Thank you for your thoughts. To be honest, I do believe he was trying to help in giving me an ER and it is the lowest dose! The side effects were just so scary, I was afraid to go through it again, though I admit, the following day, I didn't take any, and I imagine it was still in my system, and my pain was definitely less. Maybe I'll have to rethink this. I had never heard of this drug and was curious if anyone here had used it. I thank you so much for your thoughts, you brought up very good points. I am used to and want easy, instant relief, but I know I felt pretty good the next day, so that just might be the effect of taking it. I am still scared of going through the side effects and putting my husband, who isn't well either through it too. But I do value your opinion.
Lindaloo, thanks so much for your reply. It feels so good to have someone understand and feel validated. I couldn't believe that he never even mentioned any reactions I might have, and I think I was in a semi shock state that he refused to give me the one extra pill I requested, it was like I couldn't believe my ears. On one hand I understood that possibly a long lasting pill might be to my benefit. I did tell him it wasn't that I had been on the pill for awhile and wanted an increase, which still would have made sense, but one pill a day?? When my husband got a hold of him to say how bad I was reacting to the med and to then to tell him that it was "normal" and to continue and then never call back to follow up, was absurd. Plus the assistant never calling me back after leaving 2 messages that I was in great pain and needed her to get a hold of him and still no call was crazy. I really hate taking meds and he knows it. I want the pain controlled and honestly thought my plan wasn't a bad idea. May I ask you what is working for you? I realize we are all different, I would just like an idea. I don't care for the idea of an extended release. Again Lindaloo, thanks so much for replying. I know I have to find someone else and someone who has more diagnostic skills besides.
Gentle hugs to you too! Thanks so much, your reply meant a lot to me.
If your MRI does not indicate "enough" for your pain you could look at:
Myofascial Pain Syndrome
My MRI did not indicate "enough" for my pain levels in my neck either.
I suffered horribly, like you until diagnosed with MPS and learned how
to deal with that. Doing simple stretches made a world of difference in me.
Some one else mentioned pushing feet against the wall. That would be a
kind of stretch and that is why it works! !
So please "google" it and read.
Alot of doctors don't know about this, or ignore it. There are good therapists
out there. You could find a Doctor of Osteopathy.
Oh no, I never thought that you thought I was drug seeking. I am trying to remain calm. But it also happens to be that my husband is in horrific pain himself. The doctor I have been referring to is our PCP. He told my husband it seems like he has fibro. Of course I know, he should have an expert declare it. I could not believe how much pain he was in this morning. This doctor is stingy giving out meds "reminding" us that pills are addicting--no kidding. Like we like this!! We were perfectly healthy till we moved to Arizona. Sometimes we think it's the extra dry climate. It is just very odd that the both of us are so messed up and are given a hard time when asking for meds just to relieve the pain. If this doctor to could feel our pain, do you think he would care about being addicted or getting out of the pain?? I am just so frustrated. Then to top it off, I mentioned I once again had to ask for a referral for an EMG. I believe I mentioned how I am diagnosing more than him, (which I would bet many have ran into to ). Not one of the doctors I saw in 3 years told me about it, I found out through my brother---so he writes me a referral, the girl at the office said she'll take care of everything and if I don't hear from the other doctor to call myself. Turns out, she never did a thing! And to boot, the doctor doesn't even accept my insurance. When I spoke to my doctor's office they told me that I had to find a doctor to do the EMG. And I'm thinking, so what exactly is THEIR job? What a mess. It's bad enough being in pain, but for these people to make everything harder for you is terrible.
The doctor's assistant that I called 2xs on Friday, called me back on Monday 4:45--of course, when I called back she didn't answer. My husband hopefully will see this doctor tomorrow--I am not going, the tension makes my pain worse, and hopefully will talk to him and let him know about everything. I think we both need an extended release but also a quick acting pill. We don't want to have to take any of these, but without them, we can not function. Why this is so hard to understand I don't know. Our last doctor would have given us anything. I turned down many drugs but boy do I wish he was still here, instead of wrestling for pain pills.
Sorry for going on, I am just so disgusted. My poor husband went from daily horrific panic attacks to fibro or whatever it is causing terrible pain and I have been in pain almost 3 years that just varies in it's level of pain. Thanks for listening and thank you everyone for your support.
Lindaloo, thank you so much for your concern. It is comforting to have someone understand. I am still in pain, even after taking this extended release and a few ultram. I am trying to get a hold of a doctor for an EMG--is that the norm? that I, the patient should be calling?? seriously, why have a referral dept.? No one picked up the phone at this other office for the EMG--which isn't a good sign and so far no call back and it wasn't even after hours. I am so disgusted and disheartened. My husband did go yesterday and all of a sudden this doctor thinks it's something else with him. With me he has NO ideas!! I was hoping to see a different neuro for hopefully not just the EMG but ideas. I can't accept that there is no answer to what I have and have to worry about, do I even have enough pain meds left, etc--all that goes with this. I truely appreciate your concern, I think I need a break through pill also, not just the ultram and something that works. There really isn't a great choice of doctors here, if I knew of someone I would go. I know I can take a chance but all of this should not be so hard. When I hear people speak of doctors that flat out won't give pain pills I really can't believe it. How can they do that??? I never heard of such a thing. That is part of why I'm not running out this guy's door yet--I am afraid of getting nothing. He has been good with giving referrals if I ask. It does blow my mind that he didn't even know that the doctor he referred me to wasn't with my insurance and he couldn't recommend any neurologist. It makes me think, what type of people is he seeing? not one needs to a neurologist?? So weird. I'll be in touch. Thanks again for your care. God bless you!!