason the Doc said keep taking it as it should have gotten better after a few doses.

You didnt say what dose he started you on and it is possible a lower one would work better but getting him to write it with all the others still untaken might be difficult.

You are right finding a new Doc might be more of a pain then it is worth and you many get NO treatment whatsoever and severing the ties with the old one may make if impossible to return later.

You can however go to a specilaist for a second opinion and do NOT take any meds from him until when and if you properly discharge the other one.

I know exactly what kind of squirming pain your referring to as I have it as well during a flare and nothing helps for me. It is simply sciatica and dont let me convince you there is anything simple about it as it is horrible. Unfortunately many folks with back trouble suffer this and some with no time in between or remission.

There are other non-narcotic meds on the market that have been shown to help not with the pain but with the overall sensation and they are the cymbalta,lyrica,neurontin,just to name a few.

Maybe an internet search for meds use to treat sciatica or nerve pain will generate some material and idea's since your Doc does wait for your to treat you.

Good luck and a few things I have learned to do that help are to keep my legs really warm,apply pressure as in sitting in a chair and just putting my feet on the wall and pushing( I know sounds crazy) but there have been times I would try anything here,as well as nice long hot baths, I also have one of the hand messagers with all the little bumpy things on it and it helps the back of my legs for awhile or maybe it just takes the attention away who knows?

Best of luck to you and certainly sorry you are having such a time.
NVR
 
Bilateral knee replacements,spondylosis of L-3,4,5 and S-1, osteoarthritis,premenopausal migraines.
 
Meds: Methadone,xanax,zanaflex,maxide,prempro,K+,indocin,lexapro,neurontin(coming off) lyrica(going onto)
 
 


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/23/2008 12:35 AM (GMT -7)   

Lindaloo, thanks so much for your reply. It feels so good to have someone understand and feel validated. I couldn't believe that he never even mentioned any reactions I might have, and I think I was in a semi shock state that he refused to give me the one extra pill I requested, it was like I couldn't believe my ears. On one hand I understood that possibly a long lasting pill might be to my benefit. I did tell him it wasn't that I had been on the pill for awhile and wanted an increase, which still would have made sense, but one pill a day?? When my husband got a hold of him to say how bad I was reacting to the med and to then to tell him that it was "normal" and to continue and then never call back to follow up, was absurd. Plus the assistant never calling me back after leaving 2 messages that I was in great pain and needed her to get a hold of him and still no call was crazy. I really hate taking meds and he knows it. I want the pain controlled and honestly thought my plan wasn't a bad idea. May I ask you what is working for you? I realize we are all different, I would just like an idea. I don't care for the idea of an extended release. Again Lindaloo, thanks so much for replying. I know I have to find someone else and someone who has more diagnostic skills besides.  

Gentle hugs to you too! Thanks so much, your reply meant a lot to me. 


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/23/2008 12:59 AM (GMT -7)   
nvrthesame98, I didn't see your reply till now and thank you for your it. I did mention I was on the lowest dose. I do believe he was attempting to help, but he is a doctor and that is his job, lol, right? The med was not for me and he didn't help by all the reasons I gave. An emergency call without a follow up and having an assistant not assist, left me high and dry. I hear what you are saying and still think it is so lame with the hydromorphone. He has given my husband 3 a day w/o a problem. I didn't know what to ask for and he isn't great at giving ideas, or diagnosing, so I had been given hydro before and knew I could tolerate it,  so I thought for those times when I had extra pain, it would be a good idea. It seemed to be working ok, I was taking less of the ultram besides. I was never diagnosed with sciatica or anything, I think I mentioned that, but I always felt that it was a back problem and I think I mentioned not one doctor ever checked for nerve damage. I've had mri's but never even told about EMGs. It's been one huge frustration for almost 3 years, without answers. I don't think staying with a doctor who is unavailable is a good idea for me. I am not looking forward for searching, but this last episode was ridiculous. Thanks for all your thoughts, I really do appreciate this board and your replies. Oh, I tried lyrica, couldn't tolerate it and I am taking ultram and I believe I can't take cymbalta with it. First thing that needs to be done is to determine if it is a nerve problem, no one has even done that. Thanks for your well wishes and I wish you well also.

Swallow your pride, you will not die, it's not poison.- Bob Dylan 


nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 6/23/2008 1:35 AM (GMT -7)   
As sad as it is when we ask for specific meds or keep having trouble with alot of the things they give us as an alternative to that which we know will work they see it as drug seeking behavior. Ridiculous to think we get lumped with addicts because something works better then something else isnt it?

Many times sciatica cant be diagnosed with anything other then the described symptoms but there are times EMG's show enough to back up what we are saying about the levels of pain.

Looking for a new Doc is a good idea if yours isnt great in taking the initiative in your treatment and all I was saying is hang on to him until you find one that works with you and isnt afraid to agressively treat your pain issues as there are not alot of them out there and some treatment is better then nothing right?

Just make sure you dont let your search look like a search for meds rather then answers as that can get you into a flagged stage easily as all it takes is one of those Docs to make a report to someone,thus my reasons for saying not to take any meds from a new Doc until you have discharged your old one.

I know we shouldnt have to do things this way to get help but sadly enough its there and it isnt going to get better anytime soon.

As to why your Hubby gets more pain meds then you can get? The numbers show they treat men better for pain then women as we are supposedly better at tolerating it at higher levels then men and before this goes awry they are NOT my numbers! What a crazy notion to think we dont feel pain as much as our male counterparts? Or that they dont tolerate it as well as us? Makes me wonder if this study was done on Labor and delivery! LoL.

I wish you the best anyway and hope you find a Doc soon with more experience in this area.
NVR
 
Bilateral knee replacements,spondylosis of L-3,4,5 and S-1, osteoarthritis,premenopausal migraines.
 
Meds: Methadone,xanax,zanaflex,maxide,prempro,K+,indocin,lexapro,neurontin(coming off) lyrica(going onto)
 
 


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/23/2008 9:00 AM (GMT -7)   
nvrthesame98 said...
As sad as it is when we ask for specific meds or keep having trouble with alot of the things they give us as an alternative to that which we know will work they see it as drug seeking behavior. Ridiculous to think we get lumped with addicts because something works better then something else isnt it?

Many times sciatica cant be diagnosed with anything other then the described symptoms but there are times EMG's show enough to back up what we are saying about the levels of pain.

Looking for a new Doc is a good idea if yours isnt great in taking the initiative in your treatment and all I was saying is hang on to him until you find one that works with you and isnt afraid to agressively treat your pain issues as there are not alot of them out there and some treatment is better then nothing right?

Just make sure you dont let your search look like a search for meds rather then answers as that can get you into a flagged stage easily as all it takes is one of those Docs to make a report to someone,thus my reasons for saying not to take any meds from a new Doc until you have discharged your old one.

I know we shouldnt have to do things this way to get help but sadly enough its there and it isnt going to get better anytime soon.

As to why your Hubby gets more pain meds then you can get? The numbers show they treat men better for pain then women as we are supposedly better at tolerating it at higher levels then men and before this goes awry they are NOT my numbers! What a crazy notion to think we dont feel pain as much as our male counterparts? Or that they dont tolerate it as well as us? Makes me wonder if this study was done on Labor and delivery! LoL.

I wish you the best anyway and hope you find a Doc soon with more experience in this area.

Thanks for your input. I know what you are saying, and I am not seeking drugs, well I am right now for the pain but I would like a darn diagnosis! This doctor actually shrugged his shoulders with no clues as to my pain.
Don't you think it odd in 3 years, I have never been offered an EMG? I am just frustrated. Am I really expecting too much from a doctor? His job is to diagnosis, is it not?
I hear you also, I wouldn't go to 2 docs and get drugs. I am looking for one intelligent doctor, period. Thanks again, Bless you! I hope I find a doctor also, who takes me seriously, with respect and has diagnostic abilities.  

Swallow your pride, you will not die, it's not poison.- Bob Dylan 


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/23/2008 9:04 AM (GMT -7)   
gagabonnie said...

If your MRI does not indicate "enough" for your pain you could look at:

Myofascial Pain Syndrome

 

My MRI did not indicate "enough" for my pain levels in my neck either.

I suffered horribly, like you until diagnosed with MPS and learned how

to deal with that. Doing simple stretches made a world of difference in me.

Some one else mentioned pushing feet against the wall. That would be a

kind of stretch and that is why it works! !

So please "google" it and read.

Alot of doctors don't know about this, or ignore it. There are good therapists

out there. You could find a Doctor of Osteopathy.

Bonnie

Thank you Bonnie for your reply, I will google it. I was doing stretches, I wound up hurting more but I've also gone through periods, where I was able to walk for a distance, which always made me emotionally happy. It is so hard to go from being an avid exerciser, walker, biker to this. But thanks, I'll see what it says. Bless you.

Swallow your pride, you will not die, it's not poison.- Bob Dylan 


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 6/23/2008 10:50 AM (GMT -7)   
To answer your question, I take percocet 10/650mg every four hours for the pain. It was just taking the edge off. Then I decided to go back on lyrica. I am taking 25mg three times a day and it is working beautifully for me. I am actually out of pain for the first time in one year. But you have to remember that I have fibromyalgia and lyrica is recommended for that condition.

I hope that helps.

Gentle Hugs,

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


marthamae
Regular Member


Date Joined Jan 2008
Total Posts : 285
   Posted 6/23/2008 11:06 AM (GMT -7)   
I am a big advocate of changing doctors if your current one is not working for you. Two times a weeks...yuck! and they should return your calls. However, I also can see the whole "drug-seeking" fear, although it is ridiculous.

My dear MIL fell and broke her hip last week and when we were in the ER she needed pain meds and I swear they acted like she was an addict when they were doling out the pain meds. She is 82! I thought I had read or heard somewhere that there is a new movement toward doctors being more aggressive towards relieving people's pain appropriately and worrying less about addiction, becuase if you are a pain specialist you should be able to do things properly. Maybe I fantasized that!

When I had lower back pain and sciatica a few years ago, they did some kind of thing where they went in and put some pain meds in my spine...like an epidural. I can't remember what it was called. But it worked like a charm. I've been pain free since. I was lucky, I know.

Best wishes to you. I am so sorry you are hurting. :)

Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/23/2008 4:33 PM (GMT -7)   
marthamae said...
I am a big advocate of changing doctors if your current one is not working for you. Two times a weeks...yuck! and they should return your calls. However, I also can see the whole "drug-seeking" fear, although it is ridiculous.

My dear MIL fell and broke her hip last week and when we were in the ER she needed pain meds and I swear they acted like she was an addict when they were doling out the pain meds. She is 82! I thought I had read or heard somewhere that there is a new movement toward doctors being more aggressive towards relieving people's pain appropriately and worrying less about addiction, becuase if you are a pain specialist you should be able to do things properly. Maybe I fantasized that!

When I had lower back pain and sciatica a few years ago, they did some kind of thing where they went in and put some pain meds in my spine...like an epidural. I can't remember what it was called. But it worked like a charm. I've been pain free since. I was lucky, I know.

Best wishes to you. I am so sorry you are hurting. :)
Wow, the epidural took away the pain for good, I would say that is a wonderful blessing, good for you!
The thing with changing docs, and I keep waying out the pros and cons is honestly, I don't know what to do, lol. I truely hate pain meds but I took what he prescribed and it did get me out of the pain. I just feel so limited in the choosing of doctors around here. There are only so many and they are all in groups. Personally I have a feeling many aren't good. Not to return calls is outrageous, I agree. I wish you remembered what they did to your spine. Now I have to tell them I need a neuro for an EMG--something they should have done. In the past, I would be the one making the calls to see if they did accept my insurance, etc., they can't even be trusted to do this right. Oh guess what, his assistant just called, a weekend later. Thanks for your input and kind wishes. I sincerely appreciate it.  

Swallow your pride, you will not die, it's not poison.- Bob Dylan 


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/23/2008 4:37 PM (GMT -7)   
Lindaloo said...
To answer your question, I take percocet 10/650mg every four hours for the pain. It was just taking the edge off. Then I decided to go back on lyrica. I am taking 25mg three times a day and it is working beautifully for me. I am actually out of pain for the first time in one year. But you have to remember that I have fibromyalgia and lyrica is recommended for that condition.

I hope that helps.

Gentle Hugs,

Lindaloo

Hi Lindaloo, that is wonderful that the lyrica is really working for you. My husband was told he has fibro but our insurance doesn't cover it. May I ask you, did you have bad side effects or gain weight?
Swallow your pride, you will not die, it's not poison.- Bob Dylan 


nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 6/24/2008 3:23 AM (GMT -7)   
Please dont think I was even thinking you were drug seeking! I just have worked with these fine folks for so many years and then have had to deal with them on a pain issues for 10 more of those years and the things I saw and heard from some of them behind patients backs about their "drug seeking behavior" was well jsut rude and totally uncalled for in most instances.

It is horrible that we have to fear retribution from the law as well as the Doctors to get what they took an oath to give. They swore to try if humanly possible to alleviate human suffering for Gods sake. What more do they want from us as many of suffer silently for so long and far too many of us dont seek the help we need and deserve until we are at the point of ending the pain even if it means ending our lives! How could anyone NOT take that seriously?

You also deserve to know whats causing that much pain but getting any of them to help you find answers is like pulling teeth and I dont know if it is caused by the over booking of patients as many of the Docs that do treat pain have a load that is heavy to bear as word of mouth gets him many many referrals and requests for new appointments.

I know I see here over and over the folks who talk about their Docs being so busy and dont call back and having to wait for hours to be seen and months to get an appointment and if this is the case then you can bet this Doc is trying to help as many folks as he can but sadly it makes it difficult for those patients that cant get thru to him or cant get an appointment fast if need be.

I dont know if this is the situation with your Doc or not or if he is just one of those that is slack at his job as those are in any business and if this is the case I would definately be on the look out for a better one.

It matters also about the insurance coverage or lack of it that you have as this is always going to be a thorn in the side and many Docs are encourage NOT to use expensive testing until all alternative resources have been exhausted. Sad but oh so true. If you have state aid especially your going to have Docs who might not be agressively using the tests offered for a accurate diagnosis as he is thining about the cost tot he tax payers when they should be remembering that most us were a tax payer for many a year and never used any resources we paid into until now.

There could be many cuases as to why he is doing what he is doing but in the end none of them matters as you want answers and you deserve answers so I would get them if I were you.

I am not sure if you said what kind of Doc he is whether he is a specialist or a PCP but if he is your PCP you might find yourself needing a referral from him to see a specialist and this might prove to be difficult at best.

Almost all of the specialists like pain management require a referral from your treating Doc as well as a copy of your medical records. I know my Neuro and ortho both required referrals so that might also be a tight one to get if he thinks he is doing a good job and your looking for more meds versus answers. If there is a way to make this visiting another Doc his idea I would try to wean it out of him.
NVR
 
Bilateral knee replacements,spondylosis of L-3,4,5 and S-1, osteoarthritis,premenopausal migraines.
 
Meds: Methadone,xanax,zanaflex,maxide,prempro,K+,indocin,lexapro,neurontin(coming off) lyrica(going onto)
 
 


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/25/2008 1:49 PM (GMT -7)   

Oh no, I never thought that you thought I was drug seeking. I am trying to remain calm. But it also happens to be that my husband is in horrific pain himself. The doctor I have been referring to is our PCP. He told my husband it seems like he has fibro. Of course I know, he should have an expert declare it. I could not believe how much pain he was in this morning. This doctor is stingy giving out meds "reminding" us that pills are addicting--no kidding. Like we like this!! We were perfectly healthy till we moved to Arizona. Sometimes we think it's the extra dry climate. It is just very odd that the both of us are so messed up and are given a hard time when asking for meds just to relieve the pain. If this doctor to could feel our pain, do you think he would care about being addicted or getting out of the pain?? I am just so frustrated. Then to top it off, I mentioned I once again had to ask for a referral for an EMG. I believe I mentioned how I am diagnosing more than him, (which I would bet many have ran into to ). Not one of the doctors I saw in 3 years told me about it, I found out through my brother---so he writes me a referral, the girl at the office said she'll take care of everything and if I don't hear from the other doctor to call myself. Turns out, she never did a thing! And to boot, the doctor doesn't even accept my insurance. When I spoke to my doctor's office they told me that I had to find a doctor to do the EMG. And I'm thinking, so what exactly is THEIR job? What a mess. It's bad enough being in pain, but for these people to make everything harder for you is terrible.

The doctor's assistant that I called 2xs on Friday, called me back on Monday 4:45--of course, when I called back she didn't answer. My husband hopefully will see this doctor tomorrow--I am not going, the tension makes my pain worse, and hopefully will talk to him and let him know about everything. I think we both need an extended release but also a quick acting pill. We don't want to have to take any of these, but without them, we can not function. Why this is so hard to understand I don't know. Our last doctor would have given us anything. I turned down many drugs but boy do I wish he was still here, instead of wrestling for pain pills.

Sorry for going on, I am just so disgusted. My poor husband went from daily horrific panic attacks to fibro or whatever it is causing terrible pain and I have been in pain almost 3 years that just varies in it's level of pain. Thanks for listening and thank you everyone for your support.  

  


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 6/26/2008 12:08 PM (GMT -7)   
I am getting so mad each time I hear about your doctor and his pious opinions on pain medication. Yes, they can be addicting. What happened to relieving suffering that he was supposed to learn about in medical school?? I personally think you need a pain management doctor for your condition. There is no reason why you can't be on a extended release type medication (if that's what works for you) and another medication for breakthrough pain. My doctor did that with me when I was trying the Morphine and the Oxycontin. They really didn't work that well for me so I went back to my percocet after about two months of trying other things, and don't you know the percocet started working again. Unfortunately, it was not long until it only took the edge off the pain and I thought to try the lyrica again.

To answer your question, I had headaches from the lyrica for the first five days I was on it, but they abated after that. No weight gain or change in appetite so far. I was on it before for a year and I didn't notice any weight gain then from the lyrica either.

Anyway, I think you are being treated like a second class citizen with this doctor and you need to get away from him. I don't like to hear about you suffering and not getting proper treatment because of your doctor's personal biases. That's no good.

I look forward to hearing from you soon that you have gotten relief and that life is better.

My warmest hugs to you. I will pray for you and success in your efforts to relieve your pain, Denim.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 6/27/2008 3:03 PM (GMT -7)   

Lindaloo, thank you so much for your concern. It is comforting to have someone understand. I am still in pain, even after taking this extended release and a few ultram. I am trying to get a hold of a doctor for an EMG--is that the norm? that I, the patient should be calling?? seriously, why have a referral dept.? No one picked up the phone at this other office for the EMG--which isn't a good sign and so far no call back and it wasn't even after hours. I am so disgusted and disheartened. My husband did go yesterday and all of a sudden this doctor thinks it's something else with him. With me he has NO ideas!! I was hoping to see a different neuro for hopefully not just the EMG but ideas. I can't accept that there is no answer to what I have and have to worry about, do I even have enough pain meds left, etc--all that goes with this. I truely appreciate your concern, I think I need a break through pill also, not just the ultram and something that works. There really isn't a great choice of doctors here, if I knew of someone I would go. I know I can take a chance but all of this should not be so hard. When I hear people speak of doctors that flat out won't give pain pills I really can't believe it. How can they do that??? I never heard of such a thing. That is part of why I'm not running out this guy's door yet--I am afraid of getting nothing. He has been good with giving referrals if I ask. It does blow my mind that he didn't even know that the doctor he referred me to wasn't with my insurance and he couldn't recommend any neurologist. It makes me think, what type of people is he seeing? not one needs to a neurologist?? So weird. I'll be in touch. Thanks again for your care. God bless you!!   


Swallow your pride, you will not die, it's not poison.- Bob Dylan 

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